Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 >I am in hopes that IHMA will come up with guidelines so we can >become a self regulated industry to the satisfaction of officials. >If State or Federal regulations take over, it could cause problems >for everyone. But, if some type of regulations are not mandated, we >may have problems by careless centers anyway. > Hartsoe I know that most everyone on this list pretty much despises the UHMS, but they do now have a facility accredidation program that certifies all types of HBO centers, including free-standing. Since the government seems to like the rules UHMS has put out before (i.e. indications list), it would behoove centers to attempt to meet those standards, even if they choose not apply for actual certification. Most standards in that program were already in existance. They are now just bound together into one resource. - ston, RN, BSN Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 Dear , The AP Story about your clinic is weighted to the negative side, as all of us know who have followed the HBO miracle for years. Now the question comes, what does one do ro get additional stories written that will give a more accurate analysis of the benefits of pressurized oxygen for brain damage. In your case were you able to give the Medical Editor any factual data about the results of the hundreds of young patients who have benefited, names of child and parents, phone numbers she could call. In the recent feature story about my wife's the reporter, Barron Billingsley, interviewed my wife's mainstream physician, Dr Steve Mussey, who said after watching my wife's improvement, " Lee's steady improvement makes you wonder. And he said otherwise, that is if she had not had the HBO, she would just be in bed. " This a mainstream doctor who sees hundreds of stroke victims. When he says it makes you wonder, after all his training to the contrary, ir is about as far as he could go without briging on the stinging attacks from the medical naysayers. So, did the editor have access to some of your success stories and refuse to include them? She will surely be awaken when the Discovery Channel does its story now scheduled for August 3 at 9P>M. The producer tells me it brings people to tears. To help get some balance into this story, informed medical personnel need to call AP, reference some of the negative quotes such; as the Canadian Doctor who stated that 111 patients treated with HBO state that the therapy offers little more than a placebo effect. This maybe be accurate for that 111, but we know you have had hundreds who know and presumably would state otherwise. Gordon has evidence and testimony of thousands who have benefited. And All the HBO physicians treating neurological conditions have clinical reports which would offer accurate information. This is too important to permit such a " big lie " to go unanswered and uncontested. We all recall what Hitler was able to do by repeating the " big lie " AP editors should be brought into our focus wherever we live, and AP reporters should be offered accurate Data and records kept of the data presented. AP is a reputable wire service, but it is; only as good as the info is accurate. The Duke Doctor is quoted about indications which benefit from HBO, but then the killer sentence added, The Duke Chamber, like the ones at other hospitals around the country. is ;not used for neurological problems. There are some hospitals in Louisiana who do use HBO for neurological conditions. I have talked to the doctors in some instances. Not one word from the best informed HBO physicians in the U. S. and not one word about the results of other nations effectively using HBO for neurological conditions. Reporters should be told this story does not reflect an accurate account of where HBO is today in the U.S, treating neurological conditions. Then those that can should supply data from their own experience. The UTMB in Galveston has excellent data. HBOMEDTDAY has excellent Data. Dr. Harch , a world reknown authority on HBO, has years of data on neurological patients he has treated. Dr. Neubauer has an excellently book. KK Jain Textbook has all sorts of data. Neurological doctos in the U. S. have their own HBO facilities, one inn Naples and another near Dr. Neubauer. Neurological doctors should make an input and be asked their results. I could go on and o;n, but the main point is people who have experienced benefits should step forward now that AP has opened the subject for discussion. My wife's story now on the internet is much more balanced an accurate, but the media needs ; Our help. Capt. Manson USN Ret.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 , Yes, strong e-mails from parents t the editors and newspapers would make a difference and they should go forth soonest Manson The people's voices do count. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 , I cannot find anything about this on the Fayetteville, Asheville, Durham, or Raleigh newspaper sites. 1. Who was the reporter and from what newspaper/news organization did they represent? 2. What newspaper was Miracle Mountain the feature story in? 3. When did the story run? >We were the feature story in a paper here in NC and it was picked up by >the AP and has appeared in 5 papers that we know of. Below is the story. >It was done by a Medical Editor and she was really trying to find things >wrong. They brought a photographer, reporter, etc. and spent half a day >at our center probing. > >I was also informed that there may be other investigative reporters >showing up at other centers across the country. Is there a conspiracy to >try to close freestanding centers? I am in hopes that IHMA will come up >with guidelines so we can become a self regulated industry to the >satisfaction of officials. If State or Federal regulations take over, it >could cause problems for everyone. But, if some type of regulations are >not mandated, we may have problems by careless centers anyway. > >At least, we are getting noticed! > Hartsoe >www.miraclemountain.org > >+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ >Oxygen treatment at issue > >The Associated Press > >CRESTON - Soon after he was born 14 weeks early, weighing 14.5 ounces, > was diagnosed with cerebral palsy. > >Today, at age 7, he can't walk or talk. Conventional medicine offers him >little help. But and Judy Hartsoe, founders of an Ashe >County treatment center called Miracle Mountain, give his family hope. > >The Hartsoes say the oxygen that patients inhale inside the center's >hyperbaric oxygen chamber relieves symptoms of cerebral >palsy and other neurological disorders. > >But serious questions exist about whether hyperbaric oxygen therapy works >for complex neurological conditions and about the way >the treatment is delivered at Miracle Mountain. Hyperbaric oxygen therapy >is not an accepted medical treatment for cerebral palsy or >other neurological disorders. And Miracle Mountain does not have a doctor >on staff or on call, as outside experts say is essential. > >Some experts, including a Canadian doctor who studied 111 cerebral palsy >patients who received hyperbaric oxygen therapy, say >that the treatment offers little more than a placebo effect. > >The hyperbaric oxygen chamber is a machine in which patients receive 100 >percent oxygen at higher-than-normal atmospheric >pressure. > >Miracle Mountain is in a small, unassuming wood-paneled cabin in the Blue >Ridge Mountains. The Hartsoes bought a hyperbaric >oxygen chamber for about $200,000 from an Internet site and opened the >small clinic in April 2000. Standalone chambers are not >required to be inspected or licensed by the state. > >Since then, they say, they have treated 150 to 200 people. > >Once every hour and a half, a child crawls or is carried through the small >door into the hyperbaric chamber. The patient is covered >with blankets and an oxygen hood is placed on his head. The child sits in >the chamber for an hour and a half, twice a day. > >Air pressure is increased during the first 15 minutes, from the normal >level of 14.7 pounds per square inch to about 22 pounds per >square inch. Once the pressure is increased, oxygen is given for an hour, >then the pressure is gradually returned to normal. > >During the treatment, the children sit still. Most don't seem to quite >know what's happening. Parents can go inside the chamber with >their child or stay outside. > >Therapy is expensive. The standard 40-session treatment at Miracle >Mountain costs $3,000, and many families make repeat trips to >the center. Insurance doesn't cover the therapy, which means most families >have to become adept at fund-raising. > >Hyperbaric oxygen therapy is a highly effective treatment for people who >have inhaled carbon monoxide or have decompression >sickness, known as the bends. People with body tissue damaged by radiation >treatment or diabetic conditions are also often helped >by the oxygen treatment, said Dr. Claude Piantadosi, who oversees the >hyperbaric chamber at Duke University Medical Center. > >The Duke chamber, like the ones at other hospitals around the country, is >not used for the treatment of neurological problems. > >The Hartsoes say the oxygen that the patients inhale stimulates the areas >of the brain that have been damaged. But other doctors >question whether the treatment can work on such damage, given that it is >much older and more complicated than flesh wounds. > >Some doctors say they are not ready to dismiss the therapy, which has >become increasingly popular among parents of children with >cerebral palsy, but they caution that much more research needs to be done. > >Dr. Kurt Klinepeter, an associate professor of pediatrics and the chief of >developmental and behavioral pediatrics at Wake Forest >University Baptist Medical Center, doesn't take sides in the debate about >the effectiveness of the therapy. But he does advise >parents to be careful. Hyperbaric oxygen therapy can cause middle-ear >damage or even rupture the eardrum. There can also be air >leaks that could damage the lungs, Klinepeter said. Patients can have >seizures or suffer claustrophobia in the chamber. > > " There are potential complications. If the therapy is not done correctly, >for certain. But even if it is done correctly, there are potential >complications, " he said. > >The federal Centers for Medicaid and Medicare Services, which decides on >the procedures and treatments that will be covered by >Medicaid and Medicare, sets the standard for what private insurance >companies will cover as well. So far, it has refused to cover the >hyperbaric treatment for children with neurological problems. > > , a CMMS spokesman, said the federal government typically >won't cover a procedure if there isn't scientific >evidence to back it up. > >The Hartsoes say that this is because a closed-minded medical community >has always been slow to accept anything new. > > " It's only a matter of time before we get doctors and Medicaid and >Medicare to accept it, " Hartsoe said. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 , the original story was in the Winston Salem Journal and it has now run in several papers. If you don't catch it on the web page the day it runs, it goes into the archives and they want you to pay for a copy. That is the reason I attached a copy to the email. The NC Medical Board checked us out today and we came out fine. They had no problems with us so everything is OK. I also archived the story at our website, www.miraclemountain.com Re: [ ] News Article > , > > I cannot find anything about this on the Fayetteville, Asheville, Durham, > or Raleigh newspaper sites. > > 1. Who was the reporter and from what newspaper/news organization did they > represent? > > 2. What newspaper was Miracle Mountain the feature story in? > > 3. When did the story run? > > > >We were the feature story in a paper here in NC and it was picked up by > >the AP and has appeared in 5 papers that we know of. Below is the story. > >It was done by a Medical Editor and she was really trying to find things > >wrong. They brought a photographer, reporter, etc. and spent half a day > >at our center probing. > > > >I was also informed that there may be other investigative reporters > >showing up at other centers across the country. Is there a conspiracy to > >try to close freestanding centers? I am in hopes that IHMA will come up > >with guidelines so we can become a self regulated industry to the > >satisfaction of officials. If State or Federal regulations take over, it > >could cause problems for everyone. But, if some type of regulations are > >not mandated, we may have problems by careless centers anyway. > > > >At least, we are getting noticed! > > Hartsoe > >www.miraclemountain.org > > > >+++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++++ > >Oxygen treatment at issue > > > >The Associated Press > > > >CRESTON - Soon after he was born 14 weeks early, weighing 14.5 ounces, > > was diagnosed with cerebral palsy. > > > >Today, at age 7, he can't walk or talk. Conventional medicine offers him > >little help. But and Judy Hartsoe, founders of an Ashe > >County treatment center called Miracle Mountain, give his family hope. > > > >The Hartsoes say the oxygen that patients inhale inside the center's > >hyperbaric oxygen chamber relieves symptoms of cerebral > >palsy and other neurological disorders. > > > >But serious questions exist about whether hyperbaric oxygen therapy works > >for complex neurological conditions and about the way > >the treatment is delivered at Miracle Mountain. Hyperbaric oxygen therapy > >is not an accepted medical treatment for cerebral palsy or > >other neurological disorders. And Miracle Mountain does not have a doctor > >on staff or on call, as outside experts say is essential. > > > >Some experts, including a Canadian doctor who studied 111 cerebral palsy > >patients who received hyperbaric oxygen therapy, say > >that the treatment offers little more than a placebo effect. > > > >The hyperbaric oxygen chamber is a machine in which patients receive 100 > >percent oxygen at higher-than-normal atmospheric > >pressure. > > > >Miracle Mountain is in a small, unassuming wood-paneled cabin in the Blue > >Ridge Mountains. The Hartsoes bought a hyperbaric > >oxygen chamber for about $200,000 from an Internet site and opened the > >small clinic in April 2000. Standalone chambers are not > >required to be inspected or licensed by the state. > > > >Since then, they say, they have treated 150 to 200 people. > > > >Once every hour and a half, a child crawls or is carried through the small > >door into the hyperbaric chamber. The patient is covered > >with blankets and an oxygen hood is placed on his head. The child sits in > >the chamber for an hour and a half, twice a day. > > > >Air pressure is increased during the first 15 minutes, from the normal > >level of 14.7 pounds per square inch to about 22 pounds per > >square inch. Once the pressure is increased, oxygen is given for an hour, > >then the pressure is gradually returned to normal. > > > >During the treatment, the children sit still. Most don't seem to quite > >know what's happening. Parents can go inside the chamber with > >their child or stay outside. > > > >Therapy is expensive. The standard 40-session treatment at Miracle > >Mountain costs $3,000, and many families make repeat trips to > >the center. Insurance doesn't cover the therapy, which means most families > >have to become adept at fund-raising. > > > >Hyperbaric oxygen therapy is a highly effective treatment for people who > >have inhaled carbon monoxide or have decompression > >sickness, known as the bends. People with body tissue damaged by radiation > >treatment or diabetic conditions are also often helped > >by the oxygen treatment, said Dr. Claude Piantadosi, who oversees the > >hyperbaric chamber at Duke University Medical Center. > > > >The Duke chamber, like the ones at other hospitals around the country, is > >not used for the treatment of neurological problems. > > > >The Hartsoes say the oxygen that the patients inhale stimulates the areas > >of the brain that have been damaged. But other doctors > >question whether the treatment can work on such damage, given that it is > >much older and more complicated than flesh wounds. > > > >Some doctors say they are not ready to dismiss the therapy, which has > >become increasingly popular among parents of children with > >cerebral palsy, but they caution that much more research needs to be done. > > > >Dr. Kurt Klinepeter, an associate professor of pediatrics and the chief of > >developmental and behavioral pediatrics at Wake Forest > >University Baptist Medical Center, doesn't take sides in the debate about > >the effectiveness of the therapy. But he does advise > >parents to be careful. Hyperbaric oxygen therapy can cause middle-ear > >damage or even rupture the eardrum. There can also be air > >leaks that could damage the lungs, Klinepeter said. Patients can have > >seizures or suffer claustrophobia in the chamber. > > > > " There are potential complications. If the therapy is not done correctly, > >for certain. But even if it is done correctly, there are potential > >complications, " he said. > > > >The federal Centers for Medicaid and Medicare Services, which decides on > >the procedures and treatments that will be covered by > >Medicaid and Medicare, sets the standard for what private insurance > >companies will cover as well. So far, it has refused to cover the > >hyperbaric treatment for children with neurological problems. > > > > , a CMMS spokesman, said the federal government typically > >won't cover a procedure if there isn't scientific > >evidence to back it up. > > > >The Hartsoes say that this is because a closed-minded medical community > >has always been slow to accept anything new. > > > > " It's only a matter of time before we get doctors and Medicaid and > >Medicare to accept it, " Hartsoe said. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 >, the original story was in the Winston Salem Journal and it has now >run in several papers. If you don't catch it on the web page the day it >runs, it goes into the archives and they want you to pay for a copy. That >is the reason I attached a copy to the email. > >The NC Medical Board checked us out today and we came out fine. They had no >problems with us so everything is OK. I also archived the story at our >website, www.miraclemountain.com > > What was the reporter's name and when did the story run? Do you have a web link? Do you know where the idea came from to write the story? It definitely had a specific slant to it. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ " I have sworn upon the altar of God, eternal hostility against every form of tyranny over the mind of man. " -- Jefferson, probably an early advocate of Hyperbaric Oxygen Therapy. ---------------------------- Freels 2948 Windfield Circle Tucker, GA 30084-6714 USA 770/491-6776 (phone and fax) 509/275-1618 (efax, sends fax as email attachment) mailto:dfreels@... mailto:medicaid-subscribe mailto:HBOTnow-subscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2002 Report Share Posted May 30, 2002 , le Deaver is the Medical editor at the Winston Salem Journal. I am not certain where the idea for the story came from but a source did tell me there may be others around the country. I am not certain of the reliability of statement but it would not be surprising. The original story ran Sunday. I understand it was in Greensboro yesterday or today. I wonder if a few strong emails from parents would make a difference, although I doubt it. Maybe to the paper itself? The website is www.journalnow.com Re: [ ] News Article > >, the original story was in the Winston Salem Journal and it has now > >run in several papers. If you don't catch it on the web page the day it > >runs, it goes into the archives and they want you to pay for a copy. That > >is the reason I attached a copy to the email. > > > >The NC Medical Board checked us out today and we came out fine. They had no > >problems with us so everything is OK. I also archived the story at our > >website, www.miraclemountain.com > > > > > > What was the reporter's name and when did the story run? > > Do you have a web link? > > Do you know where the idea came from to write the story? It definitely had > a specific slant to it. > > > > > > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ > " I have sworn upon the altar of God, eternal hostility against every form > of tyranny over the mind of man. " -- Jefferson, probably an early > advocate of Hyperbaric Oxygen Therapy. > ---------------------------- > Freels > 2948 Windfield Circle > Tucker, GA 30084-6714 > USA > 770/491-6776 (phone and fax) > 509/275-1618 (efax, sends fax as email attachment) > mailto:dfreels@... > > mailto:medicaid-subscribe > > mailto:HBOTnow-subscribe > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 So let me get this straight...an entire generation of children suddenly has DIFFERENT BLOOD?! (Except for the Amish of course...they have that Amish blood versus my Catholic blood...give me a frickin break!) Amazing they can't figure out the difference in the immune system is an EFFECT and not a CAUSE! UGH! [ ] news article Study Finds Blood Differences In Autistic Children Findings May Lead To Early Test For Autism POSTED: 2:05 pm EDT May 5, 2005 New research suggests the blood of children with autism differs from that of children without the condition. RESOURCES Signs In Infants Causes PDD Info Autism Society of America Local ASA Chapter Center for the Study of Autism Child Development Institute Exploring Autism National Institutes of Mental Health Scientists from the University of California-' M.I.N.D. Institute said the findings could be a major step toward developing a routine blood test that would detect autism in newborns, thus initiating treatment -- or even prevention -- early in life. In the study of 70 autistic children and 35 children without autism, researchers found that components of the immune system and proteins and metabolites found in the blood of children with autism differ substantially from those found in other children. The findings were presented Thursday at an autism conference in Boston. According to a news release from the university, autism rates have been rising in recent years, and the condition now affects as many as 1 in every 166 children. However, it's a challenge to diagnose. Right now, doctors can only diagnose it using a series of behavioral observations that aren't reliable until a child is between 2 and 3. " Not being able to detect autism until a child is close to 3 years old eliminates a valuable window of treatment opportunity during the first few years of life when the brain is undergoing tremendous development, " researcher Amaral said. The researchers said larger studies need to be conducted to confirm the findings before a test can be developed. Distributed by Internet Broadcasting Systems, Inc. This material may not be published, broadcast, rewritten or redistributed. Email This Story Print This Story Sponsored Health Deals Healthy Living Health Exercise Health Food Health and Fitness Health Insurance Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2005 Report Share Posted May 8, 2005 > > Scientists from the University of California-' M.I.N.D. Institute said the findings could be a major step toward developing a routine blood test that would detect autism in newborns, thus initiating treatment -- or even prevention -- early in life. > " Scientists " needs to start being used with quotes. What will the treatment be, I wonder? Probably and injection of something. ........rabbitbrain......I like that. Beats " scientist " Beth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2005 Report Share Posted May 9, 2005 I thought the same thing when I read it. HA! Yes, something toxic that the kids can't process because they don't have a clue. Well I though it was interesting they found something to look at to determine Autism but I don't think it will include all Autistic children. They are sick from differnt things! So here we go again. It gave me the feeling of all the tests I got from the doctor and they couldn't find a reason why I am sick. Sigh! Liz D. > What will the treatment be, I wonder? Probably and injection of > something. > > > .......rabbitbrain......I like that. Beats " scientist " > > Beth > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2010 Report Share Posted June 28, 2010 Hello Group, if anyone still has the recent article that connects arthritis to infections, please send it. I intend to take it to my doc this afternoon thanks a lot, Ana Quote Link to comment Share on other sites More sharing options...
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