Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Hang in there. The sickness you're feeling is a good thing---it's a lot of bugs dying, and making you sick as you shuffle them out of your system. Strengthen your system as much as possible through diet and supplements; take hot baths, maybe with epsom salts; The antibiotic protocol is the only verified source of remission we have for this disease---and it's sometimes a long haul. It took your body a long time to get this unbalanced; give it time to fight the invaders.....keep asking questions and asking for help here. DA On Mar 10, 2009, at 9:48 AM, musherkim wrote: > Hi, I am 3 weeks out now with IV antibiotic tx and still sick.I have > bad chills, nausia, vomiting and the " d " 's any suggestions to help > make this easier? Or does is just need to run its course? And is > this the norm? thanks for any info. > Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 Kim, notify the doctor who has ordered these IVs and tell him your symptoms - immediately. What antibiotic are you taking IV? Ethel rheumatic antibiotic tx > Hi, I am 3 weeks out now with IV antibiotic tx and still sick.I have bad > chills, nausia, vomiting and the " d " 's any suggestions to help make this > easier? Or does is just need to run its course? And is this the norm? > thanks for any info. > Kim > > > > ------------------------------------ > > To unsubscribe, email: rheumatic-unsubscribe@...! Groups > Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 > > > Hi, I am 3 weeks out now with IV antibiotic tx and still sick.I have > > bad chills, nausia, vomiting and the " d " 's any suggestions to help > > make this easier? Or does is just need to run its course? And is > > this the norm? thanks for any info. > > Kim > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 10, 2009 Report Share Posted March 10, 2009 >Ethel, Oh he knows. I had Clindimycin 900mg 2 x day IV for 5 days with overlap of 100 mg Minocycline M/W/F (I am only on the orals now)Its just been really rough. I have been off the IV since about 3 weeks now. Thanks, Kim > Kim, notify the doctor who has ordered these IVs and tell him your > symptoms - immediately. > > What antibiotic are you taking IV? > > Ethel > > rheumatic antibiotic tx > > > > Hi, I am 3 weeks out now with IV antibiotic tx and still sick.I have bad > > chills, nausia, vomiting and the " d " 's any suggestions to help make this > > easier? Or does is just need to run its course? And is this the norm? > > thanks for any info. > > Kim > > > > > > > > ------------------------------------ > > > > To unsubscribe, email: rheumatic-unsubscribe@...! Groups > > Links > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Leah, I read your response to Kim, and I am so pleased to hear that you are doing lots better. Dr. K put me also on Minocin brand but with my insurance I pay less. Traveled to California to see our new grandson just recently and did a lot of visiting with relatives. Was glad to get back home to sleep in my own bed. We stayed in a spa in Desert Hot Springs, CA and that was really great for my Dermatomyositis. Still having some problems with my back, but eventually it will get better. My next appointment with Dr. K is not till June now. Take care, let me hear from you again. Eva From: LEAH ROYER <dixieglitzie@...> Subject: rheumatic antibiotic tx rheumatic Date: Wednesday, March 11, 2009, 8:16 AM Hi Kim, I started treatment in June of 08. I was on clindimycin IV daily for 2 or 3 weeks and then started taking Minocycline (generic). I initially had all of the symptoms that you are experiencing and ended up in the hospital twice because the " herxes " (not sure how to spell herxes...sorry) were so severe. I had to have round the clock care for several months because I could do very little for myself and the pain was almost unbearable even though I was taking hydrocodone, soma, and morphine around the clock. My friends (caregivers) began taking me into town for acupuncture for pain relief and it helped. I went into the Dr.s office using a walker and 3 visits later...no walker. I was still in alot of pain but I was making positive progress. Just recently my doctor changed my antibiotic from minocycline (generic) to minocyn (brand) and I think I am making great strides towards my recovery. The cost of the medicine is quite different. The generic brand was under $100 (can't remember exactly how much it cost) and the brand minocyn in $600 a month...I take 2 a day. I am saying all of this just to let you know that sometimes some of us experience some awful things in the beginning but hang in there Kim...it will get better. I wish you well and I will keep you in my prayers. Wishing you good health, Leah Royer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 When you start to herx that badly, you need to stop medication until symptoms subside and then slowly start up again. See FAQ for information and instructions. rheumatic antibiotic tx Hi Kim, I started treatment in June of 08. I was on clindimycin IV daily for 2 or 3 weeks and then started taking Minocycline (generic). I initially had all of the symptoms that you are experiencing and ended up in the hospital twice because the " herxes " (not sure how to spell herxes...sorry) were so severe. I had to have round the clock care for several months because I could do very little for myself and the pain was almost unbearable even though I was taking hydrocodone, soma, and morphine around the clock. My friends (caregivers) began taking me into town for acupuncture for pain relief and it helped. I went into the Dr.s office using a walker and 3 visits later...no walker. I was still in alot of pain but I was making positive progress. Just recently my doctor changed my antibiotic from minocycline (generic) to minocyn (brand) and I think I am making great strides towards my recovery. The cost of the medicine is quite different. The generic brand was under $100 (can't remember exactly how much it cost) and the brand minocyn in $600 a month...I take 2 a day. I am saying all of this just to let you know that sometimes some of us experience some awful things in the beginning but hang in there Kim...it will get better. I wish you well and I will keep you in my prayers. Wishing you good health, Leah Royer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2009 Report Share Posted March 12, 2009 >Hi Leah, thanks for sharing your story. I guess it could be way worse than what is going on now. The unknown is rough. I continue to work full time and live alone so that makes it hard for me. SO how are you feeling now? Kim > Hi Kim, > > I started treatment in June of 08. I was on clindimycin IV daily for 2 or 3 weeks and then started taking Minocycline (generic). I initially had all of the symptoms that you are experiencing and ended up in the hospital twice because the " herxes " (not sure how to spell herxes...sorry) were so severe. I had to have round the clock care for several months because I could do very little for myself and the pain was almost unbearable even though I was taking hydrocodone, soma, and morphine around the clock. > > My friends (caregivers) began taking me into town for acupuncture for pain relief and it helped. I went into the Dr.s office using a walker and 3 visits later...no walker. I was still in alot of pain but I was making positive progress. > > Just recently my doctor changed my antibiotic from minocycline (generic) to minocyn (brand) and I think I am making great strides towards my recovery. The cost of the medicine is quite different. The generic brand was under $100 (can't remember exactly how much it cost) and the brand minocyn in $600 a month...I take 2 a day. > > I am saying all of this just to let you know that sometimes some of us experience some awful things in the beginning but hang in there Kim...it will get better. I wish you well and I will keep you in my prayers. > > Wishing you good health, > Leah Royer > > > > > Quote Link to comment Share on other sites More sharing options...
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