Psa, Lupus and Antibiotics

May 24, 2008

Hi Margo

If you haven't already used the search facility on this board and at

the Roadback Foundation, there are a lot of stories and emails from

people who've been successful with treating lupus with antibiotics.

Some of them seem to say start very slowly (25 or 50 mg mino 3 times

a week) and some have used doxycycline. Here's the address of the

roadback bulletin board:

In the General Discussion area there is a subject which will take you

to many many emails from people as well:

OLD RBF Bulletin Board Archives & Update

Just enter " lupus " in the little search window at the top of the new

board or the old board. It will take a while to read all the emails.

I quickly just looked for those with lupus in the subject matter.

Good luck,

Ros

May 24, 2008

Hi, Margo!

I have had Psoriatic for 13 years (used to use sulfasalazine and motrin

between pregnancies). Two years ago, I officially added RA and fibro to my

diagnosis. I limped along on Effexor(antidepressant for fibro to boost

serotonin) and Feldene(NSAID). All disease modifiers seemed too risky for

me as I was unwilling to use birth control for religious reasons. I was

steadily going down hill until I heard about the AP from a friend.

Miraculously, we found a local doc (a pulmonologist) who has done AP on the

side for about 12 years after seeing patients with pneumonia and RA being

helped by antibiotics. Anyway, he doesn't pull punches, and started me out

with 200mg of minocin and 250 mg of azithromycin daily. I felt great almost

right away for a week. Then, I had a miserable herx reaction for a month.

A couple more weeks of slow improvement, and suddenly, I don't feel like I

have RA anymore! I still have some joints that are damaged, but the pain

and inflammation is almost totally gone. Plus, I just had my gallbladder

out on Wednesday. I only used a narcotic for a few hours immediately after

surgery. Since then, I've only used my regular feldene. Usually a surgery

will cause me to flare up, but I feel great! I just wanted to encourage you

since I hadn't seen anyone else with Ps reply.

Blessings!

Terri

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