RE: Re: seronegative Rheumatoid Arthritis: Need help

[Guest guest]

Hello Kate:

Thanks a lot for the reply and info. I will try to get the book in

Amazon. Hopefully I will be able get it prescribed.

Thanks a lot .

regards

Lakshmanan

________________________________

From: rheumatic

[mailto:rheumatic ] On Behalf Of Kate

Sent: Monday, September 15, 2008 5:40 PM

rheumatic

Subject: rheumatic Re: seronegative Rheumatoid Arthritis: Need

help

Hello Lakshmanan,

Very sorry to hear about your wife ! A good starting point is to

look

on the www.roadback.org website. Here's the actual link :

http://www.roadback.org/index.cfm/fuseaction/education.sub/subgroup_id/8

..html

<http://www.roadback.org/index.cfm/fuseaction/education.sub/subgroup_id/

8.html>

You will see they recommend you to read The New Arthritis

Breakthrough

by Henry Scammell - this is available from Amazon in the UK and

USA,

but I really don't know about Malaysia.

This link also tells you how to request a list of doctors

specializing

in the AP, in your geographical area, though again I don't know

whether there will be any near you.

I am in the UK, and there is only 1 such doctor listed in this

country. So I read the book and then gave it to my own doctor to

read.

She was

impressed, and agreed to prescribe the antibiotic for me (it is

normally prescribed for acne, so this wasn't a problem for her).

If you have an open-minded doctor who you know well, this might

work

for you.

Let us know whether you manage to get the book, as if not

someone on

this site may be able to help you to get it.

Best wishes, Kate (Seropositive RA)

>

> Hello Group :

>

>

> I am Lakshmanan Lakshmanan and We live in Penang , Malaysia.

My wife

> was recently ( Few weeks back ) detected with seronegative

Rheumatoid

> Arthritis.

> For the last few weeks , she is enduring heavy pain in her

legs and

> hands with her hands swollen. It makes me terrified and

worried .

> The Physician (GP) had prescribed sulfasalazine . But the pain

and the

> inflammation and swelling seems to get worse. I read about the

anti-

> biotic treatment and lot of immense experience of cure using

the

> treatment.

> How do I approach the Rheumatologist to prescribe anti-biotic

> treatment. If they refused to do so. How should I proceed?

> Need you help and support.

> Thank you

> Lakshmanan.

>

[Guest guest]

Hi, Lakshmanan:

Your wife might have a reactive arthritis--very common in some areas.  This

would require antibiotic treatments and the sooner the better the outcome.  If

you can have her tested for them--especially giardiasis--that would be good but

not necessary.  Rather, you can begin treatments immediately yourself, but

consider the following:

RA disease can have insidious onset--that is sort of 'creeping up' over a long

period of time without an obvious starting date.

AS can also have similar onset characteristics but if it is begun due to a

reactive arthritis, there will be a narrow timeframe over which symptoms came on

more suddenly.

Important tests to perform:  ESR, CRP, HLA B27.

AS is the B27 disease, but can have narrow onset and it is very much like the

reactive arthritis giardiasis causes, in the early stages.

Good luck to You and Your wife,

From: Lakshmanan.Lakshmanan@... <Lakshmanan.Lakshmanan@...>

Subject: RE: rheumatic Re: seronegative Rheumatoid Arthritis: Need help

rheumatic

Date: Monday, September 15, 2008, 3:40 AM

Hello Kate:

Thanks a lot for the reply and info. I will try to get the book in

Amazon. Hopefully I will be able get it prescribed.

Thanks a lot .

regards

Lakshmanan

____________ _________ _________ __

From: rheumatic@grou ps.com

[mailto:rheumatic@grou ps.com] On Behalf Of Kate

Sent: Monday, September 15, 2008 5:40 PM

rheumatic@grou ps.com

Subject: rheumatic Re: seronegative Rheumatoid Arthritis: Need

help

Hello Lakshmanan,

Very sorry to hear about your wife ! A good starting point is to

look

on the www.roadback. org website. Here's the actual link :

http://www.roadback .org/index. cfm/fuseaction/ education. sub/subgroup_ id/8

..html

<http://www.roadback .org/index. cfm/fuseaction/ education. sub/subgroup_ id/

8.html>

You will see they recommend you to read The New Arthritis

Breakthrough

by Henry Scammell - this is available from Amazon in the UK and

USA,

but I really don't know about Malaysia.

This link also tells you how to request a list of doctors

specializing

in the AP, in your geographical area, though again I don't know

whether there will be any near you.

I am in the UK, and there is only 1 such doctor listed in this

country. So I read the book and then gave it to my own doctor to

read.

She was

impressed, and agreed to prescribe the antibiotic for me (it is

normally prescribed for acne, so this wasn't a problem for her).

If you have an open-minded doctor who you know well, this might

work

for you.

Let us know whether you manage to get the book, as if not

someone on

this site may be able to help you to get it.

Best wishes, Kate (Seropositive RA)

>

> Hello Group :

>

>

> I am Lakshmanan Lakshmanan and We live in Penang , Malaysia.

My wife

> was recently ( Few weeks back ) detected with seronegative

Rheumatoid

> Arthritis.

> For the last few weeks , she is enduring heavy pain in her

legs and

> hands with her hands swollen. It makes me terrified and

worried .

> The Physician (GP) had prescribed sulfasalazine . But the pain

and the

> inflammation and swelling seems to get worse. I read about the

anti-

> biotic treatment and lot of immense experience of cure using

the

> treatment.

> How do I approach the Rheumatologist to prescribe anti-biotic

> treatment. If they refused to do so. How should I proceed?

> Need you help and support.

> Thank you

> Lakshmanan.

>

[Guest guest]

Hello Mr. :

Thanks for your Response and your feedbacks.

Dear Team members:

We have tested the ESR Values 33mm/hr ( >20 ) and the CRP values is

20.45 mg/L ( >5) . For which the doctor said , eventhough the Rhuematic

factor is negative ,still she has seronegative Rheumatoid Arthritis.

Are those values too high??

In addition to that, my Wife delivered in April and she had been breast

feeding until July . After July, the swollen Fingers and joints as well

as the pain got worse unable to sleep at night.

I just met my Doctor regarding Minocin dosage. And she is very skeptical

about it and asked us to take Sulfasalazine and wait for 2 more months.

Could i be able to start the antibioitic now based on the FAQs in the

www.rheumatic.org

<BLOCKED::mhtml:{E825D5B0-2789-41D0-A564-D6198E4D272D}mid://00000096/!x-

usc:http://www.rheumatic.org/> .??

regards

Lakshmanan

________________________________

From: rheumatic

[mailto:rheumatic ] On Behalf Of Merchant

Sent: Tuesday, September 16, 2008 12:10 PM

rheumatic

Subject: RE: rheumatic Re: seronegative Rheumatoid Arthritis:

Need help

Hi, Lakshmanan:

Your wife might have a reactive arthritis--very common in some

areas. This would require antibiotic treatments and the sooner the

better the outcome. If you can have her tested for them--especially

giardiasis--that would be good but not necessary. Rather, you can begin

treatments immediately yourself, but consider the following:

RA disease can have insidious onset--that is sort of 'creeping

up' over a long period of time without an obvious starting date.

AS can also have similar onset characteristics but if it is

begun due to a reactive arthritis, there will be a narrow timeframe over

which symptoms came on more suddenly.

Important tests to perform: ESR, CRP, HLA B27.

AS is the B27 disease, but can have narrow onset and it is very

much like the reactive arthritis giardiasis causes, in the early stages.

Good luck to You and Your wife,

From: Lakshmanan.Lakshmanan@...

<mailto:Lakshmanan.Lakshmanan%40infineon.com>

<Lakshmanan.Lakshmanan@...

<mailto:Lakshmanan.Lakshmanan%40infineon.com> >

Subject: RE: rheumatic Re: seronegative Rheumatoid Arthritis:

Need help

rheumatic

<mailto:rheumatic%40>

Date: Monday, September 15, 2008, 3:40 AM

Hello Kate:

Thanks a lot for the reply and info. I will try to get the book

in

Amazon. Hopefully I will be able get it prescribed.

Thanks a lot .

regards

Lakshmanan

____________ _________ _________ __

From: rheumatic@grou ps.com

[mailto:rheumatic@grou ps.com] On Behalf Of Kate

Sent: Monday, September 15, 2008 5:40 PM

rheumatic@grou ps.com

Subject: rheumatic Re: seronegative Rheumatoid Arthritis: Need

help

Hello Lakshmanan,

Very sorry to hear about your wife ! A good starting point is to

look

on the www.roadback. org website. Here's the actual link :

http://www.roadback .org/index. cfm/fuseaction/ education.

sub/subgroup_ id/8

.html

<http://www.roadback .org/index. cfm/fuseaction/ education.

sub/subgroup_ id/

8.html>

You will see they recommend you to read The New Arthritis

Breakthrough

by Henry Scammell - this is available from Amazon in the UK and

USA,

but I really don't know about Malaysia.

This link also tells you how to request a list of doctors

specializing

in the AP, in your geographical area, though again I don't know

whether there will be any near you.

I am in the UK, and there is only 1 such doctor listed in this

country. So I read the book and then gave it to my own doctor to

read.

She was

impressed, and agreed to prescribe the antibiotic for me (it is

normally prescribed for acne, so this wasn't a problem for her).

If you have an open-minded doctor who you know well, this might

work

for you.

Let us know whether you manage to get the book, as if not

someone on

this site may be able to help you to get it.

Best wishes, Kate (Seropositive RA)

>

> Hello Group :

>

>

> I am Lakshmanan Lakshmanan and We live in Penang , Malaysia.

My wife

> was recently ( Few weeks back ) detected with seronegative

Rheumatoid

> Arthritis.

> For the last few weeks , she is enduring heavy pain in her

legs and

> hands with her hands swollen. It makes me terrified and

worried .

> The Physician (GP) had prescribed sulfasalazine . But the pain

and the

> inflammation and swelling seems to get worse. I read about the

anti-

> biotic treatment and lot of immense experience of cure using

the

> treatment.

> How do I approach the Rheumatologist to prescribe anti-biotic

> treatment. If they refused to do so. How should I proceed?

> Need you help and support.

> Thank you

> Lakshmanan.

>

[Guest guest]

Hello Lakshmanan,

I received both your private email and this one to the group. We maintain a

doctors' list and we

have this doctor listed in Malaysia:

Dr Sonny Tneoh Shen Jen

Klinik Bersatu

17-18 Jalan Ibrahim,Sungai Petani Tel 604-4233736

1520 Jalan Raja Uda, Butterworth Tel 604-3245841

or just email tneoh@...

Dr. Sonny has sero-negative RA and is on antibiotic therapy for himself. I hope

he can help your

wife also.

Chris.

> Hello Mr. :

>

> Thanks for your Response and your feedbacks.

>

> Dear Team members:

>

> We have tested the ESR Values 33mm/hr ( >20 ) and the CRP values

> is

> 20.45 mg/L ( >5) . For which the doctor said , eventhough the

> Rhuematic

> factor is negative ,still she has seronegative Rheumatoid Arthritis.

>

> Are those values too high??

>

> In addition to that, my Wife delivered in April and she had been

> breast

> feeding until July . After July, the swollen Fingers and joints as

> well

> as the pain got worse unable to sleep at night.

>

> I just met my Doctor regarding Minocin dosage. And she is very

> skeptical

> about it and asked us to take Sulfasalazine and wait for 2 more

> months.

>

> Could i be able to start the antibioitic now based on the FAQs in

> the

> www.rheumatic.org

> <BLOCKED::mhtml:{E825D5B0-2789-41D0-A564-D6198E4D272D}mid://00000096/!x-

> usc:http://www.rheumatic.org/> .??

>

> regards

> Lakshmanan

>

>

> ________________________________

>

> From: rheumatic

> [mailto:rheumatic ] On Behalf Of Merchant

> Sent: Tuesday, September 16, 2008 12:10 PM

> rheumatic

> Subject: RE: rheumatic Re: seronegative Rheumatoid Arthritis:

> Need help

>

>

>

> Hi, Lakshmanan:

>

> Your wife might have a reactive arthritis--very common in some

> areas. This would require antibiotic treatments and the sooner the

> better the outcome. If you can have her tested for them--especially

> giardiasis--that would be good but not necessary. Rather, you can

> begin

> treatments immediately yourself, but consider the following:

>

> RA disease can have insidious onset--that is sort of 'creeping

> up' over a long period of time without an obvious starting date.

>

> AS can also have similar onset characteristics but if it is

> begun due to a reactive arthritis, there will be a narrow timeframe

> over

> which symptoms came on more suddenly.

>

> Important tests to perform: ESR, CRP, HLA B27.

>

> AS is the B27 disease, but can have narrow onset and it is very

> much like the reactive arthritis giardiasis causes, in the early

> stages.

>

> Good luck to You and Your wife,

>

>

>

> From: Lakshmanan.Lakshmanan@...

> <mailto:Lakshmanan.Lakshmanan%40infineon.com>

> <Lakshmanan.Lakshmanan@...

> <mailto:Lakshmanan.Lakshmanan%40infineon.com> >

> Subject: RE: rheumatic Re: seronegative Rheumatoid Arthritis:

> Need help

> rheumatic

> <mailto:rheumatic%40>

> Date: Monday, September 15, 2008, 3:40 AM

>

> Hello Kate:

>

> Thanks a lot for the reply and info. I will try to get the book

> in

>

> Amazon. Hopefully I will be able get it prescribed.

>

> Thanks a lot .

>

> regards

>

> Lakshmanan

>

> ____________ _________ _________ __

>

> From: rheumatic@grou ps.com

>

> [mailto:rheumatic@grou ps.com] On Behalf Of Kate

>

> Sent: Monday, September 15, 2008 5:40 PM

>

> rheumatic@grou ps.com

>

> Subject: rheumatic Re: seronegative Rheumatoid Arthritis: Need

>

> help

>

>

>

>

>

> Hello Lakshmanan,

>

>

>

> Very sorry to hear about your wife ! A good starting point is to

>

> look

>

> on the www.roadback. org website. Here's the actual link :

>

>

>

>

>

> http://www.roadback .org/index. cfm/fuseaction/ education.

> sub/subgroup_ id/8

>

> .html

>

> <http://www.roadback .org/index. cfm/fuseaction/ education.

> sub/subgroup_ id/

>

> 8.html>

>

>

>

> You will see they recommend you to read The New Arthritis

>

> Breakthrough

>

> by Henry Scammell - this is available from Amazon in the UK and

>

> USA,

>

> but I really don't know about Malaysia.

>

>

>

> This link also tells you how to request a list of doctors

>

> specializing

>

> in the AP, in your geographical area, though again I don't know

>

> whether there will be any near you.

>

>

>

> I am in the UK, and there is only 1 such doctor listed in this

>

> country. So I read the book and then gave it to my own doctor to

>

> read.

>

> She was

>

> impressed, and agreed to prescribe the antibiotic for me (it is

>

> normally prescribed for acne, so this wasn't a problem for her).

>

>

>

> If you have an open-minded doctor who you know well, this might

>

> work

>

> for you.

>

>

>

> Let us know whether you manage to get the book, as if not

>

> someone on

>

> this site may be able to help you to get it.

>

>

>

> Best wishes, Kate (Seropositive RA)

>

>

>

>

>

> >

>

> > Hello Group :

>

> >

>

> >

>

> > I am Lakshmanan Lakshmanan and We live in Penang , Malaysia.

>

> My wife

>

> > was recently ( Few weeks back ) detected with seronegative

>

> Rheumatoid

>

> > Arthritis.

>

> > For the last few weeks , she is enduring heavy pain in her

>

> legs and

>

> > hands with her hands swollen. It makes me terrified and

>

> worried .

>

> > The Physician (GP) had prescribed sulfasalazine . But the pain

>

> and the

>

> > inflammation and swelling seems to get worse. I read about the

>

> anti-

>

> > biotic treatment and lot of immense experience of cure using

>

> the

>

> > treatment.

>

> > How do I approach the Rheumatologist to prescribe anti-biotic

>

> > treatment. If they refused to do so. How should I proceed?

>

> > Need you help and support.

>

> > Thank you

>

> > Lakshmanan.

>

> >

>

>

>

>

>

>

>

>

[Guest guest]

I had Reactive Arthritis, Its was very aggressive.

The treatment that worked was Cipro - 6 week cycles, 1.5G per day,

plenty of water. Biaxin - 3 month cycles, 250 -500Mg per day.

Then I had issues with colon (constipation) only resolved with Oral

Amp B (fungilin 3 months) and Lamisil 250Mg per day 3 Months,

Good luck

Steve

On 16 Sep 2008, at 06:10, Merchant wrote:

> Hi, Lakshmanan:

>

> Your wife might have a reactive arthritis--very common in some

> areas. This would require antibiotic treatments and the sooner the

> better the outcome. If you can have her tested for them--

> especially giardiasis--that would be good but not necessary.

> Rather, you can begin treatments immediately yourself, but consider

> the following:

>

> RA disease can have insidious onset--that is sort of 'creeping up'

> over a long period of time without an obvious starting date.

>

> AS can also have similar onset characteristics but if it is begun

> due to a reactive arthritis, there will be a narrow timeframe over

> which symptoms came on more suddenly.

>

> Important tests to perform: ESR, CRP, HLA B27.

>

> AS is the B27 disease, but can have narrow onset and it is very

> much like the reactive arthritis giardiasis causes, in the early

> stages.

>

> Good luck to You and Your wife,

>

>

>

> From: Lakshmanan.Lakshmanan@...

> <Lakshmanan.Lakshmanan@...>

> Subject: RE: rheumatic Re: seronegative Rheumatoid Arthritis:

> Need help

> rheumatic

> Date: Monday, September 15, 2008, 3:40 AM

>

> Hello Kate:

>

> Thanks a lot for the reply and info. I will try to get the book in

>

> Amazon. Hopefully I will be able get it prescribed.

>

> Thanks a lot .

>

> regards

>

> Lakshmanan

>

> ____________ _________ _________ __

>

> From: rheumatic@grou ps.com

>

> [mailto:rheumatic@grou ps.com] On Behalf Of Kate

>

> Sent: Monday, September 15, 2008 5:40 PM

>

> rheumatic@grou ps.com

>

> Subject: rheumatic Re: seronegative Rheumatoid Arthritis: Need

>

> help

>

>

>

>

>

> Hello Lakshmanan,

>

>

>

> Very sorry to hear about your wife ! A good starting point is to

>

> look

>

> on the www.roadback. org website. Here's the actual link :

>

>

>

>

>

> http://www.roadback .org/index. cfm/fuseaction/ education. sub/

> subgroup_ id/8

>

> .html

>

> <http://www.roadback .org/index. cfm/fuseaction/ education. sub/

> subgroup_ id/

>

> 8.html>

>

>

>

> You will see they recommend you to read The New Arthritis

>

> Breakthrough

>

> by Henry Scammell - this is available from Amazon in the UK and

>

> USA,

>

> but I really don't know about Malaysia.

>

>

>

> This link also tells you how to request a list of doctors

>

> specializing

>

> in the AP, in your geographical area, though again I don't know

>

> whether there will be any near you.

>

>

>

> I am in the UK, and there is only 1 such doctor listed in this

>

> country. So I read the book and then gave it to my own doctor to

>

> read.

>

> She was

>

> impressed, and agreed to prescribe the antibiotic for me (it is

>

> normally prescribed for acne, so this wasn't a problem for her).

>

>

>

> If you have an open-minded doctor who you know well, this might

>

> work

>

> for you.

>

>

>

> Let us know whether you manage to get the book, as if not

>

> someone on

>

> this site may be able to help you to get it.

>

>

>

> Best wishes, Kate (Seropositive RA)

>

>

>

>

>

> >

>

> > Hello Group :

>

> >

>

> >

>

> > I am Lakshmanan Lakshmanan and We live in Penang , Malaysia.

>

> My wife

>

> > was recently ( Few weeks back ) detected with seronegative

>

> Rheumatoid

>

> > Arthritis.

>

> > For the last few weeks , she is enduring heavy pain in her

>

> legs and

>

> > hands with her hands swollen. It makes me terrified and

>

> worried .

>

> > The Physician (GP) had prescribed sulfasalazine . But the pain

>

> and the

>

> > inflammation and swelling seems to get worse. I read about the

>

> anti-

>

> > biotic treatment and lot of immense experience of cure using

>

> the

>

> > treatment.

>

> > How do I approach the Rheumatologist to prescribe anti-biotic

>

> > treatment. If they refused to do so. How should I proceed?

>

> > Need you help and support.

>

> > Thank you

>

> > Lakshmanan.

>

> >

>

>

>

>

>

>

>

>

[Guest guest]

RE: rheumatic Re: seronegative Rheumatoid Arthritis: Need help

>

> Could i be able to start the antibioitic now based on the FAQs in the

> www.rheumatic.org

Yes, the FAQ has explicit instructions for using this protocol.

Ethel

>

[Guest guest]

Hi M.  Do you have any A/P doctors in the northern Fl. on that list?  Am

currently in St. sburg, but looking for a house on acreage between the

Pensacola and Tallahasee area?  No longer in Corpus Christi.Need new doc as I am

on M/P.  Dolores

> From: Lakshmanan.Lakshman aninfineon (DOT) com

> <mailto:Lakshmanan. Lakshmanan% 40infineon. com>

> <Lakshmanan.Lakshman aninfineon (DOT) com

> <mailto:Lakshmanan. Lakshmanan% 40infineon. com> >

> Subject: RE: rheumatic Re: seronegative Rheumatoid Arthritis:

> Need help

> rheumatic@grou ps.com

> <mailto:rheumatic% 40groups. com>

> Date: Monday, September 15, 2008, 3:40 AM

>

> Hello Kate:

>

> Thanks a lot for the reply and info. I will try to get the book

> in

>

> Amazon. Hopefully I will be able get it prescribed.

>

> Thanks a lot .

>

> regards

>

> Lakshmanan

>

> ____________ _________ _________ __

>

> From: rheumatic@grou ps.com

>

> [mailto:rheumatic@ grou ps.com] On Behalf Of Kate

>

> Sent: Monday, September 15, 2008 5:40 PM

>

> rheumatic@grou ps.com

>

> Subject: rheumatic Re: seronegative Rheumatoid Arthritis: Need

>

> help

>

>

>

>

>

> Hello Lakshmanan,

>

>

>

> Very sorry to hear about your wife ! A good starting point is to

>

> look

>

> on the www.roadback. org website. Here's the actual link :

>

>

>

>

>

> http://www.roadback .org/index. cfm/fuseaction/ education.

> sub/subgroup_ id/8

>

> .html

>

> <http://www.roadback .org/index. cfm/fuseaction/ education.

> sub/subgroup_ id/

>

> 8.html>

>

>

>

> You will see they recommend you to read The New Arthritis

>

> Breakthrough

>

> by Henry Scammell - this is available from Amazon in the UK and

>

> USA,

>

> but I really don't know about Malaysia.

>

>

>

> This link also tells you how to request a list of doctors

>

> specializing

>

> in the AP, in your geographical area, though again I don't know

>

> whether there will be any near you.

>

>

>

> I am in the UK, and there is only 1 such doctor listed in this

>

> country. So I read the book and then gave it to my own doctor to

>

> read.

>

> She was

>

> impressed, and agreed to prescribe the antibiotic for me (it is

>

> normally prescribed for acne, so this wasn't a problem for her).

>

>

>

> If you have an open-minded doctor who you know well, this might

>

> work

>

> for you.

>

>

>

> Let us know whether you manage to get the book, as if not

>

> someone on

>

> this site may be able to help you to get it.

>

>

>

> Best wishes, Kate (Seropositive RA)

>

>

>

>

>

> >

>

> > Hello Group :

>

> >

>

> >

>

> > I am Lakshmanan Lakshmanan and We live in Penang , Malaysia.

>

> My wife

>

> > was recently ( Few weeks back ) detected with seronegative

>

> Rheumatoid

>

> > Arthritis.

>

> > For the last few weeks , she is enduring heavy pain in her

>

> legs and

>

> > hands with her hands swollen. It makes me terrified and

>

> worried .

>

> > The Physician (GP) had prescribed sulfasalazine . But the pain

>

> and the

>

> > inflammation and swelling seems to get worse. I read about the

>

> anti-

>

> > biotic treatment and lot of immense experience of cure using

>

> the

>

> > treatment.

>

> > How do I approach the Rheumatologist to prescribe anti-biotic

>

> > treatment. If they refused to do so. How should I proceed?

>

> > Need you help and support.

>

> > Thank you

>

> > Lakshmanan.

>

> >

>

>

>

>

>

>

>

>