Re: Referral for rhumy in IL

[Guest guest]

Hi before getting involved with a rheumy, get tested for bacteria, viruses or

fungus infections you may be carrying.  Second,get the FAQ sheet on the

antibiotic Protocol and read it all slowly end to end.  All 11 or so pages of

it  You may first want to visit an infectious disease doctor for the testing

and get a copy of all you labs, x-rays, CT-scans and MRI's.  Then google The

antibiotic Protocol and the story about Dr. MacPherson Brown.  You can

pick up a couple of books at Amazon.com.  " The New Arthritis Breakthrough " and

" Scleroderma, The Proven Therapy that can save your life.  Go to this site and

let everyone on it know where you are.  some of the people have lists of

Doctors who will prescribe the antibiotics you need to get well.  If it is Lyme

you have, then find a Lyme Literate doctor, or the specialist for your as yet

undiagnosed disease.  Read about all the diseases in the category of autoimmune

diseases.  Another good site

to go to is " The Roadback Foundation. org. "   Become a member by just agreeing

to their rules.  Ask questions all the time.  Theonly way to fight off and

learn about these diseases is by educating yourself thoroughly on the subject. 

And take matters into your own hands.   You must become your own advocate and

not let any doc who does not know about the antibiotic protocol try to sell you

a bill of goods about taking meds that will suppress your immune system.  You

need an intact immune system to fight off the offending causes which is usually

of an infectious origin.  And most of all, you will need lots of patience to

carry through.  It took me 5 years before I went into remission from

scleroderma.  I have stayed in remission until about a month ago.  Because I

have not been able to get my Minocin medication, some of my former symptoms are

starting to come back.  My doctors are fighting with my insurance company and

my pharmacy is searching

the U.S, for a supplier.  I have been promised that by Feb. 14, I should be

receiving a 30 day dose, but am still fighting for my 90 day doses for

lifetime.  Meanwhile, I am barely keeping my head above water by taking some

clindamycin and azithromycin that are both slightly outdated but something is

better than nothing at  all.Good luck, stay strong.  You are going to need it

to get through this journey.  I wish you well my dear and keep us in touch with

your progress and questions.  Guaranteed that there will be people on this site

that may have the disease you have and can be of tremendous help to you.   the

best to you, Dolores & Mike

From: user <chucksjen@...>

Subject: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 12:15 AM

 

I am newly diagnosed or undiagnosed with a undefined autoimmune disease. I am

looking for a referral for a rhumy in the Will County IL area. I am desperately

trying to get an answer to my pain. Thanks in advance for any recommendations.

Jen

[Guest guest]

You are so Dolores.

From: mike rosner <martysfolks2004@...>

Subject: Re: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 5:35 AM

 

Hi before getting involved with a rheumy, get tested for bacteria, viruses

or fungus infections you may be carrying.  Second,get the FAQ sheet on the

antibiotic Protocol and read it all slowly end to end.  All 11 or so pages of

it  You may first want to visit an infectious disease doctor for the testing

and get a copy of all you labs, x-rays, CT-scans and MRI's.  Then google The

antibiotic Protocol and the story about Dr. MacPherson Brown.  You can

pick up a couple of books at Amazon.com.  " The New Arthritis Breakthrough " and

" Scleroderma, The Proven Therapy that can save your life.  Go to this site and

let everyone on it know where you are.  some of the people have lists of

Doctors who will prescribe the antibiotics you need to get well.  If it is Lyme

you have, then find a Lyme Literate doctor, or the specialist for your as yet

undiagnosed disease.  Read about all the diseases in the category of autoimmune

diseases.  Another

good site

to go to is " The Roadback Foundation. org. "   Become a member by just agreeing

to their rules.  Ask questions all the time.  Theonly way to fight off and

learn about these diseases is by educating yourself thoroughly on the subject. 

And take matters into your own hands.   You must become your own advocate and

not let any doc who does not know about the antibiotic protocol try to sell you

a bill of goods about taking meds that will suppress your immune system.  You

need an intact immune system to fight off the offending causes which is usually

of an infectious origin.  And most of all, you will need lots of patience to

carry through.  It took me 5 years before I went into remission from

scleroderma.  I have stayed in remission until about a month ago.  Because I

have not been able to get my Minocin medication, some of my former symptoms are

starting to come back.  My doctors are fighting with my insurance company and

my pharmacy is searching

the U.S, for a supplier.  I have been promised that by Feb. 14, I should be

receiving a 30 day dose, but am still fighting for my 90 day doses for

lifetime.  Meanwhile, I am barely keeping my head above water by taking some

clindamycin and azithromycin that are both slightly outdated but something is

better than nothing at  all.Good luck, stay strong.  You are going to need it

to get through this journey.  I wish you well my dear and keep us in touch with

your progress and questions.  Guaranteed that there will be people on this site

that may have the disease you have and can be of tremendous help to you.   the

best to you, Dolores & Mike

From: user <chucksjen@...>

Subject: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 12:15 AM

 

I am newly diagnosed or undiagnosed with a undefined autoimmune disease. I am

looking for a referral for a rhumy in the Will County IL area. I am desperately

trying to get an answer to my pain. Thanks in advance for any recommendations.

Jen

[Guest guest]

And you are so Eva!    When we first talked, I asked you to pass on the

information as you got better and you have been great with the people.  I ask

all of you who have been through the ups & downs with these diseases not to

abandon the newbies just because we are no longer sick.  We must all make this

a lifetime committment and grow in numbers.  Therein lies our strength.  We

miss you. How is Burl?   Love to all,  Dolores & Mike

From: mike rosner <martysfolks2004@...>

Subject: Re: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 5:35 AM

 

Hi before getting involved with a rheumy, get tested for bacteria, viruses or

fungus infections you may be carrying.  Second,get the FAQ sheet on the

antibiotic Protocol and read it all slowly end to end.  All 11 or so pages of

it  You may first want to visit an infectious disease doctor for the testing

and get a copy of all you labs, x-rays, CT-scans and MRI's.  Then google The

antibiotic Protocol and the story about Dr. MacPherson Brown.  You can

pick up a couple of books at Amazon.com.  " The New Arthritis Breakthrough " and

" Scleroderma, The Proven Therapy that can save your life.  Go to this site and

let everyone on it know where you are.  some of the people have lists of

Doctors who will prescribe the antibiotics you need to get well.  If it is Lyme

you have, then find a Lyme Literate doctor, or the specialist for your as yet

undiagnosed disease.  Read about all the diseases in the category of autoimmune

diseases.  Another

good site

to go to is " The Roadback Foundation. org. "   Become a member by just agreeing

to their rules.  Ask questions all the time.  Theonly way to fight off and

learn about these diseases is by educating yourself thoroughly on the subject. 

And take matters into your own hands.   You must become your own advocate and

not let any doc who does not know about the antibiotic protocol try to sell you

a bill of goods about taking meds that will suppress your immune system.  You

need an intact immune system to fight off the offending causes which is usually

of an infectious origin.  And most of all, you will need lots of patience to

carry through.  It took me 5 years before I went into remission from

scleroderma.  I have stayed in remission until about a month ago.  Because I

have not been able to get my Minocin medication, some of my former symptoms are

starting to come back.  My doctors are fighting with my insurance company and

my pharmacy is searching

the U.S, for a supplier.  I have been promised that by Feb. 14, I should be

receiving a 30 day dose, but am still fighting for my 90 day doses for

lifetime.  Meanwhile, I am barely keeping my head above water by taking some

clindamycin and azithromycin that are both slightly outdated but something is

better than nothing at  all.Good luck, stay strong.  You are going to need it

to get through this journey.  I wish you well my dear and keep us in touch with

your progress and questions.  Guaranteed that there will be people on this site

that may have the disease you have and can be of tremendous help to you.   the

best to you, Dolores & Mike

From: user <chucksjen@...>

Subject: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 12:15 AM

 

I am newly diagnosed or undiagnosed with a undefined autoimmune disease. I am

looking for a referral for a rhumy in the Will County IL area. I am desperately

trying to get an answer to my pain. Thanks in advance for any recommendations.

Jen

[Guest guest]

On that note, I better check in. I don't participate here much any more as I

continue to work with my husband who is getting over colon rectal cancer if that

can be done. As for me, my scleroderma tests continue to be negative for

scleroderma since 2004. Like others, here in Montana, there is NO ONE

knowledgeable of this disease and its treatment. The doctors here in the

medical coridor continue the treatment to " prolong " what they consider people

soon to be dead. The one doctor I had here was critically injured in a car

wreck so I was without anything or anyone for such a long time. Then I was

lucky enough to locate a gp here who greed to the minocycline - cannot even get

the Minocin in this entire state as the drug is contracted here. So I have done

the minocycline as a prophylactic to not go backwards. In the meantime, we did

cleanup from the damage left by the scleroderma. I had a kidney removed and

then heart ablation on both lobes and the aortic valve. Probably because of the

stress - we still have two left in school and I can tell you that a law practice

pretty much shuts down when the lawyer gets cancer - I have had some symptoms

which worried me. Just because the scleroderma is halted does not mean that the

micoplasms are not rioting again. My GP aceeded to my request to do four months

of oral clindamycine one week on, one week off. I could not have done any more

ivs had I wanted them and been able to get them as my veins are so diminished.

So here I started on Wednesday and will wait to see what kind of herx I have as

I am prone to these. I am able to continue to work with my husband and my life

is just so good. But inflammation is a factor which has shown up so I know I

must now become my own best advocate. If anyone knows a better way to do the

clindamycin, let me know, as I am shooting in the dark, always having had it

through iv. I was fortunate to see this GP on the very day that he had just had

a newly diagnosed scleroderma patient in his office. He asked if the gentleman

could call me but I have not had that call. I did talk to him about the

protocol and will send him all the literature on Monday. He listened carefully

to me as he wants to treat this man so he continues to live like me. This is

quite a journey and I know I am one of the very, very lucky ones. Newbies,

please listen to Delores as she knows this protocol. Love to all of you on this

path. Fain

rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 12:15 AM

I am newly diagnosed or undiagnosed with a undefined autoimmune disease. I am

looking for a referral for a rhumy in the Will County IL area. I am desperately

trying to get an answer to my pain. Thanks in advance for any recommendations.

Jen

[Guest guest]

Hi ,

I did not know you were a lawyer or am I reading this wrong?

I did IM Clindamycin for a few months at the beginning. It did nothing at the

time but I am doing a test on myself now. I am doing IV’s again and am

starting to feel really good. I did not have IV’s for 6 years. Before that I

had them for 3 years. Mt veins are bad but the other day a “good†IV nurse

used a vein I thot was shot so I think you may find good ones with a person who

does them right. Anyway/ I TTHINK Clindy is the drug of choice for me. So I am

starting oral along with the IV’s for a while and eventually will try to stop

Minocin and see if I stay in remission. I will eventually take clindy like I

took Minocin orally. I will let you know how I do.

Why have you not tried to get Minocin from Canada? That is a topic we just had

and a lot of us get Minocin there.

…..Back to IM clindy. You must use a BIG needle and do it in your butt cheeks.

No arm. They are very irritating to the tissue and I had huge bruises no pain.

My nurse friend refused to give them after a while. She said my cheeks looked

like raw meat. So I started doing them on the thighs myself. Major bruises! BUT

not painful at all. Oh …. it is a little painful going in.

Best of luck . You deserve a break.

Blessings

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Sltfain@...

On that note, I better check in. I don't participate here much any more as I

continue to work with my husband who is getting over colon rectal cancer if that

can be done. As for me, my scleroderma tests continue to be negative for

scleroderma since 2004. Like others, here in Montana, there is NO ONE

knowledgeable of this disease and its treatment. The doctors here in the medical

coridor continue the treatment to " prolong " what they consider people soon to be

dead. The one doctor I had here was critically injured in a car wreck so I was

without anything or anyone for such a long time. Then I was lucky enough to

locate a gp here who greed to the minocycline - cannot even get the Minocin in

this entire state as the drug is contracted here. So I have done the minocycline

as a prophylactic to not go backwards. In the meantime, we did cleanup from the

damage left by the scleroderma. I had a kidney removed and then heart ablation

on both lobes and the aortic valve. Probably because of the stress - we still

have two left in school and I can tell you that a law practice pretty much shuts

down when the lawyer gets cancer - I have had some symptoms which worried me.

Just because the scleroderma is halted does not mean that the micoplasms are not

rioting again. My GP aceeded to my request to do four months of oral

clindamycine one week on, one week off. I could not have done any more ivs had I

wanted them and been able to get them as my veins are so diminished. So here I

started on Wednesday and will wait to see what kind of herx I have as I am prone

to these. I am able to continue to work with my husband and my life is just so

good. But inflammation is a factor which has shown up so I know I must now

become my own best advocate. If anyone knows a better way to do the clindamycin,

let me know, as I am shooting in the dark, always having had it through iv. I

was fortunate to see this GP on the very day that he had just had a newly

diagnosed scleroderma patient in his office. He asked if the gentleman could

call me but I have not had that call. I did talk to him about the protocol and

will send him all the literature on Monday. He listened carefully to me as he

wants to treat this man so he continues to live like me. This is quite a journey

and I know I am one of the very, very lucky ones. Newbies, please listen to

Delores as she knows this protocol. Love to all of you on this path. Fain

[Guest guest]

Burl is doing fine he is working 2 jobs, nothing to strenuous. He had some minor

surgery on his left hand index finger: He has osteoarthritis. The doctor checked

him and said it was only in that finger. I have been making sure he is taking

several supplements.

I am doing lots better, walking with a cane and sometimes for longer walks my

3-wheel rollator. Take care, say hello to Mike. Eva

From: mike rosner <martysfolks2004@...>

Subject: Re: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 5:35 AM

 

Hi before getting involved with a rheumy, get tested for bacteria, viruses or

fungus infections you may be carrying.  Second,get the FAQ sheet on the

antibiotic Protocol and read it all slowly end to end.  All 11 or so pages of

it  You may first want to visit an infectious disease doctor for the testing

and get a copy of all you labs, x-rays, CT-scans and MRI's.  Then google The

antibiotic Protocol and the story about Dr. MacPherson Brown.  You can

pick up a couple of books at Amazon.com.  " The New Arthritis Breakthrough " and

" Scleroderma, The Proven Therapy that can save your life.  Go to this site and

let everyone on it know where you are.  some of the people have lists of

Doctors who will prescribe the antibiotics you need to get well.  If it is Lyme

you have, then find a Lyme Literate doctor, or the specialist for your as yet

undiagnosed disease.  Read about all the diseases in the category of autoimmune

diseases.  Another

good site

to go to is " The Roadback Foundation. org. "   Become a member by just agreeing

to their rules.  Ask questions all the time.  Theonly way to fight off and

learn about these diseases is by educating yourself thoroughly on the subject. 

And take matters into your own hands.   You must become your own advocate and

not let any doc who does not know about the antibiotic protocol try to sell you

a bill of goods about taking meds that will suppress your immune system.  You

need an intact immune system to fight off the offending causes which is usually

of an infectious origin.  And most of all, you will need lots of patience to

carry through.  It took me 5 years before I went into remission from

scleroderma.  I have stayed in remission until about a month ago.  Because I

have not been able to get my Minocin medication, some of my former symptoms are

starting to come back.  My doctors are fighting with my insurance company and

my pharmacy is searching

the U.S, for a supplier.  I have been promised that by Feb. 14, I should be

receiving a 30 day dose, but am still fighting for my 90 day doses for

lifetime.  Meanwhile, I am barely keeping my head above water by taking some

clindamycin and azithromycin that are both slightly outdated but something is

better than nothing at  all.Good luck, stay strong.  You are going to need it

to get through this journey.  I wish you well my dear and keep us in touch with

your progress and questions.  Guaranteed that there will be people on this site

that may have the disease you have and can be of tremendous help to you.   the

best to you, Dolores & Mike

From: user <chucksjen@...>

Subject: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 12:15 AM

 

I am newly diagnosed or undiagnosed with a undefined autoimmune disease. I am

looking for a referral for a rhumy in the Will County IL area. I am desperately

trying to get an answer to my pain. Thanks in advance for any recommendations.

Jen

[Guest guest]

No, Cookie, I am not a lawyer My husband is solo practice and I have worked for

him always. I think not only the cancer took its toll on him but the fact that

clients dried up and certainly no referrals to him were made by his peers. Just

amazing how scared everybody gets. He has become pretty reclusive. So we go to

work and are doing our best to burn it around again as we have two left in

college. One of my meds is $200.00 WITH Humana drug program and my Minocycline

here is $11.00. Were we still well at the office, I would have ordered it (the

Canadian Minocin) but I need to be awfully careful how much I spend now. My

oral clindamycin is less than the minocycline so I feel good about hitting this

with the clindy. Isn't it amazing how well we, who have been on this journey a

long time, hear our bodies. I know mine and just am so appreciative that this

GP KNOWS I know mine. I know you are not in remission now so will just keep all

of you in my prayers and just hope quickly that Delores can get her meds soon,

too. Love to you all,

RE: rheumatic Referral for rhumy in IL

Hi ,

I did not know you were a lawyer or am I reading this wrong?

I did IM Clindamycin for a few months at the beginning. It did nothing at the

time but I am doing a test on myself now. I am doing IV’s again and am

starting to feel really good. I did not have IV’s for 6 years. Before that I

had them for 3 years. Mt veins are bad but the other day a “good†IV nurse

used a vein I thot was shot so I think you may find good ones with a person who

does them right. Anyway/ I TTHINK Clindy is the drug of choice for me. So I am

starting oral along with the IV’s for a while and eventually will try to stop

Minocin and see if I stay in remission. I will eventually take clindy like I

took Minocin orally. I will let you know how I do.

Why have you not tried to get Minocin from Canada? That is a topic we just had

and a lot of us get Minocin there.

…..Back to IM clindy. You must use a BIG needle and do it in your butt cheeks.

No arm. They are very irritating to the tissue and I had huge bruises no pain.

My nurse friend refused to give them after a while. She said my cheeks looked

like raw meat. So I started doing them on the thighs myself. Major bruises! BUT

not painful at all. Oh …. it is a little painful going in.

Best of luck . You deserve a break.

Blessings

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Sltfain@...

On that note, I better check in. I don't participate here much any more as I

continue to work with my husband who is getting over colon rectal cancer if that

can be done. As for me, my scleroderma tests continue to be negative for

scleroderma since 2004. Like others, here in Montana, there is NO ONE

knowledgeable of this disease and its treatment. The doctors here in the medical

coridor continue the treatment to " prolong " what they consider people soon to be

dead. The one doctor I had here was critically injured in a car wreck so I was

without anything or anyone for such a long time. Then I was lucky enough to

locate a gp here who greed to the minocycline - cannot even get the Minocin in

this entire state as the drug is contracted here. So I have done the minocycline

as a prophylactic to not go backwards. In the meantime, we did cleanup from the

damage left by the scleroderma. I had a kidney removed and then heart ablation

on both lobes and the aortic valve. Probably because of the stress - we still

have two left in school and I can tell you that a law practice pretty much shuts

down when the lawyer gets cancer - I have had some symptoms which worried me.

Just because the scleroderma is halted does not mean that the micoplasms are not

rioting again. My GP aceeded to my request to do four months of oral

clindamycine one week on, one week off. I could not have done any more ivs had I

wanted them and been able to get them as my veins are so diminished. So here I

started on Wednesday and will wait to see what kind of herx I have as I am prone

to these. I am able to continue to work with my husband and my life is just so

good. But inflammation is a factor which has shown up so I know I must now

become my own best advocate. If anyone knows a better way to do the clindamycin,

let me know, as I am shooting in the dark, always having had it through iv. I

was fortunate to see this GP on the very day that he had just had a newly

diagnosed scleroderma patient in his office. He asked if the gentleman could

call me but I have not had that call. I did talk to him about the protocol and

will send him all the literature on Monday. He listened carefully to me as he

wants to treat this man so he continues to live like me. This is quite a journey

and I know I am one of the very, very lucky ones. Newbies, please listen to

Delores as she knows this protocol. Love to all of you on this path. Fain

[Guest guest]

I have a friend whose husband had MS and he would not tell anyone because they

were hair stylists and he knew people would not go to their shop when his

condition became known. He worked right up to a month before he passed. I am so

sorry to hear about your business. I hope you get new clients who just love your

hubby!

When you get generics see if paying cash without Humana is less expensive in the

long run. I pay for as many generics as I can so Humana continues to cover my

non generics as long as possible. I also get my doc to order generics from

Canada. I get clindy oral for ?I think $135 for 100. So if I pay $11 dollars

copay per month and my insurance pays a lot too it is less expensive to get them

from Canada. I’m not sure if that is as clear as mud or not! haha Also look

at it this way…if generic does not work for you you are out what you pay plus

what ins pays and your farther back than where you started maybe it would be

worth it in the long run to get brand from Canada…just a thot..

Going on this journey has made me so aware of not just my body but about all

that is going on in medicine. At my age I don’t think I would be as interested

in medicine anymore if I did not keep looking for a help for myself. By the way

I am doing a heavy metal detox with rectal suppositories and I think that has

made a big difference. Thanks for the info you sent.

I’m doing a novena (9 day prayer) right now and will add you and your

business. I pray you get better soon.

Hugs

cooky

From: rheumatic [mailto:rheumatic ] On Behalf Of

Sltfain@...

No, Cookie, I am not a lawyer My husband is solo practice and I have worked for

him always. I think not only the cancer took its toll on him but the fact that

clients dried up and certainly no referrals to him were made by his peers. Just

amazing how scared everybody gets. He has become pretty reclusive. So we go to

work and are doing our best to burn it around again as we have two left in

college. One of my meds is $200.00 WITH Humana drug program and my Minocycline

here is $11.00. Were we still well at the office, I would have ordered it (the

Canadian Minocin) but I need to be awfully careful how much I spend now. My oral

clindamycin is less than the minocycline so I feel good about hitting this with

the clindy. Isn't it amazing how well we, who have been on this journey a long

time, hear our bodies. I know mine and just am so appreciative that this GP

KNOWS I know mine. I know you are not in remission now so will just keep all of

you in my prayers and just hope quickly that Delores can get her meds soon, too.

Love to you all,

[Guest guest]

Hi ,  sorry to hear that your husband is sick with cancer.  You two sure

have had a lot to deal with, yet your words of wisdom have sustained me from

time to time.  You really have to thank LynneandSantos.  They live in Ontario

and she ws the one who told me about A/P when I had my back to the wall and

thought I had only a few months more to live.  She e:mailed me every single day

through the second year of my therapy. As I got better and became more

knowledgable on the " Infectious Theory " and " AP " , our conversations became less

and less and she went back to finding more newbies on different sites who do not

advocate " A/P " like " The Scleroderma Foundation " ,  which is where she found

me.  Just before I went into remission, she asked me to keep on working with

all newbies and pass the life saving A/P on to them and help save lives.  And

to please ask each newbie that once they are on their way to remission or

before, to pass it on to otherl

newbies.  She said there are just too many people who get better, get their

lives back in order and then abandon the cause.  She made me promise to keep on

passing the info on.  So, every doc I see, gets a FAQ sheet, a testimonial

from me, proofs of labs x-rays, CT scans and MRI's, PFT's and all tests from

the damaged organs that are now in remission from 2005, through to now.  Then

I scan the the internet for newbies.  I know most of you have tried things I

have never tried.  I stay away from those subjects.  There are just too many

diseaes of this type and not everything works with everybody.  it all depends

on what the infections was that started this downhill path and take the

appropriate antibiotic. Like you and Lynne and Eva, Harold and some others, we

are making this our life's work.  Pass this on to all others, Please!  Tell

everyone you see, hear, visit and have a chance encounter with.  I wear the

Scleroderma cap and my little

scleroderma backpack and have been stopped on the street by people who have

just been diagnosed and scared as hell, just like I was back in 2005.  Take

care and pass the Love. 

From: mike rosner <martysfolks2004@...>

Subject: Re: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 5:35 AM

Hi before getting involved with a rheumy, get tested for bacteria, viruses or

fungus infections you may be carrying. Second,get the FAQ sheet on the

antibiotic Protocol and read it all slowly end to end. All 11 or so pages of it

You may first want to visit an infectious disease doctor for the testing and get

a copy of all you labs, x-rays, CT-scans and MRI's. Then google The antibiotic

Protocol and the story about Dr. MacPherson Brown. You can pick up a

couple of books at Amazon.com. " The New Arthritis Breakthrough " and

" Scleroderma, The Proven Therapy that can save your life. Go to this site and

let everyone on it know where you are. some of the people have lists of Doctors

who will prescribe the antibiotics you need to get well. If it is Lyme you have,

then find a Lyme Literate doctor, or the specialist for your as yet undiagnosed

disease. Read about all the diseases in the category of autoimmune diseases.

Another

good site

to go to is " The Roadback Foundation. org. " Become a member by just agreeing to

their rules. Ask questions all the time. Theonly way to fight off and learn

about these diseases is by educating yourself thoroughly on the subject. And

take matters into your own hands. You must become your own advocate and not let

any doc who does not know about the antibiotic protocol try to sell you a bill

of goods about taking meds that will suppress your immune system. You need an

intact immune system to fight off the offending causes which is usually of an

infectious origin. And most of all, you will need lots of patience to carry

through. It took me 5 years before I went into remission from scleroderma. I

have stayed in remission until about a month ago. Because I have not been able

to get my Minocin medication, some of my former symptoms are starting to come

back. My doctors are fighting with my insurance company and my pharmacy is

searching

the U.S, for a supplier. I have been promised that by Feb. 14, I should be

receiving a 30 day dose, but am still fighting for my 90 day doses for lifetime.

Meanwhile, I am barely keeping my head above water by taking some clindamycin

and azithromycin that are both slightly outdated but something is better than

nothing at all.Good luck, stay strong. You are going to need it to get through

this journey. I wish you well my dear and keep us in touch with your progress

and questions. Guaranteed that there will be people on this site that may have

the disease you have and can be of tremendous help to you. the best to you,

Dolores & Mike

From: user <chucksjen@...>

Subject: rheumatic Referral for rhumy in IL

rheumatic

Date: Saturday, February 5, 2011, 12:15 AM

I am newly diagnosed or undiagnosed with a undefined autoimmune disease. I am

looking for a referral for a rhumy in the Will County IL area. I am desperately

trying to get an answer to my pain. Thanks in advance for any recommendations.

Jen