Re: JARISCH HERXHEIMER REACTION

September 14, 2009

It's most likely the start of a Herxheimer reaction. Although this makes one

feel sick, it is a good sign that the microorganisms are fighting back and

emitting their toxic substance that happens when they are attacked. Also,

starting the zith & Minocin at the same time may not have been the wise thing to

do at first. I didn't add zith till I was almost in my 3rd. year of Minocin.

You don't know if the nausea is due to the zith or the Minocin. So, for the

start stick with one antibiotic at a time. Remember, diseases of the Rheumatic

kind that attack the immune system are difficult to kill because the

microorganism are very resistant. Your wife will be sicker as she gets better.

You both have to be very strong. These microorganisms are in every cell and

every organ of the body. No place in the body escapes. So, expect reactions in

every system. The heart, lungs, brain, kidneys, pancreas, liver, blood, skin,

etc. can be affected.

Also, behavior changes. The patient is very prone to psychological disorders

such as mood swings, forgetfulness, unusual sleepiness or insomnia, muscular

aches & pains, weakness, leg cramping, anemia. The list goes on. These

diseases have been called a one step forward and two steps backward roller

coaster ride. So, do not expect to feel fantastic overnight. You will need

lots of patience because when you start feeling better, it will not be unusual

to suddenly get sick again. This is the course of the healing. Some have it

harder than others. Just keep yourselves focused on getting healthy again. It

will happen if you stick with it. You have a long ride ahead of you. Yes, read

the books by Scammell. Take care, Best to you, Dolores & Mike

From: EAN_29209 <enavarro1@...>

Subject: rheumatic JARISCH HERXHEIMER REACTION

rheumatic

Date: Monday, September 14, 2009, 8:41 PM

Ok folks, had a sudden " flare " of nausea this evening. She started last

Thursday evening with her first dose of Azith and first dose of Mino on Friday.

Fine over the weekend. Second dose of Mino today (Mon.) 50 mg. Doc had her start

at 50 for first three doses (1st week) and is to start at 100 on second week.

She has no fever but just nausea and flu-like fatigue. I saw on several other

sites where it was stated to just treat the symptoms and wait it out. True?

What's been you all's experience?

Rick

September 15, 2009

Rick, this nausea could be a symptom of a flu virus that seems to be making

the rounds right now rather than a Jarisch Herxheimer reaction. If she is

still having a problem you might want to get her some good organic aloe vera

juice to settle things down. Lily of the Desert is usually available at a

good health food store. Aloe vera has many properties. It is an

anti-inflammatory, an antioxidant and free radical scavenger, an immune

modulator and an anti- bacterial and anti-viral.

's journey back to health will most likely not be a smooth ride, but

knowing this beforehand is half the battle. Her journey will be unique to

her. For me, I got worse for over a year, but I was convinced I was on the

right path and that gave me the determination to tough it out. There will

be flares now and then, but as treatment progresses, each flare should be

less intense and be spaced farther apart until remission is reached. There

are other people on this list who will share their experiences with you.

If you haven't done so already, I suggest you print off a copy of the FAQ on

www.rheumatic.org to use as a guide to this therapy.

Ethel

rheumatic JARISCH HERXHEIMER REACTION

> Ok folks, had a sudden " flare " of nausea this evening. She started

> last Thursday evening with her first dose of Azith and first dose of Mino

> on Friday. Fine over the weekend. Second dose of Mino today (Mon.) 50 mg.

> Doc had her start at 50 for first three doses (1st week) and is to start

> at 100 on second week. She has no fever but just nausea and flu-like

> fatigue. I saw on several other sites where it was stated to just treat

> the symptoms and wait it out. True? What's been you all's experience?

>

> Rick

>

> ------------------------------------

>

> To unsubscribe, email: rheumatic-unsubscribe@...! Groups

> Links

>

September 15, 2009

I agree- she could have a virus. Trust me, it takes a few weeks to a few months

to really see a difference on the Minocin. I have been on Minocin for over a

year and it has had an enormous positive effect on my reactive arthritis. I only

suffer now when the NY winter weather arrives, (and I'm dreading that). Each

person responds differently-my body responded to the Minocin after two weeks,

when I first started using it.. But, I also had to go off of the Minocin at the

beginning of the summer in order to take another antibiotic, and within two

weeks, I was so lethargic and so much in pain that I thought I would die. Then,

it took 6 weeks to get the positive effects again, once I went back on it. You

just don't know how long it'll take to kick in, but you must be patient. It

works. Good Luck.

Mona

rheumatic JARISCH HERXHEIMER REACTION

> Ok folks, had a sudden " flare " of nausea this evening. She started

> last Thursday evening with her first dose of Azith and first dose of Mino

> on Friday. Fine over the weekend. Second dose of Mino today (Mon.) 50 mg.

> Doc had her start at 50 for first three doses (1st week) and is to start

> at 100 on second week. She has no fever but just nausea and flu-like

> fatigue. I saw on several other sites where it was stated to just treat

> the symptoms and wait it out. True? What's been you all's experience?

>

> Rick

>

> ------------------------------------

>

> To unsubscribe, email: rheumatic-unsubscribe@...! Groups

> Links

>

September 15, 2009

Thanks Ethel. I am going to go out this morning and see if I can get the aloe

vera you mentioned. It didn't occur to me until last night that we have

absolutely no idea what to expect if a herx does occur. Or even if it is one.

I'm " pretty " sure that this was not a flu problem as it only involved nausea and

diarrhea but no fever or body aches. But you're right ... we have no way of

knwing. Also, it started around 8 pm last night and was overwhelming in nature.

She just instantly felt bad and then started with the nausea (with the diarrhea

occuring only a couple of times). These bouts occured in diminishing frequency

until around 4 am. Then it just stopped. This morning she is fine. She ate

breakfast at 9 am and we will see how it goes.

So, is there a guide, article or book that we could get that discribes the

specifics of a herx and how to even identify a flare as being one? I am going to

call the doctor this a.m. to let him know what happened and ask for his guidance

but we already know that he doesn't care. So since he's just our " pusher " it

would be nice to have another source in hand to go by. It's a pretty helpless

feeling right about now that I am sure you and all the others have gone through.

Rick

>

> Rick, this nausea could be a symptom of a flu virus that seems to be making

> the rounds right now rather than a Jarisch Herxheimer reaction. If she is

> still having a problem you might want to get her some good organic aloe vera

> juice to settle things down. Lily of the Desert is usually available at a

> good health food store. Aloe vera has many properties. It is an

> anti-inflammatory, an antioxidant and free radical scavenger, an immune

> modulator and an anti- bacterial and anti-viral.

>

> 's journey back to health will most likely not be a smooth ride, but

> knowing this beforehand is half the battle. Her journey will be unique to

> her. For me, I got worse for over a year, but I was convinced I was on the

> right path and that gave me the determination to tough it out. There will

> be flares now and then, but as treatment progresses, each flare should be

> less intense and be spaced farther apart until remission is reached. There

> are other people on this list who will share their experiences with you.

>

> If you haven't done so already, I suggest you print off a copy of the FAQ on

> www.rheumatic.org to use as a guide to this therapy.

>

> Ethel

>

> rheumatic JARISCH HERXHEIMER REACTION

>

> > Ok folks, had a sudden " flare " of nausea this evening. She started

> > last Thursday evening with her first dose of Azith and first dose of Mino

> > on Friday. Fine over the weekend. Second dose of Mino today (Mon.) 50 mg.

> > Doc had her start at 50 for first three doses (1st week) and is to start

> > at 100 on second week. She has no fever but just nausea and flu-like

> > fatigue. I saw on several other sites where it was stated to just treat

> > the symptoms and wait it out. True? What's been you all's experience?

> >

> > Rick

> >

> > ------------------------------------

> >

> > To unsubscribe, email: rheumatic-unsubscribe@...! Groups

> > Links

> >

>

September 15, 2009

Thanks Mona. I guess that only having taken one dose of azith and two of the

mino probably isn't long enough to have a reaction yet. Sure would help to have

some kind of guide, huh?

Rick

>

> I agree- she could have a virus. Trust me, it takes a few weeks to a few

months to really see a difference on the Minocin. I have been on Minocin for

over a year and it has had an enormous positive effect on my reactive arthritis.

I only suffer now when the NY winter weather arrives, (and I'm dreading that).

Each person responds differently-my body responded to the Minocin after two

weeks, when I first started using it.. But, I also had to go off of the Minocin

at the beginning of the summer in order to take another antibiotic, and within

two weeks, I was so lethargic and so much in pain that I thought I would die.

Then, it took 6 weeks to get the positive effects again, once I went back on it.

You just don't know how long it'll take to kick in, but you must be patient. It

works. Good Luck.

> Mona

> rheumatic JARISCH HERXHEIMER REACTION

>

> > Ok folks, had a sudden " flare " of nausea this evening. She started

> > last Thursday evening with her first dose of Azith and first dose of Mino

> > on Friday. Fine over the weekend. Second dose of Mino today (Mon.) 50 mg.

> > Doc had her start at 50 for first three doses (1st week) and is to start

> > at 100 on second week. She has no fever but just nausea and flu-like

> > fatigue. I saw on several other sites where it was stated to just treat

> > the symptoms and wait it out. True? What's been you all's experience?

> >

> > Rick

> >

> > ------------------------------------

> >

> > To unsubscribe, email: rheumatic-unsubscribe@...! Groups

> > Links

> >

>

September 15, 2009

You're 100% correct. But you just have to have a lot of hope and faith in the

Minocin, and be thankful that now there are options for us rheumatics- and that

this AB therapy works a lot better for most people than what originally got

prescribed.

Mona

rheumatic JARISCH HERXHEIMER REACTION

>

> > Ok folks, had a sudden " flare " of nausea this evening. She started

> > last Thursday evening with her first dose of Azith and first dose of Mino

> > on Friday. Fine over the weekend. Second dose of Mino today (Mon.) 50 mg.

> > Doc had her start at 50 for first three doses (1st week) and is to start

> > at 100 on second week. She has no fever but just nausea and flu-like

> > fatigue. I saw on several other sites where it was stated to just treat

> > the symptoms and wait it out. True? What's been you all's experience?

> >

> > Rick

> >

> > ------------------------------------

> >

> > To unsubscribe, email: rheumatic-unsubscribe@...! Groups

> > Links

> >

>

September 15, 2009

Whatever it was, I am sure glad it was gone by morning and that you ate a good

breakfast. A virus doesn't disappear overnight and yes, it would seem that it

is too early for a herxheimer. However, you may just have had a reaction to

some food or to the combo of antibiotics. I think one antibiotic at a time is

best. That way you can figure out what you may be sensitive to. Some people

are allergic to Penicillin and some are not. We are all individuals and react

differently. You will have to experiment and get to know your own body

reactions. Sorry, there is no guide. But print up the " Most Frequently Asked

Questions " Faq. It is the nearest thin we have as a guide. It will answer most

of your questions. Since we all are different, you may get many different

answers. You need to do some reading. Like I said in my last e:mail, Getting

better will be a full time job for the both of you. But, the rewards are

great! Stay focused

on that. The best to you, Dolores & Mike

From: Mona Goldstein <spellers@...>

Subject: Re: rheumatic Re: JARISCH HERXHEIMER REACTION

rheumatic

Date: Tuesday, September 15, 2009, 11:17 AM

You're 100% correct. But you just have to have a lot of hope and faith in the

Minocin, and be thankful that now there are options for us rheumatics- and that

this AB therapy works a lot better for most people than what originally got

prescribed.

Mona

rheumatic JARISCH HERXHEIMER REACTION

>

> > Ok folks, had a sudden " flare " of nausea this evening. She started

> > last Thursday evening with her first dose of Azith and first dose of Mino

> > on Friday. Fine over the weekend. Second dose of Mino today (Mon.) 50 mg.

> > Doc had her start at 50 for first three doses (1st week) and is to start

> > at 100 on second week. She has no fever but just nausea and flu-like

> > fatigue. I saw on several other sites where it was stated to just treat

> > the symptoms and wait it out. True? What's been you all's experience?

> >

> > Rick

> >

> > ------------ --------- --------- ------

> >

> > To unsubscribe, email: rheumatic-unsubscri be@...! Groups

> > Links

> >

>

September 15, 2009

with these symptoms, I would do liver tests.

EMAILING FOR THE GREATER GOOD

Join me

rheumatic

From: enavarro1@...

Date: Tue, 15 Sep 2009 14:55:09 +0000

Subject: rheumatic Re: JARISCH HERXHEIMER REACTION