Re: Introduction pretty long-For Carole Stein

[Guest guest]

Hi Carole Stein,

Google Roadback.org or just put in Lupus & Doxycycline. The roadback page will

open and you will be able to read all about the antibiotic protocol which most

of us are on. Once you digest that, Google (Frequently Asked Question)

(FAQ)about the antibiotic protocol or A/P. There are more books on the subject.

Try, " The New Arthritis Breakthrough " by Henry Scammell for a comprehensive

study of the A/P and then check out the sites for MacPherson Brown, MD

who treated his rheumatic patients very successfully for more than 40 years with

antibiotics of the tetracycline family. Once you have the story, you will need

to be tested for bacteria/viral type organisms you may have been carrying in

your body as parasites for many years unkowingly. Once you know the name of the

micoplasma infection that you probably have, then find that A/P Doc who will

prescribe the medication. Minocin is currently the drug of choice for most

infections and most people can

tolerate it. But any medicine in the tetracycline family can be substituted.

You are lucky to live in Florida. I think the name of the grocery chain,

" Publix " gives out antibiotics free every 15 days with a prescription from your

doc. These cell wall deficient microbes are a cross between a virus and a

bacteria and because they have no cell walls, they easily slip into the immune

cells and start their attack there. They roam all over the body, so all organs

can be affected. You must treat this disease at the cellular level without

dampening down the immune system which all those other toxic drugs do. They only

treat the symptoms and not the disease. You need an intact healthy immune system

in order to weaken these microbes with the antibiotics and then your immune

cells will kill off and dispose of their carcasses the way immune cells were

meant to do. Our bodies do not attack us. Our immune cells are smarter than

that. They attack the sick

immune cells that have been taken over by the offending microorganisms.

Initially you will get sicker before you will start to feel better. That is

because these microbes do not die easily. They fight back by emitting a toxin.

This is called the Jarisch Herxheimer reaction. (Herx, for short) And it is a

sign that the protocol is working, so even tho' you feel worse, at first, you

know you will soon be getting better and can even go into remission down the

road. It is a long and arduous journey needing much patience. Your story sounds

a lot like the stories of many of us. With our backs up against a wall and no

where to turn, we reached out and found each other.. I was diagnosed with

Scleroderma, R/A & Mixed Connective Tissue Disease in 2005. BTW, co infections

are common in arthritic diseases. It took 5 years of using antibiotics to fight

off the diseases, but today I am in remission with a neg ANA & a neg RF.

(Rheumatoid Factor.) Both of which were

extremely high. At one point the doctors had given me about 5-6 months to live

because my lungs were so sclerosed, I could not breathe. My chest x-rays are

normal now. This protocol has worked for me and hundreds maybe in the hundreds

of thousand of others in our shoes. Good luck in your search. Stay in touch,

This is a support group and all of us have a story to tell and are ready to

help. Been there, done that and will help you all the way! The best to you in

your search towards wellness. Dolores & Mike

>

> > My name is Carole Stein. I live in South Florida.

> I have been

>

> > treated at the Cleveland Clinic in Cleveland since

> January, 2009 for

>

> > Mixed Connective Tissue Disease. My disease started, I

> believe, in the

>

> > summer of 2008, when my PCP switched me from HRT to

> biodentical

>

> > hormones, which the compounding pharmacy could never

> get right -A blood

>

> > test in August, 2008 showed elevated ANA - Then even

> though I was going

>

> > to work out 3 days a week, my legs started to hurt -

> then in November,

>

> > after a manicure, one finger started to turn blue,

> followed by all

>

> > fingers on both hands - then I got a herpes simplex on

> one side of my

>

> > lip twice within two weeks in the same place - the

> second time, the

>

> > opposite side of my face went numb - and swollen -

>

> > My sister-in-law got me a contact at Cleveland in

> December, 2008 and I

>

> > was seen the entire first week in January. The

> rheumatologist called me,

>

> > told me I had mctd, my cpk was around 1600 went up to

> 2100 - aldolase

>

> > was as high as 15 now it is 4.2 and my CPK is 385 -

>

> > Prednisone was poison to me - the side effects were

> off the wall -

>

> > methotrexate made my tongue swell - I have no sense of

> taste and little

>

> > appetite even after being off of methotrexate for 6

> weeks - I went off

>

> > of pred in March, 2010 - The side effects, physical

> and mental were

>

> > overwhelming. I was put in the hospital in Cleveland

> in March, 2009 for

>

> > 6 days including 4 days of IVIG - my cpk dropped 800

> points - but it

>

> > hasn't dropped much since then - I made

> arrangements with MD in

>

> > Orlando, yes they have associate hospital in Orlando

> that is pretty darn

>

> > good, to do IVIG every 4 weeks - While I tolerated it

> well over 2 days

>

> > instead of 4 - the last treatment was horrible - so

> now no more IVIG - I

>

> > have been doing cellcept since October 2009. That

> seems to be the only

>

> > thing that is slowly working - So now I am at 3000mg

> of cellcept -

>

> > nothing else - my dr said that the drug of last resort

> is rituxan.

>

> > So I came to the conclusion that I am not going to get

> well - even

>

> > though I have done PT 5 days a week for 4 months - on

> and on -

>

> >

>

> > Last night there was a Tony Robbins show on - it got

> my interest - so I

>

> > thought I would do one last look to see if I could

> find anything or

>

> > anyone else who just maybe might offer a clue. Low

> and behold, I guess

>

> > it is how I googled but rheumatic.org came up and a

> posting from LInda

>

> > Carlson - that is pretty old -

>

> >

>

> > I hurt alot most of the time - my back locks,

> can't walk long distances,

>

> > going from sitting to standing etc is just awlful I

> can barely lift my

>

> > arms above my shoulders - I am sure you all know the

> typical myositis stuff

>

> >

>

> > The good news is that my Rheumie likes me researching

> and actively

>

> > participating in my care. So I emailed him - Even if

> he knows about

>

> > this, which I am sure he does, and doesn't believe

> in it, since

>

> > conventional therapy isn't working - I bet he will

> be game.

>

> > We shall see.

>

> >

>

> > Carole Stein

>

> >

>

> > --

>

> > Carole S. Stein

>

> > carolestein127.3@...

>

> > http://www.onlinepetmemorials.com

>

> > http://www.rainbowbridgefordogs.com

>

> > Proud owner of wood Double Dose RTD (Registered

> Therapy Dog)

>

> >

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