Re: Re: - Owen

[Guest guest]

Hi

my son is about 20 months (corrected age - he was born at 30 weeks)

and has been on ght for about 8 weeks now.

I was simply terrified about giving the shots - we are using a pen device

and I can tell you it is no problem. rarely cries when getting the

shot and I feel most of the time he doesn't even feel it. We always distract

him with books or a video and chat away to him while he is getting the

injection and it is going really well.

We have an appointment on Monday to see our paediatrician and will

be weighed and measured but he is roughly 19lbs. I don't think he will have

gained a lot of weight this time because he catches every infection going

and has been sick on and off since he started ght but he is beginning to eat

more finger foods (biscuits, toast, chocolate, grapes, pear) which he

couldn't eat several months ago. has serious problems with lumps and

textures and has been on zantac for reflux although his vomiting is greatly

improved.

Hope this helps and you can e-mail me any time - I don't manage to get on

the computer every day but I will do my best to reply as quickly as

possible.

Good luck

Maeve

Re: Thank you Deb.....

>

> Hi Inga..thank you for responding...i appreciate it. I think i would

> feel differently about the gh's if i was in your shoes. Owen seems

> to have mild rss... he eats and wants to eat actually...although this

> only started about a year ago... so when i think of doing anything

> with the hormones i get really scared.

>

> Owen was 3lbs, 13 ounces at 35 weeks. He was 16 inches long. He is

> now almost 3 (in january) and weighs about 18 lbs (hopefully more..i

> have not had in weighed in about 6 months..but i dont want to get my

> hopes up) and is about 31 inches tall ....I try not to get my hopes

> up cuz i find i leave the doctors office with a huge lump in my

> throat if i think he has grown more....

>

> I hope all goes well with the possibility of growth hormones for

> Timmy.... does he have alot of problems? What drugs is he on...see

> Owen has never been on anything or none of the doctors ever told me

> to have him on anything.,..they treat him like a non rss child. He

> has rss and i want them to treat him like that...errr

>

> oh well i will never forget what my doctor told me when i found out

> that Owen had rss..she said if your child is going to have a

> syndrome...rss is the one you want him to have....and i will never

> forget it!

>

> ...owen(rss)almost 3 18 lbs...

>

>

>

>

>

> > >

> > > Hi

> > > I just wanted to thank Deb for her emails...they are so

> incredibly

> > > helpful. I did not sleep last night..i have not really looked at

> > > owen as having rss in a long time. He is extremely mild. He has

> > > allllll the physical aspects of rss but he is otherwise perfectly

> > > healthy. He eats great, his speech is perfect, he is almost 3

> and

> > > completely potty trained. He has absolutely no problems and

> never

> > > really has so the thought of giving him the hormones realllly

> freaks

> > > me out.

> > >

> > > Can i ask everyone a favour..... if you dont mind, could you post

> the

> > > weight and height of your rss children...just for my own

> curiousity.

> > >

> > > Another question for everyone.... has anyone else noticed that

> their

> > > rss kids dont seem to get sick very often...Owen has had 2 colds

> > > (mild) in his whole life and i am just wondering if others are

> like

> > > that... and has anyone noticed that their rss children have

> dimples

> > > in their shoulders.

> > >

> > > Another thing that reallly freaks me out is that none of the

> doctors

> > > feel the need to see Owen ..... for example the endo says she

> does

> > > not need to see him unless he stops growing in height all

> > > together...i feel like i am being ignored and that i am doing all

> the

> > > work.

> > >

> > > Has anyone been told there children have kidney problems. I saw

> that

> > > on a website and i asked my doctor if we could look into

> that..and he

> > > looked at me like i was nuts..... i am going crazy thinking i

> have to

> > > do their jobs.... dammit they know they have a patient with

> rss..why

> > > dont they do the research..i dont mind but i am sooo terrified

> that

> > > Owen will be overlooked cuz he is so healthy...but he still has

> rss!

> > >

> > > Sorry for being so long i am just so excited to be able to talk

> to

> > > people about Owen.... everyone else seems to think its all in my

> > > head...and i get the typical ....OH maybe he will be

> tall>.....give

> > > me a break...lol

> > >

> > > Thank you for reading this....

> > >

> > > ,,,,Owen (rss) 18lbs, 31 inches....and Cory (non rss) 5 yrs

> > >

> > >

> > >

> > > Yahoo! Groups

> > >

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> > >

> > >