Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010 Peggy, I can't help you with the test and what you should take or not take,Nick and Val will answer you but I can't pass on the comment from your doctor that no RT3 should be done because it's meaningful. I was very,very sick when I went to an endo professor who treated me with some T3 on addition to my huge T4 dose,at the time I had to go up to 180mg T4 from my usual 100mg and he never ever acknowledged the FT3 and RT3 tests either.The reason for pushing to such a high dose of T4 later I found is because of my sky high RT3,which blocked my receptors and nothing could help me if I did not clear them.The doctor's theory was the same ,there is no any science proof.I stayed with him for more then a year and from being very sick,I got extremely sick and not being able to get up of bed. From my experience I learned I was getting sicker was from my raising RT3 and low FT3. I hope that helps. Milena > > I had my third iron IV yesterday and had hoped that by now I'd be feeling much better. Instead I am feeling much worse--very jittery/high anxiety (unusual for me), extreme exhaustion, and last night some insomnia. My hematologist suggested I see an endo, so I did. Here are the labs I showed her: > > January > TSH 1.270 (0.450-4.500) uIU/mL > T3, free, serum 2.1 (2.0-4.4) pg/mL > RT3 434 ( 90-350) pg/mL > T4, free (direct) 1.32 (0.82-1.77) ng/dL > DHEA-sulfate 193 (13-130) ug/dL > ferritin, serum 15 (10-291) ng/mL > B12 926 (211-911) pg/mL > > February > T3, free serum 2.7 (2.0-3.5) pg/mL > RT3 173 (90-350) pg/mL > T4, free 0.97 (.89-1.76) ng/dL > ferritin, serum 25.7 (11.1-264.0) ng/mL > > from over a year ago, before treatment: > cortisol, saliva: > 5.6 at 6:00 a.m. optimal range 7:00 a.m.: 7.0-10 ng/ml > 2.1 at 11:00 a.m. optimal range noon: 3.0-6.0 ng/ml > 2.6 at 5:00 p.m. optimal range 5:00 p.m.: 2.0-4.0 ng/ml > 1.0 at 10:00 p.m. optimal range 10:00 p.m.: 1.5 ng/ml > > She said that no good doctor orders RT3 as it's meaningless, that I'm not hypothyroid and should stop T3 immediately as it's causing my nerves/anxiety and insomnia. She said my 15 mcg twice a day is a very high dose and I could go into cardia arrest at any time. If she gives patients anything, it's T4 as that's all that's almost ever needed, but she said I don't need that as I have no thyroid problem. > > As to adrenals, she said that if people have bad adrenals, there's no cure--I should stop HC immediately as it's shutting down my own adrenals, causing exhaustion. She said I don't have an adrenal problem, and that 10 mg/day of HC is a very high dose for me--at my size, only 15 mg/day would be enough to shut down my adrenals completely. I told her I thought the idea was to do that so they can rest and recover. She said there is absolutely no science to support that, or to support anything else that's been prescribed for me. She further said that my 10 mg/day HC is harming me, as I already have osteoporosis and HC is thinning my bones even further. Finally, she said I have chronic fatigue/fibromyalgia, that it's a difficult diagnosis to accept because there is no treatment and no cure, that my doctor has done me a disservice in giving me false hope that thyroid treatment will help--it won't. > > If there is anything I didn't need on top of the exhaustion and nerves I've had today, this is it. I had to spend the day in bed just to be able to make it to the appointment--a 3 hour round trip. Now I'm worse than before I went. I've been studying STTM and the RT3 site for several months, some I'm familiar with what's there. But this is the first time I've taken a direct hit from someone who's telling me I could be in serious trouble if I continue with this. Please, help! Any support and encouragement would be very welcome. > > I will post this on the adrenals list as well. I need all the help I can get after this traumatic experience. > > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010 Hi Peggy Well this is no surprise coming from a endo. The whole email shows what the problems with most endos are. I think your biggest problem is your ferritin. Try adding one 500mg tab of vit c for lunch and dinner. Have you tried any iron supps? Your ratio has got better. But it still is not ideal. Most people ratios (not clearance) get better in the first few weeks. Yours probably has not done that because you are not taking enough t3 due to having low ferritin. 30mcg of t3 is not that much. It might be for you though at the moment because of ferritin and adrenals you are not coping. My sister went to see her endo and she was on 140mcg of t3. The endo told her if she is feeling good stick with it. He was not the one that prescribe it to her. He was not telling her she would go into cardiac arrest. The cardiac arrest statement is a load of crap. I have never heard anyone go into cardiac arrest while being on t3. I read a study once that people who had heart attacks actually had low t3. T3 protects the heart. You are not taking enough HC. Fibromyalgia is from low t3. If she gives patients anything, it's T4 as that's all that's almost ever needed, but she said I don't need that as I have no thyroid problem. If a doctor said that to me I would run the other way. This is why there is the STTM book. What type of t3 are you taking? Sky To: RT3_T3 Sent: Wed, 24 March, 2010 7:30:52 AMSubject: saw an endo--help! please! I had my third iron IV yesterday and had hoped that by now I'd be feeling much better. Instead I am feeling much worse--very jittery/high anxiety (unusual for me), extreme exhaustion, and last night some insomnia. My hematologist suggested I see an endo, so I did. Here are the labs I showed her: January TSH 1.270 (0.450-4.500) uIU/mL T3, free, serum 2.1 (2.0-4.4) pg/mL RT3 434 ( 90-350) pg/mL T4, free (direct) 1.32 (0.82-1.77) ng/dL DHEA-sulfate 193 (13-130) ug/dL ferritin, serum 15 (10-291) ng/mL B12 926 (211-911) pg/mL February T3, free serum 2.7 (2.0-3.5) pg/mL RT3 173 (90-350) pg/mL T4, free 0.97 (.89-1.76) ng/dL ferritin, serum 25.7 (11.1-264.0) ng/mL from over a year ago, before treatment: cortisol, saliva: 5.6 at 6:00 a.m. optimal range 7:00 a.m.: 7.0-10 ng/ml 2.1 at 11:00 a.m. optimal range noon: 3.0-6.0 ng/ml 2.6 at 5:00 p.m. optimal range 5:00 p.m.: 2.0-4.0 ng/ml 1.0 at 10:00 p.m. optimal range 10:00 p.m.: 1.5 ng/ml She said that no good doctor orders RT3 as it's meaningless, that I'm not hypothyroid and should stop T3 immediately as it's causing my nerves/anxiety and insomnia. She said my 15 mcg twice a day is a very high dose and I could go into cardia arrest at any time. If she gives patients anything, it's T4 as that's all that's almost ever needed, but she said I don't need that as I have no thyroid problem. As to adrenals, she said that if people have bad adrenals, there's no cure--I should stop HC immediately as it's shutting down my own adrenals, causing exhaustion. She said I don't have an adrenal problem, and that 10 mg/day of HC is a very high dose for me--at my size, only 15 mg/day would be enough to shut down my adrenals completely. I told her I thought the idea was to do that so they can rest and recover. She said there is absolutely no science to support that, or to support anything else that's been prescribed for me. She further said that my 10 mg/day HC is harming me, as I already have osteoporosis and HC is thinning my bones even further. Finally, she said I have chronic fatigue/fibromyalgi a, that it's a difficult diagnosis to accept because there is no treatment and no cure, that my doctor has done me a disservice in giving me false hope that thyroid treatment will help--it won't. If there is anything I didn't need on top of the exhaustion and nerves I've had today, this is it. I had to spend the day in bed just to be able to make it to the appointment- -a 3 hour round trip. Now I'm worse than before I went. I've been studying STTM and the RT3 site for several months, some I'm familiar with what's there. But this is the first time I've taken a direct hit from someone who's telling me I could be in serious trouble if I continue with this. Please, help! Any support and encouragement would be very welcome. I will post this on the adrenals list as well. I need all the help I can get after this traumatic experience. Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010  Hi Sky, I had no luck taking iron supps--they upset my stomach and raised my ferritin by only 10 points in a month. I just finished a series of 3 iron IV's yesterday, and am supposed to be retested for ferritin levels in a month. I do take plenty of vitamin C--one gram 3 times a day. I agree that it seems 30 mcg of T3 may be too much right now because adrenals are not coping, and I don't know whether ferritin is up sufficiently or not, won't know till I'm retested in a month. But coming off 3 iron IV's in the past 5 days, my ferritin should be higher than it's been in years. I thought that would make it easy for me to handle T3, but I was wrong. So something's not right. But I have run the other way from this endo--I will never see her again. I've been reading STTM and the RT3 website since early January and she disagreed with everything I've learned there. I'm taking compounded SR T3. I tried Cytomel but couldn't handle it. Even dropping to 5 mcg per dose of Cytomel instead of the 15 I take of SR, it was too strong for me--and that was on the final day of iron IV's, when my ferritin levels should have been able to handle it. I got exhausted and yet extremely wired, very unpleasant. So I'm kinda stuck right now, and the endo said if I keep taking T3 I'll stay agitated and anxious. I suggested to her that it might be a cortisol problem, since the body uses cortisol to handle T3--so I said I might need more HC, and after building up enough I could handle T3. She thought that was absurd--and dangerous. She just generally freaked me out, which is why I came here for support. Peggy Re: saw an endo--help! please! Hi Peggy Well this is no surprise coming from a endo. The whole email shows what the problems with most endos are. I think your biggest problem is your ferritin. Try adding one 500mg tab of vit c for lunch and dinner. Have you tried any iron supps? Your ratio has got better. But it still is not ideal. Most people ratios (not clearance) get better in the first few weeks. Yours probably has not done that because you are not taking enough t3 due to having low ferritin. 30mcg of t3 is not that much. It might be for you though at the moment because of ferritin and adrenals you are not coping. My sister went to see her endo and she was on 140mcg of t3. The endo told her if she is feeling good stick with it. He was not the one that prescribe it to her. He was not telling her she would go into cardiac arrest. The cardiac arrest statement is a load of crap. I have never heard anyone go into cardiac arrest while being on t3. I read a study once that people who had heart attacks actually had low t3. T3 protects the heart. You are not taking enough HC. Fibromyalgia is from low t3. If she gives patients anything, it's T4 as that's all that's almost ever needed, but she said I don't need that as I have no thyroid problem. If a doctor said that to me I would run the other way. This is why there is the STTM book. What type of t3 are you taking? Sky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2010 Report Share Posted March 23, 2010 Hi Peggy, I am SO sorry to hear about your visit to the endo. Remind me again - have you tested your Vitamin D? What about folate? Your cortisol levels were from a year ago; do you have anything more recent or are you considering re-testing? Two things seem obvious: 1) low ferritin, which you know and 2) you're not on enough T3, which you know. These things alone can be linked with anxiety, palps, and other hypothyroid symptoms. I know you said you don't normally experience anxiety...but then you just jolted your body with the iron IVs and you're also undoubtedly adjusting to that. > > Hi Peggy > > Well this is no surprise coming from a endo. The whole email shows what the problems with most endos are. > > I think your biggest problem is your ferritin. Try adding one 500mg tab of vit c for lunch and dinner. Have you tried any iron supps? Your ratio has got better. But it still is not ideal. Most people ratios (not clearance) get better in the first few weeks. Yours probably has not done that because you are not taking enough t3 due to having low ferritin. > > 30mcg of t3 is not that much. It might be for you though at the moment because of ferritin and adrenals you are not coping.  My sister went to see her endo and she was on 140mcg of t3. The endo told her if she is feeling good stick with it. He was not the one that prescribe it to her. He was not telling her she would go into cardiac arrest. The cardiac arrest statement is a load of crap. I have never heard anyone go into cardiac arrest while being on t3. I read a study once that people who had heart attacks actually had low t3. T3 protects the heart. > > You are not taking enough HC. Fibromyalgia is from low t3. > > If she gives patients anything, it's T4 as that's all that's almost ever needed, but she said I don't need that as I have no thyroid problem. > If a doctor said that to me I would run the other way. This is why there is the STTM book. >  > What type of t3 are you taking? >  > Sky > > > ________________________________ > > To: RT3_T3 > Sent: Wed, 24 March, 2010 7:30:52 AM > Subject: saw an endo--help! please! > >  > I had my third iron IV yesterday and had hoped that by now I'd be feeling much better. Instead I am feeling much worse--very jittery/high anxiety (unusual for me), extreme exhaustion, and last night some insomnia. My hematologist suggested I see an endo, so I did. Here are the labs I showed her: >  > January > TSH                      1.270 (0.450-4.500) uIU/mL > T3, free, serum          2.1   (2.0-4.4) pg/mL > RT3                               434  ( 90-350) pg/mL > T4, free (direct)          1.32 (0.82-1.77) ng/dL > DHEA-sulfate              193 (13-130) ug/dL > ferritin, serum              15 (10-291) ng/mL > B12                              926 (211-911) pg/mL >  > February > T3, free serum         2.7 (2.0-3.5) pg/mL > RT3                             173 (90-350) pg/mL > T4, free                  0.97 (.89-1.76) ng/dL > ferritin, serum              25.7 (11.1-264.0) ng/mL >  > from over a year ago, before treatment: > cortisol, saliva: > 5.6 at 6:00 a.m.      optimal range 7:00 a.m.: 7.0-10 ng/ml      > 2.1 at 11:00 a.m.     optimal range  noon: 3.0-6.0 ng/ml > 2.6 at 5:00 p.m.      optimal range 5:00 p.m.: 2.0-4.0 ng/ml > 1.0 at 10:00 p.m.      optimal range 10:00 p.m.: 1.5 ng/ml >  > She said that no good doctor orders RT3 as it's meaningless, that I'm not hypothyroid and should stop T3 immediately as it's causing my nerves/anxiety and insomnia. She said my 15 mcg twice a day is a very high dose and I could go into cardia arrest at any time. If she gives patients anything, it's T4 as that's all that's almost ever needed, but she said I don't need that as I have no thyroid problem. >  > As to adrenals, she said that if people have bad adrenals, there's no cure--I should stop HC immediately as it's shutting down my own adrenals, causing exhaustion. She said I don't have an adrenal problem, and that 10 mg/day of HC is a very high dose for me--at my size, only 15 mg/day would be enough to shut down my adrenals completely. I told her I thought the idea was to do that so they can rest and recover. She said there is absolutely no science to support that, or to support anything else that's been prescribed for me. She further said that my 10 mg/day HC is harming me, as I already have osteoporosis and HC is thinning my bones even further. Finally, she said I have chronic fatigue/fibromyalgi a, that it's a difficult diagnosis to accept because there is no treatment and no cure, that my doctor has done me a disservice in giving me false hope that thyroid treatment will help--it won't. >  > If there is anything I didn't need on top of the exhaustion and nerves I've had today, this is it. I had to spend the day in bed just to be able to make it to the appointment- -a 3 hour round trip. Now I'm worse than before I went. I've been studying STTM and the RT3 site for several months, some I'm familiar with what's there. But this is the first time I've taken a direct hit from someone who's telling me I could be in serious trouble if I continue with this. Please, help! Any support and encouragement would be very welcome. >  > I will post this on the adrenals list as well. I need all the help I can get after this traumatic experience. >  > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 >January >TSH 1.270 (0.450-4.500) uIU/mL >T3, free, serum 2.1 (2.0-4.4) pg/mL Hypo >RT3 434 ( 90-350) pg/mL Massive >T4, free (direct) 1.32 (0.82-1.77) ng/dL Too high, producing RT3 >DHEA-sulfate 193 (13-130) ug/dL >ferritin, serum 15 (10-291) ng/mL Low as you know, part of producing RT3 and anxiety >B12 926 (211-911) pg/mL > >February >T3, free serum 2.7 (2.0-3.5) pg/mL Hypo still >RT3 173 (90-350) pg/mL Getting better >T4, free 0.97 (.89-1.76) ng/dL which is why the RT3 is getting better >ferritin, serum 25.7 (11.1-264.0) ng/mL a little better > >from over a year ago, before treatment: >cortisol, saliva: >5.6 at 6:00 a.m. optimal range 7:00 a.m.: 7.0-10 ng/ml >2.1 at 11:00 a.m. optimal range noon: 3.0-6.0 ng/ml >2.6 at 5:00 p.m. optimal range 5:00 p.m.: 2.0-4.0 ng/ml >1.0 at 10:00 p.m. optimal range 10:00 p.m.: 1.5 ng/ml LOW > >She said that no good doctor orders RT3 as it's meaningless, that I'm not hypothyroid and should stop T3 immediately as it's causing my nerves/anxiety and insomnia. She said my 15 mcg twice a day is a very high dose and I could go into cardia arrest at any time. If she gives patients anything, it's T4 as that's all that's almost ever needed, but she said I don't need that as I have no thyroid problem. A Dr for the bin! The T3 is only causing the anxiety because of the low ferritin. with FT3 that low you need more T3, not less > >As to adrenals, she said that if people have bad adrenals, there's no cure--I should stop HC immediately as it's shutting down my own adrenals, causing exhaustion. Only because you are not on ENOUGH, The adrenal list will probably recommend you start on about 20 >She said I don't have an adrenal problem, and that 10 mg/day of HC is a very high dose for me--at my size, only 15 mg/day would be enough to shut down my adrenals completely. Rubbish >I told her I thought the idea was to do that so they can rest and recover. She said there is absolutely no science to support that, or to support anything else that's been prescribed for me. She further said that my 10 mg/day HC is harming me, as I already have osteoporosis and HC is thinning my bones even further. Rubbish >Finally, she said I have chronic fatigue/fibromyalgia, that it's a difficult diagnosis to accept because there is no treatment and no cure, that my doctor has done me a disservice in giving me false hope that thyroid treatment will help--it won't. The " catch all " diagnosis for " I don't know how to help you, now go away!!! > >If there is anything I didn't need on top of the exhaustion and nerves I've had today, this is it. I had to spend the day in bed just to be able to make it to the appointment--a 3 hour round trip. Now I'm worse than before I went. I've been studying STTM and the RT3 site for several months, some I'm familiar with what's there. But this is the first time I've taken a direct hit from someone who's telling me I could be in serious trouble if I continue with this. Please, help! Any support and encouragement would be very welcome. You've done the IVs, a big step along the way, now get enough HC into you to stabile temperature and you can increase the T3 to a big enough dose to help you feel well. From your labs there is plenty wrong that can be treated >I will post this on the adrenals list as well. I need all the help I can get after this traumatic experience. They will give you advice on the HC dose and timing. When you are feeling better you might want to consider making a complaint about that incompetent Endo!! Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 > She just generally freaked me out, which is why I came here for support. She goes against everything that people here have experienced. The best thyroid docs are the ones who are hypo themselves! Nick -- for more information on RT3 and Thyroid Resistance go to www.thyroid-rt3.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Thanks for your understanding--it's been so helpful to be able to come to this group for support and encouragement; the endo visit was really traumatic. Here are the test results you mentioned: vitamin D 53.2 (32.0-100.00 ng/mL) folate >24 (3.6-17.0 ng/mL) B12 >1000 (193-982 pg/mL) No, I don't have any cortisol testing more recent than a year ago. I haven't considered retesting as I'd have to stop HC for two weeks, and right now it seems I really need the HC. The low ferritin should have been addressed by the 3 iron IV's I just completed on Monday--I hope, at least for now. And although my T3 dose was very low, it seems I can't handle even that much right now. So I'm stopping temporarily until I get my adrenals & temps stabilized. Then I should be able to handle it more easily. This jittery/nervous feeling and nightly insomnia are horrible. ----- Original Message ----- From: jaalva1@... >>Remind me again - have you tested your Vitamin D? What about folate? Your cortisol levels were from a year ago; do you have anything more recent or are you considering re-testing?Two things seem obvious: 1) low ferritin, which you know and 2) you're not on enough T3, which you know. These things alone can be linked with anxiety, palps, and other hypothyroid symptoms. I know you said you don't normally experience anxiety...but then you just jolted your body with the iron IVs and you're also undoubtedly adjusting to that. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Hang in there, Peggy! I wish I knew what to say that might help. When you're ready to try T3 again you may want to consider the acidophilus-compounded one vs. SR or Cytomel. > > Thanks for your understanding--it's been so helpful to be able to come to this group for support and encouragement; the endo visit was really traumatic. > > Here are the test results you mentioned: > vitamin D 53.2 (32.0-100.00 ng/mL) > folate >24 (3.6-17.0 ng/mL) > B12 >1000 (193-982 pg/mL) > No, I don't have any cortisol testing more recent than a year ago. I haven't considered retesting as I'd have to stop HC for two weeks, and right now it seems I really need the HC. > > The low ferritin should have been addressed by the 3 iron IV's I just completed on Monday--I hope, at least for now. And although my T3 dose was very low, it seems I can't handle even that much right now. So I'm stopping temporarily until I get my adrenals & temps stabilized. Then I should be able to handle it more easily. This jittery/nervous feeling and nightly insomnia are horrible. > > ----- Original Message ----- > From: jaalva1@... > >>Remind me again - have you tested your Vitamin D? What about folate? Your cortisol levels were from a year ago; do you have anything more recent or are you considering re-testing? > > Two things seem obvious: 1) low ferritin, which you know and 2) you're not on enough T3, which you know. These things alone can be linked with anxiety, palps, and other hypothyroid symptoms. I know you said you don't normally experience anxiety...but then you just jolted your body with the iron IVs and you're also undoubtedly adjusting to that. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Hang in there, Peggy! I wish I knew what to say that might help. When you're ready to try T3 again you may want to consider the acidophilus-compounded one vs. SR or Cytomel. > > Thanks for your understanding--it's been so helpful to be able to come to this group for support and encouragement; the endo visit was really traumatic. > > Here are the test results you mentioned: > vitamin D 53.2 (32.0-100.00 ng/mL) > folate >24 (3.6-17.0 ng/mL) > B12 >1000 (193-982 pg/mL) > No, I don't have any cortisol testing more recent than a year ago. I haven't considered retesting as I'd have to stop HC for two weeks, and right now it seems I really need the HC. > > The low ferritin should have been addressed by the 3 iron IV's I just completed on Monday--I hope, at least for now. And although my T3 dose was very low, it seems I can't handle even that much right now. So I'm stopping temporarily until I get my adrenals & temps stabilized. Then I should be able to handle it more easily. This jittery/nervous feeling and nightly insomnia are horrible. > > ----- Original Message ----- > From: jaalva1@... > >>Remind me again - have you tested your Vitamin D? What about folate? Your cortisol levels were from a year ago; do you have anything more recent or are you considering re-testing? > > Two things seem obvious: 1) low ferritin, which you know and 2) you're not on enough T3, which you know. These things alone can be linked with anxiety, palps, and other hypothyroid symptoms. I know you said you don't normally experience anxiety...but then you just jolted your body with the iron IVs and you're also undoubtedly adjusting to that. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2010 Report Share Posted March 24, 2010 Thanks. I asked, and my doctor just ordered it for me--T3 compounded w/acidophilus. I'm not ready to take T3 at all, though, till I get stable--the current symptoms (nervous/anxious & insomnia) are miserable and T3 makes them worse. So I'm only on HC for now, and will try T3 again when temps have been stable for at least 5 days. Which right now seems a long way off, as my temps are currently all over the map--kinda like a diagram of my agitation. Peggy Re: saw an endo--help! please! Hang in there, Peggy! I wish I knew what to say that might help. When you're ready to try T3 again you may want to consider the acidophilus-compounded one vs. SR or Cytomel. Quote Link to comment Share on other sites More sharing options...
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