Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? If anyone can help explain more I would really appreciate it. Thank you, Marcy P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 HI Marcy, Yes, a person can be hypothyroid and not have Hashimoto's disease. That's exactly my situation. My illness started out with a swollen and painful thyroid that was finally diagnosed as thyroiditis after months of seeing different doctors. "Thyroiditis" simply means the thyroid gland is inflamed for some specific reason. There's thought that a patient might have had a virus that moved into the thyroid gland. Hashimoto's and other causes for a swollen thyroid also exist. If the swollen gland is painful, it's often diagnosed as subacute thyroiditis. Was your thyroid painful? Thyroiditis can cause damage to your thyroid because of the inflammation. During a thyroiditis attack, cells in the thyroid actually die. As they die, the thyroid hormone in the cell is released into the patient's system. This spill of thyroid hormones often means the patient's lab work will show they are HYPERthyroid. As the cell death continues, however, there is less and less thyroid hormone released into the body, and the patient starts heading toward hypothyroidism. Sometimes the cascade of symtpoms will end when the inflammation goes down, and hte patient doesn't always end up hypothyroid. For me, I ended up with enough thyroid damage that I'm now a hypothyroid patient. So, thyroiditis can be caused by a virus, by antibodies attacking the thyroid (as in Hashimoto's disease), or even by certain drugs. And yes, you can be hypothyroid without having Hashimoto's disease. The way to determine if you have Hashimoto's disease is to have your thyroid antibodies tested. Hashimoto's is the number 1 cause of hypothyroidism in patients, but it's not the only cause. Hope this helps. Subject: hypothyroidism caused from thyroiditisTo: RT3_T3 Date: Thursday, April 22, 2010, 10:51 AM Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? If anyone can help explain more I would really appreciate it. Thank you,Marcy P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 HI Marcy, Yes, a person can be hypothyroid and not have Hashimoto's disease. That's exactly my situation. My illness started out with a swollen and painful thyroid that was finally diagnosed as thyroiditis after months of seeing different doctors. "Thyroiditis" simply means the thyroid gland is inflamed for some specific reason. There's thought that a patient might have had a virus that moved into the thyroid gland. Hashimoto's and other causes for a swollen thyroid also exist. If the swollen gland is painful, it's often diagnosed as subacute thyroiditis. Was your thyroid painful? Thyroiditis can cause damage to your thyroid because of the inflammation. During a thyroiditis attack, cells in the thyroid actually die. As they die, the thyroid hormone in the cell is released into the patient's system. This spill of thyroid hormones often means the patient's lab work will show they are HYPERthyroid. As the cell death continues, however, there is less and less thyroid hormone released into the body, and the patient starts heading toward hypothyroidism. Sometimes the cascade of symtpoms will end when the inflammation goes down, and hte patient doesn't always end up hypothyroid. For me, I ended up with enough thyroid damage that I'm now a hypothyroid patient. So, thyroiditis can be caused by a virus, by antibodies attacking the thyroid (as in Hashimoto's disease), or even by certain drugs. And yes, you can be hypothyroid without having Hashimoto's disease. The way to determine if you have Hashimoto's disease is to have your thyroid antibodies tested. Hashimoto's is the number 1 cause of hypothyroidism in patients, but it's not the only cause. Hope this helps. Subject: hypothyroidism caused from thyroiditisTo: RT3_T3 Date: Thursday, April 22, 2010, 10:51 AM Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? If anyone can help explain more I would really appreciate it. Thank you,Marcy P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 my daughter and myself had hypothyroid long before any antibodies showed up...and it was only years later that we finally saw antibodies..so i think that sometimes they are just hard to capture on blood work.... From: MP <marcy_joyahoo (DOT) com>Subject: hypothyroidism caused from thyroiditisTo: RT3_T3yahoogroups (DOT) comDate: Thursday, April 22, 2010, 10:51 AM Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? If anyone can help explain more I would really appreciate it. Thank you,Marcy P. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Thank you that helped alot, That was really clear and easy to understand. My thyroid was not painful at all. I had a child when I was 41 in 2005, and was under a lot of stress back then (also nursed baby for 21 months). I never felt like I got my feet back on solid ground no matter how hard I tried. I also got MRSA at the end of November 2006 and had to take about a month's worth of Bactrim DS and had an allergic reaction on the 12th day and also had to use antibacterial body scrub (3 showers a day)...more stress! Things just really became unbearable in 2007. All along I just thought it was my age and stress. Finally I went to the doctors in December 2007 for a physical. That is when I was referred to the endo and finally got an appt. for February 2008. My symptoms were weight loss, anxiety, being very irritable and very unreasonable, and no sleep and I missed a period also. The only blood test, other than the normal T3, T4, TSH was the Thyroid STIM. Immunoglobulin. She tested that on 2/15/2008 - 107% - baseline(<=125) and again on 4/16/2008 - 100% - baseline(<=125) after that I never heard her say anything about Graves Disease again and that I had thyroiditis. No other tests were done to determine any antibodies. I googled the above test and it said that was only for graves disease and not Hashi's or anything else (it could be wrong). Was put on Synthroid for over a year and still not feeling well...and now I don't go to an endo. anymore...end of story. I don't think that I can pinpoint when or why I got thyroiditis (way too much stress), but I am hypothyroid now and on T3 only and will probably be that forever unless the Lord decides to heal my thyroid. Do you think that this would be in my best interest to have a test done for Hashi's at this point or is it even important to know at this point? You have been so kind to take time out to help me...thank you so much for your time and your knowledge. I just love this group! Very helpful and informative Marcy P. > > > > Subject: hypothyroidism caused from thyroiditis > To: RT3_T3 > Date: Thursday, April 22, 2010, 10:51 AM > > > Â > > > > Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? > If anyone can help explain more I would really appreciate it. > Thank you, > Marcy P. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Thank you that helped alot, That was really clear and easy to understand. My thyroid was not painful at all. I had a child when I was 41 in 2005, and was under a lot of stress back then (also nursed baby for 21 months). I never felt like I got my feet back on solid ground no matter how hard I tried. I also got MRSA at the end of November 2006 and had to take about a month's worth of Bactrim DS and had an allergic reaction on the 12th day and also had to use antibacterial body scrub (3 showers a day)...more stress! Things just really became unbearable in 2007. All along I just thought it was my age and stress. Finally I went to the doctors in December 2007 for a physical. That is when I was referred to the endo and finally got an appt. for February 2008. My symptoms were weight loss, anxiety, being very irritable and very unreasonable, and no sleep and I missed a period also. The only blood test, other than the normal T3, T4, TSH was the Thyroid STIM. Immunoglobulin. She tested that on 2/15/2008 - 107% - baseline(<=125) and again on 4/16/2008 - 100% - baseline(<=125) after that I never heard her say anything about Graves Disease again and that I had thyroiditis. No other tests were done to determine any antibodies. I googled the above test and it said that was only for graves disease and not Hashi's or anything else (it could be wrong). Was put on Synthroid for over a year and still not feeling well...and now I don't go to an endo. anymore...end of story. I don't think that I can pinpoint when or why I got thyroiditis (way too much stress), but I am hypothyroid now and on T3 only and will probably be that forever unless the Lord decides to heal my thyroid. Do you think that this would be in my best interest to have a test done for Hashi's at this point or is it even important to know at this point? You have been so kind to take time out to help me...thank you so much for your time and your knowledge. I just love this group! Very helpful and informative Marcy P. > > > > Subject: hypothyroidism caused from thyroiditis > To: RT3_T3 > Date: Thursday, April 22, 2010, 10:51 AM > > > Â > > > > Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? > If anyone can help explain more I would really appreciate it. > Thank you, > Marcy P. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Thank you that helped alot, That was really clear and easy to understand. My thyroid was not painful at all. I had a child when I was 41 in 2005, and was under a lot of stress back then (also nursed baby for 21 months). I never felt like I got my feet back on solid ground no matter how hard I tried. I also got MRSA at the end of November 2006 and had to take about a month's worth of Bactrim DS and had an allergic reaction on the 12th day and also had to use antibacterial body scrub (3 showers a day)...more stress! Things just really became unbearable in 2007. All along I just thought it was my age and stress. Finally I went to the doctors in December 2007 for a physical. That is when I was referred to the endo and finally got an appt. for February 2008. My symptoms were weight loss, anxiety, being very irritable and very unreasonable, and no sleep and I missed a period also. The only blood test, other than the normal T3, T4, TSH was the Thyroid STIM. Immunoglobulin. She tested that on 2/15/2008 - 107% - baseline(<=125) and again on 4/16/2008 - 100% - baseline(<=125) after that I never heard her say anything about Graves Disease again and that I had thyroiditis. No other tests were done to determine any antibodies. I googled the above test and it said that was only for graves disease and not Hashi's or anything else (it could be wrong). Was put on Synthroid for over a year and still not feeling well...and now I don't go to an endo. anymore...end of story. I don't think that I can pinpoint when or why I got thyroiditis (way too much stress), but I am hypothyroid now and on T3 only and will probably be that forever unless the Lord decides to heal my thyroid. Do you think that this would be in my best interest to have a test done for Hashi's at this point or is it even important to know at this point? You have been so kind to take time out to help me...thank you so much for your time and your knowledge. I just love this group! Very helpful and informative Marcy P. > > > > Subject: hypothyroidism caused from thyroiditis > To: RT3_T3 > Date: Thursday, April 22, 2010, 10:51 AM > > > Â > > > > Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? > If anyone can help explain more I would really appreciate it. > Thank you, > Marcy P. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2010 Report Share Posted April 22, 2010 Did something change or did your doctor just do random blood work once and a while to check for that? Does it make any difference on treatment? I guess I am just thinking ahead and trying to be prepared for whatever. Thank you so very much for your input also. Marcy P. > > > From: MP <marcy_joyahoo (DOT) com> > Subject: hypothyroidism caused from thyroiditis > To: RT3_T3yahoogroups (DOT) com > Date: Thursday, April 22, 2010, 10:51 AM > > > Â > > Question... When I first had issues my family doc. had referred me to an endo. after a physical and blood tests. The endo wanted more blood tests and did an ultra sound on my neck. She said she was 99% sure I had graves and gave me a Rx for tapisole and told me to get it filled and not to take any until after my blood test was taken. I did just that and I could barely move...called her office and said I was not going to take it anymore. She checked my blood results and yelled at me saying she never told me to take any until after we discussed the results. Funny she wrote tapisole on my current medication chart on that first visit. Anyway to make a long story shorter she said I had thyroiditis and that it would eventually turn hypo and stay that way. My question is can a person just be diagnosed hypothyroid and not be Hashi's or anything else attached? I guess I am wondering if I would have to worry about antibodies or do I already have this??? > If anyone can help explain more I would really appreciate it. > Thank you, > Marcy P. > Quote Link to comment Share on other sites More sharing options...
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