Guest guest Posted March 30, 2001 Report Share Posted March 30, 2001 Mark: I enjoyed the chat session the other day. It is so nice being able to talk to others whom know what it is like to live with pancreatitis. The support that we give eachother helps each and everyone of us to get through every day. I was part of the chat session Wednesday night. I brought up the idea about getting together as a group and sending our stories to different talk show hosts. We are often so mistreated and misjudged by the medical community especially after articles like the one about appear in international magazines like People Magazine and/or other magazines. In this magazine article it is mentioned that pancreatitis is caused by alcohol and drugs. No other causes are listed. Several people contacted People Magazine to no avail. Many received only a standard form letter back from People Magazine. We need to get the public's attention and bring up our thoughts about the article. We need to let the talk show hosts know that not all pancreatitis attacks are caused by alcohol or drugs. There are other causes. We need to let them know what type of symptoms we live with everyday and how we are often misjudged and/or mistreated by the ER docs, residents, and others of the medical community. I think that the talk show hosts may be interested in ordinary people's stories. I did get the e-mail addresses of several talk show hosts. Can you post them on your website for others to see. I think that we should contact these talk show hosts possibly at the same time and on the same date. I was thinking maybe contacting the talk show hosts as a group tomorrow Saturday, 3/31/01 at 10:00 PST or 1:00 EST and sharing our stories with the talk show hosts. Here are websites of the talkshow hosts: The Oprah Winfrey Show - www.oprah.com (After getting into the website, click e-mail, then e-mail oprah) The Montel Show - www.montelshow.com (After getting into the website, click " interact " , then e-mail Montel) The Show - www.jennyjones.warnerbros.com (After getting into the website, click " contact us " then " show ideas " . The Sally Raphael Show - www.sallyjr.com (After getting into the website, click " show ideas " then " list idea or request " ) If tomorrow is not a good time to contact the talk show hosts for everybody in the group. Then let's decide on another date or time to contact the talk show hosts. Quote Link to comment Share on other sites More sharing options...
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