Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 , wow, all those synthetic steroids...you may be experiencing withdrawl from them all...I'm sorry you have had such a time--if you are still on steroids with the cream, testing would be useless...sounds like you have been feeling great on HC--call Dr.Dach's office and see if they treat RT3--he is very forward thinking..www.drdach.com El > > I need some help figuring out what do to next in my treatment. Over the last six weeks I saw an incredible improvement in my health - amazing, really. I believe the improvement was due to several cortisol/steroids prescribed for a severe allergic reaction - but I'm no longer on those meds. Since last Friday I can feel my awful symptoms coming back. > > Here's the background: > > In early January I started on T3-only therapy to clear high RT3. (My RT3 was at 434 with a ratio of 8.5.) I'm up to a daily dose of 125 mcg Cytomel, taken in five doses of 25 mcg each. > > I did my saliva cortisol test in late February. Morning cortisol was at around 4.5 (mid-way in the range), dropping through the day until it was below normal at the last sample of the day. The ZRT report indicated adrenal fatigue and low adrenal reserve. I tried to get HC from my doc without success (he wanted me to take Phentermine and Topamax...). > > I had surgery on March 9 and was given a stress dose of cortisol by the anesthesiologist (thanks to advice I got on the adrenals board). Wow, what a difference. I came out of surgery feeling better than I had felt in months, in spite of the fact that I had just experienced major surgery. > > Then... I had a severe allergic reaction to my surgical compression garment, which I have to wear 24/7 for several weeks. My doc prescribed a Medrol dose pack, followed by a second dose pack. He also prescribed Triamcinolone Acetonide cream that was rubbed over 75% of my body for nearly 2 weeks - I understand this cream is 4x stronger than HC cream. > > Then I had an episode of what was thought to be sun poisoning. The doc gave me a steroid (cortisol) shot. > > Through all of this, I found myself feeling completely WELL! No more pain, no fatigue, no brain fog. I lost 25 pounds. I felt great. > > It has now been about 2 weeks since the steroid shot. On Friday I realized my ankles and knees were hurting. By Saturday I realized that it was hard to climb the stairs. By Sunday I was fatigued, had no appetite, didn't feel ready for bed until around 4 a.m. each night, and gained five pounds. I can feel my hypo symptoms coming back with a vengeance, and frankly I'm scared. I've tried using the Triamcinolone Acetonide cream in doses throughout the day and I've continued my T3 meds, but I'm still falling backwards. > > I see my endo tomorrow (Wednesday) morning. > > What do I need at this point? Do I need a prescription for cortisol? Do I need to do Isocort? Do I need to just continue the cream I'm on and start bumping my T3 dose again? > > I really don't want to fall back into the darkness where I was before my surgery. Any help that you can give would be a gift from heaven for me. > > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 The only way I cna help with what oyu need is fr you to go 2 weeks wihtout ANY steroid and redo a saliva test. BUT form what I have seenin the past, wiht already weak adrenals then several HEFTY doses of strong steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here is a steroid converiosn tool, btu it says it si 5 times stronger than HC btu I have seen it listed as even stronger than that depoending on absorption. http://www.globalrph.com/steroid.cgi At any rate you have been on hefty doses of steroids and as they wear down you are havign allergies show up, a sure sign of adrenals that crashed from the high steroid dosing. Now you nee dot go on steroids until they can regain strength or a LONG slow taper. Basically this is what we do to fix adrnals a taper that can last a couple years. -- http://nthadrenalsweb.org/ http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/ http://faqhelp.webs.com/ http://health.groups.yahoo.com/group/RT3_T3/ http://www.thyroid-rt3.com/ http://groups.yahoo.com/group/HypoPets/ http://www.stopthethyroidmadness.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Thanks for your response, . Just to clarify, I wasn't taking any steroids before I had the allergic reactions. The steroids were prescribed to treat the allergic reactions, and the rashes went away with the treatment. I completed the Canary Club diurnal cortisol saliva test on 2/23 (surgery was on 3/9). My results then were as follows: Morning Cortisol - 4.6 (range 3.7 - 9.5) Noon Cortisol - 1.3 (range 1.2 - 3.0) Evening Cortisol - 0.6 (range 0.6 - 1.9) Night Cortisol - 0.1 (range 0.4 - 1.0) I read in 's "Adrenal Fatigue" book last night about steroids and cortisol weakening adrenals, so I get what you're saying about that. I had no idea. You say, "Now you nee dot go on steroids until they can regain strength or a LONG slow taper." How do I do this? My endo won't prescribe steroids. He wants me to do a Phentermine/Topamax combination to "make my brain tell my adrenals to make cortisol." Any thoughts? Do I still need the re-test considering this new info? Thanks again, Valarie. Subject: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please!To: RT3_T3 Date: Wednesday, April 21, 2010, 7:14 AM The only way I cna help with what oyu need is fr you to go 2 weeks wihtout ANY steroid and redo a saliva test. BUT form what I have seenin the past, wiht already weak adrenals then several HEFTY doses of strong steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here is a steroid converiosn tool, btu it says it si 5 times stronger than HC btu I have seen it listed as even stronger than that depoending on absorption.http://www.globalrp h.com/steroid. cgiAt any rate you have been on hefty doses of steroids and as they wear down you are havign allergies show up, a sure sign of adrenals that crashed from the high steroid dosing. Now you nee dot go on steroids until they can regain strength or a LONG slow taper. Basically this is what we do to fix adrnals a taper that can last a couple years.-- http://nthadrenalsw eb.org/http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/http://faqhelp. webs.com/http://health. groups.yahoo. com/group/ RT3_T3/http://www.thyroid- rt3.com/http://groups. yahoo.com/ group/HypoPets/http://www.stopthet hyroidmadness. com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Did the doc say how the heck those meds were supposed to make your adrenals work again? I looked them up and I'm clueless on that one. If the steroids suppressed your adrenals (and those hefty doses probably did), you have to wean off or get very sick, which you are already experiencing. I know this is supposed to be mod week off for adrenal stuff, so I'm not sure if Val will get to this right away. I just wanted to offer support. Given your initial saliva labs and the fact you felt better on steroids, you probably needed to be on HC anyway. But I am not qualified to say how much or what dosing based on your results. To go on steroids without your doctor's help, you can try HC cream (OTC) but HC online from sources, or order Isocort and just go by assumption one pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take given that you were on all those steroids. But you could at least start with the 20 mg dosing until someone else helps out. Hang in there!! > > > > Subject: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please! > To: RT3_T3 > Date: Wednesday, April 21, 2010, 7:14 AM > > >  > > > > The only way I cna help with what oyu need is fr you to go 2 weeks > wihtout ANY steroid and redo a saliva test. BUT form what I have seenin > the past, wiht already weak adrenals then several HEFTY doses of strong > steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here > is a steroid converiosn tool, btu it says it si 5 times stronger than HC > btu I have seen it listed as even stronger than that depoending on > absorption. > http://www.globalrp h.com/steroid. cgi > At any rate you have been on hefty doses of steroids and as they wear > down you are havign allergies show up, a sure sign of adrenals that > crashed from the high steroid dosing. Now you nee dot go on steroids > until they can regain strength or a LONG slow taper. Basically this is > what we do to fix adrnals a taper that can last a couple years. > > -- > > http://nthadrenalsw eb.org/ > http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ > http://faqhelp. webs.com/ > > http://health. groups.yahoo. com/group/ RT3_T3/ > http://www.thyroid- rt3.com/ > > http://groups. yahoo.com/ group/HypoPets/ > http://www.stopthet hyroidmadness. com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Did the doc say how the heck those meds were supposed to make your adrenals work again? I looked them up and I'm clueless on that one. If the steroids suppressed your adrenals (and those hefty doses probably did), you have to wean off or get very sick, which you are already experiencing. I know this is supposed to be mod week off for adrenal stuff, so I'm not sure if Val will get to this right away. I just wanted to offer support. Given your initial saliva labs and the fact you felt better on steroids, you probably needed to be on HC anyway. But I am not qualified to say how much or what dosing based on your results. To go on steroids without your doctor's help, you can try HC cream (OTC) but HC online from sources, or order Isocort and just go by assumption one pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take given that you were on all those steroids. But you could at least start with the 20 mg dosing until someone else helps out. Hang in there!! > > > > Subject: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please! > To: RT3_T3 > Date: Wednesday, April 21, 2010, 7:14 AM > > >  > > > > The only way I cna help with what oyu need is fr you to go 2 weeks > wihtout ANY steroid and redo a saliva test. BUT form what I have seenin > the past, wiht already weak adrenals then several HEFTY doses of strong > steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here > is a steroid converiosn tool, btu it says it si 5 times stronger than HC > btu I have seen it listed as even stronger than that depoending on > absorption. > http://www.globalrp h.com/steroid. cgi > At any rate you have been on hefty doses of steroids and as they wear > down you are havign allergies show up, a sure sign of adrenals that > crashed from the high steroid dosing. Now you nee dot go on steroids > until they can regain strength or a LONG slow taper. Basically this is > what we do to fix adrnals a taper that can last a couple years. > > -- > > http://nthadrenalsw eb.org/ > http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ > http://faqhelp. webs.com/ > > http://health. groups.yahoo. com/group/ RT3_T3/ > http://www.thyroid- rt3.com/ > > http://groups. yahoo.com/ group/HypoPets/ > http://www.stopthet hyroidmadness. com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Did the doc say how the heck those meds were supposed to make your adrenals work again? I looked them up and I'm clueless on that one. If the steroids suppressed your adrenals (and those hefty doses probably did), you have to wean off or get very sick, which you are already experiencing. I know this is supposed to be mod week off for adrenal stuff, so I'm not sure if Val will get to this right away. I just wanted to offer support. Given your initial saliva labs and the fact you felt better on steroids, you probably needed to be on HC anyway. But I am not qualified to say how much or what dosing based on your results. To go on steroids without your doctor's help, you can try HC cream (OTC) but HC online from sources, or order Isocort and just go by assumption one pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take given that you were on all those steroids. But you could at least start with the 20 mg dosing until someone else helps out. Hang in there!! > > > > Subject: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please! > To: RT3_T3 > Date: Wednesday, April 21, 2010, 7:14 AM > > >  > > > > The only way I cna help with what oyu need is fr you to go 2 weeks > wihtout ANY steroid and redo a saliva test. BUT form what I have seenin > the past, wiht already weak adrenals then several HEFTY doses of strong > steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here > is a steroid converiosn tool, btu it says it si 5 times stronger than HC > btu I have seen it listed as even stronger than that depoending on > absorption. > http://www.globalrp h.com/steroid. cgi > At any rate you have been on hefty doses of steroids and as they wear > down you are havign allergies show up, a sure sign of adrenals that > crashed from the high steroid dosing. Now you nee dot go on steroids > until they can regain strength or a LONG slow taper. Basically this is > what we do to fix adrnals a taper that can last a couple years. > > -- > > http://nthadrenalsw eb.org/ > http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ > http://faqhelp. webs.com/ > > http://health. groups.yahoo. com/group/ RT3_T3/ > http://www.thyroid- rt3.com/ > > http://groups. yahoo.com/ group/HypoPets/ > http://www.stopthet hyroidmadness. com/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 you said: " I read in 's " Adrenal Fatigue " book last night about steroids and cortisol weakening adrenals, " I remark: It doesnt actually weaken the adrenals...it just sort of puts them to sleep, so to speak....and your body got used to the higher dose you were taking...and when you stopped suddenly...your adrenals were unable to wake up completely. I feel that Dr did you a dis-service by cutting you off suddenly without tapering off slowly. probably out of his/her ignorance? nevertheless you probably DO need HC...but how to get it ASAP? i dont know unless you find one of those smart in-the-know type of drs nearby who can help you??? like the other person said, in a pinch you can drop by a pharmacy and get OTC hydrocortisone creame to slather on your skin so it gets absorbed....but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONT REMEMBER HOW MUCH!!!! C. Hunter > Did the doc say how the heck those meds were supposed to make your > adrenals work again? I looked them up and I'm clueless on that one. > > If the steroids suppressed your adrenals (and those hefty doses probably > did), you have to wean off or get very sick, which you are already > experiencing. > > I know this is supposed to be mod week off for adrenal stuff, so I'm not > sure if Val will get to this right away. I just wanted to offer support. > Given your initial saliva labs and the fact you felt better on steroids, > you probably needed to be on HC anyway. But I am not qualified to say how > much or what dosing based on your results. > > To go on steroids without your doctor's help, you can try HC cream (OTC) > but HC online from sources, or order Isocort and just go by assumption one > pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take > given that you were on all those steroids. But you could at least start > with the 20 mg dosing until someone else helps out. > > Hang in there!! > > > > >> >> >> >> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >> quickly. Help please! >> To: RT3_T3 >> Date: Wednesday, April 21, 2010, 7:14 AM >> >> >>  >> >> >> >> The only way I cna help with what oyu need is fr you to go 2 weeks >> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >> the past, wiht already weak adrenals then several HEFTY doses of strong >> steoids, and triamcinolone is WAY strogner t > han 4 times cortiosl, Here >> is a steroid converiosn tool, btu it says it si 5 times stronger than HC >> btu I have seen it listed as even stronger than that depoending on >> absorption. >> http://www.globalrp h.com/steroid. cgi >> At any rate you have been on hefty doses of steroids and as they wear >> down you are havign allergies show up, a sure sign of adrenals that >> crashed from the high steroid dosing. Now you nee dot go on steroids >> until they can regain strength or a LONG slow taper. Basically this is >> what we do to fix adrnals a taper that can last a couple years. >> >> -- >> >> http://nthadrenalsw eb.org/ >> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ >> http://faqhelp. webs.com/ >> >> http://health. groups.yahoo. com/group/ RT3_T3/ >> http://www.thyroid- rt3.com/ >> >> http://groups. yahoo.com/ group/HypoPets/ >> http://www.stopthet hyroidmadness. com/ >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 you said: " I read in 's " Adrenal Fatigue " book last night about steroids and cortisol weakening adrenals, " I remark: It doesnt actually weaken the adrenals...it just sort of puts them to sleep, so to speak....and your body got used to the higher dose you were taking...and when you stopped suddenly...your adrenals were unable to wake up completely. I feel that Dr did you a dis-service by cutting you off suddenly without tapering off slowly. probably out of his/her ignorance? nevertheless you probably DO need HC...but how to get it ASAP? i dont know unless you find one of those smart in-the-know type of drs nearby who can help you??? like the other person said, in a pinch you can drop by a pharmacy and get OTC hydrocortisone creame to slather on your skin so it gets absorbed....but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONT REMEMBER HOW MUCH!!!! C. Hunter > Did the doc say how the heck those meds were supposed to make your > adrenals work again? I looked them up and I'm clueless on that one. > > If the steroids suppressed your adrenals (and those hefty doses probably > did), you have to wean off or get very sick, which you are already > experiencing. > > I know this is supposed to be mod week off for adrenal stuff, so I'm not > sure if Val will get to this right away. I just wanted to offer support. > Given your initial saliva labs and the fact you felt better on steroids, > you probably needed to be on HC anyway. But I am not qualified to say how > much or what dosing based on your results. > > To go on steroids without your doctor's help, you can try HC cream (OTC) > but HC online from sources, or order Isocort and just go by assumption one > pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take > given that you were on all those steroids. But you could at least start > with the 20 mg dosing until someone else helps out. > > Hang in there!! > > > > >> >> >> >> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >> quickly. Help please! >> To: RT3_T3 >> Date: Wednesday, April 21, 2010, 7:14 AM >> >> >>  >> >> >> >> The only way I cna help with what oyu need is fr you to go 2 weeks >> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >> the past, wiht already weak adrenals then several HEFTY doses of strong >> steoids, and triamcinolone is WAY strogner t > han 4 times cortiosl, Here >> is a steroid converiosn tool, btu it says it si 5 times stronger than HC >> btu I have seen it listed as even stronger than that depoending on >> absorption. >> http://www.globalrp h.com/steroid. cgi >> At any rate you have been on hefty doses of steroids and as they wear >> down you are havign allergies show up, a sure sign of adrenals that >> crashed from the high steroid dosing. Now you nee dot go on steroids >> until they can regain strength or a LONG slow taper. Basically this is >> what we do to fix adrnals a taper that can last a couple years. >> >> -- >> >> http://nthadrenalsw eb.org/ >> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ >> http://faqhelp. webs.com/ >> >> http://health. groups.yahoo. com/group/ RT3_T3/ >> http://www.thyroid- rt3.com/ >> >> http://groups. yahoo.com/ group/HypoPets/ >> http://www.stopthet hyroidmadness. com/ >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 you said: " I read in 's " Adrenal Fatigue " book last night about steroids and cortisol weakening adrenals, " I remark: It doesnt actually weaken the adrenals...it just sort of puts them to sleep, so to speak....and your body got used to the higher dose you were taking...and when you stopped suddenly...your adrenals were unable to wake up completely. I feel that Dr did you a dis-service by cutting you off suddenly without tapering off slowly. probably out of his/her ignorance? nevertheless you probably DO need HC...but how to get it ASAP? i dont know unless you find one of those smart in-the-know type of drs nearby who can help you??? like the other person said, in a pinch you can drop by a pharmacy and get OTC hydrocortisone creame to slather on your skin so it gets absorbed....but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONT REMEMBER HOW MUCH!!!! C. Hunter > Did the doc say how the heck those meds were supposed to make your > adrenals work again? I looked them up and I'm clueless on that one. > > If the steroids suppressed your adrenals (and those hefty doses probably > did), you have to wean off or get very sick, which you are already > experiencing. > > I know this is supposed to be mod week off for adrenal stuff, so I'm not > sure if Val will get to this right away. I just wanted to offer support. > Given your initial saliva labs and the fact you felt better on steroids, > you probably needed to be on HC anyway. But I am not qualified to say how > much or what dosing based on your results. > > To go on steroids without your doctor's help, you can try HC cream (OTC) > but HC online from sources, or order Isocort and just go by assumption one > pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take > given that you were on all those steroids. But you could at least start > with the 20 mg dosing until someone else helps out. > > Hang in there!! > > > > >> >> >> >> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >> quickly. Help please! >> To: RT3_T3 >> Date: Wednesday, April 21, 2010, 7:14 AM >> >> >>  >> >> >> >> The only way I cna help with what oyu need is fr you to go 2 weeks >> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >> the past, wiht already weak adrenals then several HEFTY doses of strong >> steoids, and triamcinolone is WAY strogner t > han 4 times cortiosl, Here >> is a steroid converiosn tool, btu it says it si 5 times stronger than HC >> btu I have seen it listed as even stronger than that depoending on >> absorption. >> http://www.globalrp h.com/steroid. cgi >> At any rate you have been on hefty doses of steroids and as they wear >> down you are havign allergies show up, a sure sign of adrenals that >> crashed from the high steroid dosing. Now you nee dot go on steroids >> until they can regain strength or a LONG slow taper. Basically this is >> what we do to fix adrnals a taper that can last a couple years. >> >> -- >> >> http://nthadrenalsw eb.org/ >> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ >> http://faqhelp. webs.com/ >> >> http://health. groups.yahoo. com/group/ RT3_T3/ >> http://www.thyroid- rt3.com/ >> >> http://groups. yahoo.com/ group/HypoPets/ >> http://www.stopthet hyroidmadness. com/ >> > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 The steroids weren't prescribed to help my adrenals. I had surgery in March and had to wear a post-surgical compression garment. I had a severe allergic reaction to the garment and was put on the steroids to help recover from that reaction. My anesthesiologist did stress-dose me with cortisol immediately before surgery because of my low-cortisol saliva test results, but otherwise nothing was done due to the adrenals/cortisol levels. I was so greatly surprised, though, to discover how great I felt after taking the steroids. It was like I was completely healed. I can't remember feeling that way in a LONG time. Now that I'm off of the steroids, I don't really feel seriously sick -- I just can feel my hypo symptoms coming back and want to stop them before they start taking over my life again. I'm sure you know how that can be. :-) Val said (on the RT3 board) that I needed to go back on steroids and wean off of them slowly (over a 2-year period). But I'm still not sure if she said that because she thought I had been taking the steroids so long that they caused the allergic reaction, rather than taking them to treat the allergic reaction -- or if it even matters. I do have several refills of triamcinolone acetonide steroid cream remaining, but I have no idea how much to take or how to do it. I'm somewhat lost at this point. I read on STTM that the Isocort levels of cortisol are questionable. I definitely appreciate the support and your message. I'm keeping my fingers crossed that Val or someone else reads my message and offers some help. My doc is clueless when it comes to adrenals. He saw my test results and prescribed Topamax and Phentermine, saying the combination would make my brain force my adrenals to make cortisol -- what I like to call the "sledgehammer approach." Thanks again, Subject: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please!To: RT3_T3 Date: Wednesday, April 21, 2010, 5:59 PM Did the doc say how the heck those meds were supposed to make your adrenals work again? I looked them up and I'm clueless on that one.If the steroids suppressed your adrenals (and those hefty doses probably did), you have to wean off or get very sick, which you are already experiencing. I know this is supposed to be mod week off for adrenal stuff, so I'm not sure if Val will get to this right away. I just wanted to offer support. Given your initial saliva labs and the fact you felt better on steroids, you probably needed to be on HC anyway. But I am not qualified to say how much or what dosing based on your results. To go on steroids without your doctor's help, you can try HC cream (OTC) but HC online from sources, or order Isocort and just go by assumption one pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take given that you were on all those steroids. But you could at least start with the 20 mg dosing until someone else helps out.Hang in there!!> > > From: <artisticgroomer@ ...>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please!> To: RT3_T3yahoogroups (DOT) com> Date: Wednesday, April 21, 2010, 7:14 AM> > > Â > > > > The only way I cna help with what oyu need is fr you to go 2 weeks > wihtout ANY steroid and redo a saliva test. BUT form what I have seenin > the past, wiht already weak adrenals then several HEFTY doses of strong > steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here > is a steroid converiosn tool, btu it says it si 5 times stronger than HC > btu I have seen it listed as even stronger than that depoending on > absorption.> http://www.globalrp h.com/steroid. cgi> At any rate you have been on hefty doses of steroids and as they wear > down you are havign allergies show up, a sure sign of adrenals that > crashed from the high steroid dosing. Now you nee dot go on steroids > until they can regain strength or a LONG slow taper. Basically this is > what we do to fix adrnals a taper that can last a couple years.> > -- > > http://nthadrenalsw eb.org/> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/> http://faqhelp. webs.com/> > http://health. groups.yahoo. com/group/ RT3_T3/> http://www.thyroid- rt3.com/> > http://groups. yahoo.com/ group/HypoPets/> http://www.stopthet hyroidmadness. com/> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 : you saidMy doc is clueless when it comes to adrenals. He saw my test results and prescribed Topamax and Phentermine, saying the combination would make my brain force my adrenals to make cortisol -- what I like to call the " sledgehammer approach. " I think that is like having a boat that you need to sail, and someone giving you a bucket to bail out water ....because it has a big hole in the bottom...... \ when they should have given you a PATCH ......to repair the hole .....before you took it sailing!!! you doctor is trying to FORCE the brain to FORCE the adrenals to make and secrete cortisone...when the " treatment of choice " for s is to supply the missing hormone....HC. the treatment of choice for bad diabetes is to also provide the missing hormone(insulin) regularly. WHY TRY TO FORCE THE BRAIN ...TO FORCE... THE ADRENALS...WHEN THE DOC KNOWS THE ADRENALS MAY BE TOO " WHIPPED " ....LIKE THE " TIRED HORSE " ...TO EVEN SECRETE ENOUGH????? sure the tired gorse, when he's whipped hard enough....will run faster for a while...but if he's art the end of his rope...he could soon just DROP DEAD !!! why take that kind of a chance??? When it is so so much more gentle.....and sensible to just supply a small amount of HC to be an adjunct to whatever amount the adrenals may be able to squeek by and muster??? C. Hunter > The steroids weren't prescribed to help my adrenals. I had surgery in > March and had to wear a post-surgical compression garment. I had a severe > allergic reaction to the garment and was put on the steroids to help > recover from that reaction. >  > My anesthesiologist did stress-dose me with cortisol immediately before > surgery because of my low-cortisol saliva test results, but otherwise > nothing was done due to the adrenals/cortisol levels. >  > I was so greatly surprised, though, to discover how great I felt after > taking the steroids. It was like I was completely healed. I can't remember > feeling that way in a LONG time. Now that I'm off of the steroids, I don't > really feel seriously sick -- I just can feel my hypo symptoms coming back > and want to stop them before they start taking over my life again. I'm > sure you know how that can be. :-) >  > Val said (on the RT3 board) that I needed to go back on steroids and wean > off of them slowly (over a 2-year period). But I'm still not sure if she > said that because she thought I had been taking the steroids so long that > they caused the allergic reaction, rather than taking them to treat the > allergic reaction -- or if it even matters. >  > I do have several refills of triamcinolone acetonide steroid cream > remaining, but I have no idea how much to take or how to do it. I'm > somewhat lost at this point. I read on STTM that the Isocort levels of > cortisol are questionable. >  > I definitely appreciate the support and your message. I'm keeping my > fingers crossed that Val or someone else reads my message and offers some > help. My doc is clueless when it comes to adrenals. He saw my test results > and prescribed Topamax and Phentermine, saying the combination would make > my brain force my adrenals to make cortisol -- what I like to call the > " sledgehammer approach. " >  > Thanks again, > >  >  > > > > > > > Subject: Re: Cortisol/Medrol - WOW - now sliding backwards > quickly. Help please! > To: RT3_T3 > Date: Wednesday, April 21, 2010, 5:59 PM > > >  > > > > Did the doc say how the heck those meds were supposed to make your > adrenals work again? I looked them up and I'm clueless on that one. > > If the steroids suppressed your adrenals (and those hefty doses probably > did), you have to wean off or get very sick, which you are already > experiencing. > > I know this is supposed to be mod week off for adrenal stuff, so I'm not > sure if Val will get to this right away. I just wanted to offer support. > Given your initial saliva labs and the fact you felt better on steroids, > you probably needed to be on HC anyway. But I am not qualified to say how > much or what dosing based on your results. > > To go on steroids without your doctor's help, you can try HC cream (OTC) > but HC online from sources, or order Isocort and just go by assumption one > pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take > given that you were on all those steroids. But you could at least start > with the 20 mg dosing until someone else helps out. > > Hang in there!! > > >> >> >> From: <artisticgroomer@ ...> >> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >> quickly. Help please! >> To: RT3_T3yahoogroups (DOT) com >> Date: Wednesday, April 21, 2010, 7:14 AM >> >> >>  >> >> >> >> The only way I cna help with what oyu need is fr you to go 2 weeks >> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >> the past, wiht already weak adrenals then several HEFTY doses of strong >> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here >> is a steroid converiosn tool, btu it says it si 5 times stronger than HC >> btu I have seen it listed as even stronger than that depoending on >> absorption. >> http://www.globalrp h.com/steroid. cgi >> At any rate you have been on hefty doses of steroids and as they wear >> down you are havign allergies show up, a sure sign of adrenals that >> crashed from the high steroid dosing. Now you nee dot go on steroids >> until they can regain strength or a LONG slow taper. Basically this is >> what we do to fix adrnals a taper that can last a couple years. >> >> -- >> >> http://nthadrenalsw eb.org/ >> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ >> http://faqhelp. webs.com/ >> >> http://health. groups.yahoo. com/group/ RT3_T3/ >> http://www.thyroid- rt3.com/ >> >> http://groups. yahoo.com/ group/HypoPets/ >> http://www.stopthet hyroidmadness. com/ >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 : you saidMy doc is clueless when it comes to adrenals. He saw my test results and prescribed Topamax and Phentermine, saying the combination would make my brain force my adrenals to make cortisol -- what I like to call the " sledgehammer approach. " I think that is like having a boat that you need to sail, and someone giving you a bucket to bail out water ....because it has a big hole in the bottom...... \ when they should have given you a PATCH ......to repair the hole .....before you took it sailing!!! you doctor is trying to FORCE the brain to FORCE the adrenals to make and secrete cortisone...when the " treatment of choice " for s is to supply the missing hormone....HC. the treatment of choice for bad diabetes is to also provide the missing hormone(insulin) regularly. WHY TRY TO FORCE THE BRAIN ...TO FORCE... THE ADRENALS...WHEN THE DOC KNOWS THE ADRENALS MAY BE TOO " WHIPPED " ....LIKE THE " TIRED HORSE " ...TO EVEN SECRETE ENOUGH????? sure the tired gorse, when he's whipped hard enough....will run faster for a while...but if he's art the end of his rope...he could soon just DROP DEAD !!! why take that kind of a chance??? When it is so so much more gentle.....and sensible to just supply a small amount of HC to be an adjunct to whatever amount the adrenals may be able to squeek by and muster??? C. Hunter > The steroids weren't prescribed to help my adrenals. I had surgery in > March and had to wear a post-surgical compression garment. I had a severe > allergic reaction to the garment and was put on the steroids to help > recover from that reaction. >  > My anesthesiologist did stress-dose me with cortisol immediately before > surgery because of my low-cortisol saliva test results, but otherwise > nothing was done due to the adrenals/cortisol levels. >  > I was so greatly surprised, though, to discover how great I felt after > taking the steroids. It was like I was completely healed. I can't remember > feeling that way in a LONG time. Now that I'm off of the steroids, I don't > really feel seriously sick -- I just can feel my hypo symptoms coming back > and want to stop them before they start taking over my life again. I'm > sure you know how that can be. :-) >  > Val said (on the RT3 board) that I needed to go back on steroids and wean > off of them slowly (over a 2-year period). But I'm still not sure if she > said that because she thought I had been taking the steroids so long that > they caused the allergic reaction, rather than taking them to treat the > allergic reaction -- or if it even matters. >  > I do have several refills of triamcinolone acetonide steroid cream > remaining, but I have no idea how much to take or how to do it. I'm > somewhat lost at this point. I read on STTM that the Isocort levels of > cortisol are questionable. >  > I definitely appreciate the support and your message. I'm keeping my > fingers crossed that Val or someone else reads my message and offers some > help. My doc is clueless when it comes to adrenals. He saw my test results > and prescribed Topamax and Phentermine, saying the combination would make > my brain force my adrenals to make cortisol -- what I like to call the > " sledgehammer approach. " >  > Thanks again, > >  >  > > > > > > > Subject: Re: Cortisol/Medrol - WOW - now sliding backwards > quickly. Help please! > To: RT3_T3 > Date: Wednesday, April 21, 2010, 5:59 PM > > >  > > > > Did the doc say how the heck those meds were supposed to make your > adrenals work again? I looked them up and I'm clueless on that one. > > If the steroids suppressed your adrenals (and those hefty doses probably > did), you have to wean off or get very sick, which you are already > experiencing. > > I know this is supposed to be mod week off for adrenal stuff, so I'm not > sure if Val will get to this right away. I just wanted to offer support. > Given your initial saliva labs and the fact you felt better on steroids, > you probably needed to be on HC anyway. But I am not qualified to say how > much or what dosing based on your results. > > To go on steroids without your doctor's help, you can try HC cream (OTC) > but HC online from sources, or order Isocort and just go by assumption one > pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take > given that you were on all those steroids. But you could at least start > with the 20 mg dosing until someone else helps out. > > Hang in there!! > > >> >> >> From: <artisticgroomer@ ...> >> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >> quickly. Help please! >> To: RT3_T3yahoogroups (DOT) com >> Date: Wednesday, April 21, 2010, 7:14 AM >> >> >>  >> >> >> >> The only way I cna help with what oyu need is fr you to go 2 weeks >> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >> the past, wiht already weak adrenals then several HEFTY doses of strong >> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here >> is a steroid converiosn tool, btu it says it si 5 times stronger than HC >> btu I have seen it listed as even stronger than that depoending on >> absorption. >> http://www.globalrp h.com/steroid. cgi >> At any rate you have been on hefty doses of steroids and as they wear >> down you are havign allergies show up, a sure sign of adrenals that >> crashed from the high steroid dosing. Now you nee dot go on steroids >> until they can regain strength or a LONG slow taper. Basically this is >> what we do to fix adrnals a taper that can last a couple years. >> >> -- >> >> http://nthadrenalsw eb.org/ >> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ >> http://faqhelp. webs.com/ >> >> http://health. groups.yahoo. com/group/ RT3_T3/ >> http://www.thyroid- rt3.com/ >> >> http://groups. yahoo.com/ group/HypoPets/ >> http://www.stopthet hyroidmadness. com/ >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 : you saidMy doc is clueless when it comes to adrenals. He saw my test results and prescribed Topamax and Phentermine, saying the combination would make my brain force my adrenals to make cortisol -- what I like to call the " sledgehammer approach. " I think that is like having a boat that you need to sail, and someone giving you a bucket to bail out water ....because it has a big hole in the bottom...... \ when they should have given you a PATCH ......to repair the hole .....before you took it sailing!!! you doctor is trying to FORCE the brain to FORCE the adrenals to make and secrete cortisone...when the " treatment of choice " for s is to supply the missing hormone....HC. the treatment of choice for bad diabetes is to also provide the missing hormone(insulin) regularly. WHY TRY TO FORCE THE BRAIN ...TO FORCE... THE ADRENALS...WHEN THE DOC KNOWS THE ADRENALS MAY BE TOO " WHIPPED " ....LIKE THE " TIRED HORSE " ...TO EVEN SECRETE ENOUGH????? sure the tired gorse, when he's whipped hard enough....will run faster for a while...but if he's art the end of his rope...he could soon just DROP DEAD !!! why take that kind of a chance??? When it is so so much more gentle.....and sensible to just supply a small amount of HC to be an adjunct to whatever amount the adrenals may be able to squeek by and muster??? C. Hunter > The steroids weren't prescribed to help my adrenals. I had surgery in > March and had to wear a post-surgical compression garment. I had a severe > allergic reaction to the garment and was put on the steroids to help > recover from that reaction. >  > My anesthesiologist did stress-dose me with cortisol immediately before > surgery because of my low-cortisol saliva test results, but otherwise > nothing was done due to the adrenals/cortisol levels. >  > I was so greatly surprised, though, to discover how great I felt after > taking the steroids. It was like I was completely healed. I can't remember > feeling that way in a LONG time. Now that I'm off of the steroids, I don't > really feel seriously sick -- I just can feel my hypo symptoms coming back > and want to stop them before they start taking over my life again. I'm > sure you know how that can be. :-) >  > Val said (on the RT3 board) that I needed to go back on steroids and wean > off of them slowly (over a 2-year period). But I'm still not sure if she > said that because she thought I had been taking the steroids so long that > they caused the allergic reaction, rather than taking them to treat the > allergic reaction -- or if it even matters. >  > I do have several refills of triamcinolone acetonide steroid cream > remaining, but I have no idea how much to take or how to do it. I'm > somewhat lost at this point. I read on STTM that the Isocort levels of > cortisol are questionable. >  > I definitely appreciate the support and your message. I'm keeping my > fingers crossed that Val or someone else reads my message and offers some > help. My doc is clueless when it comes to adrenals. He saw my test results > and prescribed Topamax and Phentermine, saying the combination would make > my brain force my adrenals to make cortisol -- what I like to call the > " sledgehammer approach. " >  > Thanks again, > >  >  > > > > > > > Subject: Re: Cortisol/Medrol - WOW - now sliding backwards > quickly. Help please! > To: RT3_T3 > Date: Wednesday, April 21, 2010, 5:59 PM > > >  > > > > Did the doc say how the heck those meds were supposed to make your > adrenals work again? I looked them up and I'm clueless on that one. > > If the steroids suppressed your adrenals (and those hefty doses probably > did), you have to wean off or get very sick, which you are already > experiencing. > > I know this is supposed to be mod week off for adrenal stuff, so I'm not > sure if Val will get to this right away. I just wanted to offer support. > Given your initial saliva labs and the fact you felt better on steroids, > you probably needed to be on HC anyway. But I am not qualified to say how > much or what dosing based on your results. > > To go on steroids without your doctor's help, you can try HC cream (OTC) > but HC online from sources, or order Isocort and just go by assumption one > pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take > given that you were on all those steroids. But you could at least start > with the 20 mg dosing until someone else helps out. > > Hang in there!! > > >> >> >> From: <artisticgroomer@ ...> >> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >> quickly. Help please! >> To: RT3_T3yahoogroups (DOT) com >> Date: Wednesday, April 21, 2010, 7:14 AM >> >> >>  >> >> >> >> The only way I cna help with what oyu need is fr you to go 2 weeks >> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >> the past, wiht already weak adrenals then several HEFTY doses of strong >> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here >> is a steroid converiosn tool, btu it says it si 5 times stronger than HC >> btu I have seen it listed as even stronger than that depoending on >> absorption. >> http://www.globalrp h.com/steroid. cgi >> At any rate you have been on hefty doses of steroids and as they wear >> down you are havign allergies show up, a sure sign of adrenals that >> crashed from the high steroid dosing. Now you nee dot go on steroids >> until they can regain strength or a LONG slow taper. Basically this is >> what we do to fix adrnals a taper that can last a couple years. >> >> -- >> >> http://nthadrenalsw eb.org/ >> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/ >> http://faqhelp. webs.com/ >> >> http://health. groups.yahoo. com/group/ RT3_T3/ >> http://www.thyroid- rt3.com/ >> >> http://groups. yahoo.com/ group/HypoPets/ >> http://www.stopthet hyroidmadness. com/ >> > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I think maybe there's a bit of confusion. My endo didn't prescribe the steroids. They weren't prescribed as a treatment for adrenal issues or low cortisol.My surgeon prescribed them to treat a severe allergic reaction that was impacting my healing. I had severe swelling and was covered in deep red welts over 75% of my body. I was only on the steroids for about 10 days - two Medrol dose packs. The cream was only used for about five days. The Medrol pack does taper you off from a high dose on day 1 to about 1/5 of the initial dose on day 5. Considering this, do you think my adrenals are in the condition you mention? I'm wondering if maybe I just did well on the cortisol and now need to figure out a way to continue it. Unfortunately I'm still looking for someone who understands and treats adrenal fatigue. From what I gather, there are no doctors in Georgia who can help with this?? The closest suggestion I've been given was a doctor in south Florida. Thanks again for your support, Carolyn. Subject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please!To: RT3_T3 Date: Wednesday, April 21, 2010, 6:13 PM you said:"I read in 's "Adrenal Fatigue" book last night about steroids andcortisol weakening adrenals,"I remark:It doesnt actually weaken the adrenals...it just sort of puts them tosleep, so to speak....and your body got used to the higher dose you weretaking...and when you stopped suddenly...your adrenals were unable to wakeup completely.I feel that Dr did you a dis-service by cutting you off suddenly withouttapering off slowly.probably out of his/her ignorance?nevertheless you probably DO need HC...but how to get it ASAP? i dont knowunless you find one of those smart in-the-know type of drs nearby who canhelp you???like the other person said, in a pinch you can drop by a pharmacy and getOTC hydrocortisone creame to slather on your skin so it getsabsorbed.... but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONTREMEMBER HOW MUCH!!!!C. Hunter> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>>>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>> Â >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner t> han 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I think maybe there's a bit of confusion. My endo didn't prescribe the steroids. They weren't prescribed as a treatment for adrenal issues or low cortisol.My surgeon prescribed them to treat a severe allergic reaction that was impacting my healing. I had severe swelling and was covered in deep red welts over 75% of my body. I was only on the steroids for about 10 days - two Medrol dose packs. The cream was only used for about five days. The Medrol pack does taper you off from a high dose on day 1 to about 1/5 of the initial dose on day 5. Considering this, do you think my adrenals are in the condition you mention? I'm wondering if maybe I just did well on the cortisol and now need to figure out a way to continue it. Unfortunately I'm still looking for someone who understands and treats adrenal fatigue. From what I gather, there are no doctors in Georgia who can help with this?? The closest suggestion I've been given was a doctor in south Florida. Thanks again for your support, Carolyn. Subject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please!To: RT3_T3 Date: Wednesday, April 21, 2010, 6:13 PM you said:"I read in 's "Adrenal Fatigue" book last night about steroids andcortisol weakening adrenals,"I remark:It doesnt actually weaken the adrenals...it just sort of puts them tosleep, so to speak....and your body got used to the higher dose you weretaking...and when you stopped suddenly...your adrenals were unable to wakeup completely.I feel that Dr did you a dis-service by cutting you off suddenly withouttapering off slowly.probably out of his/her ignorance?nevertheless you probably DO need HC...but how to get it ASAP? i dont knowunless you find one of those smart in-the-know type of drs nearby who canhelp you???like the other person said, in a pinch you can drop by a pharmacy and getOTC hydrocortisone creame to slather on your skin so it getsabsorbed.... but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONTREMEMBER HOW MUCH!!!!C. Hunter> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>>>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>> Â >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner t> han 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I think maybe there's a bit of confusion. My endo didn't prescribe the steroids. They weren't prescribed as a treatment for adrenal issues or low cortisol.My surgeon prescribed them to treat a severe allergic reaction that was impacting my healing. I had severe swelling and was covered in deep red welts over 75% of my body. I was only on the steroids for about 10 days - two Medrol dose packs. The cream was only used for about five days. The Medrol pack does taper you off from a high dose on day 1 to about 1/5 of the initial dose on day 5. Considering this, do you think my adrenals are in the condition you mention? I'm wondering if maybe I just did well on the cortisol and now need to figure out a way to continue it. Unfortunately I'm still looking for someone who understands and treats adrenal fatigue. From what I gather, there are no doctors in Georgia who can help with this?? The closest suggestion I've been given was a doctor in south Florida. Thanks again for your support, Carolyn. Subject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please!To: RT3_T3 Date: Wednesday, April 21, 2010, 6:13 PM you said:"I read in 's "Adrenal Fatigue" book last night about steroids andcortisol weakening adrenals,"I remark:It doesnt actually weaken the adrenals...it just sort of puts them tosleep, so to speak....and your body got used to the higher dose you weretaking...and when you stopped suddenly...your adrenals were unable to wakeup completely.I feel that Dr did you a dis-service by cutting you off suddenly withouttapering off slowly.probably out of his/her ignorance?nevertheless you probably DO need HC...but how to get it ASAP? i dont knowunless you find one of those smart in-the-know type of drs nearby who canhelp you???like the other person said, in a pinch you can drop by a pharmacy and getOTC hydrocortisone creame to slather on your skin so it getsabsorbed.... but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONTREMEMBER HOW MUCH!!!!C. Hunter> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>>>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>> Â >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner t> han 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I could be wrong....but...it's my guess that five days is NOT enough of a taper.... especially someone with pre-exhisting cortisol issues that caused the dr to give you the stuff in the first place....it's also my understanding that a LOT of various allergic reactions ....of many different types .....all have a root in adrenal insufficiency. C. Hunter > I think maybe there's a bit of confusion. >  > My endo didn't prescribe the steroids. They weren't prescribed as a > treatment for adrenal issues or low cortisol.My surgeon prescribed them to > treat a severe allergic reaction that was impacting my healing. I had > severe swelling and was covered in deep red welts over 75% of my body. >  > I was only on the steroids for about 10 days - two Medrol dose packs. The > cream was only used for about five days. The Medrol pack does taper you > off from a high dose on day 1 to about 1/5 of the initial dose on day 5. > Considering this, do you think my adrenals are in the condition you > mention? >  > I'm wondering if maybe I just did well on the cortisol and now need to > figure out a way to continue it. Unfortunately I'm still looking for > someone who understands and treats adrenal fatigue. From what I gather, > there are no doctors in Georgia who can help with this?? The closest > suggestion I've been given was a doctor in south Florida. >  > Thanks again for your support, Carolyn. >  > >  >  >  >  > > > > > > > Subject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards > quickly. Help please! > To: RT3_T3 > Date: Wednesday, April 21, 2010, 6:13 PM > > >  > > > > you said: > > " I read in 's " Adrenal Fatigue " book last night about steroids and > cortisol weakening adrenals, " > > I remark: > > It doesnt actually weaken the adrenals...it just sort of puts them to > sleep, so to speak....and your body got used to the higher dose you were > taking...and when you stopped suddenly...your adrenals were unable to wake > up completely. > > I feel that Dr did you a dis-service by cutting you off suddenly without > tapering off slowly. > > probably out of his/her ignorance? > > nevertheless you probably DO need HC...but how to get it ASAP? i dont know > unless you find one of those smart in-the-know type of drs nearby who can > help you??? > > like the other person said, in a pinch you can drop by a pharmacy and get > OTC hydrocortisone creame to slather on your skin so it gets > absorbed.... but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONT > REMEMBER HOW MUCH!!!! > > C. Hunter > >> Did the doc say how the heck those meds were supposed to make your >> adrenals work again? I looked them up and I'm clueless on that one. >> >> If the steroids suppressed your adrenals (and those hefty doses probably >> did), you have to wean off or get very sick, which you are already >> experiencing. >> >> I know this is supposed to be mod week off for adrenal stuff, so I'm not >> sure if Val will get to this right away. I just wanted to offer support. >> Given your initial saliva labs and the fact you felt better on steroids, >> you probably needed to be on HC anyway. But I am not qualified to say >> how >> much or what dosing based on your results. >> >> To go on steroids without your doctor's help, you can try HC cream (OTC) >> but HC online from sources, or order Isocort and just go by assumption >> one >> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you >> take >> given that you were on all those steroids. But you could at least start >> with the 20 mg dosing until someone else helps out. >> >> Hang in there!! >> >> >> >> >>> >>> >>> From: <artisticgroomer@ ...> >>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >>> quickly. Help please! >>> To: RT3_T3yahoogroups (DOT) com >>> Date: Wednesday, April 21, 2010, 7:14 AM >>> >>> >>>  >>> >>> >>> >>> The only way I cna help with what oyu need is fr you to go 2 weeks >>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >>> the past, wiht already weak adrenals then several HEFTY doses of strong >>> steoids, and triamcinolone is WAY strogner t >> han 4 times cortiosl, Here >>> is a steroid converiosn tool, btu it says it si 5 times stronger than >>> HC >>> btu I have seen it listed as even stronger than that depoending on >>> absorption. >>> http://www.globalrp h.com/steroid. cgi >>> At any rate you have been on hefty doses of steroids and as they wear >>> down you are havign allergies show up, a sure sign of adrenals that >>> crashed from the high steroid dosing. Now you nee dot go on steroids >>> until they can regain strength or a LONG slow taper. Basically this is >>> what we do to fix adrnals a taper that can last a couple years. >>> >>> -- >>> >>> http://nthadrenalsw eb.org/ >>> http://health. groups.yahoo. com/group/ NaturalThyroidHo >>> rmonesADRENALS/ >>> http://faqhelp. webs.com/ >>> >>> http://health. groups.yahoo. com/group/ RT3_T3/ >>> http://www.thyroid- rt3.com/ >>> >>> http://groups. yahoo.com/ group/HypoPets/ >>> http://www.stopthet hyroidmadness. com/ >>> >> >> > > > > > > > > > > =2 C. Hunter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I think the doctors aren't so worried about a taper if you are on steroids less than 2-3 weeks. That is my understanding from when my mother-in-law has needed it for gout. I self treat for my adrenals though so have no doc imput what-so-ever Kitty To: RT3_T3 Sent: Wed, April 21, 2010 6:35:26 PMSubject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please! I could be wrong....but. ..it's my guess that five days is NOT enough of ataper....especially someone with pre-exhisting cortisol issues that caused the drto give you the stuff in the first place....it' s also my understandingthat a LOT of various allergic reactions ....of many different types....all have a root in adrenal insufficiency.C. Hunter> I think maybe there's a bit of confusion.>  > My endo didn't prescribe the steroids. They weren't prescribed as a> treatment for adrenal issues or low cortisol.My surgeon prescribed them to> treat a severe allergic reaction that was impacting my healing. I had> severe swelling and was covered in deep red welts over 75% of my body.>  > I was only on the steroids for about 10 days - two Medrol dose packs. The> cream was only used for about five days. The Medrol pack does taper you> off from a high dose on day 1 to about 1/5 of the initial dose on day 5.> Considering this, do you think my adrenals are in the condition you> mention?>  > I'm wondering if maybe I just did well on the cortisol and now need to> figure out a way to continue it. Unfortunately I'm still looking for> someone who understands and treats adrenal fatigue. From what I gather,> there are no doctors in Georgia who can help with this?? The closest> suggestion I've been given was a doctor in south Florida.>  > Thanks again for your support, Carolyn.>  > >  >  >  >  >>> >>> From: carolyn Hunter <hunter10039@ infostations. com>> Subject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards> quickly. Help please!> To: RT3_T3yahoogroups (DOT) com> Date: Wednesday, April 21, 2010, 6:13 PM>>>  >>>> you said:>> "I read in 's "Adrenal Fatigue" book last night about steroids and> cortisol weakening adrenals,">> I remark:>> It doesnt actually weaken the adrenals...it just sort of puts them to> sleep, so to speak....and your body got used to the higher dose you were> taking...and when you stopped suddenly...your adrenals were unable to wake> up completely.>> I feel that Dr did you a dis-service by cutting you off suddenly without> tapering off slowly.>> probably out of his/her ignorance?>> nevertheless you probably DO need HC...but how to get it ASAP? i dont know> unless you find one of those smart in-the-know type of drs nearby who can> help you???>> like the other person said, in a pinch you can drop by a pharmacy and get> OTC hydrocortisone creame to slather on your skin so it gets> absorbed.... but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONT> REMEMBER HOW MUCH!!!!>> C. Hunter>>> Did the doc say how the heck those meds were supposed to make your>> adrenals work again? I looked them up and I'm clueless on that one.>>>> If the steroids suppressed your adrenals (and those hefty doses probably>> did), you have to wean off or get very sick, which you are already>> experiencing.>>>> I know this is supposed to be mod week off for adrenal stuff, so I'm not>> sure if Val will get to this right away. I just wanted to offer support.>> Given your initial saliva labs and the fact you felt better on steroids,>> you probably needed to be on HC anyway. But I am not qualified to say>> how>> much or what dosing based on your results.>>>> To go on steroids without your doctor's help, you can try HC cream (OTC)>> but HC online from sources, or order Isocort and just go by assumption>> one>> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you>> take>> given that you were on all those steroids. But you could at least start>> with the 20 mg dosing until someone else helps out.>>>> Hang in there!!>>>>>>>> >>>>>>>>> From: <artisticgroomer@ ...>>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>>> quickly. Help please!>>> To: RT3_T3yahoogroups (DOT) com>>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>>>>>  >>>>>>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>>> the past, wiht already weak adrenals then several HEFTY doses of strong>>> steoids, and triamcinolone is WAY strogner t>> han 4 times cortiosl, Here>>> is a steroid converiosn tool, btu it says it si 5 times stronger than>>> HC>>> btu I have seen it listed as even stronger than that depoending on>>> absorption.>>> http://www.globalrp h.com/steroid. cgi>>> At any rate you have been on hefty doses of steroids and as they wear>>> down you are havign allergies show up, a sure sign of adrenals that>>> crashed from the high steroid dosing. Now you nee dot go on steroids>>> until they can regain strength or a LONG slow taper. Basically this is>>> what we do to fix adrnals a taper that can last a couple years.>>>>>> -->>> >>> http://nthadrenalsw eb.org/>>> http://health. groups.yahoo. com/group/ NaturalThyroidHo>>> rmonesADRENALS/>>> http://faqhelp. webs.com/>>>>>> http://health. groups.yahoo. com/group/ RT3_T3/>>> http://www.thyroid- rt3.com/>>>>>> http://groups. yahoo.com/ group/HypoPets/>>> http://www.stopthet hyroidmadness. com/>>>>>>>>>>>>>>>>> =2C. Hunter Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 That is exactly what my doctors did. I was diagnosed with Narcolepsy a few years ago due to falling asleep everywhere <even drove into someone > severe, fatigue etc. It ended up being low cortisol and hypothyroid <Val was totally right!> but the doctors response was to put me on max doses of Ritalin. After about a 1 1/2 years on it my adrenals crashed totally and now I have the symptoms of 's. This all happened after having my thyroid removed and having a doctor tell me my adrenals were perfectly fine... But hey, amphetamines are MUCH safer than low dose steroids! Can anyone guess why I decided to self treat? Kitty To: RT3_T3 Sent: Wed, April 21, 2010 6:29:15 PMSubject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please! :you saidMy doc is clueless when it comes to adrenals. He saw my testresults and prescribed Topamax and Phentermine, saying the combinationwould make my brain force my adrenals to make cortisol -- what I like tocall the "sledgehammer approach."I think that is like having a boat that you need to sail,and someone giving you a bucket to bail out water ....because it has abig hole in the bottom......\when they should have given you a PATCH ......to repair the hole....before you took it sailing!!!you doctor is trying to FORCE the brain to FORCE the adrenals to make andsecrete cortisone... when the "treatment of choice" for s is tosupply the missing hormone....HC.the treatment of choice for bad diabetes is to also provide the missinghormone(insulin) regularly.WHY TRY TO FORCE THE BRAIN ...TO FORCE... THE ADRENALS...WHEN THE DOCKNOWS THE ADRENALS MAY BE TOO "WHIPPED"... .LIKE THE "TIRED HORSE"...TOEVEN SECRETE ENOUGH?????sure the tired gorse, when he's whipped hard enough....will run faster fora while...but if he's art the end of his rope...he could soon just DROPDEAD !!!why take that kind of a chance???When it is so so much more gentle.....and sensible to just supply a smallamount of HC to be an adjunct to whatever amount the adrenals may be ableto squeek by and muster???C. Hunter> The steroids weren't prescribed to help my adrenals. I had surgery in> March and had to wear a post-surgical compression garment. I had a severe> allergic reaction to the garment and was put on the steroids to help> recover from that reaction.>  > My anesthesiologist did stress-dose me with cortisol immediately before> surgery because of my low-cortisol saliva test results, but otherwise> nothing was done due to the adrenals/cortisol levels.>  > I was so greatly surprised, though, to discover how great I felt after> taking the steroids. It was like I was completely healed. I can't remember> feeling that way in a LONG time. Now that I'm off of the steroids, I don't> really feel seriously sick -- I just can feel my hypo symptoms coming back> and want to stop them before they start taking over my life again. I'm> sure you know how that can be. :-)>  > Val said (on the RT3 board) that I needed to go back on steroids and wean> off of them slowly (over a 2-year period). But I'm still not sure if she> said that because she thought I had been taking the steroids so long that> they caused the allergic reaction, rather than taking them to treat the> allergic reaction -- or if it even matters.>  > I do have several refills of triamcinolone acetonide steroid cream> remaining, but I have no idea how much to take or how to do it. I'm> somewhat lost at this point. I read on STTM that the Isocort levels of> cortisol are questionable.>  > I definitely appreciate the support and your message. I'm keeping my> fingers crossed that Val or someone else reads my message and offers some> help. My doc is clueless when it comes to adrenals. He saw my test results> and prescribed Topamax and Phentermine, saying the combination would make> my brain force my adrenals to make cortisol -- what I like to call the> "sledgehammer approach.">  > Thanks again,> >  >  >>> >>> From: keickholt13 <keickholt13@ comcast.net>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards> quickly. Help please!> To: RT3_T3yahoogroups (DOT) com> Date: Wednesday, April 21, 2010, 5:59 PM>>>  >>>> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>>  >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Cream dosing is writen out here http://faqhelp.webs.com/hchydrocortisone.htm but be aware some people don't absorb it well. Kitty To: RT3_T3 Sent: Wed, April 21, 2010 6:13:39 PMSubject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please! you said:"I read in 's "Adrenal Fatigue" book last night about steroids andcortisol weakening adrenals,"I remark:It doesnt actually weaken the adrenals...it just sort of puts them tosleep, so to speak....and your body got used to the higher dose you weretaking...and when you stopped suddenly...your adrenals were unable to wakeup completely.I feel that Dr did you a dis-service by cutting you off suddenly withouttapering off slowly.probably out of his/her ignorance?nevertheless you probably DO need HC...but how to get it ASAP? i dont knowunless you find one of those smart in-the-know type of drs nearby who canhelp you???like the other person said, in a pinch you can drop by a pharmacy and getOTC hydrocortisone creame to slather on your skin so it getsabsorbed.... but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONTREMEMBER HOW MUCH!!!!C. Hunter> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>>>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>> Â >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner t> han 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Cream dosing is writen out here http://faqhelp.webs.com/hchydrocortisone.htm but be aware some people don't absorb it well. Kitty To: RT3_T3 Sent: Wed, April 21, 2010 6:13:39 PMSubject: Re: Re: Cortisol/Medrol - WOW - now sliding backwards quickly. Help please! you said:"I read in 's "Adrenal Fatigue" book last night about steroids andcortisol weakening adrenals,"I remark:It doesnt actually weaken the adrenals...it just sort of puts them tosleep, so to speak....and your body got used to the higher dose you weretaking...and when you stopped suddenly...your adrenals were unable to wakeup completely.I feel that Dr did you a dis-service by cutting you off suddenly withouttapering off slowly.probably out of his/her ignorance?nevertheless you probably DO need HC...but how to get it ASAP? i dont knowunless you find one of those smart in-the-know type of drs nearby who canhelp you???like the other person said, in a pinch you can drop by a pharmacy and getOTC hydrocortisone creame to slather on your skin so it getsabsorbed.... but BE CAREFUL YOU SHOULD ONLY USE A TINY AMOUNT AND I DONTREMEMBER HOW MUCH!!!!C. Hunter> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>>>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>> Â >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner t> han 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Carolyn, I agree COMPLETELY! I like my doc in some ways - he has no problem prescribing dessicated thyroid, believes in supplementing treatment with vitamins and minerals, and is open to labs that I request. That's how I even learned about the RT3 -- I added it to my own lab slip. Topamax and Phentermine combined are the components of the latest diet drug under trails - called Qnexa. I haven't found any details that say the combo helps with adrenal fatigue. Since this doc likes to work "outside of the box," I think maybe he's just intrigued and wants to see the combo in action for himself. Just to clarify - I don't have s, just adrenal fatigue and low adrenal reserves per the diurnal cortisol test. The doc said he'd rather "fix the problem" with the drug combo rather than just give me HC to treat the low cortisol. I know -- he's completely on the wrong path. Unfortunately I've tried five different docs now to treat the adrenal fatigue and none of them were willing to even discuss the issue. On a side note - I just realized that I have access to prednolisone for my cat and could probably get some for myself..... I read a piece on adrenal treatment at http://featherstone.bravehost.com/thyroid/peatfieldadrenal.html that says "The disadvantage of hydrocortisone is that it needs to be given 4 times a day to be fully effective. Some patients do as well, or better, on he widely used synthetic derivative, prednisolone. The equivalent dose of 20 mg. of hydrocortisone id 5 mg. of prednisolone." I wonder if this might be a viable option if I can't get a doc to prescribe? Thanks again for your note and your support! It really helps. >>> From: keickholt13 <keickholt13@ comcast.net>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards> quickly. Help please!> To: RT3_T3yahoogroups (DOT) com> Date: Wednesday, April 21, 2010, 5:59 PM>>>  >>>> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>>  >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Carolyn, I agree COMPLETELY! I like my doc in some ways - he has no problem prescribing dessicated thyroid, believes in supplementing treatment with vitamins and minerals, and is open to labs that I request. That's how I even learned about the RT3 -- I added it to my own lab slip. Topamax and Phentermine combined are the components of the latest diet drug under trails - called Qnexa. I haven't found any details that say the combo helps with adrenal fatigue. Since this doc likes to work "outside of the box," I think maybe he's just intrigued and wants to see the combo in action for himself. Just to clarify - I don't have s, just adrenal fatigue and low adrenal reserves per the diurnal cortisol test. The doc said he'd rather "fix the problem" with the drug combo rather than just give me HC to treat the low cortisol. I know -- he's completely on the wrong path. Unfortunately I've tried five different docs now to treat the adrenal fatigue and none of them were willing to even discuss the issue. On a side note - I just realized that I have access to prednolisone for my cat and could probably get some for myself..... I read a piece on adrenal treatment at http://featherstone.bravehost.com/thyroid/peatfieldadrenal.html that says "The disadvantage of hydrocortisone is that it needs to be given 4 times a day to be fully effective. Some patients do as well, or better, on he widely used synthetic derivative, prednisolone. The equivalent dose of 20 mg. of hydrocortisone id 5 mg. of prednisolone." I wonder if this might be a viable option if I can't get a doc to prescribe? Thanks again for your note and your support! It really helps. >>> From: keickholt13 <keickholt13@ comcast.net>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards> quickly. Help please!> To: RT3_T3yahoogroups (DOT) com> Date: Wednesday, April 21, 2010, 5:59 PM>>>  >>>> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>>  >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 Carolyn, I agree COMPLETELY! I like my doc in some ways - he has no problem prescribing dessicated thyroid, believes in supplementing treatment with vitamins and minerals, and is open to labs that I request. That's how I even learned about the RT3 -- I added it to my own lab slip. Topamax and Phentermine combined are the components of the latest diet drug under trails - called Qnexa. I haven't found any details that say the combo helps with adrenal fatigue. Since this doc likes to work "outside of the box," I think maybe he's just intrigued and wants to see the combo in action for himself. Just to clarify - I don't have s, just adrenal fatigue and low adrenal reserves per the diurnal cortisol test. The doc said he'd rather "fix the problem" with the drug combo rather than just give me HC to treat the low cortisol. I know -- he's completely on the wrong path. Unfortunately I've tried five different docs now to treat the adrenal fatigue and none of them were willing to even discuss the issue. On a side note - I just realized that I have access to prednolisone for my cat and could probably get some for myself..... I read a piece on adrenal treatment at http://featherstone.bravehost.com/thyroid/peatfieldadrenal.html that says "The disadvantage of hydrocortisone is that it needs to be given 4 times a day to be fully effective. Some patients do as well, or better, on he widely used synthetic derivative, prednisolone. The equivalent dose of 20 mg. of hydrocortisone id 5 mg. of prednisolone." I wonder if this might be a viable option if I can't get a doc to prescribe? Thanks again for your note and your support! It really helps. >>> From: keickholt13 <keickholt13@ comcast.net>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards> quickly. Help please!> To: RT3_T3yahoogroups (DOT) com> Date: Wednesday, April 21, 2010, 5:59 PM>>>  >>>> Did the doc say how the heck those meds were supposed to make your> adrenals work again? I looked them up and I'm clueless on that one.>> If the steroids suppressed your adrenals (and those hefty doses probably> did), you have to wean off or get very sick, which you are already> experiencing.>> I know this is supposed to be mod week off for adrenal stuff, so I'm not> sure if Val will get to this right away. I just wanted to offer support.> Given your initial saliva labs and the fact you felt better on steroids,> you probably needed to be on HC anyway. But I am not qualified to say how> much or what dosing based on your results.>> To go on steroids without your doctor's help, you can try HC cream (OTC)> but HC online from sources, or order Isocort and just go by assumption one> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you take> given that you were on all those steroids. But you could at least start> with the 20 mg dosing until someone else helps out.>> Hang in there!!>> >>>>>> From: <artisticgroomer@ ...>>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards>> quickly. Help please!>> To: RT3_T3yahoogroups (DOT) com>> Date: Wednesday, April 21, 2010, 7:14 AM>>>>>>  >>>>>>>> The only way I cna help with what oyu need is fr you to go 2 weeks>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin>> the past, wiht already weak adrenals then several HEFTY doses of strong>> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here>> is a steroid converiosn tool, btu it says it si 5 times stronger than HC>> btu I have seen it listed as even stronger than that depoending on>> absorption.>> http://www.globalrp h.com/steroid. cgi>> At any rate you have been on hefty doses of steroids and as they wear>> down you are havign allergies show up, a sure sign of adrenals that>> crashed from the high steroid dosing. Now you nee dot go on steroids>> until they can regain strength or a LONG slow taper. Basically this is>> what we do to fix adrnals a taper that can last a couple years.>>>> -->> >> http://nthadrenalsw eb.org/>> http://health. groups.yahoo. com/group/ NaturalThyroidHo rmonesADRENALS/>> http://faqhelp. webs.com/>>>> http://health. groups.yahoo. com/group/ RT3_T3/>> http://www.thyroid- rt3.com/>>>> http://groups. yahoo.com/ group/HypoPets/>> http://www.stopthet hyroidmadness. com/>>>>>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2010 Report Share Posted April 21, 2010 I forgot to add that: even though you dont HAVE ADDISONS....the same aspect sort of applies....you have a deficiency of HC...where-as mine is totally huge...yours is less dramatic...nevertheless the concept is the same. if you're driving a vehicle 30 miles distance away...you still need gas....whether or not you're going 60 MPH or 20 mph...you still need gas. likewise if you have a deficiency of HC you still need it whether it's a large amount or a small amount...you need to determine the most advantageous amount for you yourself based on symptoms and cortisol saliva test? C. Hunter > Carolyn, I agree COMPLETELY! I like my doc in some ways - he has no > problem prescribing dessicated thyroid, believes in supplementing > treatment with vitamins and minerals, and is open to labs that I request. > That's how I even learned about the RT3 -- I added it to my own lab slip. >  > Topamax and Phentermine combined are the components of the latest diet > drug under trails - called Qnexa. I haven't found any details that say the > combo helps with adrenal fatigue. Since this doc likes to work " outside of > the box, " I think maybe he's just intrigued and wants to see the combo in > action for himself. >  > Just to clarify - I don't have s, just adrenal fatigue and low > adrenal reserves per the diurnal cortisol test. >  > The doc said he'd rather " fix the problem " with the drug combo rather than > just give me HC to treat the low cortisol. I know -- he's completely on > the wrong path. Unfortunately I've tried five different docs now to treat > the adrenal fatigue and none of them were willing to even discuss the > issue. >  > On a side note - I just realized that I have access to prednolisone for my > cat and could probably get some for myself.....  I read a piece on > adrenal treatment at > http://featherstone.bravehost.com/thyroid/peatfieldadrenal.html that says > " The disadvantage of hydrocortisone is that it needs to be given 4 times a > day to be fully effective. Some patients do as well, or better, on he > widely used synthetic derivative, prednisolone. The equivalent dose of 20 > mg. of hydrocortisone id 5 mg. of prednisolone. " I wonder if this might be > a viable option if I can't get a doc to prescribe? >  > Thanks again for your note and your support! It really helps. >  > > > >> >> >> From: keickholt13 <keickholt13@ comcast.net> >> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >> quickly. Help please! >> To: RT3_T3yahoogroups (DOT) com >> Date: Wednesday, April 21, 2010, 5:59 PM >> >> >>  >> >> >> >> Did the doc say how the heck those meds were supposed to make your >> adrenals work again? I looked them up and I'm clueless on that one. >> >> If the steroids suppressed your adrenals (and those hefty doses probably >> did), you have to wean off or get very sick, which you are already >> experiencing. >> >> I know this is supposed to be mod week off for adrenal stuff, so I'm not >> sure if Val will get to this right away. I just wanted to offer support. >> Given your initial saliva labs and the fact you felt better on steroids, >> you probably needed to be on HC anyway. But I am not qualified to say >> how >> much or what dosing based on your results. >> >> To go on steroids without your doctor's help, you can try HC cream (OTC) >> but HC online from sources, or order Isocort and just go by assumption >> one >> pellet is 1.5 mg hc. Unfortunately, I don't know how much to tell you >> take >> given that you were on all those steroids. But you could at least start >> with the 20 mg dosing until someone else helps out. >> >> Hang in there!! >> >> >>> >>> >>> From: <artisticgroomer@ ...> >>> Subject: Re: Cortisol/Medrol - WOW - now sliding backwards >>> quickly. Help please! >>> To: RT3_T3yahoogroups (DOT) com >>> Date: Wednesday, April 21, 2010, 7:14 AM >>> >>> >>>  >>> >>> >>> >>> The only way I cna help with what oyu need is fr you to go 2 weeks >>> wihtout ANY steroid and redo a saliva test. BUT form what I have seenin >>> the past, wiht already weak adrenals then several HEFTY doses of strong >>> steoids, and triamcinolone is WAY strogner than 4 times cortiosl, Here >>> is a steroid converiosn tool, btu it says it si 5 times stronger than >>> HC >>> btu I have seen it listed as even stronger than that depoending on >>> absorption. >>> http://www.globalrp h.com/steroid. cgi >>> At any rate you have been on hefty doses of steroids and as they wear >>> down you are havign allergies show up, a sure sign of adrenals that >>> crashed from the high steroid dosing. Now you nee dot go on steroids >>> until they can regain strength or a LONG slow taper. Basically this is >>> what we do to fix adrnals a taper that can last a couple years. >>> >>> -- >>> >>> http://nthadrenalsw eb.org/ >>> http://health. groups.yahoo. com/group/ NaturalThyroidHo >>> rmonesADRENALS/ >>> http://faqhelp. webs.com/ >>> >>> http://health. groups.yahoo. com/group/ RT3_T3/ >>> http://www.thyroid- rt3.com/ >>> >>> http://groups. yahoo.com/ group/HypoPets/ >>> http://www.stopthet hyroidmadness. com/ >>> >> >> >> >> >> >> >> >> >> >> > > > > > > > > > > =2 C. Hunter Quote Link to comment Share on other sites More sharing options...
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