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Re: scoliosis of the back

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Ref leaning to the right.

My Girlfriends 16 year old daughter has scoliosis of the back and her

spine is twisted like an S

she has one leg longer than the other, and scans show hips are

missaligned as a result (tilted).

The doctors have told her it is incurable and they dont know what

causes it,. is this something

to do with bacteria?

On 5 Nov 2010, at 13:45, Eva Holloway wrote:

> Sue

>

> Yes, lots of people can not get on RBF, they working on a new

> system, Lynnie from Australia is about the only volunteer still

> able to get on. I write to Maz on the regular e-mail if I have a

> question, There are not that many people able to get on.Let me know

> if you want Maz e-mai address and I send it to you on you personal

> e-mail.

> I am doing lots better, my hip has healed well and I am almost

> upright now but still leaning to the right side because of the

> scoliosis of the lower back. No help for that.

> Eva

>

>

>

> >

>

> >

>

> > Kathy,

>

> >

>

> > I have the same trouble with my son. He was diagnosed with

> scleroderma,

>

> jra

>

> > and chronic lyme disease in 2008 at the age of 13. He was really

> good

>

> about

>

> > taking supplements then, now, it is wearing thin. I have a

> question for

>

> the

>

> > group though, he started AP in May of 2008 and his skin is much

> softer now

>

> > and there is hair growing on his chest where one of his patches was.

>

> > However, I found 2 new patches behind his knee and now I am so

> scared that

>

> > AP is really not working. I thought that it would take time to

> recover but

>

> > I

>

> > did not think I would find any new ones - anyone have this happen?

>

> >

>

> > Sue

>

> >

>

> >

>

> > From: rheumatic <mailto:rheumatic%

> 40> <rheumatic%40> [mailto:

>

> > rheumatic <mailto:rheumatic%40>

> <rheumatic%40>] On Behalf

>

> > Of Kathy Dillon

>

> > Sent: Thursday, November 04, 2010 9:39 AM

>

> > rheumatic <mailto:rheumatic%

> 40> <rheumatic%40>

>

> > Subject: rheumatic Re:teenager

>

> >

>

> >

>

> > thank you, that could help as she refuses to take any vitamins

> and I plan

>

> > to

>

> > get blood work done, which im sure will show she is anemic as

> well. kathy

>

> >

>

> >

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if the scoliosis is on the upper part of the body something can be done when

they are still teenagers. Mine is from the arthritis and DM that fused the

bottom part of my spine together. Since I am in my late 60th they can not do a

thing for it unless I get terribly bend over to the right side. I am doing some

exercises that helps some.

Eva

>

> >

>

> >

>

> > Kathy,

>

> >

>

> > I have the same trouble with my son. He was diagnosed with 

> scleroderma,

>

> jra

>

> > and chronic lyme disease in 2008 at the age of 13. He was really 

> good

>

> about

>

> > taking supplements then, now, it is wearing thin. I have a 

> question for

>

> the

>

> > group though, he started AP in May of 2008 and his skin is much 

> softer now

>

> > and there is hair growing on his chest where one of his patches was.

>

> > However, I found 2 new patches behind his knee and now I am so 

> scared that

>

> > AP is really not working. I thought that it would take time to 

> recover but

>

> > I

>

> > did not think I would find any new ones - anyone have this happen?

>

> >

>

> > Sue

>

> >

>

> >

>

> > From: rheumatic <mailto:rheumatic%

> 40> <rheumatic%40> [mailto:

>

> > rheumatic <mailto:rheumatic%40> 

> <rheumatic%40>] On Behalf

>

> > Of Kathy Dillon

>

> > Sent: Thursday, November 04, 2010 9:39 AM

>

> > rheumatic <mailto:rheumatic%

> 40> <rheumatic%40>

>

> > Subject: rheumatic Re:teenager

>

> >

>

> >

>

> > thank you, that could help as she refuses to take any vitamins 

> and I plan

>

> > to

>

> > get blood work done, which im sure will show she is anemic as 

> well. kathy

>

> >

>

> >

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