Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Carolyn try going to the old web address (I still use it but you get shot over to yahoo) www. Debby lulujjnono@... wrote: > Can someone please send me the link to where I signed up for this > originally.Thank you Carolyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Carolyn try going to the old web address (I still use it but you get shot over to yahoo) www. Debby lulujjnono@... wrote: > Can someone please send me the link to where I signed up for this > originally.Thank you Carolyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2001 Report Share Posted February 9, 2001 Carolyn try going to the old web address (I still use it but you get shot over to yahoo) www. Debby lulujjnono@... wrote: > Can someone please send me the link to where I signed up for this > originally.Thank you Carolyn > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2001 Report Share Posted February 17, 2001 Hi Everyone: Its been a while. I have been very busy with school and the kids and life ect... i think somebody had a posting with the heading Steve & Tam but when I was going through my mail I deleted it by mistake please mail me again. I will mail you back. Tam has been doing OK she still has the nausea and the pain is still there but she has been getting out a little more. I have been real busy with school and I have been foing to help at Bregans school when I can. I have also been applying to alot of places. One place I have a good chance of getting into is Eli Lilly, But Tam doesnt want to move to Indy. She said we wouldnt have any help because we have no family there. I told her I think half of the group lives in or near Indy. and we would probobly have more help. It sounds like a good company to work for. I have enough schooling now that I can get into some of the big chemical companies, or at least I am trying. The job at Eli Lilly is a Chemical Process Operator. If anybody els is looking in that field they have a lot of openings.The contact person is Carl Bertsch Phone # . I get job postings through the college all the time so if anybody else would like the information please tell me. I look forward to hearing from my friends. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2001 Report Share Posted February 17, 2001 In a message dated 2/17/01 6:45:18 PM Pacific Standard Time, LenhartROCKO@... writes: << Hi Everyone: Its been a while. I have been very busy with school and the kids and life ect... i think somebody had a posting with the heading Steve & Tam but when I was going through my mail I deleted it by mistake please mail me again. I will mail you back. Tam has been doing OK she still has the nausea and the pain is still there but she has been getting out a little more. I have been real busy with school and I have been foing to help at Bregans school when I can. I have also been applying to alot of places. One place I have a good chance of getting into is Eli Lilly, But Tam doesnt want to move to Indy. She said we wouldnt have any help because we have no family there. I told her I think half of the group lives in or near Indy. and we would probobly have more help. It sounds like a good company to work for. I have enough schooling now that I can get into some of the big chemical companies, or at least I am trying. The job at Eli Lilly is a Chemical Process Operator. If anybody els is looking in that field they have a lot of openings.The contact person is Carl Bertsch Phone # . I get job postings through the college all the time so if anybody else would like the information please tell me. I look forward to hearing from my friends. >> OK I'm stupid I forgot to sign at the bottom Your friends Tam & Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2001 Report Share Posted February 17, 2001 In a message dated 2/17/01 9:45:13 PM Eastern Standard Time, LenhartROCKO@... writes: > have also been applying to alot of places. One place I have a good chance of > I used to live in Indy and Eli Lilly was always thought to be one of the premier places of employment in Indianapolis. I knew people who quit great jobs just to be able to go to work at Lillys. Employees are treated very well and the pay for the job is tops. There are good places to live in Indy and I still go there to see family so I know it could be a good life. Best of luck Poncho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 In a message dated 02/17/2001 9:45:09 PM Eastern Standard Time, LenhartROCKO@... writes: << Eli Lilly, But Tam doesnt want to move to Indy. She said we wouldnt have any help because we have no family there. I told her I think half of the group lives in or near Indy. and we would probobly have more help. It sounds like a good company to work for. I have enough schooling now that I can get into some of the big chemical companies, or at least I am trying. The job at Eli Lilly is a Chemical Process Operator. If anybody els is looking in that field they have a lot of openings. >> You are right! There are a few of us in Indy. It 's not such a bad place........Indy-no-place as I call it Lilly's is a GREAT opportunity for you! My brother works there and my father retired from there after 40 some odd years. Tell Tam that she would have family here, just a phone call away! I would hate to see you pass up a great chance for a nice comfortable retirement!!!!! Keep me posted on what you guys are doing! Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 In a message dated 02/17/2001 9:45:09 PM Eastern Standard Time, LenhartROCKO@... writes: << Eli Lilly, But Tam doesnt want to move to Indy. She said we wouldnt have any help because we have no family there. I told her I think half of the group lives in or near Indy. and we would probobly have more help. It sounds like a good company to work for. I have enough schooling now that I can get into some of the big chemical companies, or at least I am trying. The job at Eli Lilly is a Chemical Process Operator. If anybody els is looking in that field they have a lot of openings. >> You are right! There are a few of us in Indy. It 's not such a bad place........Indy-no-place as I call it Lilly's is a GREAT opportunity for you! My brother works there and my father retired from there after 40 some odd years. Tell Tam that she would have family here, just a phone call away! I would hate to see you pass up a great chance for a nice comfortable retirement!!!!! Keep me posted on what you guys are doing! Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 << Hi everyone, I am new to this group and I was just looking for people who have pancreatitis, and that might want to chat with me or teach me a little more about this group. >> Hi, I'm new here also. How long have you had pancreatitis? Mine is not as serious as others here, but is going thru a phase of flare-ups again. I've had attacks off and on for almost 16 years now (since I was 16 years old). Mine is " ideopathic " - I'd sure like to find a cause for it! :-) Shanon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 my name is Vickie and i have had hereditary pancreatitis my whole life. i just love reading about what all of you are going through i mean its sad, but i don't feel so alone now. i thought i was the only one in the world with this disease now i know i am not the only one depressed all the time, in and out of the hospitals with CT scan, and ercps, most people don't even know what an ercp is. i just feel so alone most of the time, and i was hoping that this group would help me not to feel that way anymore. so thank you all for your stories. i hope to hear from some of you soon! Love, Vickie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 Hello everyone my name is Becky and I am Vicky's mom. I just wanted to say thank God for all of you!!!!!!!!!!! we have been trying to find some place where Vicky could go where someone understands!!! Vicky has been in the hospital 26 times in her short life. she now has a patch on her arm at all times that has 50 mg of fentanyl and she still has to take the vicodin. what a way to live!! she in sick all the time. it never goes away for her. they want to remove most of her pancreas and they dont even know if that will help. as you can tell this is good for me too cuz it helps to talk. i just sat here and cryed reading your e-mails. finley someone understands!!!!! i from the bottem of my heart thank God for each and every one of you!!!!!!! hugs and love Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2001 Report Share Posted March 1, 2001 In a message dated 3/1/01 10:08:09 PM Eastern Standard Time, Beeneecrazee@... writes: > > > Hello everyone > my name is Becky and I am Vicky's mom. I just wanted to say thank God for > all > of you!!!!!!!!!!! we have been trying to find some place where Vicky could > go > where someone understands!!! Vicky has been in the hospital 26 times in her > short life. she now has a patch on her arm at all times that has 50 mg of > fentanyl and she still has to take the vicodin. what a way to live!! she in > sick all the time. it never goes away for her. they want to remove most of > her pancreas and they dont even know if that will help. as you can tell > this > is good for me too cuz it helps to talk. i just sat here and cryed reading > your e-mails. finley someone understands!!!!! i from the bottem of my heart > thank God for each and every one of you!!!!!!! > > hugs and love > Becky > > > Hi Becky, I am a mother also and I sure do know how you feel. My heart goes out to you. To see your daughter suffer from this horrible disease is just terrible. We are with you and we will help any way we can. Don't stop researching. Find out everything you can to help your daughter. I am so happy that you found our group since I remember when I first found the group it was wonderful to find people I could connect with, people who really understand what I was living with. Welcome to you also. Your friend, Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2001 Report Share Posted March 2, 2001 Vickie... YOu are not alone anymore.. it is sad how many of there is... very very sad and they tell us it is rare disease yeah right...lol I hope you get what I have from this group it is a loving caring group with alot of support.. I get more support here then I have from alot of my friends and family...so welcome... and tell us about what you have been through we like to hear your story too.... hugs and kisses your pal from Michigan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2001 Report Share Posted April 6, 2001 Hi , I'm glad your feeling better! Yes, the withdrawls really do suck! But, think how much better it will be with them out of your system. Are you not taking anything now? Good for you! I guess the 40lbs is good, if you had them to loose. I wish I would loose some, but the enzymes I take keep me level, as far as weight is concerned. Are you taking any enzymes? Isn't it good to be home!!!! Take care, Debi<br clear=all><hr>Get your FREE download of MSN Explorer at <a href= " http://explorer.msn.com " >http://explorer.msn.com</a><br></p> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2001 Report Share Posted April 6, 2001 Hi , I'm glad your feeling better! Yes, the withdrawls really do suck! But, think how much better it will be with them out of your system. Are you not taking anything now? Good for you! I guess the 40lbs is good, if you had them to loose. I wish I would loose some, but the enzymes I take keep me level, as far as weight is concerned. Are you taking any enzymes? Isn't it good to be home!!!! Take care, Debi<br clear=all><hr>Get your FREE download of MSN Explorer at <a href= " http://explorer.msn.com " >http://explorer.msn.com</a><br></p> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2001 Report Share Posted May 8, 2001 Elle, Hi my name is Kim. I'm new at the hive thing, but I don't take Benadryl because it makes me extremely sleepy. Especially if my hives are really bad and I have to take two Benadryl. Right now I'm on 180mg of allegra, 10mg of Prednisone, and 300 mg of Tagament. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Hi, Janet. Welcome to our group. It is so nice to have more New Zealanders in our group. I love to read about the different names for simple things like cornstarch and such. And I love the fact that the internet has brought all of us together. You probably know that this is the most supportive group of people in the world! Because you are not sure if has RSS, I have a question for you. Have you checked out the website for the Magic Foundation? Their address is www.magicfoundation.org . You can get a good description of RSS from them. For members there is a quarterly newsletter, copies of articles related to RSS (free), a yearly convention, help with getting gh approval from insurance companies.... I could go on and on. Oh- I forgot the most important thing - a yearly convention in Chicago, IL (Don't know if you could attend that, but I thought I throw that in!). I don't want this to sound like an ad for Magic, but I am the Email Coordinator for the RSS Division, so I take it as my responsibility to tell everyone I can about it. Please feel free to email me if you ever have any questions that I can answer for you. My address is z4all@... . Another person who is of great help is Salem, the RSS Division Consultant. Her email address is magicrss@... . Anyway, welcome and I hope we hear from you often! Jodi Hello > I joined this group nearly 2 months ago and so far I > have just been reading and learning (lots!). Now I > think its time I introduced myself. > > My name is Janet and I live in Wellington, New Zealand (same > place as and ). I have a 5 year old daughter, , > who I believe may have RSS. We have been told by the geneticist > and genetics registrar at our local hospital that does not > have RSS as she is not small enough and her head is too large but > since I have been reading the messages here I have found that > there do seem to be children that are a similar size to > that have been diagnosed with RSS. At present (by my possibly > not completely accurate measuring) is 99cm (39 " ) tall and > weighs 14.5kg (32lb). The last time that her head circumference > was measured (over a year ago) it was on the 75th centile but > when she was a baby it was on the 97-99th centile. > > has just started school at the end of January and is really > enjoying it even though she is developmentally well behind her > peers in some areas. > > It has been good to " meet " you all. I've been reading for so long > that I feel that I know you all already! > > Janet, Mum to 10, 9, 5 (RSS?) and Hannah 3. > > > > > __________________________________________________ > Advertise with ZFREE - to find out more click below > http://www.zfree.co.nz/about-us/advert.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2001 Report Share Posted May 10, 2001 Hi, Janet. Welcome to our group. It is so nice to have more New Zealanders in our group. I love to read about the different names for simple things like cornstarch and such. And I love the fact that the internet has brought all of us together. You probably know that this is the most supportive group of people in the world! Because you are not sure if has RSS, I have a question for you. Have you checked out the website for the Magic Foundation? Their address is www.magicfoundation.org . You can get a good description of RSS from them. For members there is a quarterly newsletter, copies of articles related to RSS (free), a yearly convention, help with getting gh approval from insurance companies.... I could go on and on. Oh- I forgot the most important thing - a yearly convention in Chicago, IL (Don't know if you could attend that, but I thought I throw that in!). I don't want this to sound like an ad for Magic, but I am the Email Coordinator for the RSS Division, so I take it as my responsibility to tell everyone I can about it. Please feel free to email me if you ever have any questions that I can answer for you. My address is z4all@... . Another person who is of great help is Salem, the RSS Division Consultant. Her email address is magicrss@... . Anyway, welcome and I hope we hear from you often! Jodi Hello > I joined this group nearly 2 months ago and so far I > have just been reading and learning (lots!). Now I > think its time I introduced myself. > > My name is Janet and I live in Wellington, New Zealand (same > place as and ). I have a 5 year old daughter, , > who I believe may have RSS. We have been told by the geneticist > and genetics registrar at our local hospital that does not > have RSS as she is not small enough and her head is too large but > since I have been reading the messages here I have found that > there do seem to be children that are a similar size to > that have been diagnosed with RSS. At present (by my possibly > not completely accurate measuring) is 99cm (39 " ) tall and > weighs 14.5kg (32lb). The last time that her head circumference > was measured (over a year ago) it was on the 75th centile but > when she was a baby it was on the 97-99th centile. > > has just started school at the end of January and is really > enjoying it even though she is developmentally well behind her > peers in some areas. > > It has been good to " meet " you all. I've been reading for so long > that I feel that I know you all already! > > Janet, Mum to 10, 9, 5 (RSS?) and Hannah 3. > > > > > __________________________________________________ > Advertise with ZFREE - to find out more click below > http://www.zfree.co.nz/about-us/advert.html > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Judy I'm sure the OT staff must have been impressed by your bright purple bootstraps. They are especially good for walking. Reneness -- Life is a menu! Why not go gourmet! Thank you to everyone for all your prayers and good wishes. Well the OT staff allowed me to use the computer again. They raised my pain med, so things are considerably better today. I was able to walk 10ft. today. I keep trying to watch for the little improvements. Love and Prayers to all Judy ~~~~ *** ~~~ *** ~~~ *** ~~~~ The Neurosarcoidosis Community Live Group Chat:- Mondays & Fridays 10pm EST USA http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php Message Archives:- http://groups.yahoo.com/group/Neurosarcoidosis/messages Members Database:- Listings of locations, phone numbers, and instant messengers. http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2004 Report Share Posted July 14, 2004 Judy! HURRAY!! for the OT Staff! Please tell them I said so! Caring and compassionate people! CONGRATUATIONS on the 10' walk! Keep it up, Girl! Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 HI Kym Welcome to the group!! We are all here to hold your hand through this journey and if there is anything you need...just ask. Huggles > Hi, > > My name is Kym and I just started the process for wls with Kaiser. I > have already gotten approval from my PCP and he is getting the > paperwork together to send to Kaiser for approval. We are just > waiting for the ortho to get his diagnosis to my PCP and I have to > get the phyc evaluation. My BMI is just under 50 so I have to have > co-morbitities and the proof to go with them. > > I went to a WLS class and support session already. I didnt know how > I was supposed to go about getting the phyc evaluation until I read > message 817 here. Kaiser no longer requires you to go through the > dietitian or be on a supervised diet for 6 months, so I am happy > about being able to skip that part. > > I am told I will probably be sent to Pacific Bariatric in San Diego > once I am approved, since I live in Orange County. My Doctor did > mention that they are negotiating a new contract with UCLA Medical > Center so I may be sent to them by the time I am approved. We will > see. > > Although I would like to be on the post op side. I am not in any > hurry. I knew it would take a while to get through all the stages > and wait is giving me time to prepare my mindset as well as my > family and friends for the change. I didnt get this way overnight, I > dont expect it to go away overnight. > > I think my biggest worry is to have the surgery and wind up being > completely miserable for the rest of my life. I know things go wrong > and sometimes it doesnt work as well for some as it does for others. > But, I guess it cant be much worse than the way I am now, in pain > all the time and unable to do much of anything. > > Anyway, just wanted to say hi and thanks for letting me join. I hope > I can find a surgery buddy > > Hugs, > Kym > 5'7 " (315) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 7, 2004 Report Share Posted September 7, 2004 HI Kym Welcome to the group!! We are all here to hold your hand through this journey and if there is anything you need...just ask. Huggles > Hi, > > My name is Kym and I just started the process for wls with Kaiser. I > have already gotten approval from my PCP and he is getting the > paperwork together to send to Kaiser for approval. We are just > waiting for the ortho to get his diagnosis to my PCP and I have to > get the phyc evaluation. My BMI is just under 50 so I have to have > co-morbitities and the proof to go with them. > > I went to a WLS class and support session already. I didnt know how > I was supposed to go about getting the phyc evaluation until I read > message 817 here. Kaiser no longer requires you to go through the > dietitian or be on a supervised diet for 6 months, so I am happy > about being able to skip that part. > > I am told I will probably be sent to Pacific Bariatric in San Diego > once I am approved, since I live in Orange County. My Doctor did > mention that they are negotiating a new contract with UCLA Medical > Center so I may be sent to them by the time I am approved. We will > see. > > Although I would like to be on the post op side. I am not in any > hurry. I knew it would take a while to get through all the stages > and wait is giving me time to prepare my mindset as well as my > family and friends for the change. I didnt get this way overnight, I > dont expect it to go away overnight. > > I think my biggest worry is to have the surgery and wind up being > completely miserable for the rest of my life. I know things go wrong > and sometimes it doesnt work as well for some as it does for others. > But, I guess it cant be much worse than the way I am now, in pain > all the time and unable to do much of anything. > > Anyway, just wanted to say hi and thanks for letting me join. I hope > I can find a surgery buddy > > Hugs, > Kym > 5'7 " (315) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2004 Report Share Posted October 18, 2004 Hi everyone, Well I'm back from my scrap booking retreat, I had a wonderful time. I did 30 lay out pages! Finally made it though my Panama Canal trip! I have NOT even started on the wedding yet lol. I have so many pictures to scrap its hard to keep track. I do this retreat twice a year with my scrap booking friends and its always a blast. I'd like to welcome all the new members .I'm so glad you found our group. Everyone please forgive me for not going back to read all the post from last week as there are just to many. I have been working 12-13 hours days since the wedding and just have so little time. The retreat was such a wonderful way to have down time with my girlfriends. I love my husband so much but I still need my women friends and I make time for them. there's really nothing like a good old girly week-end and well if I get to scrap all the better. Well today is Monday and I was back at work by 8am and left at 8pm only to return tomorrow at 7am! I' lucky I love my job and boss but I will be very happy to have my co- worker back in November (she had a baby ) Anyway I hope your all doing well and if there's anything huge I missed please feel free to re-post or email me. I often get emails from the members of this group and I love it. Have a great Tuesdays everyone!!!! Shell Quote Link to comment Share on other sites More sharing options...
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