Guest guest Posted April 25, 2008 Report Share Posted April 25, 2008 Hello, I'm a new member. I have had Chronic Fatigue Syndrome for about 25 years, beginning with a bad case of mono from which I never fully recovered. I am 45 years old. I live half way between Knoxville and Chattanooga TN. USA. In the last four years, however, I have begun to have more joint pain, stiffness, and redness. Almost all my peripherial joints are now involved, but no spine and neck so far. On testing, I show no RA or other autoimmune antibodies, and no elevated C-reactive protein. These were just screenings by a General Practioner though. I have not been to a Rheumatologist, yet. I imagine they might be able to go a bit more indepth. Too, I seem to have some sort of ill-defined mast cell disorder. I don't think I have classic Mastocytosis, but a lesser form of something likened unto that. Again, undiagnosed, however. So that's my quick bio. I was interested to see that the introductory e-mail from this group contained many of the ideas I was wishing to pursue (i.e. I am a patient of Dr. Ritchie Shoemaker already, and I am planning surgery for possible osteomyelitis of the jaw and mandible. I've already had this once, in fact). I was wondering though, a friend came across something interesting lately. I thought someone here might know more about it? It is peptide injections for RA, and various other conditions too, by a Dr. Dakos. I've never heard of this before, and didn't know what to make of it. Here is the link: http://www.autoimmunedoctor.com/index.html He is in Florida. Anyone know anything about this? Is this for real, or what? Also, if anyone knows of a Dr. near Chattanooga or Knoxville TN, who would be willing to work with me on antibiotic therapy, that would help me a lot? Thanks, Todd in TN. Quote Link to comment Share on other sites More sharing options...
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