Re: Help finding a doctor experienced treating Rheumatoid Arthritis with antibio

[Guest guest]

wrote:

> He was willing to

> give me a script for Minocycline but he is not versed in how to

> effectively use it.

Hi , I hope you grabbed the prescription! That's more than a lot of MDs

are willing

to do.

I'm newly diagnosed as well. I had my first RA flare at the beginning of May

(this year)---

it's mostly in my hands, knees, ankles, feet, but elbows are the worst.

I started by reading " The New Arthritis Breakthrough " . I also got a lot out of

" Solving the

Puzzling Problem of Arthritis " .

My MD is not familiar with the antibiotic protocol either, but he was willing to

order

baseline testing from TARCI (www.tarci.net) and start me out on 50 mg Doxy, MWF.

Good luck!

[Guest guest]

Hi ,  That is like trying to find a needle in a haystack.  Doctors who

prescribe antibiotics for immune diseases are spread thin and wide across the

country.  Most of us have spent useless dollars flying to see them, renting cars

and staying in hotels just to get a prescription for an antibiotic.  So, I hope

you took 's advice and grabbed the script.  The best you can do to save

yourself a lot of angst, is to find a doc that is open. Read and print all you

can on the subject and present it to him/her.  If your doc is willing to learn

with you, then you are a lucky man.  Insist on being treated the way you want to

be with antibiotics and don't stop your search till you find the right doc

willing to work with you.  You are in charge of what you want to put into your

body.  Don't let anyone take that right away from you.  Only you know how you

feel.  Arrogant docs need not apply. And welcome to the group.  This group is

fabulous

and full of intelligent, warm and wonderful people to help you.  Stay with it

and I wish you well.  Dolores 

> He was willing to

> give me a script for Minocycline but he is not versed in how to

> effectively use it.

Hi , I hope you grabbed the prescription! That's more than a lot of MDs are

willing

to do.

I'm newly diagnosed as well. I had my first RA flare at the beginning of May

(this year)---

it's mostly in my hands, knees, ankles, feet, but elbows are the worst.

I started by reading " The New Arthritis Breakthrough " . I also got a lot out of

" Solving the

Puzzling Problem of Arthritis " .

My MD is not familiar with the antibiotic protocol either, but he was willing to

order

baseline testing from TARCI (www.tarci.net) and start me out on 50 mg Doxy, MWF.

Good luck!

[Guest guest]

>

> > He was willing to

> > give me a script for Minocycline but he is not versed in how to

> > effectively use it.

>

>

>

> Hi , I hope you grabbed the prescription! That's more than

a lot of MDs are willing

> to do.

>

> I'm newly diagnosed as well. I had my first RA flare at the

beginning of May (this year)---

> it's mostly in my hands, knees, ankles, feet, but elbows are the

worst.

>

> I started by reading " The New Arthritis Breakthrough " . I also got

a lot out of " Solving the

> Puzzling Problem of Arthritis " .

>

> My MD is not familiar with the antibiotic protocol either, but he

was willing to order

> baseline testing from TARCI (www.tarci.net) and start me out on 50

mg Doxy, MWF.

>

> Good luck!

>

>

>

I have held off starting the Minocyclin until I was sure of a dosing

strategy. It seems a number of people in the group are doing MWF

with 100mg.

Does everyone feel this is a pretty solid start for the therapy?

Also, thanks everyone who has emailed me info on doctors, greatly

appreciated!

[Guest guest]

wrote:

> I have held off starting the Minocyclin until I was sure of a dosing

> strategy. It seems a number of people in the group are doing MWF

> with 100mg.

>

> Does everyone feel this is a pretty solid start for the therapy?

I've been on 50 mg Doxy, MWF, for only 2 weeks. Yesterday, my joints were quite

sore,

and I tried to take heart that it was an indication that the Doxy was already

working

(Herx).

On pg 162 in " Solving the Puzzling Problem of Arthritis " , there is a good

section

discussing the initial dose and timing of the antibiotics, and explanations as

to why it

might be a good idea for many patients to start at a lower dose, gradually

increasing with

time & tolerance.

HTH,

[Guest guest]

>

>

> > I have held off starting the Minocyclin until I was sure of a

dosing

> > strategy. It seems a number of people in the group are doing MWF

> > with 100mg.

> >

> > Does everyone feel this is a pretty solid start for the therapy?

>

>

>

> I've been on 50 mg Doxy, MWF, for only 2 weeks. Yesterday, my

joints were quite sore,

> and I tried to take heart that it was an indication that the Doxy

was already working

> (Herx).

>

> On pg 162 in " Solving the Puzzling Problem of Arthritis " , there is

a good section

> discussing the initial dose and timing of the antibiotics, and

explanations as to why it

> might be a good idea for many patients to start at a lower dose,

gradually increasing with

> time & tolerance.

>

> HTH,

>

>

>

Well it turns out my pharmacy only carried the generic Minocyclin on

hand so I requested the brand name and they won't get it in until

Monday so I have some more time to read/research.

This book sounds like it might have the information I'm looking for.

Hopefully Bookstop or the like carries it and I can get it asap.

Thanks for the recommendation.