Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi! I wish I had the medical background to answer your post with authority because I'd love to know, as well. I'm particularly interested in the sinus connection because hubby and I have had issues for years with our sinuses. Anyway, I guess there are several things in favor of the tetracycline antibiotics. They are pretty inexpensive and are well-tolerated for prolonged use. Also, they have a lot of history behind them. I know what you mean, though. I had gallbladder surgery in May, and I came BOUNCING out of the hospital because I felt so good! I don't know what my IV antibiotic was, but apparently it was a really good one! I have RA, Psoriatic arthritis, and Fibromylagia. I started AP in March. I was barely able to get about at that point, and I couldn't hold or carry anything. I felt great the first week, and then, I had a six-week herx which even put me in bed a few days. Now, I don't know what your doc has started you on. Some prefer to avoid the herx by gradually increasing the dosage. My doc apparently is very aggressive. He didn't care one bit about my miserable herx as long as it was killing off the bad guys! LOL ly, I didn't care either for the same reason. My dosage is 200mg of mincycline per day and 250mg of azithromycin each day. I rarely actually get both mino pills taken anymore. I've been getting the second pill about four days a week now. (It's hard to remember when you don't feel bad.) I've been able to ditch the anti-depressant used to treat my fibro with no ill effects (other than the miserable withdrawal symptoms). I also rarely take any NSAIDS anymore. I take them maybe three-four days a week if I know I am going to exercise harder than usual. I went from only being able to shuffle along with mincing, painful steps to getting season passes to the local amusement park and going once a week all summer walking, riding roller coasters, and riding water slides! I hope AP works as well for you as it has for me! Blessings! Terri _____ From: rheumatic [mailto:rheumatic ] On Behalf Of Misty Sent: Monday, October 20, 2008 1:47 PM rheumatic Subject: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? I'm new here, this is my first post. Bit of background... I have a pre-med background so I'm big into researching a lot on my own about my health issues. Back in April I found out I was going to need septoplasty surgery to fix a slew of problems with my sinuses, in hopes to stop chronic migraines that were fairly new (just a couple years). I had sinus problems my entire life. Chronic drainage, etc. I did research and found that a big cause of chronic sinusitis is mycoplasma. I did more research, and started wondering that if they fix the sinus problems, not only could it stop my migraines, but could it help or stop my autoimmune problems? I wasn't sure, but research I had done suggested that mycoplasma was an underlying cause of autoimmune issues. At this point, I didn't know about antibiotic therapy for autoimmune problems. Sure as the world, after surgery, despite the pain from the surgery itself, I felt GREAT! All my joint pains were gone, I just felt wonderful. After a few weeks of healing, I felt like a teenager again. No pain, LOTS of energy, etc. Unfortunately by mid-August, I started reverting slowly back to where I was. That is what made me wonder if it was actually the antibiotics that had made me feel so great. My doctors do feel that I could indeed have an underlying infection that could be triggering the autoimmune issues, but they don't want to treat it with antibiotics. So, I did more research and found out about The Road Back Foundation. Bingo! Through that I found a new doctor that has placed me on antibiotic therapy. I've only been on it one week, but I can't tell a difference. In fact, if anything, feel a bit worse. I know about the Herxheimer reaction, and realize that could be this (although this is very slight). I also know that AP therapy can take months before noticing a difference. But here's my question, although it may be a stupid question: Why not be placed on something like Amox-Clav (like I was for surgery and after surgery) which worked INSTANTLY? Why the tetracycline based antibiotics which can take months or a year or longer to MAYBE have a difference? I'd LOVE to be back on the Amox-Clav or something like it to feel normal quick like that. It obviously did something right to be able to make me feel that great that quick. If anyone knows the answer, I'd love to hear it! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Maybe the explanation truly is the the antibiotics. Though another possibility lies in the body's response to trauma (given that surgery is really just well orchestrated trauma). I had major surgery this year and experienced similar temporary improvements of autoimmune symptoms, though I had not been given antibiotics during surgery or afterward. I asked my rheum. He claimed it is not unusual. That it can be a physiological response to trauma, the body's normal as well as abnormal functions give way to an autonomic-like response of the body to the trauma. Part of the body's response to an emergency (which it thinks surgery is) is to kick the sympathetic network into gear, and other functions (circulatory, lymphatic, etc.) follow from that and are likewise altered to prepare for the worst. Afterward, I recalled watching some Nat Geo program on TV that had a lone hiker falling around 40 feet over a cliff. She was badly injured, bad leg fracture, but claimed that she felt no pain. She wrapped it good with what she had and crawled a good distance until she was found. She said the first pain she felt was when she was loaded on the rescue helicopter. They explained it by saying that her response probably was trigered before she hit the ground, that falling itself was enough for the body to go into an emergency mode. The brain and the CNS can then automatically and temporarily shunt or physically block neural pain and sensory impulses in anticipation of trauma. Once she sensed the relief of rescue, the body's extreme response was stopped. It's the classic sympathetic/parasympathetic physiological response. This is an extreme example, but it is true that the sympathetic/parasympathetic response does not have to be this dramatic. It still functions at lower levels of trauma, and maybe that is what is driving some post-surgery improvements. In autoimmune diseases, we think of the immune system as fuctioning abnormally. Really though it is just the body incorrectly applying normal bodily processes. So it seems reasonable that if those normal processes are potentially altered due to trauma, then even the factor driving the autoimmunity could be temporarily affected. Jeff rheumatic From: brn_eye_grl@... Date: Mon, 20 Oct 2008 17:46:54 +0000 Subject: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? I'm new here, this is my first post. Bit of background... I have a pre-med background so I'm big into researching a lot on my own about my health issues. Back in April I found out I was going to need septoplasty surgery to fix a slew of problems with my sinuses, in hopes to stop chronic migraines that were fairly new (just a couple years). I had sinus problems my entire life. Chronic drainage, etc. I did research and found that a big cause of chronic sinusitis is mycoplasma. I did more research, and started wondering that if they fix the sinus problems, not only could it stop my migraines, but could it help or stop my autoimmune problems? I wasn't sure, but research I had done suggested that mycoplasma was an underlying cause of autoimmune issues. At this point, I didn't know about antibiotic therapy for autoimmune problems. Sure as the world, after surgery, despite the pain from the surgery itself, I felt GREAT! All my joint pains were gone, I just felt wonderful. After a few weeks of healing, I felt like a teenager again. No pain, LOTS of energy, etc. Unfortunately by mid-August, I started reverting slowly back to where I was. That is what made me wonder if it was actually the antibiotics that had made me feel so great. My doctors do feel that I could indeed have an underlying infection that could be triggering the autoimmune issues, but they don't want to treat it with antibiotics. So, I did more research and found out about The Road Back Foundation. Bingo! Through that I found a new doctor that has placed me on antibiotic therapy. I've only been on it one week, but I can't tell a difference. In fact, if anything, feel a bit worse. I know about the Herxheimer reaction, and realize that could be this (although this is very slight). I also know that AP therapy can take months before noticing a difference. But here's my question, although it may be a stupid question: Why not be placed on something like Amox-Clav (like I was for surgery and after surgery) which worked INSTANTLY? Why the tetracycline based antibiotics which can take months or a year or longer to MAYBE have a difference? I'd LOVE to be back on the Amox-Clav or something like it to feel normal quick like that. It obviously did something right to be able to make me feel that great that quick. If anyone knows the answer, I'd love to hear it! Thanks! _________________________________________________________________ When your life is on the go—take your life with you. http://clk.atdmt.com/MRT/go/115298558/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Great explanation. May I use it in my book if I give you the credit? Wonderful insight! Thanks, Dolores From: Jeffery <jefferysa@...> Subject: RE: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? rheumatic Date: Monday, October 20, 2008, 6:23 PM Maybe the explanation truly is the the antibiotics. Though another possibility lies in the body's response to trauma (given that surgery is really just well orchestrated trauma). I had major surgery this year and experienced similar temporary improvements of autoimmune symptoms, though I had not been given antibiotics during surgery or afterward. I asked my rheum. He claimed it is not unusual. That it can be a physiological response to trauma, the body's normal as well as abnormal functions give way to an autonomic-like response of the body to the trauma. Part of the body's response to an emergency (which it thinks surgery is) is to kick the sympathetic network into gear, and other functions (circulatory, lymphatic, etc.) follow from that and are likewise altered to prepare for the worst. Afterward, I recalled watching some Nat Geo program on TV that had a lone hiker falling around 40 feet over a cliff. She was badly injured, bad leg fracture, but claimed that she felt no pain. She wrapped it good with what she had and crawled a good distance until she was found. She said the first pain she felt was when she was loaded on the rescue helicopter. They explained it by saying that her response probably was trigered before she hit the ground, that falling itself was enough for the body to go into an emergency mode. The brain and the CNS can then automatically and temporarily shunt or physically block neural pain and sensory impulses in anticipation of trauma. Once she sensed the relief of rescue, the body's extreme response was stopped. It's the classic sympathetic/parasympathetic physiological response. This is an extreme example, but it is true that the sympathetic/parasympathetic response does not have to be this dramatic. It still functions at lower levels of trauma, and maybe that is what is driving some post-surgery improvements. In autoimmune diseases, we think of the immune system as fuctioning abnormally. Really though it is just the body incorrectly applying normal bodily processes. So it seems reasonable that if those normal processes are potentially altered due to trauma, then even the factor driving the autoimmunity could be temporarily affected. Jeff rheumatic From: brn_eye_grl@... Date: Mon, 20 Oct 2008 17:46:54 +0000 Subject: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? I'm new here, this is my first post. Bit of background... I have a pre-med background so I'm big into researching a lot on my own about my health issues. Back in April I found out I was going to need septoplasty surgery to fix a slew of problems with my sinuses, in hopes to stop chronic migraines that were fairly new (just a couple years). I had sinus problems my entire life. Chronic drainage, etc. I did research and found that a big cause of chronic sinusitis is mycoplasma. I did more research, and started wondering that if they fix the sinus problems, not only could it stop my migraines, but could it help or stop my autoimmune problems? I wasn't sure, but research I had done suggested that mycoplasma was an underlying cause of autoimmune issues. At this point, I didn't know about antibiotic therapy for autoimmune problems. Sure as the world, after surgery, despite the pain from the surgery itself, I felt GREAT! All my joint pains were gone, I just felt wonderful. After a few weeks of healing, I felt like a teenager again. No pain, LOTS of energy, etc. Unfortunately by mid-August, I started reverting slowly back to where I was. That is what made me wonder if it was actually the antibiotics that had made me feel so great. My doctors do feel that I could indeed have an underlying infection that could be triggering the autoimmune issues, but they don't want to treat it with antibiotics. So, I did more research and found out about The Road Back Foundation. Bingo! Through that I found a new doctor that has placed me on antibiotic therapy. I've only been on it one week, but I can't tell a difference. In fact, if anything, feel a bit worse. I know about the Herxheimer reaction, and realize that could be this (although this is very slight). I also know that AP therapy can take months before noticing a difference. But here's my question, although it may be a stupid question: Why not be placed on something like Amox-Clav (like I was for surgery and after surgery) which worked INSTANTLY? Why the tetracycline based antibiotics which can take months or a year or longer to MAYBE have a difference? I'd LOVE to be back on the Amox-Clav or something like it to feel normal quick like that. It obviously did something right to be able to make me feel that great that quick. If anyone knows the answer, I'd love to hear it! Thanks! _________________________________________________________________ When your life is on the go葉ake your life with you. http://clk.atdmt.com/MRT/go/115298558/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Very interesting idea! Blessings! Terri _____ From: rheumatic [mailto:rheumatic ] On Behalf Of mike rosner Sent: Monday, October 20, 2008 9:17 PM rheumatic Subject: RE: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? Great explanation. May I use it in my book if I give you the credit? Wonderful insight! Thanks, Dolores From: Jeffery <jefferysahotmail (DOT) <mailto:jefferysa%40hotmail.com> com> Subject: RE: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? rheumatic@grou <mailto:rheumatic%40> ps.com Date: Monday, October 20, 2008, 6:23 PM Maybe the explanation truly is the the antibiotics. Though another possibility lies in the body's response to trauma (given that surgery is really just well orchestrated trauma). I had major surgery this year and experienced similar temporary improvements of autoimmune symptoms, though I had not been given antibiotics during surgery or afterward. I asked my rheum. He claimed it is not unusual. That it can be a physiological response to trauma, the body's normal as well as abnormal functions give way to an autonomic-like response of the body to the trauma. Part of the body's response to an emergency (which it thinks surgery is) is to kick the sympathetic network into gear, and other functions (circulatory, lymphatic, etc.) follow from that and are likewise altered to prepare for the worst. Afterward, I recalled watching some Nat Geo program on TV that had a lone hiker falling around 40 feet over a cliff. She was badly injured, bad leg fracture, but claimed that she felt no pain. She wrapped it good with what she had and crawled a good distance until she was found. She said the first pain she felt was when she was loaded on the rescue helicopter. They explained it by saying that her response probably was trigered before she hit the ground, that falling itself was enough for the body to go into an emergency mode. The brain and the CNS can then automatically and temporarily shunt or physically block neural pain and sensory impulses in anticipation of trauma. Once she sensed the relief of rescue, the body's extreme response was stopped. It's the classic sympathetic/parasympathetic physiological response. This is an extreme example, but it is true that the sympathetic/parasympathetic response does not have to be this dramatic. It still functions at lower levels of trauma, and maybe that is what is driving some post-surgery improvements. In autoimmune diseases, we think of the immune system as fuctioning abnormally. Really though it is just the body incorrectly applying normal bodily processes. So it seems reasonable that if those normal processes are potentially altered due to trauma, then even the factor driving the autoimmunity could be temporarily affected. Jeff rheumatic@grou <mailto:rheumatic%40> ps.com From: brn_eye_grl@ <mailto:brn_eye_grl%40> Date: Mon, 20 Oct 2008 17:46:54 +0000 Subject: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? I'm new here, this is my first post. Bit of background... I have a pre-med background so I'm big into researching a lot on my own about my health issues. Back in April I found out I was going to need septoplasty surgery to fix a slew of problems with my sinuses, in hopes to stop chronic migraines that were fairly new (just a couple years). I had sinus problems my entire life. Chronic drainage, etc. I did research and found that a big cause of chronic sinusitis is mycoplasma. I did more research, and started wondering that if they fix the sinus problems, not only could it stop my migraines, but could it help or stop my autoimmune problems? I wasn't sure, but research I had done suggested that mycoplasma was an underlying cause of autoimmune issues. At this point, I didn't know about antibiotic therapy for autoimmune problems. Sure as the world, after surgery, despite the pain from the surgery itself, I felt GREAT! All my joint pains were gone, I just felt wonderful. After a few weeks of healing, I felt like a teenager again. No pain, LOTS of energy, etc. Unfortunately by mid-August, I started reverting slowly back to where I was. That is what made me wonder if it was actually the antibiotics that had made me feel so great. My doctors do feel that I could indeed have an underlying infection that could be triggering the autoimmune issues, but they don't want to treat it with antibiotics. So, I did more research and found out about The Road Back Foundation. Bingo! Through that I found a new doctor that has placed me on antibiotic therapy. I've only been on it one week, but I can't tell a difference. In fact, if anything, feel a bit worse. I know about the Herxheimer reaction, and realize that could be this (although this is very slight). I also know that AP therapy can take months before noticing a difference. But here's my question, although it may be a stupid question: Why not be placed on something like Amox-Clav (like I was for surgery and after surgery) which worked INSTANTLY? Why the tetracycline based antibiotics which can take months or a year or longer to MAYBE have a difference? I'd LOVE to be back on the Amox-Clav or something like it to feel normal quick like that. It obviously did something right to be able to make me feel that great that quick. If anyone knows the answer, I'd love to hear it! Thanks! __________________________________________________________ When your life is on the go葉ake your life with you. http://clk.atdmt. <http://clk.atdmt.com/MRT/go/115298558/direct/01/> com/MRT/go/115298558/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 Hi, I had a long battle with Sinusitis that often result in lung infections. My Doctor had me on antibodics every other week using Amox-Clav and several others. I found a book on Sinusitis. One of the things they suggested was to exercise couple of times each week. I picked up cycling. Now my lungs and sinus have cleared up fairly well. Now I'm on antibodics once a month. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Misty, All, Sinus problems of the type you describe are strongly thought to be a fungal problem, and one that develops when good flora are not replaced after they have been eradicated by abx, etc. Unless this fungal problem is resolved, including usually a change in diet and treatment of a probable fungal overgrowth, these sinusitis type conditions can go on forever. Even Mayo Research a number of years ago put out a paper about this cause of repeated sinus infections. Taking antibiotics, and any other medications, serve to keep the body in a more acidic condition which encourages all sorts of unfriendly organisms to thrive and multiply. Abx can be a tremendous " magic bullet " for us when we respect them and pay attention to replacing gut flora to balance the good vs bad organisms; and the -cyclines address mycoplasma type organisms. However, abx can be a two-edged sword... and if we keep on feeding the bad organisms with sugar and other type foods they need to survive, they can " cut " the wrong way, and make some things worse. Some people are genetically and environmentally more susceptible to yeast overgrowth than others, but where there is chronic illness, I believe there is no doubt that our gut flora is way out of balance. This statement has its basis in a scientific paper that Dr. Crook mailed to those who contacted him a number of years of ago. bg > > I'm new here, this is my first post. > > Bit of background... I have a pre-med background so I'm big into > researching a lot on my own about my health issues. Back in April I > found out I was going to need septoplasty surgery to fix a slew of > problems with my sinuses, in hopes to stop chronic migraines that were > fairly new (just a couple years). > > I had sinus problems my entire life. Chronic drainage, etc. I did > research and found that a big cause of chronic sinusitis is > mycoplasma. I did more research, and started wondering that if they > fix the sinus problems, not only could it stop my migraines, but could > it help or stop my autoimmune problems? I wasn't sure, but research I > had done suggested that mycoplasma was an underlying cause of > autoimmune issues. At this point, I didn't know about antibiotic > therapy for autoimmune problems. > > Sure as the world, after surgery, despite the pain from the surgery > itself, I felt GREAT! All my joint pains were gone, I just felt > wonderful. After a few weeks of healing, I felt like a teenager > again. No pain, LOTS of energy, etc. > > Unfortunately by mid-August, I started reverting slowly back to where > I was. That is what made me wonder if it was actually the antibiotics > that had made me feel so great. > > My doctors do feel that I could indeed have an underlying infection > that could be triggering the autoimmune issues, but they don't want to > treat it with antibiotics. So, I did more research and found out > about The Road Back Foundation. Bingo! Through that I found a new > doctor that has placed me on antibiotic therapy. > > I've only been on it one week, but I can't tell a difference. In > fact, if anything, feel a bit worse. I know about the Herxheimer > reaction, and realize that could be this (although this is very > slight). I also know that AP therapy can take months before noticing > a difference. > > But here's my question, although it may be a stupid question: Why not > be placed on something like Amox-Clav (like I was for surgery and > after surgery) which worked INSTANTLY? Why the tetracycline based > antibiotics which can take months or a year or longer to MAYBE have a > difference? > > I'd LOVE to be back on the Amox-Clav or something like it to feel > normal quick like that. It obviously did something right to be able > to make me feel that great that quick. > > If anyone knows the answer, I'd love to hear it! Thanks! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 Unless I missed it, you never said what your " autoimmune problems " were. rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? I'm new here, this is my first post. Bit of background... I have a pre-med background so I'm big into researching a lot on my own about my health issues. Back in April I found out I was going to need septoplasty surgery to fix a slew of problems with my sinuses, in hopes to stop chronic migraines that were fairly new (just a couple years). I had sinus problems my entire life. Chronic drainage, etc. I did research and found that a big cause of chronic sinusitis is mycoplasma. I did more research, and started wondering that if they fix the sinus problems, not only could it stop my migraines, but could it help or stop my autoimmune problems? I wasn't sure, but research I had done suggested that mycoplasma was an underlying cause of autoimmune issues. At this point, I didn't know about antibiotic therapy for autoimmune problems. Sure as the world, after surgery, despite the pain from the surgery itself, I felt GREAT! All my joint pains were gone, I just felt wonderful. After a few weeks of healing, I felt like a teenager again. No pain, LOTS of energy, etc. Unfortunately by mid-August, I started reverting slowly back to where I was. That is what made me wonder if it was actually the antibiotics that had made me feel so great. My doctors do feel that I could indeed have an underlying infection that could be triggering the autoimmune issues, but they don't want to treat it with antibiotics. So, I did more research and found out about The Road Back Foundation. Bingo! Through that I found a new doctor that has placed me on antibiotic therapy. I've only been on it one week, but I can't tell a difference. In fact, if anything, feel a bit worse. I know about the Herxheimer reaction, and realize that could be this (although this is very slight). I also know that AP therapy can take months before noticing a difference. But here's my question, although it may be a stupid question: Why not be placed on something like Amox-Clav (like I was for surgery and after surgery) which worked INSTANTLY? Why the tetracycline based antibiotics which can take months or a year or longer to MAYBE have a difference? I'd LOVE to be back on the Amox-Clav or something like it to feel normal quick like that. It obviously did something right to be able to make me feel that great that quick. If anyone knows the answer, I'd love to hear it! Thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Guess I need to clarify some things based on some of these posts. I felt better (autoimmune-wise) immediately after surgery, which was the end of April. I felt that good through August - so for 4 months. No way it would be a sympathetic/parasympathetic reaction to surgery lasting that long. I had chronic sinus issues since I was a child. So yes, I realize I had a sespool of bacteria up there for a couple of decades. Also realize it could have become fungal. I know I already had a systemic yeast infection (before surgery) - probably due to the chronic infection. I know that my body was probably very acidic just due to the nature of having that bacterial infection for so many years, yeast overgrowth - all that makes the body acidic. So a couple of weeks after surgery, I had started going away from a traditional diet and went more to a raw/vegetarian diet. I also started taking things such as digestive enzymes (to help remove fibrin and make body more oxygenated), probiotics, Colostrum - all to help attempt to " reset " my body after surgery. And yes, I quit eating anything with yeast or gluten, and no sugar at all. I have been very strict on this diet. (And yes, I am still getting plenty of protein) But once again, I have no doubt it was the antibiotics given during surgery and after surgery that probably killed off enough of the bacteria to make a significant difference in my autoimmune issues. That is why it also makes sense that it only lasted a few months (gave time after antibiotics for remaining bacteria to re-multiply). All this still goes back to my original question though. Why won't these doctors that do AP therapy give regular broad spectrum antibiotics (not long term, but just as a kick start) in addition to the tetracycline based ones, especially if knowing that the patient already had a TREMENDOUS response to that? I know that the Tetracycline based antibiotics are designed to go in and prevent bacteria like mycoplasma from multiplying, but why not also give just like a 10-30 day supply of the broad spectrum to go in and kill off some of this? I know it couldn't really be much longer than that due to potential bacteria resistance to that broad spectrum antibiotic. That would not be good. Not just for the mycoplasma but any other bacteria you might develop. I am just wondering medically, when the patient has already shown improvement on a broad spectrum antibiotic, why an AP therapy doctor won't give that in addition to the tetracycline antibiotics? Thanks!!! : ) Misty > > From: Jeffery <jefferysahotmail (DOT) <mailto:jefferysa%40hotmail.com> com> > Subject: RE: rheumatic Why not Amox-Clav instead of Tetracycline based antibiotics? > rheumatic@grou <mailto:rheumatic%40> ps.com > Date: Monday, October 20, 2008, 6:23 PM > > Maybe the explanation truly is the the antibiotics. Though another possibility > lies in the body's response to trauma (given that surgery is really just > well orchestrated trauma). I had major surgery this year and experienced > similar temporary improvements of autoimmune symptoms, though I had not been > given antibiotics during surgery or afterward. I asked my rheum. He claimed it > is not unusual. That it can be a physiological response to trauma, the > body's normal as well as abnormal functions give way to an autonomic-like > response of the body to the trauma. Part of the body's response to an > emergency (which it thinks surgery is) is to kick the sympathetic network into > gear, and other functions (circulatory, lymphatic, etc.) follow from that and > are likewise altered to prepare for the worst. > > Afterward, I recalled watching some Nat Geo program on TV that had a lone hiker > falling around 40 feet over a cliff. She was badly injured, bad leg fracture, > but claimed that she felt no pain. She wrapped it good with what she had and > crawled a good distance until she was found. She said the first pain she felt > was when she was loaded on the rescue helicopter. They explained it by saying > that her response probably was trigered before she hit the ground, that falling > itself was enough for the body to go into an emergency mode. The brain and the > CNS can then automatically and temporarily shunt or physically block neural pain > and sensory impulses in anticipation of trauma. Once she sensed the relief of > rescue, the body's extreme response was stopped. It's the classic > sympathetic/parasympathetic physiological response. This is an extreme example, > but it is true that the sympathetic/parasympathetic response does not have to be > this dramatic. It still functions at lower levels of trauma, and maybe that is > what is driving some post-surgery improvements. In autoimmune diseases, we > think of the immune system as fuctioning abnormally. Really though it is just > the body incorrectly applying normal bodily processes. So it seems reasonable > that if those normal processes are potentially altered due to trauma, then even > the factor driving the autoimmunity could be temporarily affected. > > Jeff > > rheumatic@grou <mailto:rheumatic%40> ps.com > From: brn_eye_grl@ <mailto:brn_eye_grl%40> > Date: Mon, 20 Oct 2008 17:46:54 +0000 > Subject: rheumatic Why not Amox-Clav instead of Tetracycline based > antibiotics? > > I'm new here, this is my first post. > > Bit of background... I have a pre-med background so I'm big into > > researching a lot on my own about my health issues. Back in April I > > found out I was going to need septoplasty surgery to fix a slew of > > problems with my sinuses, in hopes to stop chronic migraines that were > > fairly new (just a couple years). > > I had sinus problems my entire life. Chronic drainage, etc. I did > > research and found that a big cause of chronic sinusitis is > > mycoplasma. I did more research, and started wondering that if they > > fix the sinus problems, not only could it stop my migraines, but could > > it help or stop my autoimmune problems? I wasn't sure, but research I > > had done suggested that mycoplasma was an underlying cause of > > autoimmune issues. At this point, I didn't know about antibiotic > > therapy for autoimmune problems. > > Sure as the world, after surgery, despite the pain from the surgery > > itself, I felt GREAT! All my joint pains were gone, I just felt > > wonderful. After a few weeks of healing, I felt like a teenager > > again. No pain, LOTS of energy, etc. > > Unfortunately by mid-August, I started reverting slowly back to where > > I was. That is what made me wonder if it was actually the antibiotics > > that had made me feel so great. > > My doctors do feel that I could indeed have an underlying infection > > that could be triggering the autoimmune issues, but they don't want to > > treat it with antibiotics. So, I did more research and found out > > about The Road Back Foundation. Bingo! Through that I found a new > > doctor that has placed me on antibiotic therapy. > > I've only been on it one week, but I can't tell a difference. In > > fact, if anything, feel a bit worse. I know about the Herxheimer > > reaction, and realize that could be this (although this is very > > slight). I also know that AP therapy can take months before noticing > > a difference. > > But here's my question, although it may be a stupid question: Why not > > be placed on something like Amox-Clav (like I was for surgery and > > after surgery) which worked INSTANTLY? Why the tetracycline based > > antibiotics which can take months or a year or longer to MAYBE have a > > difference? > > I'd LOVE to be back on the Amox-Clav or something like it to feel > > normal quick like that. It obviously did something right to be able > > to make me feel that great that quick. > > If anyone knows the answer, I'd love to hear it! Thanks! > > > > > > > > > > > > > > > __________________________________________________________ > When your life is on the goè`‰ake your life with you. > http://clk.atdmt. <http://clk.atdmt.com/MRT/go/115298558/direct/01/> com/MRT/go/115298558/direct/01/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 >>>I am just wondering medically, when the patient has already shown improvement on a broad spectrum antibiotic, why an AP therapy doctor won't give that in addition to the tetracycline antibiotics?<<< Hi Misty, As far as I know, Dr Brown employed a number of different classes of antibiotics with his patients. However, he was cautious with the penicillins, as these seem to drive mycoplasma into L-Forms. You can read more about this in " The Infection Connection, " by Dr. M. Poehlmann. Also, some classes of antibiotics are contraindicated in combo with tetracyclines...amoxy will nullify a tetracycline, for instance, and I believe I read something about renal hypertension when taken in combination. Today, a number of AP patients are on combination therapy, myself included. I take minocin 100mg twice a day, plus azithromycin, a broad spectrum macrolide, once every week. It probably depends on the AP doc as to what protocol they will prescribe. >>>I know that the Tetracycline based antibiotics are designed to go in and prevent bacteria like mycoplasma from multiplying, but why not also give just like a 10-30 day supply of the broad spectrum to go in and kill off some of this? <<< Good question. I gather that because myco are " slow infections " and more prone to bacteriostatics, like tetracyclines or macrolides, at certain points in their life cycle. Also, because mycos are cell wall deficients (CWDs), they don't respond to abx like penicillins - bacteriocides - that compromise cell walls. Bacteriostatics don't kill mycoplasma either...they just interfere with certain enzyme and protein process that inhibit their ability to replicate and grow. My laymans' understanding is that it's the immune system which does the killing, not AP. AP just suppresses mycoplasma to the point where the immune system can take over and function normally. All the best in your searches for the best protocol for you! Peace, Maz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2008 Report Share Posted October 31, 2008 I too had surgery unrelated to my arthritis, had antibiotics during surgery, was much improved afterwards w/ my arthritis. This happened in 1997, and it sent me to the internet also and found this list. I was going to a rhuemy that is not an " AP Dr " but when I asked if I could try antibiotics, he DID let me try a oral version of what I had had during surgery. That was the start of AP for me. I can't remember how long I was on it, but eventually I switched to other antibiotics including minocine. I wish I could have tried IV again (after surgery) but my insurance didn't pay for that so I stuck to oral. The results were not as impressive as after surgery, but there was some improvement. Cari AS 1983 Quote Link to comment Share on other sites More sharing options...
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