Re: Endo won't allow RT3 test to be done/NEVER WILL

[Guest guest]

I got my own RT3 test through Econolabs.com My Dr. was annoyed with me for

getting it. I doubt your doctor will ever order it for you (mine wouldn't).

I'd bet money he doesn't have a clue about it. I think most doctors are

inexcusably ignorant on the RT3 subject, and what limited info they can be

bothered to absorb they then regurgitate as " that dangerous stuff " .

Willful ignorance, is what it is, IMHO.

>

> Hi All,

>

> I have a regular once every 4 months visit with my endo next Friday. I go to

the town he is on Monday to get blood drawn, then I see him on Friday. I called

to request a RT3 test to be run on it and he refused! He told his secretary

that " he was not happy that I requested that " ! As though I'm worried about his

happiness! I guess it'll make him happy to make me drive another 30 miles to go

get another blood test on another day after we have our appointment. Honestly I

can't understand that reasoning. I think it may be because he has no idea of

what this is and why it may be necessary so he's putting me off of it.

>

> I do expect I'll get a wrist-slap too for taking myself off of Naturethroid

and beginning Cytomel on my own (well, with Dr. Peatfield's help and the help of

this group).

>

> Any encouragements for me as I prepare to see him next week?

>

> I'm taking 20 mcg T3 in divided doses (experimenting with 3 to 4 times daily)

now and I like how it helps me. It's similar to the initial feelings I had when

I first started Naturethroid and got the T3 " lift " . However, I never could get

over 3/4 - 1 grain of it; I'd start developing muscle and joint pain.

>

> Thanks for any commesurating with me. I know many of you have had a much more

difficult time with endos/GPs....Deborah

>

[Guest guest]

Thanks to those of you who recommended some US places

for labwork. I live in the UK

but we are making a trip to the US

soon. I’ll keep these recommendations and use them if I don’t find

a lab or way here in the UK.

Does anyone know how I can get RT3 tested here since

my endo won’t do it? He only sees me for 15 mins once every 4 months so

it’s very hard to feel like I have a meaningful

researching-how-we-can-make-you-feel-better-relationship with him. I know you

all understand!

Question: If I continue on T3 only, will my body

stop producing T4 naturally and what are the ramifications of that in future?

Should I continue on a small dose of NatureThroid along with the T3?

Thanks again!

Deborah

[Guest guest]

>Does anyone know how I can get RT3 tested here since my endo won't do it?

>He only sees me for 15 mins once every 4 months so it's very hard to feel

>like I have a meaningful

>researching-how-we-can-make-you-feel-better-relationship with him. I know

>you all understand!

Yes, there are ways of doing it in the UK

http://www.tpa-uk.org.uk/

Has links to labs I think

Nick

(in sunny Dorset)

[Guest guest]

>Does anyone know how I can get RT3 tested here since my endo won't do it?

>He only sees me for 15 mins once every 4 months so it's very hard to feel

>like I have a meaningful

>researching-how-we-can-make-you-feel-better-relationship with him. I know

>you all understand!

Yes, there are ways of doing it in the UK

http://www.tpa-uk.org.uk/

Has links to labs I think

Nick

(in sunny Dorset)

[Guest guest]

>Does anyone know how I can get RT3 tested here since my endo won't do it?

>He only sees me for 15 mins once every 4 months so it's very hard to feel

>like I have a meaningful

>researching-how-we-can-make-you-feel-better-relationship with him. I know

>you all understand!

Yes, there are ways of doing it in the UK

http://www.tpa-uk.org.uk/

Has links to labs I think

Nick

(in sunny Dorset)

[Guest guest]

>>Does anyone know how I can get RT3 tested here since my endo won't do it?

Wrong link before, not sure if they have lab arrangements there, this

was the previous post I was thinking of

>You can also order via http://www.thyroiduk.org/

>Click on the link on the left that says 'private tests' and then 'Genova'. You

don't need a doctor for this service if you go through ThyroidUK.

Nick

[Guest guest]

I do appreciate the feedback I’ve gotten from

several of you! I am seeing Dr. Peatfield here, too, but he cannot prescribe

any medications for me, he can only recommend. He is lovely and I really felt

cared for by him. My GP will not do anything outside of the NHS formulary

without the supervision of an endo, so the only hope I have of getting

medication/treatment prescribed for me and covered by the NHS is to go through

an endo here. I’m not sure how long we’ll be able to get

medications imported into the UK,

either, so I don’t know how long I’ll be able to self-medicate or

get things under Dr. P’s recommendations.

If I need to find another endo does someone know of

one in the Bradford/West Yorkshire, UKarea? My original one retired last

autumn. He did not believe in adrenal issues but was rather easy to work with. I’m

still not sure about this new one. I’ve had one visit in October with him

(a 15 min one in which his most pressing question was “Do you know you’re

diabetic?” based on the HBA1c that I requested. He wouldn’t even

listen to my thoughts about the association of subclinical hypothyroidism and

metabolic syndrome. He would let me explore Naturethroid on my own, but didn’t

know anything about dessicated thyroid medication, T3, etc. Thank goodness he

didn’t immediately put me on diabetes medication!

I have the second one this next Friday. He’s

the one who will not order the RT3 test. I’m not sure where to turn next

if this visit doesn’t go well. Any recommendations for local endos, those

of you in the UK?

I will also ask on the TPA UK site.

Thanks, Deborah

[Guest guest]

I live in the UK > Does anyone know how I can get RT3 tested here since my endo won't do it?

Genova Diagnostics give a discount for members of TPA-UK. Go here then click on Genova Discounts on Tests

http://health.groups.yahoo.com/group/thyroidpatientadvocacy/files/TESTS/

Gill2

[Guest guest]

> I'm not sure

>how long we'll be able to get medications imported into the UK, either, so I

>don't know how long I'll be able to self-medicate or get things under Dr.

>P's recommendations.

Hopefully for a long time to come, there are a lot of parcels come

through the post and the ones from Mexico come through without any tax

to pay or identification on them

My contingency plan for lack of meds is to get onto a plane to Mexico

and buy a year's supply posting some back to various addresses and

carrying some back so I have diversity.

I'm afraid I have no advice on getting the NHS to pay, I have gone

outside the system, my health was worth the cost of the meds and I am

paying my way.

There is an advantage if you can get defined as a thyroid patient

though as all meds (not just the thyroid ones) become a free

prescription.

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

Yes, I’m identified as a thyroid patient on the

NHS. I came into the country with thyroid identification since I was prescribed

some thyroid by my doc in the US

and was getting compounded T4/T3. It wasn’t real effective though. So far

thyroid meds are through the NHS for me…..

Thanks for the reassurance about the Mexican source.

I’ve got T3 on order through them – should be here in 2 weeks. Much

cheaper than other sources!

Deborah

[Guest guest]

>So

>far thyroid meds are through the NHS for me...

>

That's OK as long as you can get the prescriptions for the ones you

need, there are a LOT of people that straight T4 does not work for.

T3 is available on the NHS if you can find a Dr to prescribe it

>

>Thanks for the reassurance about the Mexican source. I've got T3 on order

>through them - should be here in 2 weeks. Much cheaper than other sources!

>

Yes, good stuff too

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

>So

>far thyroid meds are through the NHS for me...

>

That's OK as long as you can get the prescriptions for the ones you

need, there are a LOT of people that straight T4 does not work for.

T3 is available on the NHS if you can find a Dr to prescribe it

>

>Thanks for the reassurance about the Mexican source. I've got T3 on order

>through them - should be here in 2 weeks. Much cheaper than other sources!

>

Yes, good stuff too

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com

[Guest guest]

>So

>far thyroid meds are through the NHS for me...

>

That's OK as long as you can get the prescriptions for the ones you

need, there are a LOT of people that straight T4 does not work for.

T3 is available on the NHS if you can find a Dr to prescribe it

>

>Thanks for the reassurance about the Mexican source. I've got T3 on order

>through them - should be here in 2 weeks. Much cheaper than other sources!

>

Yes, good stuff too

Nick

--

for more information on RT3 and Thyroid Resistance go to

www.thyroid-rt3.com