Re: antiobiotic therapy sub standard?

[Guest guest]

Mine said the same thing - very dismissive of any of my ideas concerning

antibiotics, diet, etc. I was on Methotrexate for 5 weeks, currently trying

other options - not antibiotics yet, but am very open to the possibility. Not

trying to tell you what to do - I'm taking a leap of faith here; read a

lot of bad stuff about methotrexate and being only 51 years old, I don't want to

be on it long term. Still exploring my options.

>

> My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

> I was just recently diagnosed last november 09. I could use all the support I

can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

> Any comments would be helpful.

> Thanks

> S.

> Minneosto

>

[Guest guest]

,

Do not take that doctors word as a final answer.I had a sudden and severe onset

of RA after a upper respiratory infection. Years of going to docs and finally

ending up on prednisone and methotrexate for two years with minimal

improvement. I could function better but hated taking those meds.Finally found

this incredible website.My doc wanted to start me on enbrel shots. I did not

want to start on those

and mentioned the AP protocol.She laughed at me and said my RA was too

severe.Through the site I found an incredible Rheumotologist ( my 4th over the

course of illness). I went in with very swollen wrists, ankles and hands.She

listened to my history, had some concern about the stage of my RA but agreed

with my idea on the onset /infection.Prescribed doxycycline - 100mg 2x's per day

- in four days all my swelling was down.I could not believe it and neither could

she! I could move and walk without thinking about every move I made!I feel

better than I have in years and from barely being able to walk some days , I

can actually chase my dog a bit! Instead of a toxic 15,000.00 per year drug,

I now take a simple antibiotic that I get for free at the grocery store!!

Hang in there. Keep looking.Trust your instincts. Try the antibiotics before

the mthotrxateif you can.

cathleen

________________________________

From: <r_schmeling@...>

rheumatic

Sent: Sun, March 28, 2010 5:32:37 PM

Subject: rheumatic antiobiotic therapy sub standard?

 

My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

I was just recently diagnosed last november 09. I could use all the support I

can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

Any comments would be helpful.

Thanks

S.

Minneosto

[Guest guest]

Thank you so much for your story Dolores - very inspiring. I was on methotrexate

for 5 weeks, off now for 3 weeks and won't go back. I canceled my last

appointment with the rheumatologist and am looking for a doctor who is willing

to prescribe either minocin or low dose naltrexone - like I said, exploring my

options and what is best for my situation - I just know, deep within me, that

methotrexate is not the answer!

> >

> > My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

> > I was just recently diagnosed last november 09. I could use all the support

I can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

> > Any comments would be helpful.

> > Thanks

> > S.

> > Minneosto

> >

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Thank you so much for your story Dolores - very inspiring. I was on methotrexate

for 5 weeks, off now for 3 weeks and won't go back. I canceled my last

appointment with the rheumatologist and am looking for a doctor who is willing

to prescribe either minocin or low dose naltrexone - like I said, exploring my

options and what is best for my situation - I just know, deep within me, that

methotrexate is not the answer!

> >

> > My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

> > I was just recently diagnosed last november 09. I could use all the support

I can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

> > Any comments would be helpful.

> > Thanks

> > S.

> > Minneosto

> >

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

How do you find a rheumatologist in your area that will consider the antibiotic

protocol?

Sue

---- Cathleen Messina <catsmess@...> wrote:

> ,

> Do not take that doctors word as a final answer.I had a sudden and severe

onset of RA after a upper respiratory infection. Years of going to docs and

finally ending up on prednisone and methotrexate for two years with minimal

improvement. I could function better but hated taking those meds.Finally found

this incredible website.My doc wanted to start me on enbrel shots. I did not

want to start on those

> and mentioned the AP protocol.She laughed at me and said my RA was too

severe.Through the site I found an incredible Rheumotologist ( my 4th over the

course of illness). I went in with very swollen wrists, ankles and hands.She

listened to my history, had some concern about the stage of my RA but agreed

with my idea on the onset /infection.Prescribed doxycycline - 100mg 2x's per day

- in four days all my swelling was down.I could not believe it and neither could

she! I could move and walk without thinking about every move I made!I feel

better than I have in years and from barely being able to walk some days , I

can actually chase my dog a bit! Instead of a toxic 15,000.00 per year drug,

I now take a simple antibiotic that I get for free at the grocery store!!

> Hang in there. Keep looking.Trust your instincts. Try the antibiotics before

the mthotrxateif you can.

> cathleen

>

>

>

>

> ________________________________

> From: <r_schmeling@...>

> rheumatic

> Sent: Sun, March 28, 2010 5:32:37 PM

> Subject: rheumatic antiobiotic therapy sub standard?

>

>  

> My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

> I was just recently diagnosed last november 09. I could use all the support I

can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

> Any comments would be helpful.

> Thanks

> S.

> Minneosto

>

>

>

>

>

[Guest guest]

I found my doc thru a referral on this website.

 cathleen

________________________________

From: " semrick@... " <semrick@...>

rheumatic

Cc: Cathleen Messina <catsmess@...>

Sent: Mon, March 29, 2010 7:05:52 AM

Subject: Re: rheumatic antiobiotic therapy sub standard?

 

How do you find a rheumatologist in your area that will consider the antibiotic

protocol?

Sue

---- Cathleen Messina <catsmessbellsouth (DOT) net> wrote:

> ,

> Do not take that doctors word as a final answer.I had a sudden and severe

onset of RA after a upper respiratory infection. Years of going to docs and

finally ending up on prednisone and methotrexate for two years with minimal

improvement. I could function better but hated taking those meds.Finally found

this incredible website.My doc wanted to start me on enbrel shots. I did not

want to start on those

> and mentioned the AP protocol.She laughed at me and said my RA was too

severe.Through the site I found an incredible Rheumotologist ( my 4th over the

course of illness). I went in with very swollen wrists, ankles and hands.She

listened to my history, had some concern about the stage of my RA but agreed

with my idea on the onset /infection.Prescrib ed doxycycline - 100mg 2x's per

day - in four days all my swelling was down.I could not believe it and neither

could she! I could move and walk without thinking about every move I made!I feel

better than I have in years and from barely being able to walk some days , I

can actually chase my dog a bit! Instead of a toxic 15,000.00 per year drug,

I now take a simple antibiotic that I get for free at the grocery store!!

> Hang in there. Keep looking.Trust your instincts. Try the antibiotics before

the mthotrxateif you can.

> cathleen

>

>

>

>

> ____________ _________ _________ __

> From: <r_schmeling>

> rheumatic@grou ps.com

> Sent: Sun, March 28, 2010 5:32:37 PM

> Subject: rheumatic antiobiotic therapy sub standard?

>

>  

> My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

> I was just recently diagnosed last november 09. I could use all the support I

can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

> Any comments would be helpful.

> Thanks

> S.

> Minneosto

>

>

>

>

>

[Guest guest]

Cathleen, How do you get antibiotics for free at the grocery store? Kathy

,

Do not take that doctors word as a final answer.I had a sudden and severe onset

of RA after a upper respiratory infection. Years of going to docs and finally

ending up on prednisone and methotrexate for two years with minimal improvement.

I could function better but hated taking those meds.Finally found this

incredible website.My doc wanted to start me on enbrel shots. I did not want to

start on those

and mentioned the AP protocol.She laughed at me and said my RA was too

severe.Through the site I found an incredible Rheumotologist ( my 4th over the

course of illness). I went in with very swollen wrists, ankles and hands.She

listened to my history, had some concern about the stage of my RA but agreed

with my idea on the onset /infection.Prescribed doxycycline - 100mg 2x's per day

- in four days all my swelling was down.I could not believe it and neither could

she! I could move and walk without thinking about every move I made!I feel

better than I have in years and from barely being able to walk some days , I can

actually chase my dog a bit! Instead of a toxic 15,000.00 per year drug, I now

take a simple antibiotic that I get for free at the grocery store!!

Hang in there. Keep looking.Trust your instincts. Try the antibiotics before the

mthotrxateif you can.

cathleen

[Guest guest]

You can also find a doc thru the Roadback.org. site.  There is a man called

Ritchie who has a roster full of A/P doc names.  There are some that are

outstanding.  In Boston, there is Dr. Trentham, In Iowa, there is Dr. Sinnot. 

In New Jersey, there is Dr. Whitman, and in California there is Dr. Franco in

California, to name a few. Just ask and many people from all over the U.S, &

Canada will respond.  Eva is going to a good one in Texas.  Take care, Dolores

> ,

> Do not take that doctors word as a final answer.I had a sudden and severe

onset of RA after a upper respiratory infection. Years of going to docs and

finally ending up on prednisone and methotrexate for two years with minimal

improvement. I could function better but hated taking those meds.Finally found

this incredible website.My doc wanted to start me on enbrel shots. I did not

want to start on those

> and mentioned the AP protocol.She laughed at me and said my RA was too

severe.Through the site I found an incredible Rheumotologist ( my 4th over the

course of illness). I went in with very swollen wrists, ankles and hands.She

listened to my history, had some concern about the stage of my RA but agreed

with my idea on the onset /infection.Prescrib ed doxycycline - 100mg 2x's per

day - in four days all my swelling was down.I could not believe it and neither

could she! I could move and walk without thinking about every move I made!I feel

better than I have in years and from barely being able to walk some days , I

can actually chase my dog a bit! Instead of a toxic 15,000.00 per year drug,

I now take a simple antibiotic that I get for free at the grocery store!!

> Hang in there. Keep looking.Trust your instincts. Try the antibiotics before

the mthotrxateif you can.

> cathleen

>

>

>

>

> ____________ _________ _________ __

> From: <r_schmeling>

> rheumatic@grou ps.com

> Sent: Sun, March 28, 2010 5:32:37 PM

> Subject: rheumatic antiobiotic therapy sub standard?

>

>  

> My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

> I was just recently diagnosed last november 09. I could use all the support I

can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

> Any comments would be helpful.

> Thanks

> S.

> Minneosto

>

>

>

>

>

[Guest guest]

I'm needing a doc in Missouri, preferably in the Kansas City area.

> > ,

> > Do not take that doctors word as a final answer.I had a sudden and severe

onset of RA after a upper respiratory infection. Years of going to docs and

finally ending up on prednisone and methotrexate for two years with minimal

improvement. I could function better but hated taking those meds.Finally found

this incredible website.My doc wanted to start me on enbrel shots. I did not

want to start on those

> > and mentioned the AP protocol.She laughed at me and said my RA was too

severe.Through the site I found an incredible Rheumotologist ( my 4th over the

course of illness). I went in with very swollen wrists, ankles and hands.She

listened to my history, had some concern about the stage of my RA but agreed

with my idea on the onset /infection.Prescrib ed doxycycline - 100mg 2x's per

day - in four days all my swelling was down.I could not believe it and neither

could she! I could move and walk without thinking about every move I made!I feel

better than I have in years and from barely being able to walk some days , I

can actually chase my dog a bit! Instead of a toxic 15,000.00 per year drug,

I now take a simple antibiotic that I get for free at the grocery store!!

> > Hang in there. Keep looking.Trust your instincts. Try the antibiotics

before the mthotrxateif you can.

> > cathleen

> >

> >

> >

> >

> > ____________ _________ _________ __

> > From: <r_schmeling>

> > rheumatic@grou ps.com

> > Sent: Sun, March 28, 2010 5:32:37 PM

> > Subject: rheumatic antiobiotic therapy sub standard?

> >

> >  

> > My RA doctor has put me on Methotrexate. She says antibiotic therapy is sub

standard and only used for people with mild arthritis, mine in bad.

> > I was just recently diagnosed last november 09. I could use all the support

I can get. I said I would try the Metho. for 6 months. Then I go to a doctor who

will give the antibiotics.

> > Any comments would be helpful.

> > Thanks

> > S.

> > Minneosto

> >

> >

> >

> >

> >

[Guest guest]

Looking for a doc in the Detroit, Michigan area. Thanks!

> > > ,

> > > Do not take that doctors word as a final answer.I had a sudden and severe

onset of RA after a upper respiratory infection. Years of going to docs and

finally ending up on prednisone and methotrexate for two years with minimal

improvement. I could function better but hated taking those meds.Finally found

this incredible website.My doc wanted to start me on enbrel shots. I did not

want to start on those

> > > and mentioned the AP protocol.She laughed at me and said my RA was too

severe.Through the site I found an incredible Rheumotologist ( my 4th over the

course of illness). I went in with very swollen wrists, ankles and hands.She

listened to my history, had some concern about the stage of my RA but agreed

with my idea on the onset /infection.Prescrib ed doxycycline - 100mg 2x's per

day - in four days all my swelling was down.I could not believe it and neither

could she! I could move and walk without thinking about every move I made!I feel

better than I have in years and from barely being able to walk some days , I

can actually chase my dog a bit! Instead of a toxic 15,000.00 per year drug,

I now take a simple antibiotic that I get for free at the grocery store!!

> > > Hang in there. Keep looking.Trust your instincts. Try the antibiotics

before the mthotrxateif you can.

> > > cathleen

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ __

> > > From: <r_schmeling>

> > > rheumatic@grou ps.com

> > > Sent: Sun, March 28, 2010 5:32:37 PM

> > > Subject: rheumatic antiobiotic therapy sub standard?

> > >

> > >  

> > > My RA doctor has put me on Methotrexate. She says antibiotic therapy is

sub standard and only used for people with mild arthritis, mine in bad.

> > > I was just recently diagnosed last november 09. I could use all the

support I can get. I said I would try the Metho. for 6 months. Then I go to a

doctor who will give the antibiotics.

> > > Any comments would be helpful.

> > > Thanks

> > > S.

> > > Minneosto

> > >

> > >

> > >

> > >

> > >