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The first things we eliminated were casein ( all forms of milk) and gluten ( all

grass grains). Gave ph the first solid stool in his 2 1/2 years.

stomach issues

My son is currently 3.5yr old and been diagnosed with autism shortly

after turning 3. His behavior is excellent and we have made great

cognitive gains while starting ABA. His communication is good at

sign language. My issue now is things like loose stools, gassy and

returning reflux. We just went to the alergist and Logan is not

allergic to anything so that can't be an issue. He eats anything you

put in front of him, so as far as elimination, I am not sure what to

eliminate. If anyone has any suggestions please let me know. Thank

you so much. I am on a limited income due to being a stay at home

single mom only on SSI and Child Support.

Barbara

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  • 6 years later...

From: " Beth Fletcher " <kbf23@...>

I've been having diahrea every day, mostly in the mornings after my first meal.

I'm usually ok after that, but sometimes I will have it two or three times a

day. I'm already taking probiotics and L-Glutamine. What else can I do to help

this? I know I've got to get it under control.

For starters, you might try taking a heaping teaspoon of pysillium in a glass of

water one or two times daily to bulk up the stool, take digestive enzymes (that

include HCL) with all meals and double or even triple probiotic dose. Wal-Mart

sells a generic pysillium equal to and cheaper than Metamucil. It's called

Equate. NOW brand has a reasonably good and inexpensive digestive enzyme with

the HCL.

Ethel

I upped my dosage from M-W-F to everyday three months ago. This was the first

time I saw any progress with my joints, so I really don't want to back off the

antibiotics right now.

Thanks

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Hi, Beth:

You could have some complications and consider seeing a doctor; some physicians

might combine the use of Flagyl with conventional antibiotics, depending upon

the situation.

Good Luck with it,

From: Beth Fletcher <kbf23@...>

Subject: rheumatic stomach issues

rheumatic

Date: Wednesday, January 20, 2010, 8:23 AM

 

I've been having diahrea every day, mostly in the mornings after my first

meal.  I'm usually ok after that, but sometimes I will have it two or three

times a day.  I'm already taking probiotics and L-Glutamine.  What else can I

do to help this?  I know I've got to get it under control. 

 

I upped my dosage from M-W-F to everyday three months ago.  This was the first

time I saw any progress with my joints, so I really don't want to back off the

antibiotics right now. 

 

Thanks

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For the past two + years, I've had off and on again diarrhea like Beth

described  I also kept changing and rotating my antibiotics.  Dr. took

cultures of the stool and there was no growth.  I backed off dairy products for

a while.  That helped sometimes.  But I could never put my finger on the

cause.  Suddenly, I went a week without diarrhea, then it would return.  That

pattern remained for the next 6 months or so. I am noticing that the time

without diarrhea is now being extended.  I can go three to four weeks and then

have it return for a day or two and then return to normal stools again. I had

my blood work done last week.  Not only is my ANA normal, so is my RF normal. 

I have diabetes which had been out of control for a while.  Now it is totally

normal, as is the cholesterol and triglycerol count.  If I hadn't been so sick

since 2005, you would never believe that I have scleroderma from the looks of my

lab work.  So, I'm

thinking.  Did the diarrhea episodes have anything to do with my body getting

rid of the micoplasmas, I was so full of.  The only way to find out now is to

have a repeat complete micoplasma count.  I will ask the doctor for that on my

next visit and let you all know.  They were right.  Getting better was and is

a long slow process.  And during the course, there were times when I got

discouraged.  I recently re-read Dr. Brown's book and the frequently asked

questions.  Apparently when the blood work returns to normal, then we should

reduce the antibiotics to MWF.  I just did.  Will keep you all posted and let

you know.  Thank you all for your continued support, questions and answers. 

This is a wonderful site.  I feel very close to all of you even tho' I haven't

met most of you.   Dolores & Mike now from Vieques, Puerto Rico. 

From: Beth Fletcher <kbf23 (DOT) com>

Subject: rheumatic stomach issues

rheumatic@grou ps.com

Date: Wednesday, January 20, 2010, 8:23 AM

 

I've been having diahrea every day, mostly in the mornings after my first

meal.  I'm usually ok after that, but sometimes I will have it two or three

times a day.  I'm already taking probiotics and L-Glutamine.  What else can I

do to help this?  I know I've got to get it under control. 

 

I upped my dosage from M-W-F to everyday three months ago.  This was the first

time I saw any progress with my joints, so I really don't want to back off the

antibiotics right now. 

 

Thanks

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Dear Beth,

In late November, my daughter, who has S.D. and M.S., had an 11-day series of

clindamycin infusions. About four days ago, she began to have diarrhea--as you

described, after the first meal of the day--and also blood in the stool and an

awful gel-like discharge. (Sorry if this is so graphic!) We saw her

orthopaedic surgeon today. (He recently did hip reconstruction for her and also

snipped the tendons in her legs to ease the tightness in them.) While we had

his attention, we described what she is presently experiencing with the

diarrhea, etc., and he immediately said it sounded like C-difficile. He

prescribed Flagyl. I don't know, of course, if this is what you have, but it's

a possibility. Dr. ph Sentef, her original antibiotic protocol doctor,

always prescribed Flagyl along with the minocycline, so you might ask your

doctor if this is something you should do, along with a good pribiotic.

Ellen

rheumatic stomach issues

rheumatic

Date: Wednesday, January 20, 2010, 8:23 AM

I've been having diahrea every day, mostly in the mornings after my first

meal. I'm usually ok after that, but sometimes I will have it two or three

times a day. I'm already taking probiotics and L-Glutamine. What else can I do

to help this? I know I've got to get it under control.

I upped my dosage from M-W-F to everyday three months ago. This was the first

time I saw any progress with my joints, so I really don't want to back off the

antibiotics right now.

Thanks

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Yes, when I was having the diarrhea problems, my doc also checked me for

C-diciffile and that came back negative.  But deffinitely have that checked

also.  Good luck with this problem.  It seems to be a common one.  I bet

there is an answer why we all get this type of diarrhea.  Lots of love to your

daughter.  Hope she gets better sooner.  Dolores & Mike

From: Beth Fletcher <kbf23 (DOT) com>

Subject: rheumatic stomach issues

rheumatic@grou ps.com

Date: Wednesday, January 20, 2010, 8:23 AM

I've been having diahrea every day, mostly in the mornings after my first meal.

I'm usually ok after that, but sometimes I will have it two or three times a

day. I'm already taking probiotics and L-Glutamine. What else can I do to help

this? I know I've got to get it under control.

I upped my dosage from M-W-F to everyday three months ago. This was the first

time I saw any progress with my joints, so I really don't want to back off the

antibiotics right now.

Thanks

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I actually already take Flagyl daily.  I see Dr. Sentef and this is part of his

protocol.  I am supposed to see him next month, so I will definitely bring it up

with him and see what he recommends.  I will also be asking about C-dif and the

possibility of adding psyllium.

 

Does anyone know if aloe vera juice may help?

 

Thanks again for all your advice and replies. 

From: Beth Fletcher <kbf23 (DOT) com>

Subject: rheumatic stomach issues

rheumatic@grou ps.com

Date: Wednesday, January 20, 2010, 8:23 AM

I've been having diahrea every day, mostly in the mornings after my first meal.

I'm usually ok after that, but sometimes I will have it two or three times a

day. I'm already taking probiotics and L-Glutamine. What else can I do to help

this? I know I've got to get it under control.

I upped my dosage from M-W-F to everyday three months ago. This was the first

time I saw any progress with my joints, so I really don't want to back off the

antibiotics right now.

Thanks

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  • 4 months later...
Guest guest

ne I made an appt with a pcp to check on labs that kinds stuff I thought it be some vitamin deficiancy too soo ill get that checked out thanks for your answers glad to know its not me alone with all these symptoms I have been fine since my last labs 3mths after my surgery untill now I really think its Vitamins ima need something soo hopefully its thats simple !! the stomach gurrgles it gets imbarrasing when we have office meetings but I always take something to drink it calms it down or not I try not to worry too much .ok thanks for everything Sent from my Verizon Wireless BlackBerryFrom: SuzanneSH@...Date: Thu, 20 May 2010 13:32:43 EDT< >Subject: Re: Stomach ISsues Hi, I would suggest you head to your doctor and have them do a blood draw. I had the that feeling like someone drained all my energy out of me, but mine was right after I had the surgery--with in the 1st month. I found out that my potassium was low. It was an easy fix- they gave me potassium pills to take and I still take them. I had problems holding my curling iron and felt a little dizzy too. I have had the stomach that gurgles too. Sometimes something warm in my stomach helped--like a warm cup of decaf tea. Popsicles also helped me with the gurgling. Sometimes it is gas, so use some Gas-X. I have been constipated and so I use Miralax everyday with my protein drink. That seems to help a whole lot. I am not doctor, so that is why I suggest you go see you doctor. That would be the best place to start. I can only comment on what I have been through. Hang in there, and hugs,Suzanne

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