Guest guest Posted December 11, 2001 Report Share Posted December 11, 2001 Have been away on school camp, then to the international tumor immunology conference for a week in Canberra, so am just catching up on mail. Carol, I note your new tumors and have followed your symptoms. Am going to go out on a limb here and suggest you discuss a certain drug therapy which we all heard in newport to be the most promising.....aptosyn. the reason why I think it would be particularly beneficial to you is that it is an anti-inflammotory, and you have many,many of these symptoms. whilst everyone's nf2 experience is unique, I think this drug may be very effective with YOUR nf2. Ask your doc, don't take no for an answer, it was developed for a child, believe it to be without any serious side-effects, if any. Quote Link to comment Share on other sites More sharing options...
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