Re: SD symptoms? Heat Warmers for cold hands and feet

[Guest guest]

When I was suffering with Raynauds and my extremities were always so

horribly cold feeling, I purchased a box of HotHands-2 Hand Warmers by

HeatMax. They heat up to ten hours. I would put them in my pockets at work

to help with my hands and when alone at my desk I could move them to my

feet. At home I could put them between socks or socks and fuzzy slippers.

They helped tremendously. El

Here's a link: http://heatmax.info/

I believe you can also find them on Amazon, Walgreens, etc. but I thought

initial info from the manufacturer might be of interest before a purchase

there or elsewhere.

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of DEBBIE GIBSON

Sent: Thursday, February 24, 2011 3:50 PM

rheumatic

Subject: Re: rheumatic SD symptoms?

I have 2 pads that we bought online...filled with rice or something..we heat

then in the microwave for 4 minutes..then I put them at my feet and I hold

one in my hands to go to sleep...since I have Raynauds...it does help me..

BUT....thats for the cold and Raynauds...the burning, I am concerned may be

a nerve issue...I thought ck'ng the B vitamins might be helpful and I did

send an email to Ellen..I take Vit B12, sublingually for the nerve

issues..and so far..so good.

Debbie

rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <rheumatic

<mailto:rheumatic%40> >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Guest guest]

Sorry I am just now getting around to responding to a couple of responses

from you kind people. , about the rice bag, we have one of those that

I always heat up in the microwave and place at Patti's back after I've

turned her on her side for the night. She has pains in her scapula, and the

warmth seems to help. Unless it's in the dead of winter, Patti's feet

aren't bothered too much with the cold. But in those instances, at night I

wrap her feet in a blanket I've just taken out of the dryer. One thing I

didn't mention is that she's confined to a wheel chair - she's a

quadriplegic. Spending so many hours in the wheel chair certainly can't

help with the circulation in her feet; however, the vitamin B12 is an

interesting suggestion. Debbie, you always have a suggestion that surprises

me and is often correct. I suppose the only thing we can do is just try the

sublingual, the way you do, and see what happens. I try to allow some time

during the day to massage Patti's feet. Her toes, in particular, are curled

under and it's such a relief to her to have me massage and try to bend them

up where they're supposed to be.

Thanks, everyone, for your input.

Ellen

From: rheumatic [mailto:rheumatic ] On Behalf

Of ehgooding

Sent: Thursday, February 24, 2011 4:45 PM

rheumatic

Subject: RE: rheumatic SD symptoms? Heat Warmers for cold hands and feet

When I was suffering with Raynauds and my extremities were always so

horribly cold feeling, I purchased a box of HotHands-2 Hand Warmers by

HeatMax. They heat up to ten hours. I would put them in my pockets at work

to help with my hands and when alone at my desk I could move them to my

feet. At home I could put them between socks or socks and fuzzy slippers.

They helped tremendously. El

Here's a link: http://heatmax.info/

I believe you can also find them on Amazon, Walgreens, etc. but I thought

initial info from the manufacturer might be of interest before a purchase

there or elsewhere.

_____

From: rheumatic <mailto:rheumatic%40>

[mailto:rheumatic <mailto:rheumatic%40> ] On

Behalf

Of DEBBIE GIBSON

Sent: Thursday, February 24, 2011 3:50 PM

rheumatic <mailto:rheumatic%40>

Subject: Re: rheumatic SD symptoms?

I have 2 pads that we bought online...filled with rice or something..we heat

then in the microwave for 4 minutes..then I put them at my feet and I hold

one in my hands to go to sleep...since I have Raynauds...it does help me..

BUT....thats for the cold and Raynauds...the burning, I am concerned may be

a nerve issue...I thought ck'ng the B vitamins might be helpful and I did

send an email to Ellen..I take Vit B12, sublingually for the nerve

issues..and so far..so good.

Debbie

rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <rheumatic

<mailto:rheumatic%40>

<mailto:rheumatic%40> >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Guest guest]

As long as Vit B12 did not interact with any of Pattis meds in any way...I don't

see why it would hurt...I always start slowly when introducing any new anything,

be it a med or supplement...and see what happens...ck with her DRs and hey, if

they give the ok, why not supplement Vit B12? If it can't hurt....and is not

counterintuitive with her meds...I probably would add it....Good luck Ellen,

keep us posted...Hugs, Debb

rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <rheumatic

<mailto:rheumatic%40>

<mailto:rheumatic%40> >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Guest guest]

Wow!  I totally forgot about the hand warmers I used to use in NY and also the

heatbag that I use to stick in the micro.  I think when we moved to this warm

climae, I put them in the closet and forgot about them.  I will check that

out.  burning, itching or cold feet can keep a person up all night.  Thank you

Debbie for reminding us all and about the B12 also.  You are full of

wisdom!~~~Dolores & Mike

From: Elllen McCool <ellenmccool@...

<mailto:ellenmccool%40bellsouth.net>

<mailto:ellenmccool%40bellsouth.net> >

Subject: rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <rheumatic

<mailto:rheumatic%40>

<mailto:rheumatic%40> >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Guest guest]

Ellen, do you have Patti on Vit. B6 and Molybedeum the way the SD patients

are on to help with the curling of fingers?

In a message dated 2/24/2011 7:30:39 P.M. Mountain Standard Time,

ellenmccool@... writes:

Sorry I am just now getting around to responding to a couple of responses

from you kind people. , about the rice bag, we have one of those that

I always heat up in the microwave and place at Patti's back after I've

turned her on her side for the night. She has pains in her scapula, and the

warmth seems to help. Unless it's in the dead of winter, Patti's feet

aren't bothered too much with the cold. But in those instances, at night I

wrap her feet in a blanket I've just taken out of the dryer. One thing I

didn't mention is that she's confined to a wheel chair - she's a

quadriplegic. Spending so many hours in the wheel chair certainly can't

help with the circulation in her feet; however, the vitamin B12 is an

interesting suggestion. Debbie, you always have a suggestion that surprises

me and is often correct. I suppose the only thing we can do is just try the

sublingual, the way you do, and see what happens. I try to allow some time

during the day to massage Patti's feet. Her toes, in particular, are curled

under and it's such a relief to her to have me massage and try to bend them

up where they're supposed to be.

Thanks, everyone, for your input.

Ellen

From: _rheumatic _ (mailto:rheumatic )

[mailto:_rheumatic _ (mailto:rheumatic ) ] On

Behalf

Of ehgooding

Sent: Thursday, February 24, 2011 4:45 PM

_rheumatic _ (mailto:rheumatic )

Subject: RE: rheumatic SD symptoms? Heat Warmers for cold hands and feet

When I was suffering with Raynauds and my extremities were always so

horribly cold feeling, I purchased a box of HotHands-2 Hand Warmers by

HeatMax. They heat up to ten hours. I would put them in my pockets at work

to help with my hands and when alone at my desk I could move them to my

feet. At home I could put them between socks or socks and fuzzy slippers.

They helped tremendously. El

Here's a link: _http://heatmax.info/_ (http://heatmax.info/)

I believe you can also find them on Amazon, Walgreens, etc. but I thought

initial info from the manufacturer might be of interest before a purchase

there or elsewhere.

_____

From: _rheumatic _ (mailto:rheumatic )

<mailto:rheumatic%40>

[mailto:_rheumatic _ (mailto:rheumatic )

<mailto:rheumatic%40> ] On

Behalf

Of DEBBIE GIBSON

Sent: Thursday, February 24, 2011 3:50 PM

_rheumatic _ (mailto:rheumatic )

<mailto:rheumatic%40>

Subject: Re: rheumatic SD symptoms?

I have 2 pads that we bought online...filled with rice or something..we

heat

then in the microwave for 4 minutes..then I put them at my feet and I hold

one in my hands to go to sleep...since I have Raynauds...it does help me..

BUT....thats for the cold and Raynauds...the burning, I am concerned may be

a nerve issue...I thought ck'ng the B vitamins might be helpful and I did

send an email to Ellen..I take Vit B12, sublingually for the nerve

issues..and so far..so good.

Debbie

rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <_rheumatic _

(mailto:rheumatic )

<mailto:rheumatic%40>

<mailto:rheumatic%40> >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the

feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Loved your email, Sally, and the map and grounding sheet information. And

you are right, how can I ever feel sorry for myself when younger ones are

so ill? And Ellen, you have earned your wings, you know. And I also know

you would trade them in within a minute for health for those you love.

Love,

In a message dated 2/25/2011 11:56:39 A.M. Mountain Standard Time,

mannasal@... writes:

Hello Ellen,

I'm in Iowa and it's cold. I have RA and am homebound. Last Nov. I

purchased an infra red mat (size of massage table) that I keep heated up and

that

deep heat gives me much relief at night (plus helps with circulation and

many other benefits) I go to bed around 7 or 8pm and up at 11 am so getting

plenty of deep heat into my bones, muscles and joints. (mat cost $1,000.) a

couple weeks ago, I purchased a grounding sheet ($160.) to put over the mat

that connects me to the earth. Many healings come from the earth so look

up " grounding " to learn more. Sleeping grounded is a natural way to decrease

inflammation and protect yourself from EMF's. I also wear grounding bands

on my sorer wrist and knee when at computer. I must say I am feeling some

relief from being grounded and feel it will only get better. I'm wake up a

lot during the night, but since grounding have slept longer and deeper.

These things are/can be quite costly, and I have, and many others on this site

have spent $$$$$$.....even when we don;t have it (I'm on disability)

When you share that Patti is in a wheel chair, and other challenges......I

sit here and weep for Patti, and for so much suffering on this planet.

What a courageous and beautiful soul she is! Sally

-----Original Message-----

From: Elllen McCool <_ellenmccool@..._

(mailto:ellenmccool@...) >

_rheumatic _ (mailto:rheumatic )

Sent: Thu, Feb 24, 2011 8:30 pm

Subject: RE: rheumatic SD symptoms? Heat Warmers for cold hands and feet

Sorry I am just now getting around to responding to a couple of responses

from you kind people. , about the rice bag, we have one of those that

I always heat up in the microwave and place at Patti's back after I've

turned her on her side for the night. She has pains in her scapula, and the

warmth seems to help. Unless it's in the dead of winter, Patti's feet

aren't bothered too much with the cold. But in those instances, at night I

wrap her feet in a blanket I've just taken out of the dryer. One thing I

didn't mention is that she's confined to a wheel chair - she's a

quadriplegic. Spending so many hours in the wheel chair certainly can't

help with the circulation in her feet; however, the vitamin B12 is an

interesting suggestion. Debbie, you always have a suggestion that surprises

me and is often correct. I suppose the only thing we can do is just try the

sublingual, the way you do, and see what happens. I try to allow some time

during the day to massage Patti's feet. Her toes, in particular, are curled

under and it's such a relief to her to have me massage and try to bend them

up where they're supposed to be.

Thanks, everyone, for your input.

Ellen

From: _rheumatic _ (mailto:rheumatic )

[mailto:_rheumatic _ (mailto:rheumatic ) ] On

Behalf

Of ehgooding

Sent: Thursday, February 24, 2011 4:45 PM

_rheumatic _ (mailto:rheumatic )

Subject: RE: rheumatic SD symptoms? Heat Warmers for cold hands and feet

When I was suffering with Raynauds and my extremities were always so

horribly cold feeling, I purchased a box of HotHands-2 Hand Warmers by

HeatMax. They heat up to ten hours. I would put them in my pockets at work

to help with my hands and when alone at my desk I could move them to my

feet. At home I could put them between socks or socks and fuzzy slippers.

They helped tremendously. El

Here's a link: _http://heatmax.info/_ (http://heatmax.info/)

I believe you can also find them on Amazon, Walgreens, etc. but I thought

initial info from the manufacturer might be of interest before a purchase

there or elsewhere.

_____

From: _rheumatic _ (mailto:rheumatic )

<mailto:rheumatic%40>;

[mailto:_rheumatic _ (mailto:rheumatic )

<mailto:rheumatic%40>; ] On

Behalf

Of DEBBIE GIBSON

Sent: Thursday, February 24, 2011 3:50 PM

_rheumatic _ (mailto:rheumatic )

<mailto:rheumatic%40>;

Subject: Re: rheumatic SD symptoms?

I have 2 pads that we bought online...filled with rice or something..we

heat

then in the microwave for 4 minutes..then I put them at my feet and I hold

one in my hands to go to sleep...since I have Raynauds...it does help me..

BUT....thats for the cold and Raynauds...the burning, I am concerned may be

a nerve issue...I thought ck'ng the B vitamins might be helpful and I did

send an email to Ellen..I take Vit B12, sublingually for the nerve

issues..and so far..so good.

Debbie

rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <_rheumatic _

(mailto:rheumatic )

<mailto:rheumatic%40>;

<mailto:rheumatic%40>; >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the

feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Non-text portions of this message have been removed]

[Guest guest]

Thanks Delores, no worries....we all try to do our part to help others on this

bb! :>) have a good day! Debbie

rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <rheumatic

<mailto:rheumatic%40>

<mailto:rheumatic%40> >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Guest guest]

Hello Ellen,

I'm in Iowa and it's cold. I have RA and am homebound. Last Nov. I purchased

an infra red mat (size of massage table) that I keep heated up and that deep

heat gives me much relief at night (plus helps with circulation and many other

benefits) I go to bed around 7 or 8pm and up at 11 am so getting plenty of deep

heat into my bones, muscles and joints. (mat cost $1,000.) a couple weeks ago,

I purchased a grounding sheet ($160.) to put over the mat that connects me to

the earth. Many healings come from the earth so look up " grounding " to learn

more. Sleeping grounded is a natural way to decrease inflammation and protect

yourself from EMF's. I also wear grounding bands on my sorer wrist and knee

when at computer. I must say I am feeling some relief from being grounded and

feel it will only get better. I'm wake up a lot during the night, but since

grounding have slept longer and deeper. These things are/can be quite costly,

and I have, and many others on this site have spent $$$$$$.....even when we

don;t have it (I'm on disability)

When you share that Patti is in a wheel chair, and other challenges......I sit

here and weep for Patti, and for so much suffering on this planet. What a

courageous and beautiful soul she is! Sally

Re: rheumatic SD symptoms?

I have 2 pads that we bought online...filled with rice or something..we heat

then in the microwave for 4 minutes..then I put them at my feet and I hold

one in my hands to go to sleep...since I have Raynauds...it does help me..

BUT....thats for the cold and Raynauds...the burning, I am concerned may be

a nerve issue...I thought ck'ng the B vitamins might be helpful and I did

send an email to Ellen..I take Vit B12, sublingually for the nerve

issues..and so far..so good.

Debbie

rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <rheumatic

<mailto:rheumatic%40>;

<mailto:rheumatic%40>; >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool

[Guest guest]

For Ellen McCool.   Way back when I was bedridden in 2005 before I was finally

diagnosed with Scleroderma. I, too was very uncomfortable sitting in a

wheelchair.  Instead, I chose to get into my big comfortable lazy boy chair

with the feet that went up.  I was in NY then and the chair was located right

by the heater.  I spent the entire winter dozing in that chair with my blanket

and booties on.  The chair was large enough so that I could go into different

positions.  The back went all the way down or half way down or straight up for

eating.  I could stretch my legs out or bend then in or bend them up.  I had

so many options and the chair was so cozy. 

 

I feel for you having to take care of a sick child while you are sick

yourself.  I was taking care of my mom who had Alzheimer's.  She passed away

in October at the age of 96 and she also hated sitting in the wheel chair for

long periods of time.  Maybe your daughter would be more comfortable in a large

lazy boy.  I know she can't move herself, but she can be changed into

different positions which could help.  This is all from my own experience.  My

Dad on the other hand had one of those scooters he could manuver.  He was 90

and full of hell.  He would go down the halls at the nursing home knocking the

old ladies and they finally took his chair away from him.  He died a few weeks

later.  That chair was his toy!  He should have had a yard to run around in,

but he didn't and he was miserable without his chair.  I ended up donating it

to some charitable place.  I still have the wheelchair and hope we never have

to use it again.  My best to

you and your daughter.  Dolores & Mike 

From: Elllen McCool <_ellenmccool@..._

(mailto:ellenmccool@...)

<mailto:ellenmccool%40bellsouth.net>;

<mailto:ellenmccool%40bellsouth.net>; >

Subject: rheumatic SD symptoms?

" Rheumatic EGroups (Rheumatic EGroups) " <_rheumatic _

(mailto:rheumatic )

<mailto:rheumatic%40>;

<mailto:rheumatic%40>; >

Date: Wednesday, February 23, 2011, 4:21 PM

Does anyone with SD have any experience with a burning sensation in the

feet

and legs? My daughter has systemic scleroderma as well as multiple

sclerosis. The burning is quite intense at times, and it comes from the

inside. Her feet and legs are not unusually warm to the touch. As a matter

of fact, sometimes her feet are stone cold.

Ellen McCool