Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Aldo, Well, if all the results so far say your kidneys are working well, that is good news. Do let us know when you get the rest of your results in a couple of weeks. In a message dated 2/9/2005 4:23:28 P.M. Pacific Standard Time, diving03079@... writes: Hi and all I went to the docto today and he said all of his info from my testing are not in as of yet,but the results he has gotten back so far say my kids are working well, I wont know about the protein or the rest of the blood work for another two weeks Thanks Aldo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Pierre, the nurse called me with Allie Beth's lab results. Her creatinine was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said everything looked good, but what exactly does BUN tell? Thanks, Tara Re: Question about IGA Phil I feel like that sometimes. I only need to realize that nobody is guaranteed a problem-free life, nor a completely healthy one. At home where it's just me, I can feel sorry for myself because I'm concentrating on myself, how bad or sick I feel, or how useless I feel. It's easy to think how much better my life would be without kidney failure. But whenever I'm in or at the hospital, boy, I sure feel like a healthy person compared to so many that I see there. For that matter, I only need to look out my window down onto the street to see how much better off I am than some people. That never fails to restore my perspective on things. Pierre Re: Question about IGA > > > > > > > > > > > > > > > > > > > > > > > Hi Phil, > > > > > > > > > > First, please accept my condolences on the loss of your > > sister. I > > > am so > > > > > sorry her kidney disease lead to her death at such a young age. > > > > > > > > > > IgAN can lead to end stage renal disease in 30-50% of the cases, > > > but the > > > > > truth is that any kidney disease can lead to kidney failure and > > > result in > > > > the > > > > > kidneys being ineffective at cleansing the blood. Even high > > blood > > > > pressure in > > > > > the absence of any other kidney disease can cause the kidneys to > > > fail, and > > > > by > > > > > definition, kidney failure means the kidneys are no longer > > > effective in > > > > > cleansing the blood. > > > > > > > > > > It is not common for IgAN to cause kidney hypoplasty though. > > > > > > > > > > Once your kidneys reach end stage renal failure, it is sometimes > > > hard to > > > > go > > > > > back and find what the originating cause is. > > > > > > > > > > Sorry I can't be more helpful than that. > > > > > > > > > > > > > > > > > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time, > > > > > phil_m_palmer@y... writes: > > > > > > > > > > Do kidneys with IGA hypoplasty? My sister died from renal > > failure at > > > > > 31. I cannot find any medical records that resolve what the > > onset of > > > > > her kidney disease. But I do know that her kidneys were > > > shiverled, but > > > > > they did produce a small amount of pee, just ineffective at > > cleaning > > > > > toxins from her body. > > > > > > > > > > Does this sound typical of IGA? > > > > > > > > > > It has also been sugested that she had polycystic kidney > > diease, but > > > > > they produce large (cystic filled) kidneys and some other > > family > > > > > members would have similar kidney problems. Several family > > memebers > > > > > have had bouts of kidney illnesses but none went to failure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Tara. Yes, that looks pretty good. Good to hear, eh? Here's a paragraph I wrote before about BUN: " BUN stands for blood urea nitrogen. It measures the amount of a waste product called urea in the blood. Urea is formed when protein is broken down during normal metabolism. It is normally excreted in the urine. If kidneys function is impaired, the urea builds up in the blood (urea is therefore an inverse index of kidney function). In general, the higher the urea the worse the kidneys are functioning. However, the BUN can also rise from dehydration, even if the kidney function is still good. " Keep in mind that BUN (or simply called Urea) is not really a measure of kidney function on its own, like serum creatinine is. For most of the many years people have IgAN, it's not that meaningful, even though it's measured as part of the blood work. It gets more important as one gets closer to end-stage renal disease though. Pierre RE: Question about IGA > > Pierre, the nurse called me with Allie Beth's lab results. Her creatinine > was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said > everything looked good, but what exactly does BUN tell? > > Thanks, > Tara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Tara. Yes, that looks pretty good. Good to hear, eh? Here's a paragraph I wrote before about BUN: " BUN stands for blood urea nitrogen. It measures the amount of a waste product called urea in the blood. Urea is formed when protein is broken down during normal metabolism. It is normally excreted in the urine. If kidneys function is impaired, the urea builds up in the blood (urea is therefore an inverse index of kidney function). In general, the higher the urea the worse the kidneys are functioning. However, the BUN can also rise from dehydration, even if the kidney function is still good. " Keep in mind that BUN (or simply called Urea) is not really a measure of kidney function on its own, like serum creatinine is. For most of the many years people have IgAN, it's not that meaningful, even though it's measured as part of the blood work. It gets more important as one gets closer to end-stage renal disease though. Pierre RE: Question about IGA > > Pierre, the nurse called me with Allie Beth's lab results. Her creatinine > was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said > everything looked good, but what exactly does BUN tell? > > Thanks, > Tara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Tara. Yes, that looks pretty good. Good to hear, eh? Here's a paragraph I wrote before about BUN: " BUN stands for blood urea nitrogen. It measures the amount of a waste product called urea in the blood. Urea is formed when protein is broken down during normal metabolism. It is normally excreted in the urine. If kidneys function is impaired, the urea builds up in the blood (urea is therefore an inverse index of kidney function). In general, the higher the urea the worse the kidneys are functioning. However, the BUN can also rise from dehydration, even if the kidney function is still good. " Keep in mind that BUN (or simply called Urea) is not really a measure of kidney function on its own, like serum creatinine is. For most of the many years people have IgAN, it's not that meaningful, even though it's measured as part of the blood work. It gets more important as one gets closer to end-stage renal disease though. Pierre RE: Question about IGA > > Pierre, the nurse called me with Allie Beth's lab results. Her creatinine > was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said > everything looked good, but what exactly does BUN tell? > > Thanks, > Tara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Thanks so much Pierre. You're so great about responding and you're a pool of information. We're all so lucky to have you hear to refer to. Good luck on everything! Tara Re: Question about IGA Hi Tara. Yes, that looks pretty good. Good to hear, eh? Here's a paragraph I wrote before about BUN: " BUN stands for blood urea nitrogen. It measures the amount of a waste product called urea in the blood. Urea is formed when protein is broken down during normal metabolism. It is normally excreted in the urine. If kidneys function is impaired, the urea builds up in the blood (urea is therefore an inverse index of kidney function). In general, the higher the urea the worse the kidneys are functioning. However, the BUN can also rise from dehydration, even if the kidney function is still good. " Keep in mind that BUN (or simply called Urea) is not really a measure of kidney function on its own, like serum creatinine is. For most of the many years people have IgAN, it's not that meaningful, even though it's measured as part of the blood work. It gets more important as one gets closer to end-stage renal disease though. Pierre RE: Question about IGA > > Pierre, the nurse called me with Allie Beth's lab results. Her creatinine > was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said > everything looked good, but what exactly does BUN tell? > > Thanks, > Tara > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Thanks so much Pierre. You're so great about responding and you're a pool of information. We're all so lucky to have you hear to refer to. Good luck on everything! Tara Re: Question about IGA Hi Tara. Yes, that looks pretty good. Good to hear, eh? Here's a paragraph I wrote before about BUN: " BUN stands for blood urea nitrogen. It measures the amount of a waste product called urea in the blood. Urea is formed when protein is broken down during normal metabolism. It is normally excreted in the urine. If kidneys function is impaired, the urea builds up in the blood (urea is therefore an inverse index of kidney function). In general, the higher the urea the worse the kidneys are functioning. However, the BUN can also rise from dehydration, even if the kidney function is still good. " Keep in mind that BUN (or simply called Urea) is not really a measure of kidney function on its own, like serum creatinine is. For most of the many years people have IgAN, it's not that meaningful, even though it's measured as part of the blood work. It gets more important as one gets closer to end-stage renal disease though. Pierre RE: Question about IGA > > Pierre, the nurse called me with Allie Beth's lab results. Her creatinine > was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said > everything looked good, but what exactly does BUN tell? > > Thanks, > Tara > To edit your settings for the group, go to our Yahoo Group home page: http://groups.yahoo.com/group/iga-nephropathy/ To unsubcribe via email, iga-nephropathy-unsubscribe Visit our companion website at www.igan.ca. The site is entirely supported by donations. If you would like to help, go to: http://www.igan.ca/id62.htm Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Tara, Since Pierre answered your question, I'll just offer my congrats! What great numbers! Cy " Newman, Tara " wrote: Pierre, the nurse called me with Allie Beth's lab results. Her creatinine was .6, BUN 10, and hemoglobin 14.6. Those are good right? The nurse said everything looked good, but what exactly does BUN tell? Thanks, Tara Re: Question about IGA Phil I feel like that sometimes. I only need to realize that nobody is guaranteed a problem-free life, nor a completely healthy one. At home where it's just me, I can feel sorry for myself because I'm concentrating on myself, how bad or sick I feel, or how useless I feel. It's easy to think how much better my life would be without kidney failure. But whenever I'm in or at the hospital, boy, I sure feel like a healthy person compared to so many that I see there. For that matter, I only need to look out my window down onto the street to see how much better off I am than some people. That never fails to restore my perspective on things. Pierre Re: Question about IGA > > > > > > > > > > > > > > > > > > > > > > > Hi Phil, > > > > > > > > > > First, please accept my condolences on the loss of your > > sister. I > > > am so > > > > > sorry her kidney disease lead to her death at such a young age. > > > > > > > > > > IgAN can lead to end stage renal disease in 30-50% of the cases, > > > but the > > > > > truth is that any kidney disease can lead to kidney failure and > > > result in > > > > the > > > > > kidneys being ineffective at cleansing the blood. Even high > > blood > > > > pressure in > > > > > the absence of any other kidney disease can cause the kidneys to > > > fail, and > > > > by > > > > > definition, kidney failure means the kidneys are no longer > > > effective in > > > > > cleansing the blood. > > > > > > > > > > It is not common for IgAN to cause kidney hypoplasty though. > > > > > > > > > > Once your kidneys reach end stage renal failure, it is sometimes > > > hard to > > > > go > > > > > back and find what the originating cause is. > > > > > > > > > > Sorry I can't be more helpful than that. > > > > > > > > > > > > > > > > > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time, > > > > > phil_m_palmer@y... writes: > > > > > > > > > > Do kidneys with IGA hypoplasty? My sister died from renal > > failure at > > > > > 31. I cannot find any medical records that resolve what the > > onset of > > > > > her kidney disease. But I do know that her kidneys were > > > shiverled, but > > > > > they did produce a small amount of pee, just ineffective at > > cleaning > > > > > toxins from her body. > > > > > > > > > > Does this sound typical of IGA? > > > > > > > > > > It has also been sugested that she had polycystic kidney > > diease, but > > > > > they produce large (cystic filled) kidneys and some other > > family > > > > > members would have similar kidney problems. Several family > > memebers > > > > > have had bouts of kidney illnesses but none went to failure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Rita, My neph says I would have got my igan from when I had a throat infection and lost my voice when I was 17. I remember it well I couldn't do my oral exams for school. I thought it was cool at the time, now I'm not so sure. Bree P.s I looked at the library for that book, they do not have it. But I'll keep on looking. Bree Re: Question about IGA Hi Chuck, This issue has been brought up in the past....I myself, as a child, suffered from tonsilitis and strep on a regular basis. I finally had my tonsils and adnoids removed at the age of 10. I still get sore throats pretty often. I never had any health issues until the summer of '03 when I was 47 years old. I think there is a connection with strep/tonsils but I don't think it has been proven. Rita Chuck Biddle wrote: Hello Everyone, I do not post on here very often but I had to make one on this topic. When I was young I had many problems with strep throat and many other ears nose throat problems. I had done some research many years ago and come to the conclusion that I developed IGA from my tonsils not being removed. I had come a crossed a study showing that if the tonsils are infected for a long period of time they can clog up the kidneys and cause them to become ineffective. This is all my own theory, but it does make since in my own case. Maybe this has happened to some one else. Chuck Biddle __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Rita, My neph says I would have got my igan from when I had a throat infection and lost my voice when I was 17. I remember it well I couldn't do my oral exams for school. I thought it was cool at the time, now I'm not so sure. Bree P.s I looked at the library for that book, they do not have it. But I'll keep on looking. Bree Re: Question about IGA Hi Chuck, This issue has been brought up in the past....I myself, as a child, suffered from tonsilitis and strep on a regular basis. I finally had my tonsils and adnoids removed at the age of 10. I still get sore throats pretty often. I never had any health issues until the summer of '03 when I was 47 years old. I think there is a connection with strep/tonsils but I don't think it has been proven. Rita Chuck Biddle wrote: Hello Everyone, I do not post on here very often but I had to make one on this topic. When I was young I had many problems with strep throat and many other ears nose throat problems. I had done some research many years ago and come to the conclusion that I developed IGA from my tonsils not being removed. I had come a crossed a study showing that if the tonsils are infected for a long period of time they can clog up the kidneys and cause them to become ineffective. This is all my own theory, but it does make since in my own case. Maybe this has happened to some one else. Chuck Biddle __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Rita, My neph says I would have got my igan from when I had a throat infection and lost my voice when I was 17. I remember it well I couldn't do my oral exams for school. I thought it was cool at the time, now I'm not so sure. Bree P.s I looked at the library for that book, they do not have it. But I'll keep on looking. Bree Re: Question about IGA Hi Chuck, This issue has been brought up in the past....I myself, as a child, suffered from tonsilitis and strep on a regular basis. I finally had my tonsils and adnoids removed at the age of 10. I still get sore throats pretty often. I never had any health issues until the summer of '03 when I was 47 years old. I think there is a connection with strep/tonsils but I don't think it has been proven. Rita Chuck Biddle wrote: Hello Everyone, I do not post on here very often but I had to make one on this topic. When I was young I had many problems with strep throat and many other ears nose throat problems. I had done some research many years ago and come to the conclusion that I developed IGA from my tonsils not being removed. I had come a crossed a study showing that if the tonsils are infected for a long period of time they can clog up the kidneys and cause them to become ineffective. This is all my own theory, but it does make since in my own case. Maybe this has happened to some one else. Chuck Biddle __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Phil, The last sentence of your post really touched me. The best way to help you son is you and your wife staying calm. I realize that is a very tall order. I'm sure your son knows something's up, but if the adults around him are calm, he'll be OK. This could be IgAN, but could also be post infectious glomerular nephritis - which goes away by itself. Did they measure C3? With post infectious GN, C3 can plummet - and the blood in urine can be pretty dramatic. Please keep us in the loop. I know when my son was diagnosed, the anxiety was enormous. All the best. Cy > > Thank you for the replys. The reason I am asking is that my 3yo son > has two episodes of gross hemoturia with protein in his urine. He had > a sonogram which is normal. All his blood work came back normal with > no signs of kidney damage. The one doctor that treated my sister > thought she had IGA but cannot remember and with all records lost or > destroyed it will always be a mystery. > > We took him to the ped. neph. center at s Hopkins for the first > episode. They thought maybe it was from strep. they wanted to wait and > see, in the meantime we did another urinalysis which also came back > normal so we thought it must have been strep. and ever thing is > better. On Monday night he had blood in his pee, but this afternoons > pee was clear as a bell.?? We go back to Hopkins on next Wednesday, I > think they wwill schedule a biopsy. Is there any REAL treatment for IGA? > > I wish I knew how to help my son now. > > Phil > > > > > My understanding of a hypoplastic kidney is that it is a small and > > underdeveloped kidney. In the case of chronic kidney diseases like > IgAN, the > > kidney doesn't start out small and underdeveloped, but it does tend to > > shrivel over time as the person approaches end-stage renal disease. > As far > > as pee goes, I'm still urinating a fair amount even 2 and a half > years after > > starting dialysis. The part of the kidneys that produce the urine is > really > > different than the part that filters, and IgAN may not affect that > part as > > much as the filtering capacity. So, you can have urine without much of > > anything being filtered into it. This is typical of many people as they > > reach esrd. It can be very helpful to still urinate though, as it helps > > lighten your fluid restriction, plus it helps eliminate a bit of > phosphorus > > and potassium, so you might be able to eat a bit more. > > > > Pierre > > > > Re: Question about IGA > > > > > > > > > > > > > Hi Phil, > > > > > > First, please accept my condolences on the loss of your sister. I > am so > > > sorry her kidney disease lead to her death at such a young age. > > > > > > IgAN can lead to end stage renal disease in 30-50% of the cases, > but the > > > truth is that any kidney disease can lead to kidney failure and > result in > > the > > > kidneys being ineffective at cleansing the blood. Even high blood > > pressure in > > > the absence of any other kidney disease can cause the kidneys to > fail, and > > by > > > definition, kidney failure means the kidneys are no longer > effective in > > > cleansing the blood. > > > > > > It is not common for IgAN to cause kidney hypoplasty though. > > > > > > Once your kidneys reach end stage renal failure, it is sometimes > hard to > > go > > > back and find what the originating cause is. > > > > > > Sorry I can't be more helpful than that. > > > > > > > > > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time, > > > phil_m_palmer@y... writes: > > > > > > Do kidneys with IGA hypoplasty? My sister died from renal failure at > > > 31. I cannot find any medical records that resolve what the onset of > > > her kidney disease. But I do know that her kidneys were > shiverled, but > > > they did produce a small amount of pee, just ineffective at cleaning > > > toxins from her body. > > > > > > Does this sound typical of IGA? > > > > > > It has also been sugested that she had polycystic kidney diease, but > > > they produce large (cystic filled) kidneys and some other family > > > members would have similar kidney problems. Several family memebers > > > have had bouts of kidney illnesses but none went to failure. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Phil, The last sentence of your post really touched me. The best way to help you son is you and your wife staying calm. I realize that is a very tall order. I'm sure your son knows something's up, but if the adults around him are calm, he'll be OK. This could be IgAN, but could also be post infectious glomerular nephritis - which goes away by itself. Did they measure C3? With post infectious GN, C3 can plummet - and the blood in urine can be pretty dramatic. Please keep us in the loop. I know when my son was diagnosed, the anxiety was enormous. All the best. Cy > > Thank you for the replys. The reason I am asking is that my 3yo son > has two episodes of gross hemoturia with protein in his urine. He had > a sonogram which is normal. All his blood work came back normal with > no signs of kidney damage. The one doctor that treated my sister > thought she had IGA but cannot remember and with all records lost or > destroyed it will always be a mystery. > > We took him to the ped. neph. center at s Hopkins for the first > episode. They thought maybe it was from strep. they wanted to wait and > see, in the meantime we did another urinalysis which also came back > normal so we thought it must have been strep. and ever thing is > better. On Monday night he had blood in his pee, but this afternoons > pee was clear as a bell.?? We go back to Hopkins on next Wednesday, I > think they wwill schedule a biopsy. Is there any REAL treatment for IGA? > > I wish I knew how to help my son now. > > Phil > > > > > My understanding of a hypoplastic kidney is that it is a small and > > underdeveloped kidney. In the case of chronic kidney diseases like > IgAN, the > > kidney doesn't start out small and underdeveloped, but it does tend to > > shrivel over time as the person approaches end-stage renal disease. > As far > > as pee goes, I'm still urinating a fair amount even 2 and a half > years after > > starting dialysis. The part of the kidneys that produce the urine is > really > > different than the part that filters, and IgAN may not affect that > part as > > much as the filtering capacity. So, you can have urine without much of > > anything being filtered into it. This is typical of many people as they > > reach esrd. It can be very helpful to still urinate though, as it helps > > lighten your fluid restriction, plus it helps eliminate a bit of > phosphorus > > and potassium, so you might be able to eat a bit more. > > > > Pierre > > > > Re: Question about IGA > > > > > > > > > > > > > Hi Phil, > > > > > > First, please accept my condolences on the loss of your sister. I > am so > > > sorry her kidney disease lead to her death at such a young age. > > > > > > IgAN can lead to end stage renal disease in 30-50% of the cases, > but the > > > truth is that any kidney disease can lead to kidney failure and > result in > > the > > > kidneys being ineffective at cleansing the blood. Even high blood > > pressure in > > > the absence of any other kidney disease can cause the kidneys to > fail, and > > by > > > definition, kidney failure means the kidneys are no longer > effective in > > > cleansing the blood. > > > > > > It is not common for IgAN to cause kidney hypoplasty though. > > > > > > Once your kidneys reach end stage renal failure, it is sometimes > hard to > > go > > > back and find what the originating cause is. > > > > > > Sorry I can't be more helpful than that. > > > > > > > > > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time, > > > phil_m_palmer@y... writes: > > > > > > Do kidneys with IGA hypoplasty? My sister died from renal failure at > > > 31. I cannot find any medical records that resolve what the onset of > > > her kidney disease. But I do know that her kidneys were > shiverled, but > > > they did produce a small amount of pee, just ineffective at cleaning > > > toxins from her body. > > > > > > Does this sound typical of IGA? > > > > > > It has also been sugested that she had polycystic kidney diease, but > > > they produce large (cystic filled) kidneys and some other family > > > members would have similar kidney problems. Several family memebers > > > have had bouts of kidney illnesses but none went to failure. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2005 Report Share Posted February 9, 2005 Hi Phil, The last sentence of your post really touched me. The best way to help you son is you and your wife staying calm. I realize that is a very tall order. I'm sure your son knows something's up, but if the adults around him are calm, he'll be OK. This could be IgAN, but could also be post infectious glomerular nephritis - which goes away by itself. Did they measure C3? With post infectious GN, C3 can plummet - and the blood in urine can be pretty dramatic. Please keep us in the loop. I know when my son was diagnosed, the anxiety was enormous. All the best. Cy > > Thank you for the replys. The reason I am asking is that my 3yo son > has two episodes of gross hemoturia with protein in his urine. He had > a sonogram which is normal. All his blood work came back normal with > no signs of kidney damage. The one doctor that treated my sister > thought she had IGA but cannot remember and with all records lost or > destroyed it will always be a mystery. > > We took him to the ped. neph. center at s Hopkins for the first > episode. They thought maybe it was from strep. they wanted to wait and > see, in the meantime we did another urinalysis which also came back > normal so we thought it must have been strep. and ever thing is > better. On Monday night he had blood in his pee, but this afternoons > pee was clear as a bell.?? We go back to Hopkins on next Wednesday, I > think they wwill schedule a biopsy. Is there any REAL treatment for IGA? > > I wish I knew how to help my son now. > > Phil > > > > > My understanding of a hypoplastic kidney is that it is a small and > > underdeveloped kidney. In the case of chronic kidney diseases like > IgAN, the > > kidney doesn't start out small and underdeveloped, but it does tend to > > shrivel over time as the person approaches end-stage renal disease. > As far > > as pee goes, I'm still urinating a fair amount even 2 and a half > years after > > starting dialysis. The part of the kidneys that produce the urine is > really > > different than the part that filters, and IgAN may not affect that > part as > > much as the filtering capacity. So, you can have urine without much of > > anything being filtered into it. This is typical of many people as they > > reach esrd. It can be very helpful to still urinate though, as it helps > > lighten your fluid restriction, plus it helps eliminate a bit of > phosphorus > > and potassium, so you might be able to eat a bit more. > > > > Pierre > > > > Re: Question about IGA > > > > > > > > > > > > > Hi Phil, > > > > > > First, please accept my condolences on the loss of your sister. I > am so > > > sorry her kidney disease lead to her death at such a young age. > > > > > > IgAN can lead to end stage renal disease in 30-50% of the cases, > but the > > > truth is that any kidney disease can lead to kidney failure and > result in > > the > > > kidneys being ineffective at cleansing the blood. Even high blood > > pressure in > > > the absence of any other kidney disease can cause the kidneys to > fail, and > > by > > > definition, kidney failure means the kidneys are no longer > effective in > > > cleansing the blood. > > > > > > It is not common for IgAN to cause kidney hypoplasty though. > > > > > > Once your kidneys reach end stage renal failure, it is sometimes > hard to > > go > > > back and find what the originating cause is. > > > > > > Sorry I can't be more helpful than that. > > > > > > > > > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time, > > > phil_m_palmer@y... writes: > > > > > > Do kidneys with IGA hypoplasty? My sister died from renal failure at > > > 31. I cannot find any medical records that resolve what the onset of > > > her kidney disease. But I do know that her kidneys were > shiverled, but > > > they did produce a small amount of pee, just ineffective at cleaning > > > toxins from her body. > > > > > > Does this sound typical of IGA? > > > > > > It has also been sugested that she had polycystic kidney diease, but > > > they produce large (cystic filled) kidneys and some other family > > > members would have similar kidney problems. Several family memebers > > > have had bouts of kidney illnesses but none went to failure. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2005 Report Share Posted February 14, 2005 Thanks, Cy. I did give thanks to God for her great docs and the wonderful news! Tara Re: Question about IGA Phil I feel like that sometimes. I only need to realize that nobody is guaranteed a problem-free life, nor a completely healthy one. At home where it's just me, I can feel sorry for myself because I'm concentrating on myself, how bad or sick I feel, or how useless I feel. It's easy to think how much better my life would be without kidney failure. But whenever I'm in or at the hospital, boy, I sure feel like a healthy person compared to so many that I see there. For that matter, I only need to look out my window down onto the street to see how much better off I am than some people. That never fails to restore my perspective on things. Pierre Re: Question about IGA > > > > > > > > > > > > > > > > > > > > > > > Hi Phil, > > > > > > > > > > First, please accept my condolences on the loss of your > > sister. I > > > am so > > > > > sorry her kidney disease lead to her death at such a young age. > > > > > > > > > > IgAN can lead to end stage renal disease in 30-50% of the cases, > > > but the > > > > > truth is that any kidney disease can lead to kidney failure and > > > result in > > > > the > > > > > kidneys being ineffective at cleansing the blood. Even high > > blood > > > > pressure in > > > > > the absence of any other kidney disease can cause the kidneys to > > > fail, and > > > > by > > > > > definition, kidney failure means the kidneys are no longer > > > effective in > > > > > cleansing the blood. > > > > > > > > > > It is not common for IgAN to cause kidney hypoplasty though. > > > > > > > > > > Once your kidneys reach end stage renal failure, it is sometimes > > > hard to > > > > go > > > > > back and find what the originating cause is. > > > > > > > > > > Sorry I can't be more helpful than that. > > > > > > > > > > > > > > > > > > > > In a message dated 2/8/2005 11:33:04 A.M. Pacific Standard Time, > > > > > phil_m_palmer@y... writes: > > > > > > > > > > Do kidneys with IGA hypoplasty? My sister died from renal > > failure at > > > > > 31. I cannot find any medical records that resolve what the > > onset of > > > > > her kidney disease. But I do know that her kidneys were > > > shiverled, but > > > > > they did produce a small amount of pee, just ineffective at > > cleaning > > > > > toxins from her body. > > > > > > > > > > Does this sound typical of IGA? > > > > > > > > > > It has also been sugested that she had polycystic kidney > > diease, but > > > > > they produce large (cystic filled) kidneys and some other > > family > > > > > members would have similar kidney problems. Several family > > memebers > > > > > have had bouts of kidney illnesses but none went to failure. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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