Guest guest Posted September 10, 2006 Report Share Posted September 10, 2006 HI Miranda... Thanks hon for the update...... It sounds wonderful and that the move did you a world of good. I'm just so happy for you hon... and hope it continues. That's great!!! Hugs Dee~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2006 Report Share Posted September 12, 2006 Hi Miranda, DO you Have IC? I live in vancouver and I have vulvodynia, but was also diagnosed witn IC a few months ago. I just started " rescue instillation " treatments with The urologist tiechman, and am currently being treatment out of the vulvar pain clinic at VGH. I am hoping to see a difference in the vulvar pain after these instilaltions are done, although my IC is fairly mild I'd say. > >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: feeling a bit better! >Date: Sun, 10 Sep 2006 04:57:28 +0000 > > > > > > > > > > > > > > > > > > > > >Hi everyone...it's been a while my computer has been out of commission for >some time, and it's finally 'fixed.' lol. I have also just moved to >Vancouver for my internship. > >I have to tell you, in the past three days I have noticed a HUGE difference >in frequency of urination...I only go about 6 times a day now. This is a >HUGE difference for me, considering before I was going up to 20...maybe >even more. > >I can't say that decrease in stress could have anything to do with it. I >have been in a very high-stress job, working in a newsroom, and so that's >not what it is. I am still taking vitamin C, and I've also abandoned my >no-sugar diet. I still have a low-sugar diet. > >I'm happy to say that it could be a few things making me feel better. First >of all, the air is different here. It's not as humid, and there is very >fresh air. Looking at the mountains and sea every day seems to make me feel >calmer, and happier. Also my job is very rewarding, so at the end of the >day, even though it was stressful, I feel satisfied. The other thing I >think may have played a role is the fact that this is a sitting down job. >My last job, I was standing ALL the time. Also, I have been able to afford >to eat everything organic here...for the same price as eating non-organic >back in Toronto. Amazing! > >I still have vulvar pain, but it's nowhere near what it was....I think now >that my irritated bladder had a lot to do with it. Now, that has calmed >down 100%. I feel happy!!! yay! Anyway, will keep you posted. I hope moving >back to Toronto in six weeks doesn't ruin all this progress. Maybe >I'll just give up waitressing for good as a part time student job...lol. >sacrifices I guess. cheers, > > > >Miranda > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 13, 2006 Report Share Posted September 13, 2006 RE you comments " rescue instillation " treatments with The urologist tiechman, and am currently being treatment out of the vulvar pain clinic at VGH. I am hoping to see a difference in the vulvar pain after these instilaltions are done, although Hi I am in Vancouver also and wondering how you can get tino this clinic. I was seen at Women's by Rhone but only got a PT referral. There is a study at UBC I am trying to get on also bu they won't return any calls. What is rescue instillation? Have you done any Physcial therapy? Any other suggestions for who to see. Marcy Dayan is great for PT. Thanks! ALison Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Hi Alison, I'm seeing Marcy also, she's great! stick with her, she's not only a good PT, she's a wealth of information. I'm actually seeing her next week. Unfortunately, I had to wait to get into the clinic for about 13 months I think. that being said, I got a referral through the gyno Dr. . He's great, really nice, if you could get your GP to refer you to him, it would probably be helpful. He was in communication with DR. Sawdownick, one of two working in the vulvar pain clinic, and she instructed him to put me on effexor( did'nt do it for me, but does for some). After I got in, I saw her for a while without great results ( i have a certain amount of constant breakthrough pain in my tender points, so I'm a more complicated case),and eventually after consulting her partner in the clinic ( Dr. Sydney Tompson) I switched over to her. She usually deals with the sexual medicine side of things, but also has some patients she deals with pain control with directly. She's more personable than Dr.Sawdownik. I am currently on Neurontin and am hoping to see some positive results soon. So, while the women's clinic waitlist is ridiculously long, with a good gyno and a good GP you could be making progress before that hopefully. What are your symptoms? Feel free to email me at jpc1@... if you want to continue this discussion. P.S ( what is this UBC study?) > >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: feeling a bit better! >Date: Wed, 13 Sep 2006 02:25:09 -0000 > >RE you comments > > " rescue instillation " >treatments with The urologist tiechman, and am currently being >treatment out of the vulvar pain clinic at VGH. I am hoping to see a >difference in the vulvar pain after these instilaltions are done, >although > >Hi > >I am in Vancouver also and wondering how you can get tino this >clinic. I was seen at Women's by Rhone but only got a PT >referral. There is a study at UBC I am trying to get on also bu >they won't return any calls. >What is rescue instillation? Have you done any Physcial therapy? >Any other suggestions for who to see. Marcy Dayan is great for PT. > >Thanks! >ALison > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Hi Alison, I'm seeing Marcy also, she's great! stick with her, she's not only a good PT, she's a wealth of information. I'm actually seeing her next week. Unfortunately, I had to wait to get into the clinic for about 13 months I think. that being said, I got a referral through the gyno Dr. . He's great, really nice, if you could get your GP to refer you to him, it would probably be helpful. He was in communication with DR. Sawdownick, one of two working in the vulvar pain clinic, and she instructed him to put me on effexor( did'nt do it for me, but does for some). After I got in, I saw her for a while without great results ( i have a certain amount of constant breakthrough pain in my tender points, so I'm a more complicated case),and eventually after consulting her partner in the clinic ( Dr. Sydney Tompson) I switched over to her. She usually deals with the sexual medicine side of things, but also has some patients she deals with pain control with directly. She's more personable than Dr.Sawdownik. I am currently on Neurontin and am hoping to see some positive results soon. So, while the women's clinic waitlist is ridiculously long, with a good gyno and a good GP you could be making progress before that hopefully. What are your symptoms? Feel free to email me at jpc1@... if you want to continue this discussion. P.S ( what is this UBC study?) > >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: feeling a bit better! >Date: Wed, 13 Sep 2006 02:25:09 -0000 > >RE you comments > > " rescue instillation " >treatments with The urologist tiechman, and am currently being >treatment out of the vulvar pain clinic at VGH. I am hoping to see a >difference in the vulvar pain after these instilaltions are done, >although > >Hi > >I am in Vancouver also and wondering how you can get tino this >clinic. I was seen at Women's by Rhone but only got a PT >referral. There is a study at UBC I am trying to get on also bu >they won't return any calls. >What is rescue instillation? Have you done any Physcial therapy? >Any other suggestions for who to see. Marcy Dayan is great for PT. > >Thanks! >ALison > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 14, 2006 Report Share Posted September 14, 2006 Hi Alison, I'm seeing Marcy also, she's great! stick with her, she's not only a good PT, she's a wealth of information. I'm actually seeing her next week. Unfortunately, I had to wait to get into the clinic for about 13 months I think. that being said, I got a referral through the gyno Dr. . He's great, really nice, if you could get your GP to refer you to him, it would probably be helpful. He was in communication with DR. Sawdownick, one of two working in the vulvar pain clinic, and she instructed him to put me on effexor( did'nt do it for me, but does for some). After I got in, I saw her for a while without great results ( i have a certain amount of constant breakthrough pain in my tender points, so I'm a more complicated case),and eventually after consulting her partner in the clinic ( Dr. Sydney Tompson) I switched over to her. She usually deals with the sexual medicine side of things, but also has some patients she deals with pain control with directly. She's more personable than Dr.Sawdownik. I am currently on Neurontin and am hoping to see some positive results soon. So, while the women's clinic waitlist is ridiculously long, with a good gyno and a good GP you could be making progress before that hopefully. What are your symptoms? Feel free to email me at jpc1@... if you want to continue this discussion. P.S ( what is this UBC study?) > >Reply-To: VulvarDisorders >To: VulvarDisorders >Subject: Re: feeling a bit better! >Date: Wed, 13 Sep 2006 02:25:09 -0000 > >RE you comments > > " rescue instillation " >treatments with The urologist tiechman, and am currently being >treatment out of the vulvar pain clinic at VGH. I am hoping to see a >difference in the vulvar pain after these instilaltions are done, >although > >Hi > >I am in Vancouver also and wondering how you can get tino this >clinic. I was seen at Women's by Rhone but only got a PT >referral. There is a study at UBC I am trying to get on also bu >they won't return any calls. >What is rescue instillation? Have you done any Physcial therapy? >Any other suggestions for who to see. Marcy Dayan is great for PT. > >Thanks! >ALison > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2006 Report Share Posted September 22, 2006 Hi girls. To answer your questions, I was never diagnosed with IC, but I did have my hunches. I just can't believe how much better I am. I swear to go it's the Vitamin C. I've heard for people with IC Vit. C makes it worse. But whatever that's what I've been doing and it's working. I still have good days and bad days with inflammation...I just wish my boyfriend was here so that I could see if we were actually able to have intercourse. I will have to wait another three weeks to find out! Keeping my fingers crossed. Miranda > > > Hi Alison, > > I'm seeing Marcy also, she's great! stick with her, she's not only a good > PT, she's a wealth of information. I'm actually seeing her next week. > Unfortunately, I had to wait to get into the clinic for about 13 months I > think. that being said, I got a referral through the gyno Dr. > . He's great, really nice, if you could get your GP to refer you to > him, it would probably be helpful. He was in communication with DR. > Sawdownick, one of two working in the vulvar pain clinic, and she instructed > him to put me on effexor( did'nt do it for me, but does for some). After I > got in, I saw her for a while without great results ( i have a certain > amount of constant breakthrough pain in my tender points, so I'm a more > complicated case),and eventually after consulting her partner in the clinic > ( Dr. Sydney Tompson) I switched over to her. She usually deals with the > sexual medicine side of things, but also has some patients she deals with > pain control with directly. She's more personable than Dr.Sawdownik. I am > currently on Neurontin and am hoping to see some positive results soon. > > So, while the women's clinic waitlist is ridiculously long, with a good gyno > and a good GP you could be making progress before that hopefully. What are > your symptoms? > > Feel free to email me at jpc1@... if you want to continue this > discussion. > > P.S ( what is this UBC study?) > > > > > > > >Reply-To: VulvarDisorders > >To: VulvarDisorders > >Subject: Re: feeling a bit better! > >Date: Wed, 13 Sep 2006 02:25:09 -0000 > > > >RE you comments > > > > " rescue instillation " > >treatments with The urologist tiechman, and am currently being > >treatment out of the vulvar pain clinic at VGH. I am hoping to see a > >difference in the vulvar pain after these instilaltions are done, > >although > > > >Hi > > > >I am in Vancouver also and wondering how you can get tino this > >clinic. I was seen at Women's by Rhone but only got a PT > >referral. There is a study at UBC I am trying to get on also bu > >they won't return any calls. > >What is rescue instillation? Have you done any Physcial therapy? > >Any other suggestions for who to see. Marcy Dayan is great for PT. > > > >Thanks! > >ALison > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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