Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 Hi Kim, I started treatment in June of 08. I was on clindimycin IV daily for 2 or 3 weeks and then started taking Minocycline (generic). I initially had all of the symptoms that you are experiencing and ended up in the hospital twice because the " herxes " (not sure how to spell herxes...sorry) were so severe. I had to have round the clock care for several months because I could do very little for myself and the pain was almost unbearable even though I was taking hydrocodone, soma, and morphine around the clock. My friends (caregivers) began taking me into town for acupuncture for pain relief and it helped. I went into the Dr.s office using a walker and 3 visits later...no walker. I was still in alot of pain but I was making positive progress. Just recently my doctor changed my antibiotic from minocycline (generic) to minocyn (brand) and I think I am making great strides towards my recovery. The cost of the medicine is quite different. The generic brand was under $100 (can't remember exactly how much it cost) and the brand minocyn in $600 a month...I take 2 a day. I am saying all of this just to let you know that sometimes some of us experience some awful things in the beginning but hang in there Kim...it will get better. I wish you well and I will keep you in my prayers. Wishing you good health, Leah Royer Quote Link to comment Share on other sites More sharing options...
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