Need information

[Guest guest]

LPA district and chapter information can be found at:

http://www.lpaonline.org/lpa_districts.html

Dan Kennedy

Internet services coordinator

Little People of America, Inc.

http://www.lpaonline.org

=======================================

Date: Tue, 17 Jul 2001 14:20:51 EDT

From: LivinbyFaith@...

Subject: Need Information

Hello...

I'm from Arizona, I just moved here in the last year from CA. and I was

wondering where the Arizona LPA chapter is located. If anyone can help me, I

would sure appreciate it.

Thank You...

Barbara

[Guest guest]

hi!

you might want to email Tripp since she has done the whole program and

is cured

ktripp@...

jen

need information

> Hello everyone: I just started on SF722 this week, however I am a

> bit baffled on how long to take this. I went to the site I

> purchased it from and it is not clear. I know candida can build a

> resistance to antifungals . SF722 is to be taken for at least 6

> weeks. Does anyone know if that is too long to be on this med, and

> how often I should be rotating antifugal. Could someone share

> there treatment schedule with me?

>

>

>

>

[Guest guest]

Hi Mommy...

I don't think there's anything published in terms of costs of

endoscopic v. thoracotomy surgery for scoliosis. However, I came up

with a couple of references with a Google search for spine surgery in

general:

http://www.spine-dr.com/site/surgery/edge_article4.html

http://www.spinecenter.com/Brochures/spinal_brochure.asp

http://www.spinecenter.com/Brochures/ptd_brochure.asp

http://www.maitrise-orthop.com/corpusmaitri/orthopaedic/mo81_huec_husson/texte_u\

s.shtml

Regards,

>

>

> Hello everyone,

>

> My name is , and I live in Corpus Christi Texas. My husband

> had anterior and posterior spinal fusion in 1996 for scoliosis and

> kyphosis. I am doing a research paper on scoliosis and the treatments

> available. I have had really good luck finding information on the

> internet. But, I need some more information if anyone can help. I

> need to know how the cost of traditional surgery costs, how much

> endoscopic surgery costs, how many hours each surgery costs, and how

> long the recovery time is for each. Please let me know

[Guest guest]

You will learn a lot about it just by reading posts on this site. However, if

you have specific questions, please post them and we can all give some helpful

advise or at least tell you about our own experiences on the topic.

HAYDEE TORRES <haydeet@...> wrote: This is the first time I

ever join a support group for Aspergers . My son is 5 yrs old and I only have 1

yr Knowing of his diagnosis. I am in need to know alot about how to help my son.

Thank You.

[Guest guest]

Hi and welcome,

If you have an Aspen (stands for Asperger education network) group in your

area, you should become a member.

In my area they meet once a month (I just joined). And they also have

conferences

during the year, with lots of information. I wish I had joined sooner.

Good luck to you.

Sharon

HAYDEE TORRES <haydeet@...> wrote:

This is the first time I ever join a support group for Aspergers . My

son is 5 yrs old and I only have 1 yr Knowing of his diagnosis. I am in need to

know alot about how to help my son.

Thank You.

[Guest guest]

Could you tell us a bit more about him? In school/preschool? Good school?

Family support? Friend support?

Happy kid? What's he in to?

Robin

HAYDEE TORRES <haydeet@...> wrote:

This is the first time I ever join a support group for Aspergers . My

son is 5 yrs old and I only have 1 yr Knowing of his diagnosis. I am in need to

know alot about how to help my son.

Thank You.

[Guest guest]

Not sure if this applys to my kid but at the age of 18 months I was told he had

developmental delays and so I put him into the Early Steps program for children

with delays. He also goes to Speech and Occupational Therapy at United Cerebral

Palsy of Acheive Tampa Bay.. At the age of 3 Early Steps in the State of Florida

drops off and then the Public School System picks up. The Program Austin is in

now is called EELP which is Pre Kindergarten Exceptional Education. It's

especially for children with developmental delays. Here is there website

http://www1.sdhc.k12.fl.us/~early.child/ece.htm

This is for the State of Florida. Each State should have them. I was told some

rural areas may not have these programs. But my family lives in a small town

Muncie, Indiana and they have the programs there I checked. So look on the web

for educational needs in your state. If anyone needs help I am a wiz at finding

information. Hope this helps. By the way my childs name is Austin and he is 3

He was diagnosed last week with Aspergers.I have been told his future is bright

and that it's all because I got him into these free state programs that have

helped him.

Ada M. Tickle

Lemke <jrisjs@...> wrote:

Could you tell us a bit more about him? In school/preschool? Good

school? Family support? Friend support?

Happy kid? What's he in to?

Robin

HAYDEE TORRES <haydeet@...> wrote:

This is the first time I ever join a support group for Aspergers . My son is 5

yrs old and I only have 1 yr Knowing of his diagnosis. I am in need to know alot

about how to help my son.

Thank You.

[Guest guest]

What other AB did you guys use besides min?

From: Sltfain@...

Sent: Saturday, April 24, 2010 9:15 PM

rheumatic

Subject: Re: rheumatic my bad

Cookie, a quick answer to your question about herx is that I herx ONE month

almost to the day after i have changed something. Some people, as you know,

begin to herx immediately or a week or two later, but I have always been just

almost true to the date. Also, we continue to do an RA factor but mine has

always been negative. My sister in Oklahoma who has scleroderna , too, tested

positive for the RA. I count my blessings on that one. My hands are absolutely

straight except for a family genetic trait. Those straightening out - even

though they were never completely curled in, were the last things to change.

Also, as far as anti-inflams, part of my cleanup from scleroderma was I lost a

kidney and had heart ablation. I have always been alleergic to ALL pain meds so

counted on Advil, Tylinol etc to get me through problems. After the kidney

removal, I have been told I may not have ANTHING other than tylinol. That works

for me,

rheumatic my bad

Hi Everyone,

This is kind of an update...kind of embarrassing because I should have known

better.

Before Christmas of 2008 I started to forget taking my 200mgm 2 times a day

minocin. I have been on minocin since October 1997. By spring of 2009 I was

taking it here and there. By summer I stopped altogether. I had hardly any

pain(I have rheumatoid arthritis and fibro) and no farther deformaties

(which are very small to say the least).

Fall of 2009 I started having back aches.not spinal but pretty severe. I

also had 2 toes that were red and ached a lot. I attributed this to

everything except rheumatoid. Christmas was bad with the back ache and the

toes hurt a lot but I said it was from baking and cooking and there is the

fibro. By January my knuckles on left hand were achy and swollen but on an

irregular basis so hey it was just fibro.

In March hubby and I put in a new kitchen and I pushed and pulled a lot. I

also used my arms to take out and put things in the new cabinets. Nuckles

hurt back hurt. Then BOTH rotator cuffs and muscles in the arms hurt so bad

I could not move them. It felt like something I had in my earlier days of

rheumatoid. Called my doc and had a rheumatoid factor done. Since about

year 2000 all my tests had been negative. I did not even see a

rheumatologist in the last 8 years. The rheumatoid factor was 95! This is

what it was in 1997 when I was first diagnosed! The CRP was 4.2. The week

before testing I started back on Minocin. slowly. Talked to my doctor and he

refused to let me do my own IV's again (hubby tied the tourniquet and held

the skin and I inserted a needle..being a nurse I knew how to set it up and

insert the needles). He said insurance( mumble- mumble something). Ok so I

said how about oral? Yes I could and even tho IM shots did nothing for me I

had to try. (have an app in June and if I am not better I will convince him

to let me do IV's)

I am doing physical therapy for the arms..about 3 weeks now. They are better

but still pain at night sometimes. Left knuckles still swelling at times.

Last week the right hand nuckles started hurting. Right ankle swollen now

like in 1997. Top of shoulders ache bad. I have mitro valve prolapsed and

have what feels like skipped beats and they started with a vengeance.

OMGoodness what is going on here.I was freaking out. About 6 weeks on

Minocin and 5 on clindy oral and I think I am having a herx!!!

I don't know how long I had a increased rheumatoid factor. I had aches and

what I called my " normal pain " ..so did I have an increase for 3 years.2

years? 6 months? I will never go a year without having a RF done again. I

won't chalk up pain to daily living. I don't know if anything bad happened

to those knuckles while I was off minocin or what else happened to my body.

Thanks for listening and get a RF done.

Hugs

cooky