Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 I had chemo with a nodes negative diagnosis too. Mine was recommended because although I was a stage I, it was a grade 3 " poorly differentiated " tumor which means that it could have spread. Maybe the grading of your tumor made them suggest the chemo. A possibility? Ellen > > > > I had the same diagnois May 8th of this year. THey did find it in one > > of my nodes also. So I had to do Chemo (Which I just have 2 more of > > them to do) THen I will do radiation. Then I will be on Arimidex for 5 > > yrs. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2006 Report Share Posted September 17, 2006 > > > > I had the same diagnois May 8th of this year. THey did find it in one > > of my nodes also. So I had to do Chemo (Which I just have 2 more of > > them to do) THen I will do radiation. Then I will be on Arimidex for 5 > > yrs. > Ruth mine where positve that is one node was and I am estorgen psoitive so that is why I have to do the arimidex after my radiation is done. ALso I just had a lumpectomy which may make a difference also. Who knows don't think any of these doctors agree on everything. Steph Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Ruth: The way both my onc. and surgeon explained it to me (independently of each other, actually) was that the younger you are when diagnosed (I am the big 4-0h and this was my first mammo) and the nature of the cancer (mine was invasive er/pr- and her2+ but had not yet fully spread to the nodes) the higher the risk and they treat it as aggressively as possible to avoid recurrence. They both told me chemo was " optional " but made it clear that chemo was be the best approach (sort of a " let's do everything we can " thing : ). Covering my bases here.... - Jen On Sun, 17 Sep 2006 20:16:17 -0000 " ruthiema36 " writes: > Wonder why chemo was recommended when I had had a mastectomy and the > nodes were negative? This was before I was found to be Her2* I am > going to make an appointment for yet another opinion. > Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Ruth: The way both my onc. and surgeon explained it to me (independently of each other, actually) was that the younger you are when diagnosed (I am the big 4-0h and this was my first mammo) and the nature of the cancer (mine was invasive er/pr- and her2+ but had not yet fully spread to the nodes) the higher the risk and they treat it as aggressively as possible to avoid recurrence. They both told me chemo was " optional " but made it clear that chemo was be the best approach (sort of a " let's do everything we can " thing : ). Covering my bases here.... - Jen On Sun, 17 Sep 2006 20:16:17 -0000 " ruthiema36 " writes: > Wonder why chemo was recommended when I had had a mastectomy and the > nodes were negative? This was before I was found to be Her2* I am > going to make an appointment for yet another opinion. > Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Do you suppose we'll get honorary degrees for learning all this junk? (I think we should : ) Even though my nodes were officially negative, there were tumor cells already there (just too small to count yet - gee, that makes me feel ever so much better - NOT : ) I didn't know there was a time limit to the Herceptin...as I think I understand it, we Her2 chicks are at higher risk than the er/pr girls for recurrence. Added to that, I think I remember that if it does reoccur it would be elsewhere (pot luck : ) Since I am not exactly enjoying all of this (ha!) I opted to go the extra mile to prevent a rerun (pass : ) Hopefully, my fun with toxic chemicals will NOT prove the adage about the cure being worse than the disease (or mostly, anyway). Taking no prisoners, 'cause I'm nuking 'em all... - Jen : ) > Gads! I'm 60 and the first onc wanted me to do AC chemo and Arimedex > even though the nodes were negative. When I found out I was Her2+ I > saw another onc who literally wanted to throw the book at me! Ac > chemo followed by Herceptin and Arimidex. She told me that due to > the > delay in Her2 testing I was beyond the optimal time to start > treatment. Given that and quality of life issues decided on no > further treatment. I'm laying my money on the negative nodes! > Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Forgot to mention congestive heart failure runs in the family. Both AC and Herceptin can be nasty on the heart. I figure it this way. According to a family history of congestive heart failure and dementia, I've got 10, 15 good years left. My mother and grandmother started with the dementia in their early 70s. Assume oxygen deprivation due to the congestive heart failure caused it Sooooooo, I can take my chances with BC or live to almost 90 having spent the last 20 years of my life demented and on heart meds to make me live longer. I watched my mother die a slow agonizing death so I know where I am putting my money. Oh, yeah, can you imagine a demented me with chemo brain as well? I have decided to pass on the " Fun with toxic chemicals " . It's a coin toss any way. Ruth > > Do you suppose we'll get honorary degrees for learning all this > junk? (I think we should : ) Even though my nodes were officially > negative, there were tumor cells already there (just too small to > count yet - gee, that makes me feel ever so much better - NOT : ) > I didn't know there was a time limit to the Herceptin...as I > think I understand it, we Her2 chicks are at higher risk than the > er/pr girls for recurrence. Added to that, I think I remember that > if it does reoccur it would be elsewhere (pot luck : ) Since I am > not exactly enjoying all of this (ha!) I opted to go the extra mile to > prevent a rerun (pass : ) Hopefully, my fun with toxic chemicals > will NOT prove the adage about the cure being worse than the > disease (or mostly, anyway). > > Taking no prisoners, 'cause I'm nuking 'em all... > - Jen : ) > > > Gads! I'm 60 and the first onc wanted me to do AC chemo and Arimedex > > even though the nodes were negative. When I found out I was Her2+ I > > saw another onc who literally wanted to throw the book at me! Ac > > chemo followed by Herceptin and Arimidex. She told me that due to > > the > delay in Her2 testing I was beyond the optimal time to start > > treatment. Given that and quality of life issues decided on no > > further treatment. I'm laying my money on the negative nodes! > > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Forgot to mention congestive heart failure runs in the family. Both AC and Herceptin can be nasty on the heart. I figure it this way. According to a family history of congestive heart failure and dementia, I've got 10, 15 good years left. My mother and grandmother started with the dementia in their early 70s. Assume oxygen deprivation due to the congestive heart failure caused it Sooooooo, I can take my chances with BC or live to almost 90 having spent the last 20 years of my life demented and on heart meds to make me live longer. I watched my mother die a slow agonizing death so I know where I am putting my money. Oh, yeah, can you imagine a demented me with chemo brain as well? I have decided to pass on the " Fun with toxic chemicals " . It's a coin toss any way. Ruth > > Do you suppose we'll get honorary degrees for learning all this > junk? (I think we should : ) Even though my nodes were officially > negative, there were tumor cells already there (just too small to > count yet - gee, that makes me feel ever so much better - NOT : ) > I didn't know there was a time limit to the Herceptin...as I > think I understand it, we Her2 chicks are at higher risk than the > er/pr girls for recurrence. Added to that, I think I remember that > if it does reoccur it would be elsewhere (pot luck : ) Since I am > not exactly enjoying all of this (ha!) I opted to go the extra mile to > prevent a rerun (pass : ) Hopefully, my fun with toxic chemicals > will NOT prove the adage about the cure being worse than the > disease (or mostly, anyway). > > Taking no prisoners, 'cause I'm nuking 'em all... > - Jen : ) > > > Gads! I'm 60 and the first onc wanted me to do AC chemo and Arimedex > > even though the nodes were negative. When I found out I was Her2+ I > > saw another onc who literally wanted to throw the book at me! Ac > > chemo followed by Herceptin and Arimidex. She told me that due to > > the > delay in Her2 testing I was beyond the optimal time to start > > treatment. Given that and quality of life issues decided on no > > further treatment. I'm laying my money on the negative nodes! > > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2006 Report Share Posted September 18, 2006 Forgot to mention congestive heart failure runs in the family. Both AC and Herceptin can be nasty on the heart. I figure it this way. According to a family history of congestive heart failure and dementia, I've got 10, 15 good years left. My mother and grandmother started with the dementia in their early 70s. Assume oxygen deprivation due to the congestive heart failure caused it Sooooooo, I can take my chances with BC or live to almost 90 having spent the last 20 years of my life demented and on heart meds to make me live longer. I watched my mother die a slow agonizing death so I know where I am putting my money. Oh, yeah, can you imagine a demented me with chemo brain as well? I have decided to pass on the " Fun with toxic chemicals " . It's a coin toss any way. Ruth > > Do you suppose we'll get honorary degrees for learning all this > junk? (I think we should : ) Even though my nodes were officially > negative, there were tumor cells already there (just too small to > count yet - gee, that makes me feel ever so much better - NOT : ) > I didn't know there was a time limit to the Herceptin...as I > think I understand it, we Her2 chicks are at higher risk than the > er/pr girls for recurrence. Added to that, I think I remember that > if it does reoccur it would be elsewhere (pot luck : ) Since I am > not exactly enjoying all of this (ha!) I opted to go the extra mile to > prevent a rerun (pass : ) Hopefully, my fun with toxic chemicals > will NOT prove the adage about the cure being worse than the > disease (or mostly, anyway). > > Taking no prisoners, 'cause I'm nuking 'em all... > - Jen : ) > > > Gads! I'm 60 and the first onc wanted me to do AC chemo and Arimedex > > even though the nodes were negative. When I found out I was Her2+ I > > saw another onc who literally wanted to throw the book at me! Ac > > chemo followed by Herceptin and Arimidex. She told me that due to > > the > delay in Her2 testing I was beyond the optimal time to start > > treatment. Given that and quality of life issues decided on no > > further treatment. I'm laying my money on the negative nodes! > > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2006 Report Share Posted September 19, 2006 Ruth: I think if I were in your shoes I'd have done the same exact thing...I guess depending on the situation, it's not ALWAYS worth it : ) - Jen Quote Link to comment Share on other sites More sharing options...
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