CPK

[Guest guest]

Celia

What is your CPK and Aldolase?

My latest CPK is 462 (high) and Aldolase 7.3 normal

Since last May my CPK has gone between 350 and 500 can't seem to get it

to normal - I started Doxy the end of July - My rheumie isn't terribly

concerned, however he isn't wild about me doing AP -

My frustration is that somehow in this mess Roseaca has appeared and

while the doxy keeps it under control - my face feels so HOT much of the

time -

Carole

On 1/25/11 7:45 AM, Celia wrote:

>

> Hi ,

>

> I have DM as well, dx about 7 years ago. I've never had much trouble

> with the rash, but do have the muscle weakness. I also have

> Interstitial Lung Disease and Raynaud's Phenomenon. Over the years,

> I've been on prednisone and either cytoxan, imuran, or methotrexate. 19

> months ago I was in drug-induced remission, and I stopped all

> medication.....my rheumy wasn't happy. He is against anything that

> isn't the traditional way.

>

> Anyway, I lost weight and ate healthier, started taking good vitamins,

> fish oil (I keep in the fridge), and Vit. D3. Did pretty good, but my

> CPK numbers started creeping back up late last summer and I've been

> getting steadily weaker, and on New Year's Day I went back on

> prednisone. I'm hoping I can get my numbers down with just prednisone

> and not go back on the other nasty meds....though my rheumy says I need

> both to make them come down.

>

> Once I get my numbers down, I am going to try the Antibiotic Protocol.

> I have looked into it for years, and should have started it last summer

> when my numbers were just starting to go up but weren't too high yet. I

> have been going to a naturopath for over a year, but we've not been able

> to keep my CPKs from rising. I recently added in physician's strength

> oregano oil for inflammation and it took away the pain I had in my hands

> recently, but I haven't felt any gain in strength yet.

>

> There is a DM list, , but I seem to get more info from this

> Rheumatic list.

>

> Anyway, welcome aboard....though I'm sorry you have DM. This is a great

> place of support.

>

> Have a SONshiney day! --Celia <><

>

> --

> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

> Celia L. Hartmann

>

> Dust if you must, but there's not much time,

> with rivers to swim and mountains to climb,

> music to hear and books to read,

> friends to cherish and life to lead.

>

>

--

Carole S. Stein

President, OnlinePetMemorials.com, Inc.

http://www.rainbowbridgeforpets.com

Proud owner of wood Double Dose RTD