Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 > Hello everyone, As Louis mentioned, I am beginning work on an FAQ for our list, with input and help from Louis, Jule, Kathy, and . I will post this periodically when questions that are covered by the FAQ come up to remind us all about OCD resources and bring those who are new to the list up to speed more quickly. I am hoping to include sections on: --CBT --very general guidelines on choosing and switching medications --links and resources --why to have hope. Are there other things that you think should be included? If there is something you wish you had known sooner that you think should be included, please let me know either via the list or privately. Thanks, in San Diego Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 What is a 504 plan? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2000 Report Share Posted April 18, 2000 You've probably already thought of this, but what about school accomadations? I wish I had known what a 504 plan was right from the start. Dana in NC Roman wrote: > > Hello everyone, > > As Louis mentioned, I am beginning work on an FAQ for our list, with input and help from Louis, Jule, Kathy, and . I will post this periodically when questions that are covered by the FAQ come up to remind us all about OCD resources and bring those who are new to the list up to speed more quickly. > > I am hoping to include sections on: > > --CBT > --very general guidelines on choosing and switching medications > --links and resources > --why to have hope. > > Are there other things that you think should be included? If there is something you wish you had known sooner that you think should be included, please let me know either via the list or privately. > > Thanks, > > in San Diego > > ------------------------------------------------------------------------ > Avoid the lines and visit avis.com for quick and easy online > reservations. Enjoy a compact car nationwide for only $29 a day! > Click here for more details. > 1/3011/3/_/531051/_/956070396/ > ------------------------------------------------------------------------ > > You may subscribe to the OCD-L by emailing listserv@... . In the body of your message write: subscribe OCD-L your name. The Archives and Features List for the may be accessed by going to , enter your email address and password, then point and click. Subscription issues, problems, or suggestions may be addressed to Louis Harkins, list owner, at harkins@... . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 A general FAQ for all implant and separate FAQ for each brand to be filled up by particular brand user would be a good idea. Regards/ Jerome FAQ Jerome, We've thought about doing this several times and could put it in our Database section but so far we haven't been able to accomplish it. I think it's a great idea. Alice From: Jerome Tan .. I wonder if there's standard FAQ out there for cochlear implant... Should we create one? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 You have your thinking cap on today. <smile> Let's start with the General FAQ and progress to other files for particular types of implants as we let this idea grow on everyone. These are some good suggestions. Alice A general FAQ for all implant and separate FAQ for each brand to be filled up by particular brand user would be a good idea. Jerome Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 how do I get the FAQ board Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2004 Report Share Posted August 27, 2004 Its a board for all the frequently asked questions. Dr. R is putting it all together. https://www.quickbase.com/db/939czhgh?a=q & qid=5 Venus Kientz <mkientz@...> wrote: what is the faq board ??? thanks, mary > > > > --------------------------------- > Do you ? > Win 1 of 4,000 free domain names from Enter now. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 Yes, thank you, this helped a lot. You brought up a great point, that I would like to ask about. My mother, a long time sufferer of Hypothyroid, told me when I was diagnosed to check my temperature every morning and communicate that to my doc. I was finding my tempt o be 96.8, 97.2 on a reg basis. My new doc is not interested in my temperature. She says everyone has a different temp. Does anyone else take their temp daily or weekly? Does it ever actually get to 97.8? > > > For all the new folks to the list, welcome aboard. The following is a > collection of old posts (some from other lists) that address many of the > questions people seem to ask when first joining the list. This is Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 I'm new here but this is along the lines of what led me to this board so I'll chime in. I've read a number of places that the best way to diagnose hypoT is by body temp, better than any blood test. If your body temp first thing in the morning before getting out of bed is under 97.9 than your thyroid is under active. What I've read also said that by early afternoon it should read around 98.6. My body temp has been chronically low my whole life (my heart rate also very slow and BP very low since I was a little child). When I was 7 y.o. my girl scout troop took a tour of a hospital and I volunteered to have my temp taken. I remember very clearly it was 97.3, mid day. Just 2 months ago it was 96.5-97.2 first thing in the morning. Then I started taking LDN http://www.low dose naltrexone.org/ It is an immune system modulator being used very successfully for a variety of autoimmune conditions, cancer, and HIV/AIDS. My son *was* on the autistic spectrum and was on LDN as part of his treatment. So again 2 months ago I started using it. Within the day it began raising my body and I began feeling like I was baking from the inside out. After 4-5 days my temp was up to 98.0 in the morning but I couldn't stand the " baking, " plus I was a very hyper focused person and going on LDN I couldn't keep track of what day it was. So I went off for about 3 days, realized I really needed this stuff and went back on with little to no side effects, it was just an adjustment period. Now my body temp has not been lower then 97.9 since, I feel refreshed in the morning and tired at night when it used to be the reverse, and I'm no longer " hyper focused, " much more balanced. I don't know anything about any of the meds talked about on this board, so I don't' know how well they raise the body temp. I just know mine was raised. kromlo <KMLO@...> wrote: Yes, thank you, this helped a lot. You brought up a great point, that I would like to ask about. My mother, a long time sufferer of Hypothyroid, told me when I was diagnosed to check my temperature every morning and communicate that to my doc. I was finding my tempt o be 96.8, 97.2 on a reg basis. My new doc is not interested in my temperature. She says everyone has a different temp. Does anyone else take their temp daily or weekly? Does it ever actually get to 97.8? > > > For all the new folks to the list, welcome aboard. The following is a > collection of old posts (some from other lists) that address many of the > questions people seem to ask when first joining the list. This is --------------------------------- Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 30, 2006 Report Share Posted November 30, 2006 kromlo, You wrote: > ...My mother, a long time sufferer of Hypothyroid, told me when I was > diagnosed to check my temperature every morning and communicate that > to my doc. ... Low body temperature is an indication of hypoT. In this case, it confirms that you are under medicated. However, body temperature normally cycles up and down during the day, so its value as an indicator depends on the time of day, as well as individual variations. OTOH, TSH, T4 and T3 tests cost money and time. You can easily monitor your temperature yourself. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 Does anyone know if Hashimoto's thyroiditis can cause early aging. I am 52 and need both hip replaced and was diagnosed witha cataract. Just investiagting if it has to do with my autoimmune diseases (HT). Thanks, Jodi in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 Hi Jodi ,all I can tell you is that my skin is aging rapidly and parts of my skin looks and feels like leather my hair went grey overnight at 42 now 51,as I have Hashi's with a Goiter ( which has gotten smaller ,thank goodness ) Deborah Re:FAQ > Does anyone know if Hashimoto's thyroiditis can cause early aging. I am > 52 and need both hip replaced and was diagnosed witha cataract. Just > investiagting if it has to do with my autoimmune diseases (HT). > > Thanks, Jodi in CA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 Hi Jodi, I do not know if Hasimoto's causes early aging but too much thyroid hormone can cause bone problems. Have you had your numbers checked lately? Venizia > > Does anyone know if Hashimoto's thyroiditis can cause early aging. I am 52 and need both hip replaced and was diagnosed witha cataract. Just investiagting if it has to do with my autoimmune diseases (HT). > > Thanks, Jodi in CA > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Jodi, You wrote: > > Does anyone know if Hashimoto's thyroiditis can cause early aging. I am > 52 and need both hip replaced and was diagnosed witha cataract. ... Not exclusively Hash's, but hypoT in general is associated with both joint issues and cataracts. Both require functioning of " repair " or " maintenance " functions that are impaired when metabolism is low. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Hi Sheri, Can you tell me what is reliv? I have not heard of it. Thanks. Venizia > > > > Does anyone know if Hashimoto's thyroiditis can cause early aging. > I am 52 and need both hip replaced and was diagnosed witha cataract. > Just investiagting if it has to do with my autoimmune diseases (HT). > > > > Thanks, Jodi in CA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 what is reliv? Crystal > > > > Does anyone know if Hashimoto's thyroiditis can cause early aging. > I am 52 and need both hip replaced and was diagnosed witha cataract. > Just investiagting if it has to do with my autoimmune diseases (HT). > > > > Thanks, Jodi in CA > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 poorly treated hypo can cause early aging. http:///www.stopthethyroidmadness.com Gracia Does anyone know if Hashimoto's thyroiditis can cause early aging. I am 52 and need both hip replaced and was diagnosed witha cataract. Just investiagting if it has to do with my autoimmune diseases (HT). Thanks, Jodi in CA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Do you take Armour Chuck? And how come you are soo knowledgable? Are you a doctor? Suzanne Chuck B <gumboyaya@...> wrote: Jodi, You wrote: > > Does anyone know if Hashimoto's thyroiditis can cause early aging. I am > 52 and need both hip replaced and was diagnosed witha cataract. ... Not exclusively Hash's, but hypoT in general is associated with both joint issues and cataracts. Both require functioning of " repair " or " maintenance " functions that are impaired when metabolism is low. Chuck --------------------------------- is the world's favourite email. Don't settle for less, sign up for your freeaccount today. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Suzanne, You wrote: > > Do you take Armour Chuck?... No. I started with Synthroid and then went generic. That seems sufficient, at least so far. >... And how come you are soo knowledgable? Are you > a doctor? No, but I do have a bit of history of biomedical research, mainly on artificial knees and hips. I am simply someone who wants to know as much as I can about a condition that affects me and other members of my family. I do hold an adjunct professorship at a university medical center, but none of those activities involve the thyroid. It does give me occasional access to a good library. Most of my research has been in applications of particle accelerators. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Chuck my son age 34 is having heart valve replacement surgery next week in Berlin Germany. He has sooooo many symptoms of hypothyroid, low adrenals with a " normal " TSH. no one will pay attention to me about hypo issues, they all think I am crazy, and I am fearing the worst. Gracia Suzanne, You wrote: > > Do you take Armour Chuck?... No. I started with Synthroid and then went generic. That seems sufficient, at least so far. >... And how come you are soo knowledgable? Are you > a doctor? No, but I do have a bit of history of biomedical research, mainly on artificial knees and hips. I am simply someone who wants to know as much as I can about a condition that affects me and other members of my family. I do hold an adjunct professorship at a university medical center, but none of those activities involve the thyroid. It does give me occasional access to a good library. Most of my research has been in applications of particle accelerators. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Gracia, You wrote: > > my son age 34 is having heart valve replacement surgery next week in > Berlin Germany. He has sooooo many symptoms of hypothyroid, low adrenals > with a " normal " TSH. > no one will pay attention to me about hypo issues, they all think I am > crazy, and I am fearing the worst. I would suggest waiting until the valve surgery is completed. If the hypoT conditions continue, then press the issue. The doctors should be more amenable if it interferes with recovery. A bad valve is not diagnosed on the basis of metabolic deficiencies, but it can certainly cause or aggravate them. Tissue needs oxygen as well as FT3. Lots of conditions can mimic hypoT. This is certainly one of them. BTW, my son had surgery on his stenosed pulmonary valve when he was ten days old. At the time the procedure was so new, the two previous infants to try it had died. They called Mike the " miracle baby. " He's 32 now, and the procedure has become routine. We are both familiar with medical imaging technology, since we had a front row seat as it developed. I am sure they have excellent surgeons in Berlin, maybe not as many as in Boston, but you only need one. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 thanks. I think the stress is going to push him over the edge though, I know his adrenals aren't adequate. MVP improves or disappears on thyroid meds. Gracia Gracia, You wrote: > > my son age 34 is having heart valve replacement surgery next week in > Berlin Germany. He has sooooo many symptoms of hypothyroid, low adrenals > with a " normal " TSH. > no one will pay attention to me about hypo issues, they all think I am > crazy, and I am fearing the worst. I would suggest waiting until the valve surgery is completed. If the hypoT conditions continue, then press the issue. The doctors should be more amenable if it interferes with recovery. A bad valve is not diagnosed on the basis of metabolic deficiencies, but it can certainly cause or aggravate them. Tissue needs oxygen as well as FT3. Lots of conditions can mimic hypoT. This is certainly one of them. BTW, my son had surgery on his stenosed pulmonary valve when he was ten days old. At the time the procedure was so new, the two previous infants to try it had died. They called Mike the " miracle baby. " He's 32 now, and the procedure has become routine. We are both familiar with medical imaging technology, since we had a front row seat as it developed. I am sure they have excellent surgeons in Berlin, maybe not as many as in Boston, but you only need one. Chuck Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2007 Report Share Posted April 14, 2007 Gracia, I certainly can understand your trepidation about your son's surgery, but since it is going to actually happen, you would do better for your son, IMHO, to be positive and supportive of the procedures going on. I hope you take this in the way it was given. As a mother, with two sons of my own, I know how apprehensive I would be if this was going on with one of them so far away. I hope you will feel a little bit better about all this, and I wish your son a full and speedy recovery. Roni --- Gracia <circe@...> wrote: > > thanks. I think the stress is going to push him > over the edge though, I know his adrenals aren't > adequate. > MVP improves or disappears on thyroid meds. > Gracia > > Gracia, > > You wrote: > > > > my son age 34 is having heart valve replacement > surgery next week in > > Berlin Germany. He has sooooo many symptoms of > hypothyroid, low adrenals > > with a " normal " TSH. > > no one will pay attention to me about hypo > issues, they all think I am > > crazy, and I am fearing the worst. > > I would suggest waiting until the valve surgery is > completed. If the > hypoT conditions continue, then press the issue. > The doctors should be > more amenable if it interferes with recovery. A > bad valve is not > diagnosed on the basis of metabolic deficiencies, > but it can certainly > cause or aggravate them. Tissue needs oxygen as > well as FT3. Lots of > conditions can mimic hypoT. This is certainly one > of them. > > BTW, my son had surgery on his stenosed pulmonary > valve when he was ten > days old. At the time the procedure was so new, > the two previous infants > to try it had died. They called Mike the " miracle > baby. " He's 32 now, > and the procedure has become routine. We are both > familiar with medical > imaging technology, since we had a front row seat > as it developed. > > I am sure they have excellent surgeons in Berlin, > maybe not as many as > in Boston, but you only need one. > > Chuck > > > > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 This is also true of dogs. Of course you're worried about this surgery. But he's young enough that he probably has some reserves. Let us know how it goes... I don't understand why kids and doctors don't pay more attention, and do the right tests. If one of their parents has autoimmune thyroiditis, the kids have a 50/50 chance of having it also. I suspect all three of my kids have it, but only my daughter will listen. My first son has so many signs, and his Dr. did a test, which my son says was " fine " . I don't know, but I suspect it was only a TSH, and my son didn't ask for results. Gail In hypothyroidism , " Gracia " <circe@...> wrote: > > > thanks. I think the stress is going to push him over the edge though, I know his adrenals aren't adequate. > MVP improves or disappears on thyroid meds. > Gracia > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2007 Report Share Posted April 16, 2007 What is in reliv? -- Re:FAQ sure, reliv is a food supplement.It comes in powder form ,so that it goes directly to your cells.You mix it with any cold liquid and shake and drink it 2-4xs a day.Reliv has several patents on their products.It is extremely hard to get a patent on a food product.Any way it is absorbed 98% at the cellular level.It is just good optimal nutrition that helps your body to heal itself.I had tried all kinds of nutritional supplements with no results,but reliv is very concentrated and has a little bit of everything in it.ok I'm done with my commercial,LOL.Sorry I am just so excited that I found something that helps,that i want everyone else to experience the same results.It you have more questions just ask......sheri > > > > > > Does anyone know if Hashimoto's thyroiditis can cause early aging. > > I am 52 and need both hip replaced and was diagnosed witha cataract. > > Just investiagting if it has to do with my autoimmune diseases (HT). > > > > > > Thanks, Jodi in CA > > > > > > Quote Link to comment Share on other sites More sharing options...
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