Guest guest Posted February 23, 2010 Report Share Posted February 23, 2010 Hi Lynne Thanks for the info re Lyme disease. I'm in Australia and fortunately we don't have Lyme disease here. We do have some mosquito borne diseases but I've tested negative to those. I was feeling good last May and fed up with the candida effects of mino (even with good probiotics and strict diet) so I stopped it for a while. The candida improved and I felt much better in that regard but in two or three months the pain became very bad. I began the mino again in September and it's still not really controlling the pain though I think it's a bit better. I now have some joint deformities (which I didn't have before I stopped the mino). I've been having 1mg prednisone daily for a few weeks and things are better so am down to 0.5mg but I will stop that in two weeks. At one time in desperation I even thought of going on methotrexate because I didn't want more deformities (I want to keep being able to walk for exercise) but have scrapped that idea since I know a few people on it and don't want the fatigue and general unwellness that they seem to have. So I'm persevering with the mino and plaquenil. I think someone on one of the lists said it can take up to twelve months to work once you stop the mino and start again. I don't know why that would be but I'm hoping for good results in the end. Everyone, don't give up the minocycline!!! (unless in special circumstances of course). Ros Quote Link to comment Share on other sites More sharing options...
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