Re:Tapering off minocycline and staying symptom free?

[Guest guest]

I have been on 100 mg once a day for 2 yrs now.. and Im scared to try and wean

off it! It has worked well for me and the only side effect is a really good

tan! So id be interested to hear about others who cut back on it (yes my " tan "

actually was TOO dark and Id like it a little less dark) Kathy

[Guest guest]

Hi

I took minocycline for three years and was almost pain free for about

a year. I wondered if I had got rid of the bugs and would be ok now.

I struggle with candida which becomes worse when I take antibiotics

so hoped I could reduce that too. I stopped the mino in May this

year, the candida was under control and I had more energy. But after

three months the rheumatoid pain returned with a vengeance! Maybe it

was because I was so unused to pain that I thought it was worse than

it had ever been. At the end of September I reluctantly began the

mino again and hoped that by Christmas I'd be reasonably pain free

again. Well, after two months the pain levels have dramatically

reduced. I still have to take acetaminophen (paracetamol in

Australia) for pain in my right arm and shoulder but even without it

the pain is bearable. I have begun enjoying an active life again!

Unfortunately the candida struggle has started again but that's far

preferable to the levels of pain and consequent misery, limitation

and depression that I was enduring. Maybe we all have to experiment

for ourselves. I had read similar stories to mine before but wondered

whether I would be different. So I tried it and found out that I was

the same as others who have stopped and started again.

I do find that avoiding food triggers and good nutrition are

important too, but on their own they weren't enough.

Best of luck

Ros (in Australia)

[Guest guest]

Ros and ,

I too just went thru this and am still going thru it. Early this spring.

maybe April I got very lax with the Minocin. Maybe taking it 1 pill twice a

week and then stopped. By end of September I started having vague feet pain.

Saw my doc and he said it was not the rheumatoid but I needed pressure point

therapy and when he did it my feet felt better. The feet started again

within the week. Rotator cuffs (both) strained with only slight stretching

movements and they feel very painful I can barely use my arms. My back was

next along with my fingers. I tried doxy for reasons I won't say but weeks

of that and I was nowhere. I finally restarted Minocin over the TG holiday.

I am hoping in a month I will be back to where I was. FYI I was on Minocin

for 12 years with Clindy the first 3 years.

So good luck to us all and I don't think I will ever get this lax again.

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of lind Gittings

Sent: Tuesday, December 01, 2009 5:00 PM

rheumatic

Subject: rheumatic Re:Tapering off minocycline and staying symptom free?

Hi

I took minocycline for three years and was almost pain free for about

a year. I wondered if I had got rid of the bugs and would be ok now.

I struggle with candida which becomes worse when I take antibiotics

so hoped I could reduce that too. I stopped the mino in May this

year, the candida was under control and I had more energy. But after

three months the rheumatoid pain returned with a vengeance! Maybe it

was because I was so unused to pain that I thought it was worse than

it had ever been. At the end of September I reluctantly began the

mino again and hoped that by Christmas I'd be reasonably pain free

again. Well, after two months the pain levels have dramatically

reduced. I still have to take acetaminophen (paracetamol in

Australia) for pain in my right arm and shoulder but even without it

the pain is bearable. I have begun enjoying an active life again!

Unfortunately the candida struggle has started again but that's far

preferable to the levels of pain and consequent misery, limitation

and depression that I was enduring. Maybe we all have to experiment

for ourselves. I had read similar stories to mine before but wondered

whether I would be different. So I tried it and found out that I was

the same as others who have stopped and started again.

I do find that avoiding food triggers and good nutrition are

important too, but on their own they weren't enough.

Best of luck

Ros (in Australia)

[Guest guest]

Hello Cooky,

It seems that the recurrence of symptoms sans the mini is the rule instead of

the exception.

Considering what the antibiotic is being used for and what the theory of Dr.

Brown's book is all about, it would seem that there needs to be some research

into what the correct concentration and length of treatment needs to be.

Although I am sure that Dr. Brown knew the answer to this, it would seem that we

all have to suffer while the rest of the medical world decides that they don't

know " everything " and that there just might be other ideas out there whose time

has come.

I read on one of the replies here recently that the azith drug information sheet

now comes with a " common use " line referencing the fact that it is now

recognized as a treatment for RA.

Rick

rheumatic Re:Tapering off minocycline and staying symptom free?

Hi

I took minocycline for three years and was almost pain free for about

a year. I wondered if I had got rid of the bugs and would be ok now.

I struggle with candida which becomes worse when I take antibiotics

so hoped I could reduce that too. I stopped the mino in May this

year, the candida was under control and I had more energy. But after

three months the rheumatoid pain returned with a vengeance! Maybe it

was because I was so unused to pain that I thought it was worse than

it had ever been. At the end of September I reluctantly began the

mino again and hoped that by Christmas I'd be reasonably pain free

again. Well, after two months the pain levels have dramatically

reduced. I still have to take acetaminophen (paracetamol in

Australia) for pain in my right arm and shoulder but even without it

the pain is bearable. I have begun enjoying an active life again!

Unfortunately the candida struggle has started again but that's far

preferable to the levels of pain and consequent misery, limitation

and depression that I was enduring. Maybe we all have to experiment

for ourselves. I had read similar stories to mine before but wondered

whether I would be different. So I tried it and found out that I was

the same as others who have stopped and started again.

I do find that avoiding food triggers and good nutrition are

important too, but on their own they weren't enough.

Best of luck

Ros (in Australia)

[Guest guest]

Rick,

We are just lucky, I feel, that we found doctors that are willing to

prescribe the antibiotics! I know without them I would be dead. I could not

have endured 12 years of pain like I had. As for the rest of the medical

world they are all followers and if someone has an idea it is squelched.

There will never be any ideas from people " whose time has come " that do not

entail compounding what is already out there that will kill us eventually. I

think in the future (and we all know what I am talking about) people like us

will not have the luxury of living because we will cost too much so maybe

the minocin idea will catch on more. I do doubt tho that there will be a

stop date because it will stop the money to big and small pharm.

I don't think doc Brown knew the answer because they put an end to his

experiments when they found out he was treating with antibiotics. None of

his followers will discover an end because they are afraid of the medical

profession " others " . MY opinion and only mine ..is that the mycos will

become resistant or new types will be born. I think we are seeing this

already. People in Doc Browns day were treated with tetracycline and

erythromycin (old drugs) and now they are not working. We need

Zithromax.biaxin.cipro etc.

People please do not stomp on me for my opinion..I do not wish to start a

feud again.

cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Rick Navarro

Sent: Tuesday, December 01, 2009 6:12 PM

rheumatic

Subject: Re: rheumatic Re:Tapering off minocycline and staying symptom

free?

Hello Cooky,

It seems that the recurrence of symptoms sans the mini is the rule instead

of the exception.

Considering what the antibiotic is being used for and what the theory of Dr.

Brown's book is all about, it would seem that there needs to be some

research into what the correct concentration and length of treatment needs

to be. Although I am sure that Dr. Brown knew the answer to this, it would

seem that we all have to suffer while the rest of the medical world decides

that they don't know " everything " and that there just might be other ideas

out there whose time has come.

I read on one of the replies here recently that the azith drug information

sheet now comes with a " common use " line referencing the fact that it is now

recognized as a treatment for RA.

Rick

rheumatic Re:Tapering off minocycline and staying symptom free?

Hi

I took minocycline for three years and was almost pain free for about

a year. I wondered if I had got rid of the bugs and would be ok now.

I struggle with candida which becomes worse when I take antibiotics

so hoped I could reduce that too. I stopped the mino in May this

year, the candida was under control and I had more energy. But after

three months the rheumatoid pain returned with a vengeance! Maybe it

was because I was so unused to pain that I thought it was worse than

it had ever been. At the end of September I reluctantly began the

mino again and hoped that by Christmas I'd be reasonably pain free

again. Well, after two months the pain levels have dramatically

reduced. I still have to take acetaminophen (paracetamol in

Australia) for pain in my right arm and shoulder but even without it

the pain is bearable. I have begun enjoying an active life again!

Unfortunately the candida struggle has started again but that's far

preferable to the levels of pain and consequent misery, limitation

and depression that I was enduring. Maybe we all have to experiment

for ourselves. I had read similar stories to mine before but wondered

whether I would be different. So I tried it and found out that I was

the same as others who have stopped and started again.

I do find that avoiding food triggers and good nutrition are

important too, but on their own they weren't enough.

Best of luck

Ros (in Australia)

[Guest guest]

I have experienced the same thing....getting lax and also through a past

schedule of taking care of my terminally ill mom. I agree with you Cooky, be

careful not to get lax, it slowly creeps up on you and then it takes a longer

time to get back into the lower number/remission phase. We get fooled because we

feel so good and just keep living and enjoying life.

With diligence and peristance I am seeing results. But just to anyone who thinks

we can get lax, spare yourself the frustration of seeing the old symptoms coming

back.

Wishing good health to all

Roni

rheumatic Re:Tapering off minocycline and staying symptom free?

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[Guest guest]

Cooky,

I have been taking Minoxin and Biaxin for almost two years. I think everyones

illness is different and therefore it should be tailored to that problems.

People should not say that whatever Dr. Brown wrote was the ground rules. He

probably would also have changed the meds on people if he would still be alive

and since new ones have come come out since then. He did a great job of helping

people wit the RA and other autoimmune issues.

Eva

From: Cooky Stonkey <cookee1@...>

Subject: RE: rheumatic Re:Tapering off minocycline and staying symptom free?

rheumatic

Date: Tuesday, December 1, 2009, 5:46 PM

 

Rick,

We are just lucky, I feel, that we found doctors that are willing to

prescribe the antibiotics! I know without them I would be dead. I could not

have endured 12 years of pain like I had. As for the rest of the medical

world they are all followers and if someone has an idea it is squelched.

There will never be any ideas from people " whose time has come " that do not

entail compounding what is already out there that will kill us eventually. I

think in the future (and we all know what I am talking about) people like us

will not have the luxury of living because we will cost too much so maybe

the minocin idea will catch on more. I do doubt tho that there will be a

stop date because it will stop the money to big and small pharm.

I don't think doc Brown knew the answer because they put an end to his

experiments when they found out he was treating with antibiotics. None of

his followers will discover an end because they are afraid of the medical

profession " others " . MY opinion and only mine ..is that the mycos will

become resistant or new types will be born. I think we are seeing this

already. People in Doc Browns day were treated with tetracycline and

erythromycin (old drugs) and now they are not working. We need

Zithromax.biaxin. cipro etc.

People please do not stomp on me for my opinion..I do not wish to start a

feud again.

cooky

From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf

Of Rick Navarro

Sent: Tuesday, December 01, 2009 6:12 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Re:Tapering off minocycline and staying symptom

free?

Hello Cooky,

It seems that the recurrence of symptoms sans the mini is the rule instead

of the exception.

Considering what the antibiotic is being used for and what the theory of Dr.

Brown's book is all about, it would seem that there needs to be some

research into what the correct concentration and length of treatment needs

to be. Although I am sure that Dr. Brown knew the answer to this, it would

seem that we all have to suffer while the rest of the medical world decides

that they don't know " everything " and that there just might be other ideas

out there whose time has come.

I read on one of the replies here recently that the azith drug information

sheet now comes with a " common use " line referencing the fact that it is now

recognized as a treatment for RA.

Rick

rheumatic Re:Tapering off minocycline and staying symptom free?

Hi

I took minocycline for three years and was almost pain free for about

a year. I wondered if I had got rid of the bugs and would be ok now.

I struggle with candida which becomes worse when I take antibiotics

so hoped I could reduce that too. I stopped the mino in May this

year, the candida was under control and I had more energy. But after

three months the rheumatoid pain returned with a vengeance! Maybe it

was because I was so unused to pain that I thought it was worse than

it had ever been. At the end of September I reluctantly began the

mino again and hoped that by Christmas I'd be reasonably pain free

again. Well, after two months the pain levels have dramatically

reduced. I still have to take acetaminophen (paracetamol in

Australia) for pain in my right arm and shoulder but even without it

the pain is bearable. I have begun enjoying an active life again!

Unfortunately the candida struggle has started again but that's far

preferable to the levels of pain and consequent misery, limitation

and depression that I was enduring. Maybe we all have to experiment

for ourselves. I had read similar stories to mine before but wondered

whether I would be different. So I tried it and found out that I was

the same as others who have stopped and started again.

I do find that avoiding food triggers and good nutrition are

important too, but on their own they weren't enough.

Best of luck

Ros (in Australia)

[Guest guest]

I agree…his word is not law. I just meant he never had these drugs and now

that we have them we seem to need them. I don’t know….. maybe you would

have been helped on just tetra or erythromycin in his time or MAYBE mycos are

different and need different meds today….or maybe not. I don’t mean to

confuse anyone or argue the point that everyone is different.

From: rheumatic [mailto:rheumatic ] On Behalf Of

Eva Holloway

Sent: Tuesday, December 01, 2009 11:32 PM

rheumatic

Subject: RE: rheumatic Re:Tapering off minocycline and staying symptom free?

Cooky,

I have been taking Minoxin and Biaxin for almost two years. I think everyones

illness is different and therefore it should be tailored to that problems.

People should not say that whatever Dr. Brown wrote was the ground rules. He

probably would also have changed the meds on people if he would still be alive

and since new ones have come come out since then. He did a great job of helping

people wit the RA and other autoimmune issues.

Eva

From: Cooky Stonkey <cookee1@... <mailto:cookee1%40comcast.net> >

Subject: RE: rheumatic Re:Tapering off minocycline and staying symptom free?

rheumatic <mailto:rheumatic%40>

Date: Tuesday, December 1, 2009, 5:46 PM

Rick,

We are just lucky, I feel, that we found doctors that are willing to

prescribe the antibiotics! I know without them I would be dead. I could not

have endured 12 years of pain like I had. As for the rest of the medical

world they are all followers and if someone has an idea it is squelched.

There will never be any ideas from people " whose time has come " that do not

entail compounding what is already out there that will kill us eventually. I

think in the future (and we all know what I am talking about) people like us

will not have the luxury of living because we will cost too much so maybe

the minocin idea will catch on more. I do doubt tho that there will be a

stop date because it will stop the money to big and small pharm.

I don't think doc Brown knew the answer because they put an end to his

experiments when they found out he was treating with antibiotics. None of

his followers will discover an end because they are afraid of the medical

profession " others " . MY opinion and only mine ..is that the mycos will

become resistant or new types will be born. I think we are seeing this

already. People in Doc Browns day were treated with tetracycline and

erythromycin (old drugs) and now they are not working. We need

Zithromax.biaxin. cipro etc.

People please do not stomp on me for my opinion..I do not wish to start a

feud again.

cooky

From: rheumatic@grou ps.com [mailto:rheumatic@grou ps.com] On Behalf

Of Rick Navarro

Sent: Tuesday, December 01, 2009 6:12 PM

rheumatic@grou ps.com

Subject: Re: rheumatic Re:Tapering off minocycline and staying symptom

free?

Hello Cooky,

It seems that the recurrence of symptoms sans the mini is the rule instead

of the exception.

Considering what the antibiotic is being used for and what the theory of Dr.

Brown's book is all about, it would seem that there needs to be some

research into what the correct concentration and length of treatment needs

to be. Although I am sure that Dr. Brown knew the answer to this, it would

seem that we all have to suffer while the rest of the medical world decides

that they don't know " everything " and that there just might be other ideas

out there whose time has come.

I read on one of the replies here recently that the azith drug information

sheet now comes with a " common use " line referencing the fact that it is now

recognized as a treatment for RA.

Rick

rheumatic Re:Tapering off minocycline and staying symptom free?

Hi

I took minocycline for three years and was almost pain free for about

a year. I wondered if I had got rid of the bugs and would be ok now.

I struggle with candida which becomes worse when I take antibiotics

so hoped I could reduce that too. I stopped the mino in May this

year, the candida was under control and I had more energy. But after

three months the rheumatoid pain returned with a vengeance! Maybe it

was because I was so unused to pain that I thought it was worse than

it had ever been. At the end of September I reluctantly began the

mino again and hoped that by Christmas I'd be reasonably pain free

again. Well, after two months the pain levels have dramatically

reduced. I still have to take acetaminophen (paracetamol in

Australia) for pain in my right arm and shoulder but even without it

the pain is bearable. I have begun enjoying an active life again!

Unfortunately the candida struggle has started again but that's far

preferable to the levels of pain and consequent misery, limitation

and depression that I was enduring. Maybe we all have to experiment

for ourselves. I had read similar stories to mine before but wondered

whether I would be different. So I tried it and found out that I was

the same as others who have stopped and started again.

I do find that avoiding food triggers and good nutrition are

important too, but on their own they weren't enough.

Best of luck

Ros (in Australia)

[Guest guest]

When I was first diagnosed with RA, my holistic (integrative) doctor put me

on minocycline (the real thing) 5 days weekly, 2x's a day, 100 mg each

dose. So that was 10 times weekly. Now, 10 years later and after changing and

tweaking and tracking, I've been on minocycline (still the real thing)

Mon/Wed/Fri, morning ONLY, 100 mg. On Tues and Thurs mornings, I take Zithramax

250 mg. That's it. As of 2 yrs ago, I don't take any Aleve ....used to

take 2 in the morning and 2 in evening. The slight damage that's in my hands

and feet remains stable with no new changes. My #'s have gone done in

everything (and Dr Brownstein takes blookwork with " everything " checked) but

not

quite normal. I can't say I'm in remission exactly yet, but I think close

to it.

I am very much afraid to cut down more than this b/c it seems that the

majority of us cut back only to have it all return in a few months.

Need more research on that one.

hope this helps

Judy Keels

[Guest guest]

Your arguments sound pretty logical to me. If you are right about the resistance

angle, then it would seem logical that the next step would be more research into

the myco's. It's just a bug and " we " should be smarter than it is. Of course, it

requires minds greater than ours to conduct the right types of research.

However, a firm conviction and belief is essential. I don't think an

" accidental " discovery in this case is very likely.

Rick

rheumatic Re:Tapering off minocycline and staying symptom free?

Hi

I took minocycline for three years and was almost pain free for about

a year. I wondered if I had got rid of the bugs and would be ok now.

I struggle with candida which becomes worse when I take antibiotics

so hoped I could reduce that too. I stopped the mino in May this

year, the candida was under control and I had more energy. But after

three months the rheumatoid pain returned with a vengeance! Maybe it

was because I was so unused to pain that I thought it was worse than

it had ever been. At the end of September I reluctantly began the

mino again and hoped that by Christmas I'd be reasonably pain free

again. Well, after two months the pain levels have dramatically

reduced. I still have to take acetaminophen (paracetamol in

Australia) for pain in my right arm and shoulder but even without it

the pain is bearable. I have begun enjoying an active life again!

Unfortunately the candida struggle has started again but that's far

preferable to the levels of pain and consequent misery, limitation

and depression that I was enduring. Maybe we all have to experiment

for ourselves. I had read similar stories to mine before but wondered

whether I would be different. So I tried it and found out that I was

the same as others who have stopped and started again.

I do find that avoiding food triggers and good nutrition are

important too, but on their own they weren't enough.

Best of luck

Ros (in Australia)

[Guest guest]

Not likely and they are actually smarter than we are but only because of the

" natural " things they can do with their forms. Sorry Rick but this is a no

win solution. (big smile)

Cooky

From: rheumatic [mailto:rheumatic ] On Behalf

Of Rick Navarro

Sent: Wednesday, December 02, 2009 1:26 PM

rheumatic

Subject: Re: rheumatic Re:Tapering off minocycline and staying symptom

free?

Your arguments sound pretty logical to me. If you are right about the

resistance angle, then it would seem logical that the next step would be

more research into the myco's. It's just a bug and " we " should be smarter

than it is. Of course, it requires minds greater than ours to conduct the

right types of research. However, a firm conviction and belief is essential.

I don't think an " accidental " discovery in this case is very likely.

Rick