minocycline

August 12, 2001

Shiela,

I wouldn't blame on the antibiotic, she combination of the others too, You

need to call the your doctor, or look up on internet and see what the side

effects of these medicines are. It could be a number of things, like a herx,

as far as zoloft, check it see if it supressed the app. One of Lyme

Systems is no desire for food. Wierd isn't it, most people gain wieght, I

lose wieght even when I do eat good.

Call Dr. or Pharmacist., look on internet under health.

Trenton,Ga

August 12, 2001

Sheila,

Why don't you go to Dr Koop's website to check for medicine interactions:

http://www.drugchecker.drkoop.com/apps/drugchecker/DrugMain?cob=drkoop

I tried to get in, but the server is down for the day. Try tomorrow.

Even quicker, call your pharmacist, if he can't help, call the doctor.

Marta

----- Original Message -----

From: <sm_lederman@...>

> Anyone have any experience with minocycline? My daugher is not

> eating - she can't hold her food down. I am wondering if the

> minocycline could be contributing to it. She is also taking

> tinidazole and zithromax and zoloft. Is this one of the side effects

> of any of these drugs? Thanks

>

> Sheila

>

August 12, 2001

I had to take minocycline for a while. I couldn't keep

anything down either. I found that an RX for

Compazine(sp?), a drug that helps with nausea helped

me tremendously.

Hillary

__________________________________________________

August 13, 2001

Yikes, poor kid, all of them can contribute! Taking them with food can help,

taking them closer to bedtime with a snack can help, you experience the

nausea less if you are asleep. Potato chips or other salty foods seem to help a

little as does the juice from fruit cocktail, a teaspoon at a time.

I think it is loaded with phosphorous and that has a settling effect. lots of

other things. If it persists, gotta make sure her liver is okay.

sometimes using zantac or pepcid or a similar agent also helps with the nausea

but definitely run it by her doctor. Sorry to hear its going so hard.

Bea

sm_lederman@... wrote:

> Anyone have any experience with minocycline? My daugher is not

> eating - she can't hold her food down. I am wondering if the

> minocycline could be contributing to it. She is also taking

> tinidazole and zithromax and zoloft. Is this one of the side effects

> of any of these drugs? Thanks

>

> Sheila

>

August 13, 2001

Thanks Bea,

Spoke to Dr. today and we decided to take her off of both

antibiotics for awhile. She has been taking zantac for a week and it

helps minimally. Next week we go to a pediatric gastroenterologist.

I am not optomistic, but what the heck. Thank you for your kind

thoughts and suggestions. We will try them.

Sheila

>

> > Anyone have any experience with minocycline? My daugher is not

> > eating - she can't hold her food down. I am wondering if the

> > minocycline could be contributing to it. She is also taking

> > tinidazole and zithromax and zoloft. Is this one of the side

effects

> > of any of these drugs? Thanks

> >

> > Sheila

> >

December 7, 2003

Ann,

I have been on it for the past 2 months and I can't say anything for or

against it. I did have an issue with a sun reaction just like all the

tetracycline derivatives, Neutrogena SPF 45 sunscreen fixed that. But

otherwise it has been unremarkable. I take the Minocycline in addition to

Biaxin. I start Zithromax and Mepron for Babesia in another week and will be

stopping Biaxin but continuing the Minocycline. I had an allergic reaction

to doxy about 4 years ago but have tolerated the Mino quite well.

Dave

[ ] Minocycline

I'm about to start taking Minocycline. Anyone have experience with it?

Ann

December 10, 2003

Janet....

Thanks for that info on Minocycline. I was reading a bit on that and

discovered something similar. I'll think carefully before taking it.

Debra!

April 9, 2005

I didn't have any side effects.

-- [ ] minocycline

has anyone taken minocyclin?what were your side effects?

eric

April 10, 2005

Hi there - have you had the same problem?

I can hear a little bit better this morning. Maybe about a 3%

improvment - not sure if I am trying to be optimistic. From what I

read about this, it can take up to 6 months to restore hearing fully.

Thank you so much for your help. This is all very scary to me.

Shauna

>

> this is an awful drug ototoxic side effects so carmen we are in the

> same boat..

> eric

April 10, 2005

I had terrible dizzyness with the mino, I had to quit taking it. Others say it

gets better but it didn't for me. My two doc even said the mino had side

effects that were hard to handle for some. One of the doc tried mino himself

and had heard stories, well he got his own story after taking it. He had heard

of people having " frozen " spells with it, when he was taking it (not for lyme)

his hands were " frozen " on the steering wheel. He couldn't turn off the radio.

I had a " frozen " spell also when I was on it.

eric_s11050 <eric_s11050@...> wrote:

I am on 200mg a day and I have dizzyness and brain fog.. anyone else

get this?

eric

Questions and/or comments can be directed to the list owner at

-Owner

April 10, 2005

Mnocycline is major antibiotic used In Marshall Protocol

<http://www.marshallprotocol.com/> WWW.marshallprotocol.com

Doktor Marshall said in conference in Chicago that molecules of it are

to small to provoke antigens so this " side effects " cannot be allergy on

mino.

This are propably effects of herxheimer reaction ,caused by elevated

1,25 dihydroxyvitaminum D

I had frozen spells when having Lyme without any antibiotics.

Notice that not everybody has this reations. This people who had wasn`t

diagnosed for intracellular pathogens.

This disease cannot be beat without getting symptoms worse. Minocycline

is working on this bacteria very well and it takes time to get well

after getting bad.

Benicar - angiotensine receptor blocade and avoiding light helps to

force this uncomfort.

Re: [ ] minocycline

I had terrible dizzyness with the mino, I had to quit taking it.

Others say it gets better but it didn't for me. My two doc even said

the mino had side effects that were hard to handle for some. One of the

doc tried mino himself and had heard stories, well he got his own story

after taking it. He had heard of people having " frozen " spells with it,

when he was taking it (not for lyme) his hands were " frozen " on the

steering wheel. He couldn't turn off the radio. I had a " frozen " spell

also when I was on it.

eric_s11050 <eric_s11050@...> wrote:

I am on 200mg a day and I have dizzyness and brain fog.. anyone else

get this?

eric

March 28, 2006

Like so many other treatments it's not effective for everyone. I recall one

man who sent a heartbreaking message regarding the permanent joint

destruction he experienced while waiting and waiting and waiting for the

minocycline

to work as he was advised to do. Seems like he gave it about a year before

going on to more conventional, better proven therapies that halted the

progression of his PA. There are online groups that focus on the use of

minocycline

in the treatment of PA/RA. By watching one of those groups over about a year

I would estimate that less than 10% of the people who came and went thought

that it did them any good. You would probably have better luck using nothing

but fish oil.

Minocycline is relatively safe in comparison to many of the treatments

prescribed for PA so it may not hurt any to give it a try but if you have

aggressive, destructive PA then dont waste time messing around with minocycline,

use

the more conventional treatments. Orin

In a message dated 3/28/2006 8:56:40 P.M. Central Standard Time,

MartieG@... writes:

Has anyone tried Minocycline for arthritis? My RA said I could try it

because last year I had a infection in my intestines and was on mynocycline and

my

arthritis was alot better in just a week. I guess you can take it long term

with very few side effects Any one have some results!

March 28, 2006

I haven't tried this yet but I want to. I do know someone for whom this

has worked, though.

On Wed, 29 Mar 2006, martieg01 wrote:

> Has anyone tried Minocycline for arthritis? My RA said I could try it

> because last year I had a infection in my intestines and was on

> mynocycline and my arthritis was alot better in just a week. I guess you

> can take it long term with very few side effects Any one have some

> results!

March 30, 2006

The series of post you recall were mine. I was one Minocycline for 11

months because the other available treatments were ineffective and I could

not tolerate MTX. I sustained permanent joint damage in my hands when I

went into a severe flare. Luckily I was able to go on Enbrel even before it

was approved for PA which has been a miracle for me. My opinion is that

antibiotics can be effective for two reasons. 1) If you have misdiagnosed

reactive arthritis and 2) For the same reason Sulfasalazine (an antibiotic

also) does. Using antibiotics has a tendency to lower your immune response

except for the spectrum for bacteria for which they are effective. That's

why people die every year when they get a shot of Mexican Penicillin when

they have the flue.

There is a group of people out there that are like a cult that I was once

involved with at rheumatic.org. There is also the Antibiotic Protocol book.

These people can be useful in helping you live with the most of the GI

effects of being on Minocine long term. Be advised that over time

Minocyline will turn you grey starting with all of the scars on your body.

Also be aware that this treatment is a religion for these AP people. They

were furious that I got better using another treatment and banned me from

their board for reporting and discussing it. Minocycline does seem to work

for a few people but is statistically less effective than Sulfasalazine and

will really mess up your GI tract in the long run. Be very critical of

their suggestions of antibiotic cocktails and using other antibiotics in

concert with Minocine.

Their belief is that all rheumatic disease is caused by a mycoplasm

infection. Beware that there are some serious kooks in that organization.

They will tell you things like you must get worse before you get better and

are constantly touting a nonexistent Herxheimer effect. Beware of their

recommended doctors and clinics who will soak your insurance for thousands

of dollars for useless test and unnecessary x-rays. In my opinion the whole

thing is a scam.

Cheers

Ronnie

Re: [ ] Minocycline

Like so many other treatments it's not effective for everyone. I recall

one

man who sent a heartbreaking message regarding the permanent joint

destruction he experienced while waiting and waiting and waiting for the

minocycline

to work as he was advised to do. Seems like he gave it about a year before

going on to more conventional, better proven therapies that halted the

progression of his PA. There are online groups that focus on the use of

minocycline

in the treatment of PA/RA. By watching one of those groups over about a

year

I would estimate that less than 10% of the people who came and went thought

that it did them any good. You would probably have better luck using

nothing

but fish oil.

Minocycline is relatively safe in comparison to many of the treatments

prescribed for PA so it may not hurt any to give it a try but if you have

aggressive, destructive PA then dont waste time messing around with

minocycline, use

the more conventional treatments. Orin

In a message dated 3/28/2006 8:56:40 P.M. Central Standard Time,

MartieG@... writes:

Has anyone tried Minocycline for arthritis? My RA said I could try it

because last year I had a infection in my intestines and was on mynocycline

and my

arthritis was alot better in just a week. I guess you can take it long term

with very few side effects Any one have some results!

March 30, 2006

Thanks for recounting your story Ron. The Herxheimer part of their protocol

is what made me leery. Yes, trials have shown it to be effective for some

people but to suggest someone should sustain permanent damage while blindly

adhering to a protocol that is not working sounded like madness to me. Orin

In a message dated 3/31/2006 4:52:43 A.M. Central Standard Time,

ronevans@... writes:

They will tell you things like you must get worse before you get better and

are constantly touting a nonexistent Herxheimer effect.

January 19, 2007

Bev,

Have you been taking probiotics for yeast? Doctors won't tell you to

take this, you have to know or be informed by one of the support

groups online. This sounds like yeast to me. Jan

February 9, 2008

Is anyone else taking minocycline for dementia prevention??? Is it ever indicated when no dementia is present??? thanksWho's never won? Biggest Grammy Award surprises of all time on AOL Music.

February 11, 2008

I myself have been on minocycline since 2005 as a result of articles

i read on this list. i went from the s Hopkins pilot study to

other materials, and convinced my doctor by pointing out the evident

virulence of my little mystery bug. i started on 100mg 2/day in 10/5,

switched to 50mg 2/day in early 07 based on my dermatologist telling

me that minocycline is known to eventually require less and less

dosing to maintain its peculiar anti-inflammatory effect, whihc is at

least as responsible as its antimicrobial properties when it comes to

its supposed ability to fight aids-dementia, parkinson's, alzheimer's

and huntington's disease...not sure if the same goes for its parp-1

inhibition, whihc is a major mode of its action in the brain/cns

i always had bad acne and in the last decade it was follwed by a

combo of rosacea and worsening dermatitus...even still, i would not

consider taking a daily pill just for that. i must be nuts, becuz now

that my face is clear (with alot more than just minocycline) i cant

imagine why i waited so long, and at least pretend i'm protecting my

brain with it as well.

as for improved memory, i feeling more intelligent than a few years

ago, but how to tease apart minocycline from improved general health,

exercise, fish oil, vinpocetine and a new engaghement with

intellectual pursuits? i just throw it all into the mix, and add a

strong probiotic supplement, n i'm happy.

now i have minocycline and 4 classes of ARVs at work on my bug, i'm

hoping that settles the matter a long while.

>

> Luke

> I have been doing minocycline since 1995. It was first

prescribed by my

> dermatologist as a treatment for rosacea.

> I started at 2/day, then in '96, went to 3 a week, and since

2000, have

> been on 2 / week. i still get little pimples (at age 61) if i stop

the

> minocycline. I'm not sure about a treatment for protecting the

brain.

> I'm also doing 3 acyclovir a week as protection against herpes

> outbreaks, having started in 1992 at 2 a day after a shingles

outbreak, then down to 3

> / week in '99.

> Don't know if any of this is really helpful, but i've been poz

for 22

> years, undetect since '97, and cd4's in the 500's (bounces from

400 to 600),

> and my mind's pretty sharp (other than the occasional senior

moment). So i'm

> doin something right.

>

> cheers

> edward

>

> In a message dated 11/6/2005 6:12:06 AM Pacific Standard Time,

> writes:

>

> Message: 1

> Date: Sat, 5 Nov 2005 00:22:21 EST

> From: Luke1633@...

> Subject: minocycline

> was wondering what some of you thought of adding minocycline to

the mix for

> brain entry to kill virus??

>

February 11, 2008