Guest guest Posted February 21, 2008 Report Share Posted February 21, 2008 Just a few thoughts on these posts: Re Lupus and minocin, I have known several Lupus patients, that were on this board, not sure if they still are, I never see them post but know that they did very well on minocin for their Lupus...I believe one did see DR T in Boston. (her name was Socjog) Re IVIG...I saw a DR. Avraham Khadar, in NYC re my disease and to discuss if IVIG would help with my disease process...(SD and RA) and he said my numbers (referring to my lab work) did not indicate that IVIG would help me and further, that it would be a huge, massive battle with my insurance company as the numbers did not support IVIG treatment. Having said that, I do know of one woman, on this BB that has received IVIG for years...and seems to be doing well. She also has seen DR. Khadar. I believe he has in office in NYC and we saw him in the Mt. Kisco office...I believe... Hope this helps. Debbie Quote Link to comment Share on other sites More sharing options...
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