Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Hello, Its me Terrie. I haven't been on line lately, but I'm here. I try to read all the messages and keep up. I've been doing really bad but I don't feel alone because of all of you. Thanks for being there. If I feel strong enough I'll write more later . Hello to all the knew members & my thoughts are with you all. Love Terrie Roll Call! > Hey everyone, > Let's have a roll call to let everyone know we are ok! the list is > very quiet and we have not heard from some of you for quite a while > and we DO worry about you all. It is not that you HAVE to > post....this list is not like that - we do not require that you post - > but we like for you to so we can get to know you all and also so that > we know you are ok or that you need our prayers or that you need > someone to talk to.....whatever....just know that we DO care and that > you are on our minds. > We have 262 or so members and the list is soooooooo quiet.......... > let us hear from you....if you are too sick to say much, just say " I am > not doing well " or " I am really sick " and sign your name. That way, we > will know how you are doing..... > Much love and prayers to all, > > Darlene > NSModerator/Owner > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 hey guys its nicole! i am still here, very busy. i am home for the summer and am doing two internships!! they are great but i am exhausted. i actually have appointments to get MRI's done next week of my brain and spine because i havent been feeling too great. Cuba was ABSOLOUTELY wonderful. i am trying to go back in january. i have so much to talk about but of course, i am running again. so, i promise, i will take the time to sit and divulge on my life soon. hope everyone is doing well. nicole (carrots) > >Reply-To: Neurosarcoidosis >To: Neurosarcoidosis >Subject: Roll Call! >Date: Tue, 6 Jul 2004 07:33:28 -0500 (EST) > >Hey everyone, > Let's have a roll call to let everyone know we are ok! the list is >very quiet and we have not heard from some of you for quite a while >and we DO worry about you all. It is not that you HAVE to >post....this list is not like that - we do not require that you post - >but we like for you to so we can get to know you all and also so that >we know you are ok or that you need our prayers or that you need >someone to talk to.....whatever....just know that we DO care and that >you are on our minds. >We have 262 or so members and the list is soooooooo quiet.......... >let us hear from you....if you are too sick to say much, just say " I am >not doing well " or " I am really sick " and sign your name. That way, we >will know how you are doing..... >Much love and prayers to all, > >Darlene >NSModerator/Owner > _________________________________________________________________ Get fast, reliable Internet access with MSN 9 Dial-up – now 2 months FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 hey guys its nicole! i am still here, very busy. i am home for the summer and am doing two internships!! they are great but i am exhausted. i actually have appointments to get MRI's done next week of my brain and spine because i havent been feeling too great. Cuba was ABSOLOUTELY wonderful. i am trying to go back in january. i have so much to talk about but of course, i am running again. so, i promise, i will take the time to sit and divulge on my life soon. hope everyone is doing well. nicole (carrots) > >Reply-To: Neurosarcoidosis >To: Neurosarcoidosis >Subject: Roll Call! >Date: Tue, 6 Jul 2004 07:33:28 -0500 (EST) > >Hey everyone, > Let's have a roll call to let everyone know we are ok! the list is >very quiet and we have not heard from some of you for quite a while >and we DO worry about you all. It is not that you HAVE to >post....this list is not like that - we do not require that you post - >but we like for you to so we can get to know you all and also so that >we know you are ok or that you need our prayers or that you need >someone to talk to.....whatever....just know that we DO care and that >you are on our minds. >We have 262 or so members and the list is soooooooo quiet.......... >let us hear from you....if you are too sick to say much, just say " I am >not doing well " or " I am really sick " and sign your name. That way, we >will know how you are doing..... >Much love and prayers to all, > >Darlene >NSModerator/Owner > _________________________________________________________________ Get fast, reliable Internet access with MSN 9 Dial-up – now 2 months FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 hey guys its nicole! i am still here, very busy. i am home for the summer and am doing two internships!! they are great but i am exhausted. i actually have appointments to get MRI's done next week of my brain and spine because i havent been feeling too great. Cuba was ABSOLOUTELY wonderful. i am trying to go back in january. i have so much to talk about but of course, i am running again. so, i promise, i will take the time to sit and divulge on my life soon. hope everyone is doing well. nicole (carrots) > >Reply-To: Neurosarcoidosis >To: Neurosarcoidosis >Subject: Roll Call! >Date: Tue, 6 Jul 2004 07:33:28 -0500 (EST) > >Hey everyone, > Let's have a roll call to let everyone know we are ok! the list is >very quiet and we have not heard from some of you for quite a while >and we DO worry about you all. It is not that you HAVE to >post....this list is not like that - we do not require that you post - >but we like for you to so we can get to know you all and also so that >we know you are ok or that you need our prayers or that you need >someone to talk to.....whatever....just know that we DO care and that >you are on our minds. >We have 262 or so members and the list is soooooooo quiet.......... >let us hear from you....if you are too sick to say much, just say " I am >not doing well " or " I am really sick " and sign your name. That way, we >will know how you are doing..... >Much love and prayers to all, > >Darlene >NSModerator/Owner > _________________________________________________________________ Get fast, reliable Internet access with MSN 9 Dial-up – now 2 months FREE! http://join.msn.click-url.com/go/onm00200361ave/direct/01/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Howdy Folks, Mike checking in... I realize I haven't posted recently ( or often ). I have been in remission of the N-Sarc since first quarter of '99, but have had remaining problems to deal with...retinal scarring, osteoporosis (Pred), slight renal scarring (cyclosporine), still battling hypertension. My Nephrologist has noted that my renal function has remained stable, and my yearly brain MRIs have only showed slight changes ( I am told a result of elevated blood pressure ). I still have problems with my short term memory, my coordination is still not 100%. One odd thing though, since the onset of my N-Sarc, I don't seem to tolerate hot or spicy foods as well as I used to. Not my stomach, but the 'taste' aspect. I have recently come back from a 10 day trip to Yarmouth Maine (visiting with a sister of mine). Not to rub it in, it was nice for a 'Toronto kid' to enjoy some fresh steamed lobster 20 - 30 mins after pulling it from the ocean (dripping w garlic butter, no less). I hope everyone is enjoying the summer so far. Best Regards Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Howdy Folks, Mike checking in... I realize I haven't posted recently ( or often ). I have been in remission of the N-Sarc since first quarter of '99, but have had remaining problems to deal with...retinal scarring, osteoporosis (Pred), slight renal scarring (cyclosporine), still battling hypertension. My Nephrologist has noted that my renal function has remained stable, and my yearly brain MRIs have only showed slight changes ( I am told a result of elevated blood pressure ). I still have problems with my short term memory, my coordination is still not 100%. One odd thing though, since the onset of my N-Sarc, I don't seem to tolerate hot or spicy foods as well as I used to. Not my stomach, but the 'taste' aspect. I have recently come back from a 10 day trip to Yarmouth Maine (visiting with a sister of mine). Not to rub it in, it was nice for a 'Toronto kid' to enjoy some fresh steamed lobster 20 - 30 mins after pulling it from the ocean (dripping w garlic butter, no less). I hope everyone is enjoying the summer so far. Best Regards Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Congratulations on the remission, Mike and nice to meet you! Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi everyone I an reporting for roll call and giving a warm welcome to all the new members of our loving sarc family.My hearing has come up thanks to the 60mgs of preds so now we have MTX vs preds to me the MTX is not working.The doc at the UNVERSITY OF SOUTH FLORIDA said I should stay on the MTX because it will work.I told him I did not want to go deaf waiting for it to work.So we are still having and on going battle with the MTX & the PREDS so I will let you know which one wins.........Quint Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi everyone, Just to let you know that I am alive and still kicking. Love to all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi everyone, Just to let you know that I am alive and still kicking. Love to all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hello, I'm Jim over in the UK checking in. I'm in a good period. I just limit my activities, limit my stress and keep taking the pills. Like most of us here my short term memory is the bitch, the demon that is the spoiler, oh to be sharp again but I can't live in the past. I miss Aisha and Shar. God bless you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hello, I'm Jim over in the UK checking in. I'm in a good period. I just limit my activities, limit my stress and keep taking the pills. Like most of us here my short term memory is the bitch, the demon that is the spoiler, oh to be sharp again but I can't live in the past. I miss Aisha and Shar. God bless you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Jim, Thanks for checking in.....it is good to see you post. I am glad you are in a good period right now...those are few and far between it seems....hope yours lasts a long time. I understand about you missing Aisha and Shar.......I miss them terribly also.......:-( Take care. Hugs, Darlene Re: Roll Call! Hello, I'm Jim over in the UK checking in.I'm in a good period. I just limit my activities, limit my stress and keep taking the pills. Like most of us here my short term memory is the bitch, the demon that is the spoiler, oh to be sharp again but I can't live in the past.I miss Aisha and Shar.God bless you all.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Darlene, Sharon here. I am ok, but I am leaving for a definite get-a-way hide-a-way. The stress and strain with the soon to be X is really getting to me. I will have access to a different computer. Sharon Re: Roll Call! Hello, I'm Jim over in the UK checking in.I'm in a good period. I just limit my activities, limit my stress and keep taking the pills. Like most of us here my short term memory is the bitch, the demon that is the spoiler, oh to be sharp again but I can't live in the past.I miss Aisha and Shar.God bless you all.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Darlene, Sharon here. I am ok, but I am leaving for a definite get-a-way hide-a-way. The stress and strain with the soon to be X is really getting to me. I will have access to a different computer. Sharon Re: Roll Call! Hello, I'm Jim over in the UK checking in.I'm in a good period. I just limit my activities, limit my stress and keep taking the pills. Like most of us here my short term memory is the bitch, the demon that is the spoiler, oh to be sharp again but I can't live in the past.I miss Aisha and Shar.God bless you all.~~~~ *** ~~~ *** ~~~ *** ~~~~The Neurosarcoidosis CommunityLive Group Chat:-Mondays & Fridays 10pm EST USAhttp://health.groups.yahoo.com/group/Neurosarcoidosis/chat.phpMessage Archives:-http://groups.yahoo.com/group/Neurosarcoidosis/messagesMembers Database:-Listings of locations, phone numbers, and instant messengers.http://groups.yahoo.com/group/Neurosarcoidosis/database Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Nice to see you, Quint! Hang in there! The Bootstrap Fairy will help (thanks ) Lots of Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Nice to see you, Quint! Hang in there! The Bootstrap Fairy will help (thanks ) Lots of Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Jim! Good to see you! Lots of Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Jim! Good to see you! Lots of Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Sharon, Endings are difficult - no matter how much they need to happen! My Heart goes out to you! Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Good to see you, ! Love, Jeri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Mike, Thanks for checking in.....nice to see you posting. Sounds like you had a very nice trip! I am a little bit jealous....:-) take care and keep posting. We like to hear from each and every one of our members. Hugs, Darlene Re: Roll Call! Howdy Folks,Mike checking in... I realize I haven't posted recently ( or often ). I have been in remission of the N-Sarc since first quarter of '99, but have had remaining problems to deal with...retinal scarring, osteoporosis (Pred), slight renal scarring (cyclosporine), still battling hypertension. My Nephrologist has noted that my renal function has Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 My money's on you, Quint, so when you win, just send me a check. Okay? Rose Re: Roll Call! > Hi everyone I an reporting for roll call and giving a warm > welcome to all the new members of our loving sarc family.My > hearing has come up thanks to the 60mgs of preds so now we > have MTX vs preds to me the MTX is not working.The doc at > the UNVERSITY OF SOUTH FLORIDA said I should stay on the MTX > because it will work.I told him I did not want to go > deaf waiting for it to work.So we are still having and > on going battle with the MTX & the PREDS so I will > let you know which one wins.........Quint > > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Hi Sharon, Thanks for letting us know....I will be thinking of you. I understand your need for some " quiet time " . You take care of yourself and please check in and let us know you are still ok. Have a good rest away from all the stress and know that we are all here for you. Hugs, Darlene > Darlene, Sharon here. > > I am ok, but I am leaving for a definite get-a-way hide-a-way. > > The stress and strain with the soon to be X is really getting to me. > > I will have access to a different computer. > > Sharon > > Re: Roll Call! > > > Hello, > I'm Jim over in the UK checking in. > I'm in a good period. I just limit my activities, limit my stress and > keep taking the pills. > Like most of us here my short term memory is the bitch, the demon > that is the spoiler, oh to be sharp again but I can't live in the > past. > I miss Aisha and Shar. > > God bless you all. > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Hi Sharon, Thanks for letting us know....I will be thinking of you. I understand your need for some " quiet time " . You take care of yourself and please check in and let us know you are still ok. Have a good rest away from all the stress and know that we are all here for you. Hugs, Darlene > Darlene, Sharon here. > > I am ok, but I am leaving for a definite get-a-way hide-a-way. > > The stress and strain with the soon to be X is really getting to me. > > I will have access to a different computer. > > Sharon > > Re: Roll Call! > > > Hello, > I'm Jim over in the UK checking in. > I'm in a good period. I just limit my activities, limit my stress and > keep taking the pills. > Like most of us here my short term memory is the bitch, the demon > that is the spoiler, oh to be sharp again but I can't live in the > past. > I miss Aisha and Shar. > > God bless you all. > > > > ~~~~ *** ~~~ *** ~~~ *** ~~~~ > The Neurosarcoidosis Community > > Live Group Chat:- > Mondays & Fridays 10pm EST USA > http://health.groups.yahoo.com/group/Neurosarcoidosis/chat.php > > Message Archives:- > http://groups.yahoo.com/group/Neurosarcoidosis/messages > > Members Database:- > Listings of locations, phone numbers, and instant messengers. > http://groups.yahoo.com/group/Neurosarcoidosis/database > > Quote Link to comment Share on other sites More sharing options...
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