Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 and and everyone: I was told it could be fibromyalgia/Chronic Fatigue Syndrome etc. But after researching my symptoms after all these years it just doesn't quite fit the picture of this illness. I asked if I was tested for a spondylosis or reiter's etc. and I wondered if there is a test for it and would it give me dry eyes and mouth and my salivary glands swelled up also. My muscles ache so bad and it's hard to walk and now my fingers are starting to hurt , my lower back near the tailbone aches and it feels like it actually moves and cracks and my neck hurts and jaw .It seems like every part of my body is affected and I wonder if a rheumatic condition could do this? I also developed thyroid condition soon after I got sick(Graves Disease).Somehow I developed shingles too... I also wonder if some sort of mycoplasma infection could do this. I realize how hard it is to get diagnosed with this (PCR)test and doctors never listen to me or take me that serious. Once they say you have Fibromyalgia it seems they give up doing any other investigating on what could be wrong. I just made another appointment with another rheumatologist which is going to take 2 months just to get an appointment.I even had them test me for Lyme and it came back negative.How can someone be so sick and nothing shows up on tests?I've been too sick to work and I lost everything and trying to get disability benefits i so stressful and almost impossible to get (especially if your doctor doesn't cooperate and give you the right diagnosis.Most of the doctors don't like when you tell them you found information on-line-they label you as a hypochondriac.Seems you can't win either way.Thanks everyone for listening to me..Sheila Quote Link to comment Share on other sites More sharing options...
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