Ankylosing Spondylitis - Antibiotic Treatment

[Guest guest]

I just discovered this group. I had read several years ago that some doctors

were willing to prescribe antibiotics for various inflammatory diseases. I have

a very conservative rheumatolgist, but he was willing to try antibiotics despite

the opposition of an infectious disease doctor that I saw. I did not know about

the various treatment regimens, but I had read that clarithroymacin might help

with my symptoms - which have been diagnosed as either reactive arthritis or

ankylosing spondylitis. I took antibiotics (500 mg of clarithroymacin) in

addition to Enbrel, and my condition improved a great deal. I went off the

Enbrel and was able to maintain good mobility for a long time solely on the

antibiotic therapy. I could walk five to seven miles, when before I was nearly

crippled. For nearly 15 months, I was completely off of all drugs, although my

quality of life did suffer and I've had a major relapse in the last two months.

Now, I'm looking for a doctor in the Baltimore, land or Raleigh, North

Carolina area who can work with me to see if we can improve the treatment

protocol. I need someone who takes insurance (Care First/BC/BS). What is the

best way to go about locating a doctor who is willing to do antibiotic therapy?

I simply don't have excess funds for extensive lab testing and all the bells and

whistles. My rheumatologist now feels that ankylosing spondylitis is the best

diagnosis that he can give. He has little interest in exploring antibiotic

therapy.

I'm quite sick right now, with pain, brain fog, and a depressed mood. I've been

back on Enbrel and the antibiotics for three weeks. My condition is slowly

improving. I have never taken the Enbrel for more than three months at a time

because I think it is a dangerous drug. It does help kick the symptoms back

quickly and the disease goes into remission for quite a while when coupled with

the antibiotics.

Any counsel or assistance in how I can locate a physician who might be willing

to take my case would be helpful.

[Guest guest]

Hi, evelynsasser:

I have AS and use antibiotics plus diet to totally control symptoms. 

Successfully avoiding these symptoms for over 11 years.

Unless You do the starch-excluding diet while taking antibiotics, You can

develop resistive strains to the germ that causes AS--Klebsiella pneumoniae.

I strongly suggest fasting, long-term, to eliminate symptoms and complications

from previous antibiotics and other drugs; candidiasis is a major factor in both

onset and exacerbation of AS.

There are RBF doctors who will prescribe antibiotics, but they have their own

opinions about the cause and treatment of AS.  I am willing to send You my own

protocol, if You are interested.  It does go along with Carol Sinclair's book

" The New IBS Low-Starch Diet "

http://www.youtube.com/watch?v=G-_X5OrTeas & feature=channel .  And another

YouTube video of Professor Ebringer: 

www.kickas.org --The NSD Forum-- is the best resource and there is a recipe

forum, also.

HEALTH,

From: evelynsasser <evelynsasser@...>

Subject: rheumatic Ankylosing Spondylitis - Antibiotic Treatment

rheumatic

Date: Thursday, June 3, 2010, 7:15 AM

 

I just discovered this group. I had read several years ago that some

doctors were willing to prescribe antibiotics for various inflammatory diseases.

I have a very conservative rheumatolgist, but he was willing to try antibiotics

despite the opposition of an infectious disease doctor that I saw. I did not

know about the various treatment regimens, but I had read that clarithroymacin

might help with my symptoms - which have been diagnosed as either reactive

arthritis or ankylosing spondylitis. I took antibiotics (500 mg of

clarithroymacin) in addition to Enbrel, and my condition improved a great deal.

I went off the Enbrel and was able to maintain good mobility for a long time

solely on the antibiotic therapy. I could walk five to seven miles, when before

I was nearly crippled. For nearly 15 months, I was completely off of all drugs,

although my quality of life did suffer and I've had a major relapse in the last

two months.

Now, I'm looking for a doctor in the Baltimore, land or Raleigh, North

Carolina area who can work with me to see if we can improve the treatment

protocol. I need someone who takes insurance (Care First/BC/BS). What is the

best way to go about locating a doctor who is willing to do antibiotic therapy?

I simply don't have excess funds for extensive lab testing and all the bells and

whistles. My rheumatologist now feels that ankylosing spondylitis is the best

diagnosis that he can give. He has little interest in exploring antibiotic

therapy.

I'm quite sick right now, with pain, brain fog, and a depressed mood. I've been

back on Enbrel and the antibiotics for three weeks. My condition is slowly

improving. I have never taken the Enbrel for more than three months at a time

because I think it is a dangerous drug. It does help kick the symptoms back

quickly and the disease goes into remission for quite a while when coupled with

the antibiotics.

Any counsel or assistance in how I can locate a physician who might be willing

to take my case would be helpful.