RE: Re: nystatin and hair shedding

[Guest guest]

Hi Suzanne,

Could you take Diflucan instead of Nystatin? I don’t know if Minocin is the

culprit but if it is the Nystatin that’s causing the hair loss then maybe

Diflucan is something to consider. El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Zannie

Sent: Friday, November 26, 2010 1:46 PM

rheumatic

Subject: rheumatic Re: nystatin and hair shedding

You're probably right Delores. This is just a blow to me. I feel like I have

lost so much already. I guess I am just done dealing with chronic illness.

It is very hard emotionally. We all know that.

I am glad you are doing well and that you're hair is growing back thick and

strong. That is encouraging for me to hear.

Thanks for your response.

How did you get thru the dark days, when your disease was at its worse? I am

having a hard time coping.

Thanks

Suzanne

>

>

> From: Zannie <zannie68@...>

> Subject: rheumatic nystatin and hair shedding

> rheumatic <mailto:rheumatic%40>

> Date: Friday, November 26, 2010, 10:24 AM

>

>

> Â

>

>

>

> Hello everyone,

>

> Just wondering if anyone has had the same experience.

>

> I have been taking nystatin for about 2 1/2 weeks and now my hair is

really starting to shed. I am even afraid to wash, comb, or run my fingers

through it.

>

> Has anyone else had this experience? Amy, I wonder what you have to say. I

think this is a die off reaction and it is scaring me. I have decided to get

off of this stuff. I will go back to grape fruit seed extract in its place.

>

> This stuff is as toxic as chemo if it is making my hair fall.

>

> Thanks for your thoughts.

>

> Suzanne

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Suzanne,

I have RA 4yrs and homebound. These are very very cruel diseases. I have so

many hard crying days, and want to " throw in the towel " ......but there is nowhere

to throw it! I'm on AP for 5 months, and I must say scared....what if it

doesn't work for me??? It is sharing my fears with this group (as you have

done) that gives me the support to lift up my head....and move forward. Coming

from a healthy (or I thought) preventive background, so often I say " I can't

believe this has happened to me and my life!!! " Truth it, it has happened, and

I'm not sure if I'm on the right path (I don't go to doctors). So, keep sharing

your fears with us. We are certainly not alone here! When I'm down, I reread

Dolores testimony. Going from dead to living a full remission life swimming,

snorkeling, dancing etc.....then I know it can happen for me........for all of

us!!

Know that you, me, all of us are so courageous, brave, compassionate, caring and

full of love for each of our sufferings....and wins!

I need you Suzanne to help me through my fears.....we will win, Sally

rheumatic nystatin and hair shedding

> rheumatic

> Date: Friday, November 26, 2010, 10:24 AM

>

>

> Â

>

>

>

> Hello everyone,

>

> Just wondering if anyone has had the same experience.

>

> I have been taking nystatin for about 2 1/2 weeks and now my hair is really

starting to shed. I am even afraid to wash, comb, or run my fingers through it.

>

> Has anyone else had this experience? Amy, I wonder what you have to say. I

think this is a die off reaction and it is scaring me. I have decided to get off

of this stuff. I will go back to grape fruit seed extract in its place.

>

> This stuff is as toxic as chemo if it is making my hair fall.

>

> Thanks for your thoughts.

>

> Suzanne

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Hi Zannie and Sally and the rest of the group.  Happy Thanksgiving and Happy

Holidays ahead.    I feel for you both and everyone on this journey.  These

diseases are not easy to conquer.  How I got through the dark days, is an

excellent question. 

 

I had to sit and think back a bit and I remember sleeping a lot.  I cut

everything out of my life that was demanding of my time and put all of my energy

and what little energy I had into healing by sleeping.  I remember mostly in

the iwnter time, spending a lot of time in bed even when I wasn't sleeping, I

would lay there and watch TV.  I was careful to watch light stuff like

situation comedies and old reruns of, " I love Lucy. "  I got rid of the clock in

my bedroom and slept whenever I was sleepy or tired no matter what time of the

day or night it was.  I got up only to eat which at that time was very little

because I basically threw up everything I ate or if I retained it, I got

diarrhea. I lived mostly on protein shakes and was very anemic.   As far as

hygeine went, I showered when I felt like it and if I didn't want to be

bothered, oh! well!~~I didn't.  Nothing else mattered but my escape from pain

by sleeping.  I did not take any pain

pills at the time. I have reactions to most pain meds.  I let the Minocin do

it's work.  I was fortunate that I didn't have children or a job or anything

demanding of my time.  I rarely answered the phone at that time and all my

friends and family thought I was dying from cancer and left me alone.   They

were half right and half wrong.  I was dying, but not from cancer, Then a

turning point happened and I wasn't even aware of it.  I was no longer dying, I

was healing from Scleroderma.  As I started feeling a bit better, I decided to

throw a christmas party for children.  The planning took 7-8 months and I lost

myself in that endeavor.  The party went off without a hitch.  It was the best

party ever.  65 children and their families showed up.  My husband wore his

santa suit and we gave out presents to everyone.  I believe that one must truly

take care of ourselves first and put our health first.  Then when we are

better, doing something

for children is also a very healing thing to do.  During that party, I

announced that if anyone wanted or needed to make a donation to Scleroderma,

that they do so in my honor and I told everyone about the antibiotic protocol. 

Several of my doctors were there with their children.They got the message and I

got some lovely letters notifying me that donations had come in.  I also got

scripts for Minocin even though none of the doctors had heard of A/P, they

respected my wishes.  It took another four and a half years of taking minocin,

throwing up and having diarrhea, but eventually I started to feel better and one

day, my blood work came back negative and I was free of pain at last.  I still

sleep whenever I need to.  I took a long nap today while everyone was out

shopping on Black Friday.  The phone rang all day with well wishers for the

holidays. My husband does not wake me.  He is used to me sleeping when I need

it.  I will return the calls

sometime over the weekend.  Answering mail to you and others who are in

need is another way of healing for me. The people I feel the most for are the

mothers with children. and those with jobs who cannot completely get to the

healing stage. I was fortunate in that I was already retired and had the time

to heal.  I took lots of antibiotics, not only Minocin. I went on the Marshall

Protocol which calls for the addition of 4-5 other antibiotics in addition to

Minocin and that is how I was able to rid myself of the micoplasma pneumonae

that had infected me.  I don't know if I have gotten rid of it all just yet. 

I still have the antibodies and I still take the Minocin 50mg on M, W, & F.  I

always will. My best to all of you this holiday season.   Dolores   

From: ehgooding <ehgooding@...>

Subject: RE: rheumatic Re: nystatin and hair shedding

rheumatic

Date: Friday, November 26, 2010, 2:19 PM

 

Hi Suzanne,

Could you take Diflucan instead of Nystatin? I don’t know if Minocin is the

culprit but if it is the Nystatin that’s causing the hair loss then maybe

Diflucan is something to consider. El

_____

From: rheumatic [mailto:rheumatic ] On Behalf

Of Zannie

Sent: Friday, November 26, 2010 1:46 PM

rheumatic

Subject: rheumatic Re: nystatin and hair shedding

You're probably right Delores. This is just a blow to me. I feel like I have

lost so much already. I guess I am just done dealing with chronic illness.

It is very hard emotionally. We all know that.

I am glad you are doing well and that you're hair is growing back thick and

strong. That is encouraging for me to hear.

Thanks for your response.

How did you get thru the dark days, when your disease was at its worse? I am

having a hard time coping.

Thanks

Suzanne

>

>

> From: Zannie <zannie68@...>

> Subject: rheumatic nystatin and hair shedding

> rheumatic <mailto:rheumatic%40>

> Date: Friday, November 26, 2010, 10:24 AM

>

>

> Â

>

>

>

> Hello everyone,

>

> Just wondering if anyone has had the same experience.

>

> I have been taking nystatin for about 2 1/2 weeks and now my hair is

really starting to shed. I am even afraid to wash, comb, or run my fingers

through it.

>

> Has anyone else had this experience? Amy, I wonder what you have to say. I

think this is a die off reaction and it is scaring me. I have decided to get

off of this stuff. I will go back to grape fruit seed extract in its place.

>

> This stuff is as toxic as chemo if it is making my hair fall.

>

> Thanks for your thoughts.

>

> Suzanne

>

>

>

>

>

>

>

>

>

>

>

>