Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Keep searching, don't give up Sent via BlackBerry from T-Mobile rheumatic Docs who will do AP So, my GP has been working with me on prescribing minocycline and running every test I have asked her to. But I am calling the shots. I would love to have a doc who knew more than I did. I went to visit a former doctor. He specializes in fibromyalgia. I was sure that if I introduced him to AP for rheumatic conditions that he would be interested. Unfortunately, he told me that the NC medical board cracks down on physicians for treating conditions in unconventional ways. He had been prescribing the hormone oxytocin for fibromyalgia pain and his patients were getting relief from it. The medical board reviewed him and he had to agree to stop prescribing it. (On a side note, he told me that oxytocin has also been found to help kids with autism. Blood tests show that there is no circulating oxytocin in these children, and supplementing it in pill form helps them greatly. Dont' confuse the hormone oxytocin with the pain pill oxycotin...it confused me at first). So, he was not willing to " go out on a limb " and start treating rheumatic patients with antibiotics. I told him that minocycline was recognized as a DMARD (disease-modifying anti-rheumatic drug) by the Arthritis Foundation. He said it didn't matter. He felt the medical board would get after him. I was so disappointed and frustrated with our medical system. I am very grateful that my GP is willing to prescribe these antibiotics for me. I wish all those seeking a doctor to help them the best of luck. I encourage you to keep at it until you find one. I have seen a great improvement since starting AP in Sept. 2010. Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 Amy, You should look for a rheumatologist with more up-to-date knowledge. Minocyline is indeed listed as a disease-modifying anti-rheumatic (DMARD) drug in " Guidelines for the Management of Rheumatoid Arthritis, 2002 Update, " of the American College of Rheumatology. These guidelines can be downloaded an no charge from http://onlinelibrary.wiley.com/doi/10.1002/art.10148/pdf I suggest that you download and print out this 20-page document. Once this hefty document is open on your computer, do a word search on " minocycline " . Minocycline was also included as a DMARD by the American College of Rheumatology in Guidelines published in 2008. Sorry, I don't have a copy. The following are excerpts from the excellent article " The Use of Minocycline in the Treatment of Rheumatoid Arthritis " by Beth A. Malley, RN, CCRC. " While minocycline is an approved antibiotic, it's not Food and Drug Administration (FDA) approved for use with RA. Physicians specializing in rheumatology are within their scope of practice when prescribing minocycline to treat RA, although it's not a common practice (Sheil 2008). Minocycline is effective in about 60% of those who use it for RA, although without FDA approval or official guidelines, some physicians remain skeptical, waiting for more evidence related to dosage and long-term use of minocycline (Eustice 2006). As research continues and treatment guidelines change to include the use of minocycline as an acceptable treatment for mild RA, physicians may be more comfortable with prescribing this antibiotic to treat mild rheumatoid arthritis (Eustice 2006). Since the generic form of minocycline is available, it may never become FDA-approved for treating RA. This often happens when a medication becomes available in a generic form, because the testing and sale of the drug does not become " commercially viable " for companies to pursue (The Road Back Foundation 2008). " For the full article, please see http://www.encognitive.com/files/The%20Use%20of%20Minocycline%20in%20the%20Treat\ ment%20of%20Rheumatoid%20Arthritis.pdf (make sure to enter the entire URL) Sincerely, Harald At 10:54 AM 2/5/2011, you wrote: > >So, my GP has been working with me on prescribing minocycline and >running every test I have asked her to. But I am calling the shots. >I would love to have a doc who knew more than I did. > >I went to visit a former doctor. He specializes in fibromyalgia. I >was sure that if I introduced him to AP for rheumatic conditions >that he would be interested. Unfortunately, he told me that the NC >medical board cracks down on physicians for treating conditions in >unconventional ways. He had been prescribing the hormone oxytocin >for fibromyalgia pain and his patients were getting relief from it. >The medical board reviewed him and he had to agree to stop >prescribing it. (On a side note, he told me that oxytocin has also >been found to help kids with autism. Blood tests show that there is >no circulating oxytocin in these children, and supplementing it in >pill form helps them greatly. Dont' confuse the hormone oxytocin >with the pain pill oxycotin...it confused me at first). > >So, he was not willing to " go out on a limb " and start treating >rheumatic patients with antibiotics. I told him that minocycline was >recognized as a DMARD (disease-modifying anti-rheumatic drug) by the >Arthritis Foundation. He said it didn't matter. He felt the medical >board would get after him. > >I was so disappointed and frustrated with our medical system. I am >very grateful that my GP is willing to prescribe these antibiotics for me. > >I wish all those seeking a doctor to help them the best of luck. I >encourage you to keep at it until you find one. I have seen a great >improvement since starting AP in Sept. 2010. > >Amy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2011 Report Share Posted February 6, 2011 Harald, GREAT information. Thank you so much for sharing. This group has just been so helpful to me. I thank all of you who participate. As I was closing up at work last night, the dishwasher shared some of his life with me, even started tearing up at one point. He apologized for taking my time. I told him that I think human relationships are THE most important aspect of our lives and he was not taking my time. It amazes me that our education system required me to take calculus (which I have NEVER used...nor understood) and yet teachings on communication and the psychology of relationships...tools we could use every day... are not taught. So I appreciate this group and the interactions I experience with others and the sharing of information that has helped me to attain a greater state of health. Thank you. Amy > > > >So, my GP has been working with me on prescribing minocycline and > >running every test I have asked her to. But I am calling the shots. > >I would love to have a doc who knew more than I did. > > > >I went to visit a former doctor. He specializes in fibromyalgia. I > >was sure that if I introduced him to AP for rheumatic conditions > >that he would be interested. Unfortunately, he told me that the NC > >medical board cracks down on physicians for treating conditions in > >unconventional ways. He had been prescribing the hormone oxytocin > >for fibromyalgia pain and his patients were getting relief from it. > >The medical board reviewed him and he had to agree to stop > >prescribing it. (On a side note, he told me that oxytocin has also > >been found to help kids with autism. Blood tests show that there is > >no circulating oxytocin in these children, and supplementing it in > >pill form helps them greatly. Dont' confuse the hormone oxytocin > >with the pain pill oxycotin...it confused me at first). > > > >So, he was not willing to " go out on a limb " and start treating > >rheumatic patients with antibiotics. I told him that minocycline was > >recognized as a DMARD (disease-modifying anti-rheumatic drug) by the > >Arthritis Foundation. He said it didn't matter. He felt the medical > >board would get after him. > > > >I was so disappointed and frustrated with our medical system. I am > >very grateful that my GP is willing to prescribe these antibiotics for me. > > > >I wish all those seeking a doctor to help them the best of luck. I > >encourage you to keep at it until you find one. I have seen a great > >improvement since starting AP in Sept. 2010. > > > >Amy > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.