Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 How do I get to the newsletters by Jack Nicklos, Jean --- bestmomanddad1965 <countrychimp@...> wrote: > Hi All......I also have MS, diagnosed in 96, my PA > was diagnosed in > 97. I have been off of the MS drugs for a year now, > because my pain > from the PA overcame my MS complicatrions. I think > the PA gives me > more problems than the MS, although many of the > symptoms are > similiar. I have sausage fingers, severe pain all > over, and have been > on disability at age 36 for 2 years now. I already > take 3200 mgs of > ibuprofen daily, so i have to think for a long time > before i > introduce more drugs into my system, which is > already overloaded with > liver damaging drugs. In my case, I had to weigh the > severity of the > MS and/or the PA carefully. This is the first time I > have heard about > the relation of MS to PA, scary for all of you out > here who do not > have MS. I hope none of you ever get the diagnosis. > Aside from the > death of my father, the most difficult day of my > life thus far, was > being told that I had Multiple Sclerosis......God > Bless----Connie > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2002 Report Share Posted February 7, 2002 Connie I don't know there is a connection. There may be with the news that Embrel has some problems causing demylinezation in some people. My only statement was both are autoimmune diseases, and there are a few of us with both, just at there are some with both RA and PA, PA and lupus etc. Makes you wonder, but nothing more than curiousity and thinking out loud on my part. Meanwhile, interesting about your MS and PA and which is worse. Right now, the initial reason I opened my mouth was I was trying to decide which was causing the problems. I tend to waver on which is causing the burning pain. When I read here, it's definetly the PA (in mymind) When I go to my MS group, it's definetly MS related. Got me. I'm still on my MS drugs as well as PA drugs, but my MS drugs don't seem to be toxic. Copaxone apparently isn't one to cause liver damage, and nither was supposively, the Betaseron. Unfortunately, the Betaseron, which was every other night, stopped working and I lost more eyesight, which never returned. So I switched to every night injections of Copaxone. However, the discussion between the two docs and I at this point, is moving to MTX which should sort of take care of both (or so neuro says). We'll see. In any case, I'm the opposite of you. When they said " you have MS " I was elated. I thought I had a brain tumor, which scared the daylights out of me and the MS was controllable at least in my case, and at this point in time. I didn't want to have to go through neurosurgery, radiation and chemo. So far, so good. [ ] autoimmune diseases > Hi All......I also have MS, diagnosed in 96, my PA was diagnosed in > 97. I have been off of the MS drugs for a year now, because my pain > from the PA overcame my MS complicatrions. I think the PA gives me > more problems than the MS, although many of the symptoms are > similiar. I have sausage fingers, severe pain all over, and have been > on disability at age 36 for 2 years now. I already take 3200 mgs of > ibuprofen daily, so i have to think for a long time before i > introduce more drugs into my system, which is already overloaded with > liver damaging drugs. In my case, I had to weigh the severity of the > MS and/or the PA carefully. This is the first time I have heard about > the relation of MS to PA, scary for all of you out here who do not > have MS. I hope none of you ever get the diagnosis. Aside from the > death of my father, the most difficult day of my life thus far, was > being told that I had Multiple Sclerosis......God Bless----Connie > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2002 Report Share Posted February 8, 2002 I never liked the way that she worded it, but my mother always said (still says) that there is a genetic “glitch” which makes you susceptible to autoimmune diseases. In my opinion, whatever it is that makes you vulnerable to 1, makes you vulnerable to all of them. Many people in this group are living proof of that. How many of us only have PA and no other autoimmune diseases; personally, I have 4. And when any 1 of them flares, they all cause problems. Just my 2 cents. Wishing everyone a pain free day, Ari Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Hi: Has anyone experienced facial spasms as a part of their illness or taking MTX? I have had spasms or 'ticks' under my eyes for years but related it to stress. Just the last couple of days my lip has started in on me and I am not unusually stressed. Its not painful but it is annoying. Thanks Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 Debbie wrote: Has anyone experienced facial spasms as a part of their illness or taking MTX? I have had spasms or 'ticks' under my eyes for years but related it to stress. Just the last couple of days my lip has started in on me and I am not unusually stressed. Its not painful but it is annoying. Thanks Debbie I haven't experienced anything like that, and I have been on MTX for some time now. However, that doesn't mean that different people would not react differently. I would sure check with my doctor. in Wylie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2002 Report Share Posted February 9, 2002 djfl77@... wrote: Hi: Has anyone experienced facial spasms as a part of their illness or taking MTX? I have had spasms or 'ticks' under my eyes for years but related it to stress. Just the last couple of days my lip has started in on me and I am not unusually stressed. Its not painful but it is annoying. Thanks Debbie Debbie, Are you by chance taking a med for anti-nausea. If so, these meds often times cause facial ticks and spasms and you should asked for the med to be changed. If it is not that, I would talk to your doc about the spasms. I have never heard of it causing these problems but that doesn't mean it can't. Hope the spasms go away soon. They can be most annoying. Best of luck. Shirley in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 10, 2002 Report Share Posted February 10, 2002 I am not on mtx but I have had a tick flare up in the past few months and I was worried for a while but the dr. didnt seemed to be. It is not as bad but still flares up. It is in my eyelid and spasms if i yawn or open my eyes too wide. Could it be related to this? i have been having relaly bad flares lately and am going to my dr. on the 13 talk to you later sarah age 25 --- Shirley Duval <shenry_123@...> wrote: > > > djfl77@... wrote: > Hi: > Has anyone experienced facial spasms as a part of > their illness or taking MTX? > I have had spasms or 'ticks' under my eyes for years > but related it to > stress. Just the last couple of days my lip has > started in on me and I am not > unusually stressed. Its not painful but it is > annoying. Thanks Debbie > > > Debbie, > > Are you by chance taking a med for anti-nausea. If > so, these meds often times cause facial ticks and > spasms and you should asked for the med to be > changed. If it is not that, I would talk to your > doc about the spasms. I have never heard of it > causing these problems but that doesn't mean it > can't. Hope the spasms go away soon. They can be > most annoying. > > Best of luck. > > Shirley in VA > > [Non-text portions of this message have been > removed] > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 I too experience a spasm or twitch on right right hand side of chin, just below lip, and feels sore to touch. It is not all the time though--usually only in the winter when I experience PA flare. I, too, have always related it to stress. Neurologist assessed and lumped in with myofascial symptoms which are also only on right side of face (right eye, right temple, right cheek, r. tmj, and right ear). I, too, would like to know more about this spasm--but so far have not learned about a cause--assume nerves are being overstimulated by disease process or meds. Come to think about it, this spasm returned since starting MTX back up at Thanksgiving 2001, but I am off MTX now and it continues. Meds are probably another stressor that contributes--or maybe it is the artificial lowering of immune system that is a stressor. Don't know, but just wanted you to know you have company out here!-- in Virginia (Dave is husband) Re: [ ] autoimmune diseases > Debbie wrote: > Has anyone experienced facial spasms as a part of their illness or taking > MTX? > I have had spasms or 'ticks' under my eyes for years but related it to > stress. Just the last couple of days my lip has started in on me and I am not > > unusually stressed. Its not painful but it is annoying. Thanks Debbie > > I haven't experienced anything like that, and I have been on MTX for some > time now. However, that doesn't mean that different people would not react > differently. I would sure check with my doctor. > > in Wylie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2002 Report Share Posted February 11, 2002 --- I get two " reactions " in my face, it either " ticks " so to speak, and mostly under the eye, or my right side feels " heavy " and sluggish. I have often wondered if I had a minor stroke, but the doctor says its " normal " symptom of FMS/MFS complex. I am not on MXT so it must be the diseases. A In @y..., djfl77@a... wrote: > Hi: > Has anyone experienced facial spasms as a part of their illness or taking MTX? > I have had spasms or 'ticks' under my eyes for years but related it to > stress. Just the last couple of days my lip has started in on me and I am not > unusually stressed. Its not painful but it is annoying. Thanks Debbie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2002 Report Share Posted December 2, 2002 Nobody really knows the answer to this. The currently accepted theory is that something from the environment (like a virus or bacteria) comes along and triggers an autoimmune reaction in people who are genetically predisposed to autoimmune disease. So, maybe while fighting off some infection the immune system to begins to mistake a part of the body as foreign...in our case, the liver. I don't know about gallbladder, but it is possible to have autoimmune attack on the pancreas. In fact, Type 1 diabetes is autoimmune (Type 2, adult onset, is not). The trigger may be different in different people...some other suspects are chemicals, like drugs, but nothing has really been proven. Essentially, I think the jury is still out! > Since all other autoimmune diseases are not transferable from one > person to another this must also hold true with this disease. What > makes your body turn against the liver? And what about the other > organs ......like the gallbladder and the pancreas....which all work > together. Does anyone know?........Pam ga Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2008 Report Share Posted March 24, 2008 This is an interesting article: http://www.alternet.org/healthwellness/80129/ " While 2.2 million women are living with breast cancer and 7.2 women have coronary disease, an estimated 9.8 million women are afflicted with one of the 7 more common autoimmune diseases: lupus, scleroderma, rheumatoid arthritis, multiple sclerosis, inflammatory bowel disease, Sjogren's, and type 1 diabetes. " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2010 Report Share Posted October 11, 2010 Hi Sue, Unfortunately we can not rely on any of our doctors for information, it is up to each individual to research their health conditions and link them together. I no I constantly look up information not just on PsA but on Autoimmune Diseases, symptoms and treatments. It is amazing how many illnesses are classified as autoimmune diseases most people have no idea. I don't rely on my Rheumy for anything, I have started passing on the info I have learned to other family members who have no idea about autoimmune diseases or that they are carriers. Have a happy, pain free day. Lori in AZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2010 Report Share Posted October 13, 2010 I have PA,OA,and Fibro. I also have alot of co-morbid conditions. PHeriphal Neuropathy,Raynauds, heel spurs . I also have a pinched nerve at my L5/S1 joints and there is a bone spur on the facet joint in that area. Doc said that the only cure for my situation would be surgery. I can not afford it. I have just filed for SSDI. I am unemployed and 42yrs old. I worked for a law firm as a receptionist/admin and was laid off two years ago.I have to go to a pain clinic as well as Rheumatologist. Severe Pain. I can only type for about 20 mins. Then my hands hurt so bad that it radiates up my arms. Ankle Tendonitis and elbow tendonitis are also present. It really sucks and I am in awe of how you are coping with your two illnesses. -Beth Quote Link to comment Share on other sites More sharing options...
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