Re: Docs who will do AP (Try an Infectious disease doc)

[Guest guest]

Hi everyone.  It is a shame that the docs are not able to help.  But there are

ways to get around that.  When I was in Texas and couldn't find a Rheumy, I

went to see and infectious disease doc who was familiar with A/P and being an

infectious disease doc, he was able to prescribe any antibiotic under the sun. 

What greatly helped me was that I had the proof in hand that I had been positive

for mycoplasma Pneumonae and was still carrying the antibodies.  So, instead of

using Scleroderma as a diagnosis, they were able to use Minocin for the

infection.  Good luck, there are more than one way to skin a cat.  Dolores &

Mike 

From: karenchatman@... <karenchatman@...>

Subject: Re: rheumatic Docs who will do AP

rheumatic

Date: Saturday, February 5, 2011, 1:57 PM

 

Keep searching, don't give up

Sent via BlackBerry from T-Mobile

rheumatic Docs who will do AP

So, my GP has been working with me on prescribing minocycline and running every

test I have asked her to. But I am calling the shots. I would love to have a doc

who knew more than I did.

I went to visit a former doctor. He specializes in fibromyalgia. I was sure that

if I introduced him to AP for rheumatic conditions that he would be interested.

Unfortunately, he told me that the NC medical board cracks down on physicians

for treating conditions in unconventional ways. He had been prescribing the

hormone oxytocin for fibromyalgia pain and his patients were getting relief from

it. The medical board reviewed him and he had to agree to stop prescribing it.

(On a side note, he told me that oxytocin has also been found to help kids with

autism. Blood tests show that there is no circulating oxytocin in these

children, and supplementing it in pill form helps them greatly. Dont' confuse

the hormone oxytocin with the pain pill oxycotin...it confused me at first).

So, he was not willing to " go out on a limb " and start treating rheumatic

patients with antibiotics. I told him that minocycline was recognized as a DMARD

(disease-modifying anti-rheumatic drug) by the Arthritis Foundation. He said it

didn't matter. He felt the medical board would get after him.

I was so disappointed and frustrated with our medical system. I am very grateful

that my GP is willing to prescribe these antibiotics for me.

I wish all those seeking a doctor to help them the best of luck. I encourage you

to keep at it until you find one. I have seen a great improvement since starting

AP in Sept. 2010.

Amy