Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 If it is autoimmune than it more than likely is due to a toxicity. How hard have you looked for information about this? I can honestly say I know nothing about this, but if you look hard enough you will find info other than the typical "there is no known cause". I have learned that this phrase "T.I.N.K.C." is a bunch of crap about 95% of the time, you just have to really look. I have actually started a site dedicated to collecting sources of info, because I was fed up with this "T.I.N.K.C". Have you been to a doctor to get your blood tested? There are so many factors as with any disease that could have all led up to you contracting this and many many questions would have to be answered. Questions like what were the houses that you have lived in made out of? What I mean to ask by this for example is were they filled with lead floor and ceiling panels and chemically treated wood? Have you lived a "conventional life" in terms of the products that you use and the foods that you eat? Basically, are you toxic or do you green your lifestyle? Has your life been stressful? Do you deal with stress or does it get to you? What vaccines have you had, and how close together were they? Do you or have you ever had amalgam fillings in your teeth? If so then how many and for how long were they in? On and on..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2009 Report Share Posted September 1, 2009 If it is autoimmune than it more than likely is due to a toxicity. How hard have you looked for information about this? I can honestly say I know nothing about this, but if you look hard enough you will find info other than the typical "there is no known cause". I have learned that this phrase "T.I.N.K.C." is a bunch of crap about 95% of the time, you just have to really look. I have actually started a site dedicated to collecting sources of info, because I was fed up with this "T.I.N.K.C". Have you been to a doctor to get your blood tested? There are so many factors as with any disease that could have all led up to you contracting this and many many questions would have to be answered. Questions like what were the houses that you have lived in made out of? What I mean to ask by this for example is were they filled with lead floor and ceiling panels and chemically treated wood? Have you lived a "conventional life" in terms of the products that you use and the foods that you eat? Basically, are you toxic or do you green your lifestyle? Has your life been stressful? Do you deal with stress or does it get to you? What vaccines have you had, and how close together were they? Do you or have you ever had amalgam fillings in your teeth? If so then how many and for how long were they in? On and on..... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 , see if you can sign in at the Road Back Foundation just type in these words and then go from there, lots of help. Eva From: cabraljennifer30 <f4i_girl@...> Subject: rheumatic Polymyositis rheumatic Date: Thursday, October 29, 2009, 7:48 AM Hello, I'm new here. My mom was diagnosed with polymyositis in 1994. The past year her condition has worsened and she's lost a lot of weight. She's been on prednisone all this time. She was in the hospital for the last 17 days due to progressive weakness, mal-nutrition and dysphagia. I heard about this antibiotic therapy treatment and I am curious as to how it works. I tried emailing Ethel, but no response...i' m wondering if I have the wrong email address. Any information would be great. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 , see if you can sign in at the Road Back Foundation there is a lot of info and help. Eva From: cabraljennifer30 <f4i_girl@...> Subject: rheumatic Polymyositis rheumatic Date: Thursday, October 29, 2009, 7:48 AM Hello, I'm new here. My mom was diagnosed with polymyositis in 1994. The past year her condition has worsened and she's lost a lot of weight. She's been on prednisone all this time. She was in the hospital for the last 17 days due to progressive weakness, mal-nutrition and dysphagia. I heard about this antibiotic therapy treatment and I am curious as to how it works. I tried emailing Ethel, but no response...i' m wondering if I have the wrong email address. Any information would be great. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2009 Report Share Posted October 29, 2009 Hello, go to : www.rheumatic.org and click on frequently asked questions, also read patient histories good luck, Ana ________________________________ From: cabraljennifer30 <f4i_girl@...> rheumatic Sent: Thu, October 29, 2009 5:48:16 AM Subject: rheumatic Polymyositis Hello, I'm new here. My mom was diagnosed with polymyositis in 1994. The past year her condition has worsened and she's lost a lot of weight. She's been on prednisone all this time. She was in the hospital for the last 17 days due to progressive weakness, mal-nutrition and dysphagia. I heard about this antibiotic therapy treatment and I am curious as to how it works. I tried emailing Ethel, but no response...i' m wondering if I have the wrong email address. Any information would be great. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 Hi , I was diagnosed with Polymyositis in 2004 after surviving lung distress. I have been on prednisone all this time. The doctors wanted me to try methotrexate but the side effects included lung damage, obviously not an option for me. I stumbled upon the antibiotic protocol and read the book The Road Back. Recently, I was tested to confirm if my current condition is actually a relapse of Lyme Disease. I had the illness 24 years ago. Well, it is and I am being treated very agressively. Now I amfeeling so much better. Do your research. Read the book. Find a good doctor. Get tested for Lyme Disease. Stay informed. Fight for your life. Plainfield, NJ > > Does anyone have this. I was just diagnoised and have no clue. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 a friend of mine has it.. about 6 yrs ago they said she had about 6 mos to be in a nursing home,.. but she is still living independantly. Ive tried to get her to ask for antibiotics, but I dont think she has. kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2009 Report Share Posted October 30, 2009 Check out the stories on the medical histories section of www.rheumatic.org for people with polymyositis that have used the antibiotic therapy as outlined in the FAQ on www.rheumatic.org to put their disease in remission. rheumatic Polymyositis > Does anyone have this. I was just diagnoised and have no clue. > > > > ------------------------------------ > > To unsubscribe, email: rheumatic-unsubscribe@...! Groups > Links > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2010 Report Share Posted August 23, 2010 Has anyone had experience with using Chinese Herbs to treat polymysitis? Quote Link to comment Share on other sites More sharing options...
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