To re things in common

[Guest guest]

Hi

Check out the archives for some information on research, case studies, etc. I have had CU for nearly ten years and I think there are several things we all have in common - before CU, we were just "ordinary" people, living our lives. Now we are just ordinary people, living our lives, with hives. Most of us seem to have had difficulty in getting the correct diagnosis and treatment, because it's a relatively rare thing in chronic form,and there aren't that many specialists. Most of us have found that all we are offered are things to suppress the symptoms, in a variety of forms, and many of us have not been told of the side effects of the treatments we are offered. Most of us have found that doctors don't have time for us - they find us frustrating and difficult. They can't give us the answers we desperately want and a lot of them don't bother to try to educate themselves about our condition. Because it's a relatively rare thing, most of us had never spoken to another person with CU until we joined this group. Most of us have found that some of our loved ones and others can't understand what we are going through, no matter how much we try to explain. (like our employers.....) Most of us find that our social lives and all of our activities suffer. Most of us find we spend more money than we want to on tests, doctors, medictions, creams, etc, etc, ad nauseum. Most of us are sick to death of it, and just wish it would go away, now!

There, got that off my chest!(I'm glad you're one of the supportive loved ones!)Best wishes, Carol