Thanks

[Guest guest]

Thanks for your concern Sharon. I also have had relapses each time I have come off the meds. The longest I lasted was almost 1 year and each time after that the relapse hits faster and faster. The last time I was off all meds I lasted less than 1 week.

I have voiced concerns and now he says maybe I don't even have AIH and the Biopsy means nothing.

Oh well I am down to 50mg of imuran everyother day and will be going to 25mg everyother day this week. Wish me luck.

Thanks

[Guest guest]

, forgive me for butting in here, but if a

biopsy means nothing, then WHY did he put you through this? Perhaps, as I see it, it means a lot of

$$$$$ for him! See if he has an

interest in the hospital or wherever you had the biopsy! Ohhhh find yourself

someone else. This person needs to

be turned into the Medical Board

Debby

Re: [ ]

Thanks

Thanks for your concern Sharon. I

also have had relapses each time I have come off the meds. The longest I lasted

was almost 1 year and each time after that the relapse hits faster and faster.

The last time I was off all meds I lasted less than 1 week.

I have voiced concerns and now he says maybe I don't even have AIH and the

Biopsy means nothing.

Oh well I am down to 50mg of imuran everyother day and will be going to 25mg

everyother day this week. Wish me luck.

Thanks

Group

Rules

1. Please no religious, political, race or sexual

preference discussions.

2. NO slamming of other members, advertising or

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To UNsubscribe send a blank e-mail to

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[Guest guest]

Kelli those warm fuzzies and down to earth attitudes are a real blessing and I am very happy for you.

So far I have had no luck in finding a new doc but the search continues.

[Guest guest]

Are you doing anything to keep the Lyme dormant? Have you been able

to slow or stop the upgrades that happen every few years?

Thanks so much for your reply to my previous post. Does your son have

an idea of what he wants to accomplish...a career idea? Is he planning

on college?

Raen

[Guest guest]

No, we haven't been doing any thing to keep it dormant. The kid

freaks at hearing about Lyme any more. Can't say as I blame him,

after dealing with all three of us having it! He does realize there

could be a problem again, but doesn't want to deal with any thing.

He doesn't have a clue what he wants to do. Sigh! What's a parent

to do? hehehehe

Sal

>

> Are you doing anything to keep the Lyme dormant? Have you been

able

> to slow or stop the upgrades that happen every few years?

>

> Thanks so much for your reply to my previous post. Does your son

have

> an idea of what he wants to accomplish...a career idea? Is he

planning

> on college?

>

> Raen

[Guest guest]

That would be so great ! Any help would be deeply appreciated, because I'm at a loss what to do next. Thank you so much!

~~

[Guest guest]

Thanks to everyone who responded with suggestions for curing canker sores!

And thanks again, Bee, for your advice about butter. I was wondering about

ghee, actually. I¹ve never tried it, but have often wondered if I should

give it a go.

, I hope you¹re able to get your canker sores or thrush under

control. Have you considered seeing a dentist? Or have you tried a

pharmaceutical anti-fungal, like Nystatin liquid or powder? Your condition

sounds so miserable--it might be worth looking into (if you haven¹t

already).

Best,

Kellie

[Guest guest]

Good luck with all those tests but know that most of them are worthless.

You might need to find a doc with clinical skills http://www.brodabarnes.org

Gracia

> To those who responded, to my request (the shakes) for info, thank

> you. I don't think it is overmedication as I am just started on the

> titration phase at 50 mcg/day (I weigh 285 lbs and am 6'5 " so this

> isn't really that high), though I am sure the next round of TSH tests

> will show if it is. As to adrenal problems, I am waiting on the test

> results for pernicious anemia, adrenal dysfunction, and parathyroid

> dysfunction.

>

>

>

>

>

>

[Guest guest]

I think I tried Nasonex way back when, I started taking things for my sinus drainage, probably chronic allergic reaction to breathing!

If I remember correctly I had a problem with it. Possibly nose bleed. My allergist did every allergy test known to man, said I was not allergic to anything unless it was food, which he did not do. ( I know I am seriously allergic to MSG and have explosive painful gastrointestinal reaction within 15 minutes of swallowing anything with MSG ). He changed me from Nasonex to Nasacort. I don't know why it is different or if it is in my head, but I have been using it for over 2 years, and is working for me fine. My asthma coughing which was very bad 2 years ago (very much aggravated with post nasal drip etc. ) is now under control and I rarely cough, knock on wood unless I forget to do the routine of Albuteral, Advair and Nasacort. Every once in a while I have to take a sinus tablet, but the post-nasal drip is a major controller of my coughing.

I Guess I am trying to say, that eventhough your allergy may be different, people react to different meds differently, so try something else, id Nasonex does not work.

It also helps to bathe the kitten regularly. Cats can even learn to like water if you try it early enough and are faithful with a gentle skin conditioning cat shampoo bath. And regular vacuuming with a heppa vacuum also helps. You may even become desensitized to your cat.

Good luck Clara

[ ] Thanks

Thanks Everyone

for responding about the Nasonex

I think that I will just stop taking it

don't need extra joint pain or infections

have enough of those. I'll just put up with

the sneezing love this little kitten to give him up.

Jo Lynne hope you friend is ok I could not imaging

what you guys go through we are very lucky here

just snow and cold but that's ok with me.

Sorry that you are have so many problems

Hope that they fix that soon

Have a great day all

__________________________________________________

[Guest guest]

Thanks to all for your replys, I'll take a look on iThyroid.com.

----------

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[Guest guest]

Hi Christy and a belated welcome. You have gotten some great advice

already; this group has been a lifesaver for me and I hope you find it

the same. It is good you were able to get your son's appt moved up.

There are many types of arthritis and it can affect the eyes. If you

read someone mention about uveitis, which is a form of arthritis of the

eye. Your son should get to an eye dr soon and have a slit lamp test to

be checked for inflammation. It is not something that can be detected

without that test. It is more common in girls, but boys can get it too.

When my son was first diagnosed, he went every 3 months. It is now down

to every 6, and once he is 7 years clear from his diagnosis date

(10/2000) it will be a yearly thing. At least that is the plan right

now. It is important that his eyes be checked. Not only for the disease

itself, but the meds he may take can affect the eyes. Not trying to

scare you, just want you to know something a dr may not remember to

mention. When you go to the visit, write down what the dr tells you.

Keeping a written record starting now with any symptoms or questions you

may have is very helpful. Especially in the beginning when it all is so

overwhelming.

Another thought - do not be surprised if at some point your son's

diagnosis may change. This has happened with many of us. For my son, he

was originally diagnosed with pauci jra and then a disease called

spondylitis was added (or changed to if you will) as we became aware of

more symptoms. This is a common occurrence.

Please keep us updated on your son, and know that the people here on

this list are always willing to listen. They are here when you have good

news and when you need to vent. You will get a lot of info and a lot of

ideas on how to help your child. Good luck, Michele ( 18, spondy)

[Guest guest]

Helen, glad you got the appt for nick, but sorry you have to wait til

friday...Aundrea had a 48 stomach virus and I was struggling to keep

her hydrated. Sips of pedialyte several times an hour seemed to work

for us...My sister is an icu nurse and she said it is easiest on the

tummy and full of electrolytes...she said gatorade was the second best

option.

Definatley doesn't sound like he has a virus or anything along those

lines. they tend to burn out within a couple of days.

Keeping you both in my prayers.

(Aundrea 10 systemic jra)-

-- In , " hburger64 " <hburger64@h...> wrote:

>

> For all the suggestions... I made an appt with Nicks ped, but cannot

> get him in until friday AM. He's not there tomorrow and I would

rather

> wait and see someone who knows Nicks and knows about his JRA than

see

> someone else who doesnt have a clue.))

>

> In the mean time im pushing fluids and bland food and the zofran and

> we will see how it goes.

>

> hugs Helen and (8.systemic)

>

[Guest guest]

>

> Hello Bee i just wanted to thank you for your advice these past few

> posts. I feel as though I am making further progress. Not as many

die off symptoms.

==>You are so welcome! That's wonderful you are making progress.

You go girl!!

>

> I was reading the post on butter. I eat a lot of butter but I can

only get organic pasturised (not raw). While not as good for you is

it still OK to eat a lot of?

==>Any butter is still good to eat; pasteurizing does not destroy all

of the nutrients that are good in butter, but it does destroy some.

Buy cultured unsalted organic or certified organic butter, even if it

is pasteurized.

>

> Also I can get hold of ham that is preservative, hormone and

antibiotic free. Unfortunately not organic Is this ok in small

amounts?

==>It may be okay in small amounts - try it and see how you do.

Bee

[Guest guest]

de nada, your welcome.

Gracia

Hey Gracia

I just wanted to say thank you for sharing so much of the info so many

times when we don't catch it the first time you give it or don't pay

attention as we think we won't need it.

You have good info and insight and web sites

Thanks so much

I guess it takes someone who has been there to understand and guide

those of us who are trying to find the way

--

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[Guest guest]

Hey Darlin....I tried to send this to your private email but I had some

difficulty...not sure why. Anywho... here is a link that was sent to

me. I have not fully investigated it but I am going to this weekend.

Maybe it can help you.

>http://www.modestneeds.com/

-Betz

[Guest guest]

Hi Helen,

It depends on what you mean by " the same problems. " If you mean yeast in the

digestive tract, you should not, as the shot bypassed that system, so the

antibiotic in it won't get the chance to knock off the friendlies in his gut. I

can't say for sure on other symptoms he might experience from the antibiotics,

but I do know that the shot does have that advantage over oral (not encouraging

yeast/killing off good stuff).

Hope this helps.

helen marie neilson <bubbas_bookworm@...> wrote:

Thanks to everyone who offered help,ended up having to take him to the

doctor after I found out he was exsposed to strep.He's immune system

is still so weak,any little thing he catches turns BAD!So doc gave a

shot of Bicillin when she found he wasn't eating or drinking.We'll I

see the same problems with this as I do with antbiotics?Well THX again

Helen

---------------------------------

Stay in the know. Pulse on the new .com. Check it out.

[Guest guest]

Kris,

Was there supposed to be an attachment you wanted me to read off list?

Anyway, I found a 2003 review of the literature on thyroid medication

causing osteoporosis. After finding 63 studies in the previous decade,

they decided the evidence was inconclusive, mostly due to the poor

design of experiments. The only tests that suggested a problem were also

the most poorly designed. You would think that with all the " abuse " of

Cytomel for weight loss in the 1970s, they would have a ton of case

histories of associated bone failure and cardiomyopathy. Nada.

Schneider R, Reiners C., " The effect of levothyroxine therapy on bone

mineral density: a systematic review of the literature, " Exp Clin

Endocrinol Diabetes. 2003 Dec;111(8):455-70.

BACKGROUND: Currently debate still exists about the effects of thyroid

hormone therapy on skeletal integrity, that is the safety of

levothyroxine use with respect to bone mineral density. OBJECTIVE: A

systematic review of the effects of TSH-suppressive and replacement

levothyroxine therapy on bone mineral density evaluated main causes of

conflicting results and its implications for clinical practice, and

suggested directions of future research. DATA SOURCE AND STUDY

SELECTION: A MEDLINE search identified English-language studies

assessing bone mineral density under levothyroxine therapy published

from 1990 to 2001. DATA EXTRACTION: The studies were grouped by design

and type of intervention. Outcomes were qualitatively analysed. Subgroup

analysis assessed heterogeneity between studies. DATA SYNTHESIS: Of 63

identified studies, 31 studies reported no effects of levothyroxine on

bone mineral density, 23 studies showed partial beneficial or adverse,

and 9 studies overall adverse effects. A significant dose-response was

not found. There was a tendency towards peripheral cortical bone loss,

suggesting a site-specific effect. In adolescents, men, and

premenopausal women evidence for levothyroxine influence was weaker than

in postmenopausal women. However, also findings in postmenopausal women

remained unclear. The extent and etiology of underlying thyroid diseases

also contributed to inconsistent results. Further, controversial results

were due to substantial heterogeneity of studies. Above all, studies

were limited by moderate quality, small size, and inadequate control for

confounders. CONCLUSIONS: Based on current studies there is insufficient

evidence about effectiveness of levothyroxine on bone mineral density.

All conclusions, however, must take into account the important

methodical drawbacks. Present data may only be proved by longitudinal,

high quality studies in homogeneous patients with sufficient sample

size, clinical implication of future research remains questionable, though.

Chuck

[Guest guest]

I just wanted to say thank you for all of you who

responded to my enquiries about book resources,

parasites, celiac and so on.

My mind is foggy; I'm having trouble keeping up with

my life. ...but even if I forget to respond or get

too busy to remember, the imput is always appreciated.

Margaret

__________________________________________________

[Guest guest]

No problem at all. I am treating myself as well using this board and

Andy's books. Mainly because dentist and docs tell me stuff like

that, which does not make sense when you research it.

I am sure your dentist meant well, but may just be misinformed.

Dentist are not trained chemists and have not training in the use of

chelators. Likely they will continue to tell you that dmsa is bad to

save face, if they reply at all.

You can use the herbal stuff if you want too, as long as it does not

contain chlorella or ALA. After three months have passed you can

again try the ALA as this is the only thing that will get the

mercury out of your brain. The hard part with detoxing after

amalgams is that most of us who have had mercury exposure..are also

toxic in many metals..not just mercury. This is usually evident on

hair testing. For me I ended up having lead, and cadmium, and

antimony along with mercury. DMSA takes care of all that. You don't

have to use dmsa though, that is up to you. You can use the herbal

and see how it goes. If you find you are not regaining health...then

you need to look into something else to detox.

> > > > >

> > > > >

> > > > > Hi

> > > > > I have just read somewhere that you should not take ala

for

> > > > atleast 3

> > > > > months after amalgam removal why is this? is it

dangerous. I

> > had

> > > > my

> > > > > amalgams removed a month ago and started taking environ

tonic

> > > > straight

> > > > > after and ala 2 weeks after. I feel worse now than before

> > removal

> > > > is

> > > > > this normal. I get very cold, shaky, shivery and

lethargic

> > and

> > > > have

> > > > > become really light and sound sensitive i had some

> sensitivity

> > to

> > > > > lights prior to removal but this has definately worsened.

I

> > am

> > > > > definately excreting alot of metals as can taste it in my

> > saliva

> > > > and

> > > > > smell it in my sweat. Can someone tell me the correct

dosage

> > and

> > > > > schedule in mg for an adult who weighs 10 stone. Also i am

> > taking

> > > > ole

> > > > > 400mg a day, should i be taking a multi vit aswell?

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Finette, glad you had a good experience with 1st Chinese. There guarantees are

the best also.

Take care,

jim.

###

FinRussak@... wrote:

Hi all

thank you all for all of the email and posted help. I just got off the phone

with 1st Chinese and they are everything all of you said...and more. VERY

helpful and kind and knowledgeable. Nice to know they go through many safeguards

to insure imported products arent tainted, and also that the owner is herself a

master hebalist!!

Also as usual the people over at Niche Pharma ( 800-677-0355) were also

extremely kind and helpful. They?do the Mag-Tab SR. I had been doing powdered

Ca/Mg for the cardiac stuff...helped somewhat but worsened my whole GI thing.

well come to learn that with sensitive GI issues, as well as taxed kidneys,

calcium tends to make it harder to assimilate when combined with the Mg. So Im

going back to the Mag Tabs. They had been wonderfully helpful in the past and I

shouldve taken my own advice of " if it aint broke, dont fix it " ...oh well...life

IS a learning curve after all/

also learned that for the many doing the Salt/C thing, whose kidneys are already

being taxed, they may want to be extra careful about which kinds, dosages and

types of minerals theyre taking in order to insure the least aggravation of

their systems.

As Ive said this darn " adventure " of severe Lyme has been a mixed blessing and

there are many ( like many of you) who wouldnt have come into my life without

it, so for that I am greatful!! Just wish the pain and suffering wasnt as severe

as well.( for ALL of us). Do we really need a TYPHOON before the RAINBOWS??? A

few sprinkles would be plenty LOL

So for those who took the time to email or post to me...THANKS again and as

things progress Ill keep us all posted.

Today I have had a few " breaks " of about 30-40 minutes of feeling less than

deathly...and less anxious, as well. Plus all of the sx are so much easier to

handle when theyre all not there at once and at severest. All this so far from

" just " the Hawthorne tincture, Sarsaparilla, and Suprax. At least thats all so

far Ive started, awaiting the mail of the other herbs. Im saving the Rescue

Remedy for more dire sx as I like to take the least possible.and Im thinking of

NOT adding the Biaxin as planned. ( just prior to this last setback I was on

alternating 5 days of Suprax and Biaxin with a kicker of minocycline on the

Suprax days...with cardiac irritability, and hearing loss?and the neurotoxic

affects of the mino we stopped that...then with worsening GI they discontinued

ALL meds, herbs etc for 3 weeks...and THATS when all heck broke lose). Im hoping

going full Buhner will mean I can even wean off Suprax and not have to risk the

meds at all...we'll see.

Funny story: my mother who is VERY skeptical of all things non-medical,she is of

the?age that the man in the white coat HAS to have all the answers and the pill

bottle is the magic cure for all ills--?heard I started the Sars.?She then

related to me that when she was young ( over 70 yrs ago) she was given a " tonic "

of mostly Sarsaparilla...she doesnt recall exactly what for other than she was

anemic and " weakly " with poor appetite...so when I explained what I was going to

do ( Buhner protocol) , now she says " well why not try it " . Of course this was

followed by her usual " well IF you fight hard enough... " again poking at the

possibility for her that I wouldnt be so ill IF I did try harder...sigh.

anyway, for all those who also suffer to get through every hour, hang in...and

for those who find the time to support others THANK you!!!

be well

Finette

[Guest guest]

,

Insurance is a trick no matter how you look at it. Just when you think

you have it figured out something looks like its not going to be

covered or some crazy nonsense.

Let us know if you get tentative dates. I like to get everyone on our

calendar to remind us all who is " pending " !!

Take Care, Cam

[Guest guest]

Hi Mike,

Bee does gratefully receive donations. There is a link to her paypal

address in the files.

If you to the home page and click on files, then you will see

A} donations and consultations with Bee

Click on that and you will see the instructions on how to donate.

Here is the direct link *if it works click

here<http://f1.grp.fs.com/v1/kLZiR-JSFcVlqB7YygWminu1KGCHLnVY4BkqKIvJy9c2l2\

6gzNbiJ_Esb9JL9BAJXsK8I3RlKhp00f6R8R0Ur0PecUiiE1R-XRKX5w/A%29%20Consultation%20w\

ith%20Bee%2C%20or%20to%20Donate/If%20You%20Wish%20to%20Donate.htm>

I know she will appreciate it tremendously !

On Dec 14, 2007 5:18 PM, mkbodine <mkbodine@...> wrote:

> Hi Bee,

>

> Thank you for all of your help and expediant replys. Bee, I have been

> helped so much with this diet and feel I'm on my way to excellent

> health.

>

> I want to give to help support what you do and as a way of saying thank

> you for all that you have done for me. Do you take donations? If so

> how?

>

> Blessings,

>

> Mike

>

>

>

[Guest guest]

Always my pleasure

[low dose naltrexone] thanks

Aletha,

thanx for the posts,

they helped me a lot

best wishes,

nasti

Never miss a thing. Make your homepage.

[Guest guest]

hope I didn't hurt your feelings??

Cynde

thanks

i really want to thank u all for all the suport u have been giveing me

durning my strugles

ashley

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10:10 AM

[Guest guest]

u never hurt my feelings why would u ask that becuas all i have got

from this board is so much suport

>

> hope I didn't hurt your feelings??

> Cynde

> thanks

>

>

> i really want to thank u all for all the suport u have been

giveing me

> durning my strugles

>

> ashley

>

>

>

>

>

>

> --------------------------------------------------------------------

----------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.5.516 / Virus Database: 269.19.19/1258 - Release Date:

2/4/2008 10:10 AM

>

>

>