Re: Dermatomyositis and sores

[Guest guest]

Hi Char;

I have SD so I'm not too knowlegeable about DM.Have you read the

Roadback bulletin board postings.Parisa posts often ,her husband has DM

and I know he is doing quite well.You can read the BB without

joining,just google www.rbfbb.org

>

>

> I was dx w/ DM in Feb 09. I have the classic rash that continues to

> get worse even tho on topical steroids. EMG in May was normal, but am

> getting some weakness and achy muscels now and pretty tired most of

> the time.

>

> I also have sores on my forearm and elbow. The rash was starting there

> and I applied steroid ointment to control that and I got these

> spontaneous sores that look like cigeratte burns. My dermatolotist

> gave me some topical antibiotic and droxicillian (sp?). It's been more

> than a week and I still have the sores.

>

> Has anyone experienced this? Any info would be much appreciated.

> Thanks, Char

>

>

[Guest guest]

Char,

Your skin rash could be dermatitis herpetiformis (DH) which is an associated

disorder or complication of celiac disease. You can read about the symptoms to

see if it sounds like your rash on www.csaceliacs.org The site also covers

diagnosis of DH (skin biopsies) and treatment.

Kathy

>

> I was dx w/ DM in Feb 09. I have the classic rash that continues to get worse

even tho on topical steroids. EMG in May was normal, but am getting some

weakness and achy muscels now and pretty tired most of the time.

>

> I also have sores on my forearm and elbow. The rash was starting there and I

applied steroid ointment to control that and I got these spontaneous sores that

look like cigeratte burns. My dermatolotist gave me some topical antibiotic and

droxicillian (sp?). It's been more than a week and I still have the sores.

>

> Has anyone experienced this? Any info would be much appreciated. Thanks,

Char

>