Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 WE WILL MISS YOU REV. LARRY. WISHING YOU WELL IN ALL OF YOUR ENDEAVORS. BLESSINGS AS YOU SERVE THE LORD. CATHERINE > Re: ANA Membership? > > > IT IS WITH GREAT SORRY THAT I ASK TO BE REMOVED FROM THE EMAIL > LIST OF NF. I > HAVE SO MANY PRESSING PROBLEMS AT THIS TIME THAT THIS REQUIRES > THIS ACTION. > I HAVE ENJOYED GETTIN TO KNOW EACH OF YOU > SINCERELY, > REV DAVID L CLEMENTS > Re: ANA Membership? > > > > > > > > >I am and have been an ANAC, as Marie said, Acoustic Neuroma > > Assossiation of > > > > >Canada, member for the past 13 years.The way I understand it, with > > modern > > > > >equipment it was discovered, the AN tumor actually was on the > > vestibular > > > > >nerves, more so then the Acoustic nerve and actually, a Scwannoma > > tumor, > > > > not > > > > >neuroma. So there has been a name change, its just slow catching on > to > > the > > > > >change. Even at HEI, I still hear both referred to as AN's. Both > > unilateral > > > > >and NF2 AN's are really Vestibular Scwannaomas. Yes, the unilateral > > tumor > > > > >wraps around the nerve, the NF2 tumor grows through, (inside and > out). > > > > >Anyone can submit their story or info. Marnie has, as has . > > > > > Fusca > > > > >at one time had a column, haven't seen it the last while.. Susie > > Friesens > > > > >father, Philip, has also shared his past with NF2 with us > in the ANAC > > > > >newsletter. There is a diagram of the two tumors in one of the > > newsletters, > > > > >when everything gets back to normal and I can find my > > scanner.........., I > > > > >send this to the crew, with the pics you are waiting for Marcus, > > .....darn > > > > >carpet.....the manager is finally back, mid next week. Like you > , > > I > > > > >felt like I was misplaced at any gatherings of the AN's, for I was > the > > only > > > > >one with NF2, everyone else was unilateral. Like at AA meetings we > > would > > > > >share a story about ourselves, I was always last, and felt they > really > > did > > > > >not believe me. I have gotten the same reaction at > Neurofibromatosis > > > > >meetings, I'm NF2 and everyone else is NF1. > > > > >Sheryn > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Good Luck Reverand...hope things calm down for you. Carol Larry Clements wrote: IT IS WITH GREAT SORRY THAT I ASK TO BE REMOVED FROM THE EMAIL LIST OF NF. IHAVE SO MANY PRESSING PROBLEMS AT THIS TIME THAT THIS REQUIRES THIS ACTION.I HAVE ENJOYED GETTIN TO KNOW EACH OF YOU SINCERELY, REV DAVID L CLEMENTS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Good Luck Reverand...hope things calm down for you. Carol Larry Clements wrote: IT IS WITH GREAT SORRY THAT I ASK TO BE REMOVED FROM THE EMAIL LIST OF NF. IHAVE SO MANY PRESSING PROBLEMS AT THIS TIME THAT THIS REQUIRES THIS ACTION.I HAVE ENJOYED GETTIN TO KNOW EACH OF YOU SINCERELY, REV DAVID L CLEMENTS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 Good Luck Reverand...hope things calm down for you. Carol Larry Clements wrote: IT IS WITH GREAT SORRY THAT I ASK TO BE REMOVED FROM THE EMAIL LIST OF NF. IHAVE SO MANY PRESSING PROBLEMS AT THIS TIME THAT THIS REQUIRES THIS ACTION.I HAVE ENJOYED GETTIN TO KNOW EACH OF YOU SINCERELY, REV DAVID L CLEMENTS Quote Link to comment Share on other sites More sharing options...
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