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Hi Phil,

First, please accept my condolences on the loss of your sister. I am so

sorry her kidney disease lead to her death at such a young age.

IgAN can lead to end stage renal disease in 30-50% of the cases, but the

truth is that any kidney disease can lead to kidney failure and result in the

kidneys being ineffective at cleansing the blood. Even high blood pressure in

the absence of any other kidney disease can cause the kidneys to fail, and by

definition, kidney failure means the kidneys are no longer effective in

cleansing the blood.

It is not common for IgAN to cause kidney hypoplasty though.

Once your kidneys reach end stage renal failure, it is sometimes hard to go

back and find what the originating cause is.

Sorry I can't be more helpful than that.

In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

phil_m_palmer@... writes:

Do kidneys with IGA hypoplasty? My sister died from renal failure at

31. I cannot find any medical records that resolve what the onset of

her kidney disease. But I do know that her kidneys were shiverled, but

they did produce a small amount of pee, just ineffective at cleaning

toxins from her body.

Does this sound typical of IGA?

It has also been sugested that she had polycystic kidney diease, but

they produce large (cystic filled) kidneys and some other family

members would have similar kidney problems. Several family memebers

have had bouts of kidney illnesses but none went to failure.

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Hi Phil,

First, please accept my condolences on the loss of your sister. I am so

sorry her kidney disease lead to her death at such a young age.

IgAN can lead to end stage renal disease in 30-50% of the cases, but the

truth is that any kidney disease can lead to kidney failure and result in the

kidneys being ineffective at cleansing the blood. Even high blood pressure in

the absence of any other kidney disease can cause the kidneys to fail, and by

definition, kidney failure means the kidneys are no longer effective in

cleansing the blood.

It is not common for IgAN to cause kidney hypoplasty though.

Once your kidneys reach end stage renal failure, it is sometimes hard to go

back and find what the originating cause is.

Sorry I can't be more helpful than that.

In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

phil_m_palmer@... writes:

Do kidneys with IGA hypoplasty? My sister died from renal failure at

31. I cannot find any medical records that resolve what the onset of

her kidney disease. But I do know that her kidneys were shiverled, but

they did produce a small amount of pee, just ineffective at cleaning

toxins from her body.

Does this sound typical of IGA?

It has also been sugested that she had polycystic kidney diease, but

they produce large (cystic filled) kidneys and some other family

members would have similar kidney problems. Several family memebers

have had bouts of kidney illnesses but none went to failure.

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Share on other sites

Do kidneys with IGA hypoplasty? My sister died from renal failure at

31. I cannot find any medical records that resolve what the onset of

her kidney disease. But I do know that her kidneys were shiverled, but

they did produce a small amount of pee, just ineffective at cleaning

toxins from her body.

Does this sound typical of IGA?

It has also been sugested that she had polycystic kidney diease, but

they produce large (cystic filled) kidneys and some other family

members would have similar kidney problems. Several family memebers

have had bouts of kidney illnesses but none went to failure.

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Hi Phil,

I am so sorry your son is symptomatic. I certainly do hope that he does not

have IgAN. The only real treatment is with ACE inhibitors, although he is

very young so that may not apply to him. It is important to keep BP down

though.

If he is spilling large amounts of protein, the doctor may suggest trying

Prednisone and we do have members who have had wonderful success with that.

Regardless of what is to come with him, we are here to support you each step

of the way Phil. You are not in this alone.

In a message dated 2/8/2005 8:10:33 P.M. Pacific Standard Time,

phil_m_palmer@... writes:

Thank you for the replys. The reason I am asking is that my 3yo son

has two episodes of gross hemoturia with protein in his urine. He had

a sonogram which is normal. All his blood work came back normal with

no signs of kidney damage. The one doctor that treated my sister

thought she had IGA but cannot remember and with all records lost or

destroyed it will always be a mystery.

We took him to the ped. neph. center at s Hopkins for the first

episode. They thought maybe it was from strep. they wanted to wait and

see, in the meantime we did another urinalysis which also came back

normal so we thought it must have been strep. and ever thing is

better. On Monday night he had blood in his pee, but this afternoons

pee was clear as a bell.?? We go back to Hopkins on next Wednesday, I

think they wwill schedule a biopsy. Is there any REAL treatment for IGA?

I wish I knew how to help my son now.

Phil

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My understanding of a hypoplastic kidney is that it is a small and

underdeveloped kidney. In the case of chronic kidney diseases like IgAN, the

kidney doesn't start out small and underdeveloped, but it does tend to

shrivel over time as the person approaches end-stage renal disease. As far

as pee goes, I'm still urinating a fair amount even 2 and a half years after

starting dialysis. The part of the kidneys that produce the urine is really

different than the part that filters, and IgAN may not affect that part as

much as the filtering capacity. So, you can have urine without much of

anything being filtered into it. This is typical of many people as they

reach esrd. It can be very helpful to still urinate though, as it helps

lighten your fluid restriction, plus it helps eliminate a bit of phosphorus

and potassium, so you might be able to eat a bit more.

Pierre

Re: Question about IGA

>

>

> Hi Phil,

>

> First, please accept my condolences on the loss of your sister. I am so

> sorry her kidney disease lead to her death at such a young age.

>

> IgAN can lead to end stage renal disease in 30-50% of the cases, but the

> truth is that any kidney disease can lead to kidney failure and result in

the

> kidneys being ineffective at cleansing the blood. Even high blood

pressure in

> the absence of any other kidney disease can cause the kidneys to fail, and

by

> definition, kidney failure means the kidneys are no longer effective in

> cleansing the blood.

>

> It is not common for IgAN to cause kidney hypoplasty though.

>

> Once your kidneys reach end stage renal failure, it is sometimes hard to

go

> back and find what the originating cause is.

>

> Sorry I can't be more helpful than that.

>

>

>

> In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> phil_m_palmer@... writes:

>

> Do kidneys with IGA hypoplasty? My sister died from renal failure at

> 31. I cannot find any medical records that resolve what the onset of

> her kidney disease. But I do know that her kidneys were shiverled, but

> they did produce a small amount of pee, just ineffective at cleaning

> toxins from her body.

>

> Does this sound typical of IGA?

>

> It has also been sugested that she had polycystic kidney diease, but

> they produce large (cystic filled) kidneys and some other family

> members would have similar kidney problems. Several family memebers

> have had bouts of kidney illnesses but none went to failure.

>

>

>

>

>

>

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Thank you for the replys. The reason I am asking is that my 3yo son

has two episodes of gross hemoturia with protein in his urine. He had

a sonogram which is normal. All his blood work came back normal with

no signs of kidney damage. The one doctor that treated my sister

thought she had IGA but cannot remember and with all records lost or

destroyed it will always be a mystery.

We took him to the ped. neph. center at s Hopkins for the first

episode. They thought maybe it was from strep. they wanted to wait and

see, in the meantime we did another urinalysis which also came back

normal so we thought it must have been strep. and ever thing is

better. On Monday night he had blood in his pee, but this afternoons

pee was clear as a bell.?? We go back to Hopkins on next Wednesday, I

think they wwill schedule a biopsy. Is there any REAL treatment for IGA?

I wish I knew how to help my son now.

Phil

> My understanding of a hypoplastic kidney is that it is a small and

> underdeveloped kidney. In the case of chronic kidney diseases like

IgAN, the

> kidney doesn't start out small and underdeveloped, but it does tend to

> shrivel over time as the person approaches end-stage renal disease.

As far

> as pee goes, I'm still urinating a fair amount even 2 and a half

years after

> starting dialysis. The part of the kidneys that produce the urine is

really

> different than the part that filters, and IgAN may not affect that

part as

> much as the filtering capacity. So, you can have urine without much of

> anything being filtered into it. This is typical of many people as they

> reach esrd. It can be very helpful to still urinate though, as it helps

> lighten your fluid restriction, plus it helps eliminate a bit of

phosphorus

> and potassium, so you might be able to eat a bit more.

>

> Pierre

>

> Re: Question about IGA

>

>

> >

> >

> > Hi Phil,

> >

> > First, please accept my condolences on the loss of your sister. I

am so

> > sorry her kidney disease lead to her death at such a young age.

> >

> > IgAN can lead to end stage renal disease in 30-50% of the cases,

but the

> > truth is that any kidney disease can lead to kidney failure and

result in

> the

> > kidneys being ineffective at cleansing the blood. Even high blood

> pressure in

> > the absence of any other kidney disease can cause the kidneys to

fail, and

> by

> > definition, kidney failure means the kidneys are no longer

effective in

> > cleansing the blood.

> >

> > It is not common for IgAN to cause kidney hypoplasty though.

> >

> > Once your kidneys reach end stage renal failure, it is sometimes

hard to

> go

> > back and find what the originating cause is.

> >

> > Sorry I can't be more helpful than that.

> >

> >

> >

> > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > phil_m_palmer@y... writes:

> >

> > Do kidneys with IGA hypoplasty? My sister died from renal failure at

> > 31. I cannot find any medical records that resolve what the onset of

> > her kidney disease. But I do know that her kidneys were

shiverled, but

> > they did produce a small amount of pee, just ineffective at cleaning

> > toxins from her body.

> >

> > Does this sound typical of IGA?

> >

> > It has also been sugested that she had polycystic kidney diease, but

> > they produce large (cystic filled) kidneys and some other family

> > members would have similar kidney problems. Several family memebers

> > have had bouts of kidney illnesses but none went to failure.

> >

> >

> >

> >

> >

> >

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It sounds like it " could " be mild IgAN with episodes of visible blood in the

urine. Many children would also have significant protein in their urine. If

your son doesn't have that, it's a good sign. Many different kidney problems

can look the same way. There might not be any actual kidney damage to be

seen on the sonogram. The biopsy is really the only way to know for sure

what's going on.

Are there any real treatments for IgAN? Well, it depends how we define

treatment. There's nothing we know about that will cure it, but there are

things that will control it in some ways. Check the IgA Nephropathy Notebook

on www.igan.ca

Pierre

Re: Question about IGA

> >

> >

> > >

> > >

> > > Hi Phil,

> > >

> > > First, please accept my condolences on the loss of your sister. I

> am so

> > > sorry her kidney disease lead to her death at such a young age.

> > >

> > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> but the

> > > truth is that any kidney disease can lead to kidney failure and

> result in

> > the

> > > kidneys being ineffective at cleansing the blood. Even high blood

> > pressure in

> > > the absence of any other kidney disease can cause the kidneys to

> fail, and

> > by

> > > definition, kidney failure means the kidneys are no longer

> effective in

> > > cleansing the blood.

> > >

> > > It is not common for IgAN to cause kidney hypoplasty though.

> > >

> > > Once your kidneys reach end stage renal failure, it is sometimes

> hard to

> > go

> > > back and find what the originating cause is.

> > >

> > > Sorry I can't be more helpful than that.

> > >

> > >

> > >

> > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > phil_m_palmer@y... writes:

> > >

> > > Do kidneys with IGA hypoplasty? My sister died from renal failure at

> > > 31. I cannot find any medical records that resolve what the onset of

> > > her kidney disease. But I do know that her kidneys were

> shiverled, but

> > > they did produce a small amount of pee, just ineffective at cleaning

> > > toxins from her body.

> > >

> > > Does this sound typical of IGA?

> > >

> > > It has also been sugested that she had polycystic kidney diease, but

> > > they produce large (cystic filled) kidneys and some other family

> > > members would have similar kidney problems. Several family memebers

> > > have had bouts of kidney illnesses but none went to failure.

> > >

> > >

> > >

> > >

> > >

> > >

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Hello Everyone,

I do not post on here very often but I had to make one on this topic. When I

was young I had many problems with strep throat and many other ears nose throat

problems. I had done some research many years ago and come to the conclusion

that I developed IGA from my tonsils not being removed. I had come a crossed a

study showing that if the tonsils are infected for a long period of time they

can clog up the kidneys and cause them to become ineffective. This is all my own

theory, but it does make since in my own case. Maybe this has happened to some

one else.

Chuck Biddle

__________________________________________________

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Hi Phil. My daughter was 8 when we experienced the same type of situation.

At first, the ped. neph thought it was pretty much due to streppe throat but

that it should resolve itself within 7 -to 10 days. It didn't. Anyway, our

options at the time was to wait and see if it cleared up or to have a

biopsy. This had already been going on three weeks. Her urine at this

point went from grape-juice colored to cherry red. Very distressing. We

had the biopsy and it did confirm IGA. I think as a parent for me, the not

knowing for sure was so scarey. My mind began to imagine many worse things.

Upon being in a Children's Hospital and seeing many, many children so much

worse off, I truly feel blessed. My daughter is able to go to school, play,

participate in sports and various extracurricular activities, and is other

wise healthy except this one major issue. So, I've learned to be thankful

for the little things and to take one day and issue at a time. I pray that

everything is okay with your son and maybe it is one of those things that

happen but there is no explanation and it ever happens again. Good luck

Tara, mom to Allie Beth

Re: Question about IGA

Thank you for the replys. The reason I am asking is that my 3yo son

has two episodes of gross hemoturia with protein in his urine. He had

a sonogram which is normal. All his blood work came back normal with

no signs of kidney damage. The one doctor that treated my sister

thought she had IGA but cannot remember and with all records lost or

destroyed it will always be a mystery.

We took him to the ped. neph. center at s Hopkins for the first

episode. They thought maybe it was from strep. they wanted to wait and

see, in the meantime we did another urinalysis which also came back

normal so we thought it must have been strep. and ever thing is

better. On Monday night he had blood in his pee, but this afternoons

pee was clear as a bell.?? We go back to Hopkins on next Wednesday, I

think they wwill schedule a biopsy. Is there any REAL treatment for IGA?

I wish I knew how to help my son now.

Phil

> My understanding of a hypoplastic kidney is that it is a small and

> underdeveloped kidney. In the case of chronic kidney diseases like

IgAN, the

> kidney doesn't start out small and underdeveloped, but it does tend to

> shrivel over time as the person approaches end-stage renal disease.

As far

> as pee goes, I'm still urinating a fair amount even 2 and a half

years after

> starting dialysis. The part of the kidneys that produce the urine is

really

> different than the part that filters, and IgAN may not affect that

part as

> much as the filtering capacity. So, you can have urine without much of

> anything being filtered into it. This is typical of many people as they

> reach esrd. It can be very helpful to still urinate though, as it helps

> lighten your fluid restriction, plus it helps eliminate a bit of

phosphorus

> and potassium, so you might be able to eat a bit more.

>

> Pierre

>

> Re: Question about IGA

>

>

> >

> >

> > Hi Phil,

> >

> > First, please accept my condolences on the loss of your sister. I

am so

> > sorry her kidney disease lead to her death at such a young age.

> >

> > IgAN can lead to end stage renal disease in 30-50% of the cases,

but the

> > truth is that any kidney disease can lead to kidney failure and

result in

> the

> > kidneys being ineffective at cleansing the blood. Even high blood

> pressure in

> > the absence of any other kidney disease can cause the kidneys to

fail, and

> by

> > definition, kidney failure means the kidneys are no longer

effective in

> > cleansing the blood.

> >

> > It is not common for IgAN to cause kidney hypoplasty though.

> >

> > Once your kidneys reach end stage renal failure, it is sometimes

hard to

> go

> > back and find what the originating cause is.

> >

> > Sorry I can't be more helpful than that.

> >

> >

> >

> > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > phil_m_palmer@y... writes:

> >

> > Do kidneys with IGA hypoplasty? My sister died from renal failure at

> > 31. I cannot find any medical records that resolve what the onset of

> > her kidney disease. But I do know that her kidneys were

shiverled, but

> > they did produce a small amount of pee, just ineffective at cleaning

> > toxins from her body.

> >

> > Does this sound typical of IGA?

> >

> > It has also been sugested that she had polycystic kidney diease, but

> > they produce large (cystic filled) kidneys and some other family

> > members would have similar kidney problems. Several family memebers

> > have had bouts of kidney illnesses but none went to failure.

> >

> >

> >

> >

> >

> >

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Hi Chuck.

Tonsillectomy as a treatment for IgAN has always been a controversial

subject - since around the mid-1990's, as I wrote about in www.igan.ca . One

the one hand, to patients or parents of patients, it might seem like a

relatively minor operation to do if there's any chance at all it might help.

I can certainly understand that point of view. On the other hand, we have

the scientific/medical view which discounts tonsilllectomy as a somewhat

risky procedure for which there isn't much supporting evidence. I don't know

when, if ever, this question will be resolved once and for all. I guess it

would take a true clinical trial over a fair amount of time to prove it

either way. The preponderance of evidence seems to point against it as a

useful treatment, at this point, which is probably why nobody has bothered

to go beyond observational studies.

I've known of people who have had a tonsillectomy and who progressed to

kidney failure anyway, people who have had a tonsillectomy and seemed to

improve (based mostly on proteinuria), and people who had their tonsils out

as children and who eventually developed IgAN anyway. This seems to be the

pattern for IgAN anyway, irregardless of tonsils.

I can't really prove anything myself. My experience was that, in my family,

I WAS NOT the one who was constantly hospitalized as a child for strepthroat

infections, pneumonia, etc. One of my brothers was. Not a year went by that

he wasn't hospitalized for something like that. In fact, to this day, he

seems to spend half the year with walking pneumonia. Yet, his kidneys are

perfectly healthy (he was extensively evaluated as a potential kidney donor

for me but was rejected at the very end by a CT scan which discovered he had

complex renal arteries - other than that, his kidney are as good as kidneys

can be). I didn't have problems like that at all, and I'm the one with IgAN

and now kidney failure. So, go figure.

All I can suggest is that parents who are interested in this discuss it with

their child's nephrologist.

Pierre

Re: Question about IGA

>

>

>

> Hello Everyone,

>

> I do not post on here very often but I had to make one on this topic.

When I was young I had many problems with strep throat and many other ears

nose throat problems. I had done some research many years ago and come to

the conclusion that I developed IGA from my tonsils not being removed. I had

come a crossed a study showing that if the tonsils are infected for a long

period of time they can clog up the kidneys and cause them to become

ineffective. This is all my own theory, but it does make since in my own

case. Maybe this has happened to some one else.

>

> Chuck Biddle

>

>

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Share on other sites

Hi Chuck.

Tonsillectomy as a treatment for IgAN has always been a controversial

subject - since around the mid-1990's, as I wrote about in www.igan.ca . One

the one hand, to patients or parents of patients, it might seem like a

relatively minor operation to do if there's any chance at all it might help.

I can certainly understand that point of view. On the other hand, we have

the scientific/medical view which discounts tonsilllectomy as a somewhat

risky procedure for which there isn't much supporting evidence. I don't know

when, if ever, this question will be resolved once and for all. I guess it

would take a true clinical trial over a fair amount of time to prove it

either way. The preponderance of evidence seems to point against it as a

useful treatment, at this point, which is probably why nobody has bothered

to go beyond observational studies.

I've known of people who have had a tonsillectomy and who progressed to

kidney failure anyway, people who have had a tonsillectomy and seemed to

improve (based mostly on proteinuria), and people who had their tonsils out

as children and who eventually developed IgAN anyway. This seems to be the

pattern for IgAN anyway, irregardless of tonsils.

I can't really prove anything myself. My experience was that, in my family,

I WAS NOT the one who was constantly hospitalized as a child for strepthroat

infections, pneumonia, etc. One of my brothers was. Not a year went by that

he wasn't hospitalized for something like that. In fact, to this day, he

seems to spend half the year with walking pneumonia. Yet, his kidneys are

perfectly healthy (he was extensively evaluated as a potential kidney donor

for me but was rejected at the very end by a CT scan which discovered he had

complex renal arteries - other than that, his kidney are as good as kidneys

can be). I didn't have problems like that at all, and I'm the one with IgAN

and now kidney failure. So, go figure.

All I can suggest is that parents who are interested in this discuss it with

their child's nephrologist.

Pierre

Re: Question about IGA

>

>

>

> Hello Everyone,

>

> I do not post on here very often but I had to make one on this topic.

When I was young I had many problems with strep throat and many other ears

nose throat problems. I had done some research many years ago and come to

the conclusion that I developed IGA from my tonsils not being removed. I had

come a crossed a study showing that if the tonsils are infected for a long

period of time they can clog up the kidneys and cause them to become

ineffective. This is all my own theory, but it does make since in my own

case. Maybe this has happened to some one else.

>

> Chuck Biddle

>

>

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Hi Phil,

My 12-year old son was just given a definite diagnosis of IGA this

week. Doctor originally thought it might be Alport's Syndrome. I'm

grateful it isn't. My son, , has just been started on 5mg of

Vasotec. Although I don't respond to many of the messages posted

here, I feel so much better just to read the posts and see that I'm

not alone. I think for me the worst part is not knowing what the

future holds. has about 10% scarring in the kidneys, but hasn't

lost any kidney function. He has about 2000 units of protein in the

urine and has 3 episodes of gross hematuria since December. We have

to live a new " normal " . Take care of yourself and your son.

Elaine

> > My understanding of a hypoplastic kidney is that it is a small and

> > underdeveloped kidney. In the case of chronic kidney diseases like

> IgAN, the

> > kidney doesn't start out small and underdeveloped, but it does

tend to

> > shrivel over time as the person approaches end-stage renal

disease.

> As far

> > as pee goes, I'm still urinating a fair amount even 2 and a half

> years after

> > starting dialysis. The part of the kidneys that produce the urine

is

> really

> > different than the part that filters, and IgAN may not affect that

> part as

> > much as the filtering capacity. So, you can have urine without

much of

> > anything being filtered into it. This is typical of many people

as they

> > reach esrd. It can be very helpful to still urinate though, as it

helps

> > lighten your fluid restriction, plus it helps eliminate a bit of

> phosphorus

> > and potassium, so you might be able to eat a bit more.

> >

> > Pierre

> >

> > Re: Question about IGA

> >

> >

> > >

> > >

> > > Hi Phil,

> > >

> > > First, please accept my condolences on the loss of your

sister. I

> am so

> > > sorry her kidney disease lead to her death at such a young age.

> > >

> > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> but the

> > > truth is that any kidney disease can lead to kidney failure and

> result in

> > the

> > > kidneys being ineffective at cleansing the blood. Even high

blood

> > pressure in

> > > the absence of any other kidney disease can cause the kidneys to

> fail, and

> > by

> > > definition, kidney failure means the kidneys are no longer

> effective in

> > > cleansing the blood.

> > >

> > > It is not common for IgAN to cause kidney hypoplasty though.

> > >

> > > Once your kidneys reach end stage renal failure, it is sometimes

> hard to

> > go

> > > back and find what the originating cause is.

> > >

> > > Sorry I can't be more helpful than that.

> > >

> > >

> > >

> > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > phil_m_palmer@y... writes:

> > >

> > > Do kidneys with IGA hypoplasty? My sister died from renal

failure at

> > > 31. I cannot find any medical records that resolve what the

onset of

> > > her kidney disease. But I do know that her kidneys were

> shiverled, but

> > > they did produce a small amount of pee, just ineffective at

cleaning

> > > toxins from her body.

> > >

> > > Does this sound typical of IGA?

> > >

> > > It has also been sugested that she had polycystic kidney

diease, but

> > > they produce large (cystic filled) kidneys and some other

family

> > > members would have similar kidney problems. Several family

memebers

> > > have had bouts of kidney illnesses but none went to failure.

> > >

> > >

> > >

> > >

> > >

> > >

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Hi Phil,

My 12-year old son was just given a definite diagnosis of IGA this

week. Doctor originally thought it might be Alport's Syndrome. I'm

grateful it isn't. My son, , has just been started on 5mg of

Vasotec. Although I don't respond to many of the messages posted

here, I feel so much better just to read the posts and see that I'm

not alone. I think for me the worst part is not knowing what the

future holds. has about 10% scarring in the kidneys, but hasn't

lost any kidney function. He has about 2000 units of protein in the

urine and has 3 episodes of gross hematuria since December. We have

to live a new " normal " . Take care of yourself and your son.

Elaine

> > My understanding of a hypoplastic kidney is that it is a small and

> > underdeveloped kidney. In the case of chronic kidney diseases like

> IgAN, the

> > kidney doesn't start out small and underdeveloped, but it does

tend to

> > shrivel over time as the person approaches end-stage renal

disease.

> As far

> > as pee goes, I'm still urinating a fair amount even 2 and a half

> years after

> > starting dialysis. The part of the kidneys that produce the urine

is

> really

> > different than the part that filters, and IgAN may not affect that

> part as

> > much as the filtering capacity. So, you can have urine without

much of

> > anything being filtered into it. This is typical of many people

as they

> > reach esrd. It can be very helpful to still urinate though, as it

helps

> > lighten your fluid restriction, plus it helps eliminate a bit of

> phosphorus

> > and potassium, so you might be able to eat a bit more.

> >

> > Pierre

> >

> > Re: Question about IGA

> >

> >

> > >

> > >

> > > Hi Phil,

> > >

> > > First, please accept my condolences on the loss of your

sister. I

> am so

> > > sorry her kidney disease lead to her death at such a young age.

> > >

> > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> but the

> > > truth is that any kidney disease can lead to kidney failure and

> result in

> > the

> > > kidneys being ineffective at cleansing the blood. Even high

blood

> > pressure in

> > > the absence of any other kidney disease can cause the kidneys to

> fail, and

> > by

> > > definition, kidney failure means the kidneys are no longer

> effective in

> > > cleansing the blood.

> > >

> > > It is not common for IgAN to cause kidney hypoplasty though.

> > >

> > > Once your kidneys reach end stage renal failure, it is sometimes

> hard to

> > go

> > > back and find what the originating cause is.

> > >

> > > Sorry I can't be more helpful than that.

> > >

> > >

> > >

> > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > phil_m_palmer@y... writes:

> > >

> > > Do kidneys with IGA hypoplasty? My sister died from renal

failure at

> > > 31. I cannot find any medical records that resolve what the

onset of

> > > her kidney disease. But I do know that her kidneys were

> shiverled, but

> > > they did produce a small amount of pee, just ineffective at

cleaning

> > > toxins from her body.

> > >

> > > Does this sound typical of IGA?

> > >

> > > It has also been sugested that she had polycystic kidney

diease, but

> > > they produce large (cystic filled) kidneys and some other

family

> > > members would have similar kidney problems. Several family

memebers

> > > have had bouts of kidney illnesses but none went to failure.

> > >

> > >

> > >

> > >

> > >

> > >

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Hi Phil,

My 12-year old son was just given a definite diagnosis of IGA this

week. Doctor originally thought it might be Alport's Syndrome. I'm

grateful it isn't. My son, , has just been started on 5mg of

Vasotec. Although I don't respond to many of the messages posted

here, I feel so much better just to read the posts and see that I'm

not alone. I think for me the worst part is not knowing what the

future holds. has about 10% scarring in the kidneys, but hasn't

lost any kidney function. He has about 2000 units of protein in the

urine and has 3 episodes of gross hematuria since December. We have

to live a new " normal " . Take care of yourself and your son.

Elaine

> > My understanding of a hypoplastic kidney is that it is a small and

> > underdeveloped kidney. In the case of chronic kidney diseases like

> IgAN, the

> > kidney doesn't start out small and underdeveloped, but it does

tend to

> > shrivel over time as the person approaches end-stage renal

disease.

> As far

> > as pee goes, I'm still urinating a fair amount even 2 and a half

> years after

> > starting dialysis. The part of the kidneys that produce the urine

is

> really

> > different than the part that filters, and IgAN may not affect that

> part as

> > much as the filtering capacity. So, you can have urine without

much of

> > anything being filtered into it. This is typical of many people

as they

> > reach esrd. It can be very helpful to still urinate though, as it

helps

> > lighten your fluid restriction, plus it helps eliminate a bit of

> phosphorus

> > and potassium, so you might be able to eat a bit more.

> >

> > Pierre

> >

> > Re: Question about IGA

> >

> >

> > >

> > >

> > > Hi Phil,

> > >

> > > First, please accept my condolences on the loss of your

sister. I

> am so

> > > sorry her kidney disease lead to her death at such a young age.

> > >

> > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> but the

> > > truth is that any kidney disease can lead to kidney failure and

> result in

> > the

> > > kidneys being ineffective at cleansing the blood. Even high

blood

> > pressure in

> > > the absence of any other kidney disease can cause the kidneys to

> fail, and

> > by

> > > definition, kidney failure means the kidneys are no longer

> effective in

> > > cleansing the blood.

> > >

> > > It is not common for IgAN to cause kidney hypoplasty though.

> > >

> > > Once your kidneys reach end stage renal failure, it is sometimes

> hard to

> > go

> > > back and find what the originating cause is.

> > >

> > > Sorry I can't be more helpful than that.

> > >

> > >

> > >

> > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > phil_m_palmer@y... writes:

> > >

> > > Do kidneys with IGA hypoplasty? My sister died from renal

failure at

> > > 31. I cannot find any medical records that resolve what the

onset of

> > > her kidney disease. But I do know that her kidneys were

> shiverled, but

> > > they did produce a small amount of pee, just ineffective at

cleaning

> > > toxins from her body.

> > >

> > > Does this sound typical of IGA?

> > >

> > > It has also been sugested that she had polycystic kidney

diease, but

> > > they produce large (cystic filled) kidneys and some other

family

> > > members would have similar kidney problems. Several family

memebers

> > > have had bouts of kidney illnesses but none went to failure.

> > >

> > >

> > >

> > >

> > >

> > >

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Not to play the " sorry for myself sap " but I still can't believe that

I am going to " replay " my dads life. It is just unbelieveble --my

family has paid it's dues in FULL!! It is not fair. Not to any of us.

> > > My understanding of a hypoplastic kidney is that it is a small and

> > > underdeveloped kidney. In the case of chronic kidney diseases like

> > IgAN, the

> > > kidney doesn't start out small and underdeveloped, but it does

> tend to

> > > shrivel over time as the person approaches end-stage renal

> disease.

> > As far

> > > as pee goes, I'm still urinating a fair amount even 2 and a half

> > years after

> > > starting dialysis. The part of the kidneys that produce the urine

> is

> > really

> > > different than the part that filters, and IgAN may not affect that

> > part as

> > > much as the filtering capacity. So, you can have urine without

> much of

> > > anything being filtered into it. This is typical of many people

> as they

> > > reach esrd. It can be very helpful to still urinate though, as it

> helps

> > > lighten your fluid restriction, plus it helps eliminate a bit of

> > phosphorus

> > > and potassium, so you might be able to eat a bit more.

> > >

> > > Pierre

> > >

> > > Re: Question about IGA

> > >

> > >

> > > >

> > > >

> > > > Hi Phil,

> > > >

> > > > First, please accept my condolences on the loss of your

> sister. I

> > am so

> > > > sorry her kidney disease lead to her death at such a young age.

> > > >

> > > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> > but the

> > > > truth is that any kidney disease can lead to kidney failure and

> > result in

> > > the

> > > > kidneys being ineffective at cleansing the blood. Even high

> blood

> > > pressure in

> > > > the absence of any other kidney disease can cause the kidneys to

> > fail, and

> > > by

> > > > definition, kidney failure means the kidneys are no longer

> > effective in

> > > > cleansing the blood.

> > > >

> > > > It is not common for IgAN to cause kidney hypoplasty though.

> > > >

> > > > Once your kidneys reach end stage renal failure, it is sometimes

> > hard to

> > > go

> > > > back and find what the originating cause is.

> > > >

> > > > Sorry I can't be more helpful than that.

> > > >

> > > >

> > > >

> > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > > phil_m_palmer@y... writes:

> > > >

> > > > Do kidneys with IGA hypoplasty? My sister died from renal

> failure at

> > > > 31. I cannot find any medical records that resolve what the

> onset of

> > > > her kidney disease. But I do know that her kidneys were

> > shiverled, but

> > > > they did produce a small amount of pee, just ineffective at

> cleaning

> > > > toxins from her body.

> > > >

> > > > Does this sound typical of IGA?

> > > >

> > > > It has also been sugested that she had polycystic kidney

> diease, but

> > > > they produce large (cystic filled) kidneys and some other

> family

> > > > members would have similar kidney problems. Several family

> memebers

> > > > have had bouts of kidney illnesses but none went to failure.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Not to play the " sorry for myself sap " but I still can't believe that

I am going to " replay " my dads life. It is just unbelieveble --my

family has paid it's dues in FULL!! It is not fair. Not to any of us.

> > > My understanding of a hypoplastic kidney is that it is a small and

> > > underdeveloped kidney. In the case of chronic kidney diseases like

> > IgAN, the

> > > kidney doesn't start out small and underdeveloped, but it does

> tend to

> > > shrivel over time as the person approaches end-stage renal

> disease.

> > As far

> > > as pee goes, I'm still urinating a fair amount even 2 and a half

> > years after

> > > starting dialysis. The part of the kidneys that produce the urine

> is

> > really

> > > different than the part that filters, and IgAN may not affect that

> > part as

> > > much as the filtering capacity. So, you can have urine without

> much of

> > > anything being filtered into it. This is typical of many people

> as they

> > > reach esrd. It can be very helpful to still urinate though, as it

> helps

> > > lighten your fluid restriction, plus it helps eliminate a bit of

> > phosphorus

> > > and potassium, so you might be able to eat a bit more.

> > >

> > > Pierre

> > >

> > > Re: Question about IGA

> > >

> > >

> > > >

> > > >

> > > > Hi Phil,

> > > >

> > > > First, please accept my condolences on the loss of your

> sister. I

> > am so

> > > > sorry her kidney disease lead to her death at such a young age.

> > > >

> > > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> > but the

> > > > truth is that any kidney disease can lead to kidney failure and

> > result in

> > > the

> > > > kidneys being ineffective at cleansing the blood. Even high

> blood

> > > pressure in

> > > > the absence of any other kidney disease can cause the kidneys to

> > fail, and

> > > by

> > > > definition, kidney failure means the kidneys are no longer

> > effective in

> > > > cleansing the blood.

> > > >

> > > > It is not common for IgAN to cause kidney hypoplasty though.

> > > >

> > > > Once your kidneys reach end stage renal failure, it is sometimes

> > hard to

> > > go

> > > > back and find what the originating cause is.

> > > >

> > > > Sorry I can't be more helpful than that.

> > > >

> > > >

> > > >

> > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > > phil_m_palmer@y... writes:

> > > >

> > > > Do kidneys with IGA hypoplasty? My sister died from renal

> failure at

> > > > 31. I cannot find any medical records that resolve what the

> onset of

> > > > her kidney disease. But I do know that her kidneys were

> > shiverled, but

> > > > they did produce a small amount of pee, just ineffective at

> cleaning

> > > > toxins from her body.

> > > >

> > > > Does this sound typical of IGA?

> > > >

> > > > It has also been sugested that she had polycystic kidney

> diease, but

> > > > they produce large (cystic filled) kidneys and some other

> family

> > > > members would have similar kidney problems. Several family

> memebers

> > > > have had bouts of kidney illnesses but none went to failure.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

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Hi Chuck,

This issue has been brought up in the past....I myself, as a child, suffered

from tonsilitis and strep on a regular basis. I finally had my tonsils and

adnoids removed at the age of 10. I still get sore throats pretty often. I

never had any health issues until the summer of '03 when I was 47 years old. I

think there is a connection with strep/tonsils but I don't think it has been

proven. Rita

Chuck Biddle wrote:

Hello Everyone,

I do not post on here very often but I had to make one on this topic. When I was

young I had many problems with strep throat and many other ears nose throat

problems. I had done some research many years ago and come to the conclusion

that I developed IGA from my tonsils not being removed. I had come a crossed a

study showing that if the tonsils are infected for a long period of time they

can clog up the kidneys and cause them to become ineffective. This is all my own

theory, but it does make since in my own case. Maybe this has happened to some

one else.

Chuck Biddle

__________________________________________________

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Hi Chuck,

This issue has been brought up in the past....I myself, as a child, suffered

from tonsilitis and strep on a regular basis. I finally had my tonsils and

adnoids removed at the age of 10. I still get sore throats pretty often. I

never had any health issues until the summer of '03 when I was 47 years old. I

think there is a connection with strep/tonsils but I don't think it has been

proven. Rita

Chuck Biddle wrote:

Hello Everyone,

I do not post on here very often but I had to make one on this topic. When I was

young I had many problems with strep throat and many other ears nose throat

problems. I had done some research many years ago and come to the conclusion

that I developed IGA from my tonsils not being removed. I had come a crossed a

study showing that if the tonsils are infected for a long period of time they

can clog up the kidneys and cause them to become ineffective. This is all my own

theory, but it does make since in my own case. Maybe this has happened to some

one else.

Chuck Biddle

__________________________________________________

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Share on other sites

Hi Chuck,

This issue has been brought up in the past....I myself, as a child, suffered

from tonsilitis and strep on a regular basis. I finally had my tonsils and

adnoids removed at the age of 10. I still get sore throats pretty often. I

never had any health issues until the summer of '03 when I was 47 years old. I

think there is a connection with strep/tonsils but I don't think it has been

proven. Rita

Chuck Biddle wrote:

Hello Everyone,

I do not post on here very often but I had to make one on this topic. When I was

young I had many problems with strep throat and many other ears nose throat

problems. I had done some research many years ago and come to the conclusion

that I developed IGA from my tonsils not being removed. I had come a crossed a

study showing that if the tonsils are infected for a long period of time they

can clog up the kidneys and cause them to become ineffective. This is all my own

theory, but it does make since in my own case. Maybe this has happened to some

one else.

Chuck Biddle

__________________________________________________

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Phil

I feel like that sometimes. I only need to realize that nobody is guaranteed

a problem-free life, nor a completely healthy one. At home where it's just

me, I can feel sorry for myself because I'm concentrating on myself, how bad

or sick I feel, or how useless I feel. It's easy to think how much better my

life would be without kidney failure. But whenever I'm in or at the

hospital, boy, I sure feel like a healthy person compared to so many that I

see there. For that matter, I only need to look out my window down onto the

street to see how much better off I am than some people. That never fails to

restore my perspective on things.

Pierre

Re: Question about IGA

> > > >

> > > >

> > > > >

> > > > >

> > > > > Hi Phil,

> > > > >

> > > > > First, please accept my condolences on the loss of your

> > sister. I

> > > am so

> > > > > sorry her kidney disease lead to her death at such a young age.

> > > > >

> > > > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> > > but the

> > > > > truth is that any kidney disease can lead to kidney failure and

> > > result in

> > > > the

> > > > > kidneys being ineffective at cleansing the blood. Even high

> > blood

> > > > pressure in

> > > > > the absence of any other kidney disease can cause the kidneys to

> > > fail, and

> > > > by

> > > > > definition, kidney failure means the kidneys are no longer

> > > effective in

> > > > > cleansing the blood.

> > > > >

> > > > > It is not common for IgAN to cause kidney hypoplasty though.

> > > > >

> > > > > Once your kidneys reach end stage renal failure, it is sometimes

> > > hard to

> > > > go

> > > > > back and find what the originating cause is.

> > > > >

> > > > > Sorry I can't be more helpful than that.

> > > > >

> > > > >

> > > > >

> > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > > > phil_m_palmer@y... writes:

> > > > >

> > > > > Do kidneys with IGA hypoplasty? My sister died from renal

> > failure at

> > > > > 31. I cannot find any medical records that resolve what the

> > onset of

> > > > > her kidney disease. But I do know that her kidneys were

> > > shiverled, but

> > > > > they did produce a small amount of pee, just ineffective at

> > cleaning

> > > > > toxins from her body.

> > > > >

> > > > > Does this sound typical of IGA?

> > > > >

> > > > > It has also been sugested that she had polycystic kidney

> > diease, but

> > > > > they produce large (cystic filled) kidneys and some other

> > family

> > > > > members would have similar kidney problems. Several family

> > memebers

> > > > > have had bouts of kidney illnesses but none went to failure.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Phil

I feel like that sometimes. I only need to realize that nobody is guaranteed

a problem-free life, nor a completely healthy one. At home where it's just

me, I can feel sorry for myself because I'm concentrating on myself, how bad

or sick I feel, or how useless I feel. It's easy to think how much better my

life would be without kidney failure. But whenever I'm in or at the

hospital, boy, I sure feel like a healthy person compared to so many that I

see there. For that matter, I only need to look out my window down onto the

street to see how much better off I am than some people. That never fails to

restore my perspective on things.

Pierre

Re: Question about IGA

> > > >

> > > >

> > > > >

> > > > >

> > > > > Hi Phil,

> > > > >

> > > > > First, please accept my condolences on the loss of your

> > sister. I

> > > am so

> > > > > sorry her kidney disease lead to her death at such a young age.

> > > > >

> > > > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> > > but the

> > > > > truth is that any kidney disease can lead to kidney failure and

> > > result in

> > > > the

> > > > > kidneys being ineffective at cleansing the blood. Even high

> > blood

> > > > pressure in

> > > > > the absence of any other kidney disease can cause the kidneys to

> > > fail, and

> > > > by

> > > > > definition, kidney failure means the kidneys are no longer

> > > effective in

> > > > > cleansing the blood.

> > > > >

> > > > > It is not common for IgAN to cause kidney hypoplasty though.

> > > > >

> > > > > Once your kidneys reach end stage renal failure, it is sometimes

> > > hard to

> > > > go

> > > > > back and find what the originating cause is.

> > > > >

> > > > > Sorry I can't be more helpful than that.

> > > > >

> > > > >

> > > > >

> > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > > > phil_m_palmer@y... writes:

> > > > >

> > > > > Do kidneys with IGA hypoplasty? My sister died from renal

> > failure at

> > > > > 31. I cannot find any medical records that resolve what the

> > onset of

> > > > > her kidney disease. But I do know that her kidneys were

> > > shiverled, but

> > > > > they did produce a small amount of pee, just ineffective at

> > cleaning

> > > > > toxins from her body.

> > > > >

> > > > > Does this sound typical of IGA?

> > > > >

> > > > > It has also been sugested that she had polycystic kidney

> > diease, but

> > > > > they produce large (cystic filled) kidneys and some other

> > family

> > > > > members would have similar kidney problems. Several family

> > memebers

> > > > > have had bouts of kidney illnesses but none went to failure.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Phil

I feel like that sometimes. I only need to realize that nobody is guaranteed

a problem-free life, nor a completely healthy one. At home where it's just

me, I can feel sorry for myself because I'm concentrating on myself, how bad

or sick I feel, or how useless I feel. It's easy to think how much better my

life would be without kidney failure. But whenever I'm in or at the

hospital, boy, I sure feel like a healthy person compared to so many that I

see there. For that matter, I only need to look out my window down onto the

street to see how much better off I am than some people. That never fails to

restore my perspective on things.

Pierre

Re: Question about IGA

> > > >

> > > >

> > > > >

> > > > >

> > > > > Hi Phil,

> > > > >

> > > > > First, please accept my condolences on the loss of your

> > sister. I

> > > am so

> > > > > sorry her kidney disease lead to her death at such a young age.

> > > > >

> > > > > IgAN can lead to end stage renal disease in 30-50% of the cases,

> > > but the

> > > > > truth is that any kidney disease can lead to kidney failure and

> > > result in

> > > > the

> > > > > kidneys being ineffective at cleansing the blood. Even high

> > blood

> > > > pressure in

> > > > > the absence of any other kidney disease can cause the kidneys to

> > > fail, and

> > > > by

> > > > > definition, kidney failure means the kidneys are no longer

> > > effective in

> > > > > cleansing the blood.

> > > > >

> > > > > It is not common for IgAN to cause kidney hypoplasty though.

> > > > >

> > > > > Once your kidneys reach end stage renal failure, it is sometimes

> > > hard to

> > > > go

> > > > > back and find what the originating cause is.

> > > > >

> > > > > Sorry I can't be more helpful than that.

> > > > >

> > > > >

> > > > >

> > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time,

> > > > > phil_m_palmer@y... writes:

> > > > >

> > > > > Do kidneys with IGA hypoplasty? My sister died from renal

> > failure at

> > > > > 31. I cannot find any medical records that resolve what the

> > onset of

> > > > > her kidney disease. But I do know that her kidneys were

> > > shiverled, but

> > > > > they did produce a small amount of pee, just ineffective at

> > cleaning

> > > > > toxins from her body.

> > > > >

> > > > > Does this sound typical of IGA?

> > > > >

> > > > > It has also been sugested that she had polycystic kidney

> > diease, but

> > > > > they produce large (cystic filled) kidneys and some other

> > family

> > > > > members would have similar kidney problems. Several family

> > memebers

> > > > > have had bouts of kidney illnesses but none went to failure.

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

> > > > >

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Those are excellent results Tara! Fantastic! That is a normal kidney

function. BUN is blood urea nitrogen. When the kidneys are not doing a good

job,

that number climbs higher. The hemoglobin is to check for anemia, and again

she is perfect!

I say a big celebration is in order after results that great. Please give

Allie Beth a big hug and tell her how happy we are for her.

Congratulations!

In a message dated 2/9/2005 11:57:28 A.M. Pacific Standard Time,

tnewman@... writes:

Pierre, the nurse called me with Allie Beth's lab results. Her creatinine

was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said

everything looked good, but what exactly does BUN tell?

Thanks,

Tara

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Pierre,

That is the same thing my dad used to tell my sister. And for most of

her life it was true.

Phil

> > > > > My understanding of a hypoplastic kidney is that it is a

small and

> > > > > underdeveloped kidney. In the case of chronic kidney

diseases like

> > > > IgAN, the

> > > > > kidney doesn't start out small and underdeveloped, but it does

> > > tend to

> > > > > shrivel over time as the person approaches end-stage renal

> > > disease.

> > > > As far

> > > > > as pee goes, I'm still urinating a fair amount even 2 and a half

> > > > years after

> > > > > starting dialysis. The part of the kidneys that produce the

urine

> > > is

> > > > really

> > > > > different than the part that filters, and IgAN may not

affect that

> > > > part as

> > > > > much as the filtering capacity. So, you can have urine without

> > > much of

> > > > > anything being filtered into it. This is typical of many people

> > > as they

> > > > > reach esrd. It can be very helpful to still urinate though,

as it

> > > helps

> > > > > lighten your fluid restriction, plus it helps eliminate a bit of

> > > > phosphorus

> > > > > and potassium, so you might be able to eat a bit more.

> > > > >

> > > > > Pierre

> > > > >

> > > > > Re: Question about IGA

> > > > >

> > > > >

> > > > > >

> > > > > >

> > > > > > Hi Phil,

> > > > > >

> > > > > > First, please accept my condolences on the loss of your

> > > sister. I

> > > > am so

> > > > > > sorry her kidney disease lead to her death at such a young

age.

> > > > > >

> > > > > > IgAN can lead to end stage renal disease in 30-50% of the

cases,

> > > > but the

> > > > > > truth is that any kidney disease can lead to kidney

failure and

> > > > result in

> > > > > the

> > > > > > kidneys being ineffective at cleansing the blood. Even high

> > > blood

> > > > > pressure in

> > > > > > the absence of any other kidney disease can cause the

kidneys to

> > > > fail, and

> > > > > by

> > > > > > definition, kidney failure means the kidneys are no longer

> > > > effective in

> > > > > > cleansing the blood.

> > > > > >

> > > > > > It is not common for IgAN to cause kidney hypoplasty though.

> > > > > >

> > > > > > Once your kidneys reach end stage renal failure, it is

sometimes

> > > > hard to

> > > > > go

> > > > > > back and find what the originating cause is.

> > > > > >

> > > > > > Sorry I can't be more helpful than that.

> > > > > >

> > > > > >

> > > > > >

> > > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard

Time,

> > > > > > phil_m_palmer@y... writes:

> > > > > >

> > > > > > Do kidneys with IGA hypoplasty? My sister died from renal

> > > failure at

> > > > > > 31. I cannot find any medical records that resolve what the

> > > onset of

> > > > > > her kidney disease. But I do know that her kidneys were

> > > > shiverled, but

> > > > > > they did produce a small amount of pee, just ineffective at

> > > cleaning

> > > > > > toxins from her body.

> > > > > >

> > > > > > Does this sound typical of IGA?

> > > > > >

> > > > > > It has also been sugested that she had polycystic kidney

> > > diease, but

> > > > > > they produce large (cystic filled) kidneys and some other

> > > family

> > > > > > members would have similar kidney problems. Several family

> > > memebers

> > > > > > have had bouts of kidney illnesses but none went to failure.

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > > >

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Hi Aldo,

Well, if all the results so far say your kidneys are working well, that is

good news. Do let us know when you get the rest of your results in a couple

of weeks.

In a message dated 2/9/2005 4:23:28 P.M. Pacific Standard Time,

diving03079@... writes:

Hi and all I went to the docto today and he said

all of his info from my testing are not in as of

yet,but the results he has gotten back so far say my

kids are working well, I wont know about the protein

or the rest of the blood work for another two

weeks Thanks Aldo

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