Guest guest Posted January 24, 2006 Report Share Posted January 24, 2006 Hey Phil, I noticed that you mentioned having Total E, as well as, E2 tested. In all my blood tests, I have never had my Total E tested, just my E2. Is that something I should ask for on my next bloodtest ? Even though my E2 is only 12.(Quest Range: 10-30) Guy --- philip georgian <pmgamer18@...> wrote: > Yes Total and Free T, Total E and E2 Estradiol > one like this. > http://www.labcorp.com/datasets/labcorp/html/chapter/mono/sr012000.htm > An E2 test for men. > Also get DHT and DHEA tested. > Your levels should be in the upper 1/3 of your > labs range for a young man both your Total and Free > T. As for E2 10 to 30 best at 20 for any age man. > If you start to do your shots every week start at > 100 mgs. a week. 175 ng/dl sounds like a test > result not a dose for a shot do you mean 175 mgs. > Phil > Roy <chickenbirdtree@...> wrote: > I have noticed that the VA sends results from > different labs. Then I would guess > what you are saying that I should be in the upper > 1/3 for any lab test on total T, and E2 would be > around 20 for any lab too. I am 82 remember but I > can't reach a climax yet and have no " wood " in the > mornings now for a year. I am going to have > my lab test of E2 Monday, is there anything else > that I should have tested at that > time Phil besides free T ? I told you that I am > taking 175ng/dl every two weeks in the butt. I am > going to try doing my own shots in the thigh but I > will have to get instuctions from my daughter on > that once a week as you suggested. On half of the > 175ng > Thanks, > Roy > > > > philip georgian > wrote: > Every lab is different so the best way to tell if > your doing good it to have your Total and Free T > levels in the upper 1/3 of your labs range or higher > for a young man. Also keep your E2 Estradiol down > between 10 to 30 best at 20 for any age man. Here it > is all in this link. > http://www.lef.org/protocols/prtcls-txt/t-prtcl-130.html > Phil > > chickenbirdtree wrote: > I notice that the basics are different from > different labs > I thought normal levels for Free T is Ref. 8 - > 35pg/ml and > all Total levels are around Ref 300 - 800 ng/dl Am I > wrong > about these readings? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 Yes E2 can be low and Total E's high Dr.'s like Shippen and are finding this to make one feel just as bad as high E2. Phil Guy DelRegno <gdelregno@...> wrote: Hey Phil, I noticed that you mentioned having Total E, as well as, E2 tested. In all my blood tests, I have never had my Total E tested, just my E2. Is that something I should ask for on my next bloodtest ? Even though my E2 is only 12.(Quest Range: 10-30) Guy --- philip georgian wrote: > Yes Total and Free T, Total E and E2 Estradiol > one like this. > http://www.labcorp.com/datasets/labcorp/html/chapter/mono/sr012000.htm > An E2 test for men. > Also get DHT and DHEA tested. > Your levels should be in the upper 1/3 of your > labs range for a young man both your Total and Free > T. As for E2 10 to 30 best at 20 for any age man. > If you start to do your shots every week start at > 100 mgs. a week. 175 ng/dl sounds like a test > result not a dose for a shot do you mean 175 mgs. > Phil > Roy wrote: > I have noticed that the VA sends results from > different labs. Then I would guess > what you are saying that I should be in the upper > 1/3 for any lab test on total T, and E2 would be > around 20 for any lab too. I am 82 remember but I > can't reach a climax yet and have no " wood " in the > mornings now for a year. I am going to have > my lab test of E2 Monday, is there anything else > that I should have tested at that > time Phil besides free T ? I told you that I am > taking 175ng/dl every two weeks in the butt. I am > going to try doing my own shots in the thigh but I > will have to get instuctions from my daughter on > that once a week as you suggested. On half of the > 175ng > Thanks, > Roy > > > > philip georgian > wrote: > Every lab is different so the best way to tell if > your doing good it to have your Total and Free T > levels in the upper 1/3 of your labs range or higher > for a young man. Also keep your E2 Estradiol down > between 10 to 30 best at 20 for any age man. Here it > is all in this link. > http://www.lef.org/protocols/prtcls-txt/t-prtcl-130.html > Phil > > chickenbirdtree wrote: > I notice that the basics are different from > different labs > I thought normal levels for Free T is Ref. 8 - > 35pg/ml and > all Total levels are around Ref 300 - 800 ng/dl Am I > wrong > about these readings? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2006 Report Share Posted January 25, 2006 " 175ng/dl " means 175 nanograms per deciliter, whereas a common dose would 200 milligrams. The suggestion to take the testosterone every week in a small dose instead of every two weeks is an excellent one. As such a regimen results in less estrogen and a more even testosterone level. > I notice that the basics are different from different labs > I thought normal levels for Free T is Ref. 8 - 35pg/ml and > all Total levels are around Ref 300 - 800 ng/dl Am I wrong > about these readings? > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Phil you seem to be on more than anyone else here. I finally found an Endo that has treated many Hypo conditions in men. He is going to take the following test for me tomorrow. I won't be seeing him for 30 days however, guess it takes time for the test to come back. He has scheduled the following ones. ACTH - CORTISOL - ESTRADIOL - FSH - LH - PROLACTIN - PSA - TESTOSTERONE TOTAL - TESTOSTERONE FREE - T4 (UNBOUND) TSH - CBC. Did he miss any that you consider very important? He seems to know what he is talking about. I took the links that you told me to take to him about Arimidex and he said lets wait until the test come back, I may prescribe that for the E level. He knew it was high at 59 range from 10 - 50. So I go in the morning at 8:00am to get this done. I am hoping I can get in shape one of these days. Working on it for two years now. He checked my testicals and said they aren't doing much, too small because of the long use of T. Oh,what do you mean when you use the abbreviation " ED " I haven't figured that out yet. Erection Disfunction? Oh he wanted all the links that I printed out from you and was glad to get them. Said he hadn't seen most of them, thanks for the links. I have saved all that you have had on. Roy or Cal __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Roy it looks like you in good hands and yes ED is Erection Disfunction. I feel you will be doing the best you can for your age and better after you go on Arimidex and get that E2 Estradiol down. Also tell your Dr. that my testis were not working for 21 yrs. and going on low dose of HCG brought my testis back to there normal size. And they are making as much T as they can this has me wanting sex every dam day and my wife is not up to this. :-(. Phil Roy <chickenbirdtree@...> wrote: Phil you seem to be on more than anyone else here. I finally found an Endo that has treated many Hypo conditions in men. He is going to take the following test for me tomorrow. I won't be seeing him for 30 days however, guess it takes time for the test to come back. He has scheduled the following ones. ACTH - CORTISOL - ESTRADIOL - FSH - LH - PROLACTIN - PSA - TESTOSTERONE TOTAL - TESTOSTERONE FREE - T4 (UNBOUND) TSH - CBC. Did he miss any that you consider very important? He seems to know what he is talking about. I took the links that you told me to take to him about Arimidex and he said lets wait until the test come back, I may prescribe that for the E level. He knew it was high at 59 range from 10 - 50. So I go in the morning at 8:00am to get this done. I am hoping I can get in shape one of these days. Working on it for two years now. He checked my testicals and said they aren't doing much, too small because of the long use of T. Oh,what do you mean when you use the abbreviation " ED " I haven't figured that out yet. Erection Disfunction? Oh he wanted all the links that I printed out from you and was glad to get them. Said he hadn't seen most of them, thanks for the links. I have saved all that you have had on. Roy or Cal __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 I lost a lot of my hair before going on TRT and only needed to shave once a week. When I went on TRT my hair stopped falling out most of it was from the top of my head in the back it is bare and to the front it is thin. I now have to shave eveyday. Phil howabout_that <howabout_that@...> wrote: Ok, Do you have hair loss because you have low T levels? OR do you loose your hair when you start T therapy(androgel)? My husbands started having grey spots just pop up then just start falling out by the handful. We are not sure which caused it........Thanks,Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2006 Report Share Posted March 9, 2006 Kim, I was just the opposite, I started growing hair where there had been none. I don't have body hair (much) and when I started on Depo shots I grew hair even on my chest, not much but I have not lost any hair on my head. Most of what I have lost I am sure is just hereditary. howabout_that <howabout_that@...> wrote: Ok, Do you have hair loss because you have low T levels? OR do you loose your hair when you start T therapy(androgel)? My husbands started having grey spots just pop up then just start falling out by the handful. We are not sure which caused it........Thanks,Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Subject: ( ) question Hi all i have a question..Has anyone hard of a book that teaches kids on the spectrum about sarcasm or idioms or both? My 17 yr old .Hfa son..is wanting a book that explains what it is. anyway if anyone has heard of it..please let me know.. Thanks Hi Robin, There are a lot of books actually. My ds loves, " The scholastic Dictionary of Idioms " - it lists a large amount of them, like 600 I think? And explains what the phrase really means plus where the phrase originated from. Another one we have " What did you say, what do you mean? " is nice but doesn't have as many. You can go to Amazon.com and search and probably find a good handful of books to choose from. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 I bought the " Scholatic Book of Idioms " There'e have been a couple we havn't been able to find in it, but it has helped by sone. If you search Amazon.com, there are a lot of idiom dictionaries posted. >>> madideas@... 5/7/2006 7:37 PM >>> Subject: ( ) question Hi all i have a question..Has anyone hard of a book that teaches kids on the spectrum about sarcasm or idioms or both? My 17 yr old .Hfa son..is wanting a book that explains what it is. anyway if anyone has heard of it..please let me know.. Thanks Hi Robin, There are a lot of books actually. My ds loves, " The scholastic Dictionary of Idioms " - it lists a large amount of them, like 600 I think? And explains what the phrase really means plus where the phrase originated from. Another one we have " What did you say, what do you mean? " is nice but doesn't have as many. You can go to Amazon.com and search and probably find a good handful of books to choose from. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2006 Report Share Posted May 8, 2006 > > I bought the " Scholatic Book of Idioms " There'e have been a couple we > havn't been able to find in it, but it has helped by sone. > We have that one, too. Idioms and figurative language is the main task the SLP is working on with ph. He is really progressing. Last night the kids slept in the basement (as pretty much usual) and I hadn't seen them until about 10. They were _quietly_ playing video games. LOL After breakfast (i.e. 10:45) it came time to pick up 's playdate and I called up to ph to get dressed, he said " I'm one step ahead of you, Mom. " I had to ask him to repeat it, because I couldn't believe he would say something that appropriate to the moment. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Subject: Re: ( ) question > > I bought the " Scholatic Book of Idioms " There'e have been a couple we > havn't been able to find in it, but it has helped by sone. > We have that one, too. Idioms and figurative language is the main task the SLP is working on with ph. He is really progressing. Last night the kids slept in the basement (as pretty much usual) and I hadn't seen them until about 10. They were _quietly_ playing video games. LOL After breakfast (i.e. 10:45) it came time to pick up 's playdate and I called up to ph to get dressed, he said " I'm one step ahead of you, Mom. " I had to ask him to repeat it, because I couldn't believe he would say something that appropriate to the moment. Jackie Idioms are such fun. My ds is 9 yo and has the scholastic book of idioms, which he really likes. One day I heard him talking with his 6 yo brother and he had just taught him to do something. My 9 yo then proudly told him, " Ryder, you are a chip off the old block! " Meaning he was just like his brother. Very cute. He does that a lot. Roxanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2006 Report Share Posted May 9, 2006 Oh gosh this is wonderful! Thank you so much! You all are a blessing! Hugs Robin On 5/9/06, Roxanna <madideas@...> wrote: > > Subject: Re: ( ) question > > > > > > > I bought the " Scholatic Book of Idioms " There'e have been a couple we > > havn't been able to find in it, but it has helped by sone. > > > > We have that one, too. Idioms and figurative language is the main task > the > SLP is working on > with ph. He is really progressing. Last night the kids slept in > the basement (as pretty > much usual) and I hadn't seen them until about 10. They were _quietly_ > playing video > games. LOL After breakfast (i.e. 10:45) it came time to pick up > 's > playdate and I called > up to ph to get dressed, he said " I'm one step ahead of you, Mom. " > I had to ask him to repeat it, because I couldn't believe he would say > something that > appropriate to the moment. > > Jackie > > > Idioms are such fun. My ds is 9 yo and has the scholastic book of idioms, > which he really likes. One day I heard him talking with his 6 yo brother > and he had just taught him to do something. My 9 yo then proudly told > him, > " Ryder, you are a chip off the old block! " Meaning he was just like his > brother. Very cute. He does that a lot. > > > Roxanna > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 Hi, Out of the 56 how many did SHE actually do? Did she have positive results with every baby she banded? I don't think she could have done very many if she's only been doing bands for 3 months. I don't think I'd take my baby to her. Experience is SO important when it comes to bands and helmets. I'd be too nervous to chance it. Good luck making your decision. Let us know what you decide. -- In Plagiocephaly , " and Aley " <aleyfamily@...> wrote: > > Hello, > > We are considering using a new orthotist for our daughter. We used one out > of state of our son. Now that we are faced with the prospect of doing this > again we are wanting to save on driving out of state. The orthotist we are > considering using has only done helmets since Feb 2006. The office she works > in has only done 56 since 2003. So my question is how many helmets > constitutes significant experience? IS 56 a lot, it seems rather low to me? > > > > Thanks and have a great day, > > > > aleyfamily@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 , Thanks for the reply. I too am leery of using this orthotist. DH is wants to save $$ and mileage on our van by using someone in state. It is appealing to only have to drive 15 minutes as opposed to 4-5 hours one way. I am still in shock we may have to go through this again. I tried so hard to everything right this time. Thanks and have a great day, aleyfamily@... Re: question Hi, Out of the 56 how many did SHE actually do? Did she have positive results with every baby she banded? I don't think she could have done very many if she's only been doing bands for 3 months. I don't think I'd take my baby to her. Experience is SO important when it comes to bands and helmets. I'd be too nervous to chance it. Good luck making your decision. Let us know what you decide. -- In Plagiocephaly , " and Aley " <aleyfamily@...> wrote: > > Hello, > > We are considering using a new orthotist for our daughter. We used one out > of state of our son. Now that we are faced with the prospect of doing this > again we are wanting to save on driving out of state. The orthotist we are > considering using has only done helmets since Feb 2006. The office she works > in has only done 56 since 2003. So my question is how many helmets > constitutes significant experience? IS 56 a lot, it seems rather low to me? > > > > Thanks and have a great day, > > > > aleyfamily@... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 , Chloe Olivia is 6.5 months. We are aggressively repositioning. She had tort and at 2 months we started PT. The tort is basically resolved. She still is sleeping on her back though. We never have her on the back of head, anytime she is awake she is upright or on her tummy. The PT took measurements and they were the following 1-18-2006 5mm 4-3-2006 6mm 5-15-2006 6mm So not getting worse, but not better either. I guess because she is still sleeping on her back that is what scares me. Thanks and have a great day, aleyfamily@... Re: question > > > > Hi, > > Out of the 56 how many did SHE actually do? Did she have positive > > results with every baby she banded? I don't think she could have done > > very many if she's only been doing bands for 3 months. I don't think > > I'd take my baby to her. Experience is SO important when it comes to > > bands and helmets. I'd be too nervous to chance it. Good luck making > > your decision. Let us know what you decide. > > > > -- In Plagiocephaly , " and Aley " > > <aleyfamily@> wrote: > > > > > > Hello, > > > > > > We are considering using a new orthotist for our daughter. We used > > one out > > > of state of our son. Now that we are faced with the prospect of > > doing this > > > again we are wanting to save on driving out of state. The orthotist > > we are > > > considering using has only done helmets since Feb 2006. The office > > she works > > > in has only done 56 since 2003. So my question is how many helmets > > > constitutes significant experience? IS 56 a lot, it seems rather low > > to me? > > > > > > > > > > > > Thanks and have a great day, > > > > > > > > > > > > aleyfamily@ > > > > > > > > > > > > > > > > > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2006 Report Share Posted June 7, 2006 Hi Kathleen, Pam probably knows better than I do, but here in California private schoolsl that take IEP kids are accredited, or licensed. We even looked at a school in Connectcut that was accredited for California. I would be extremely surprised if you could get a school district to pay for an unaccredited school placement. But maybe there's something I don't know. Liz On Jun 7, 2006, at 10:25 AM, kat82260 wrote: > HI, my son is 15 years old and has a diagnosis of Aspergers along > with anxiety disorder. His Aspergers doesn't seem to affect his life > too much but his anxiety is his major problem and I've never been > able to get our school system to understand. We have finally decided > to send him to private school although it is far from your typical > school. It is called Sudbury Valley School. You are free to learn > whatever you wish and to spend your days as you please. He spent a > week there visiting and had to travel with my husband to and from > work which meant that he had 12 hour days and never complained once. > If he was going to public school which is 5 minutes up the street we > would have spent an hour having him complain how terrible he felt. > It was amazing how fast he adapted and how happy he is. > > Sorry for rambling...my question is that we want to attempt to try to > get our school system to pay for the private school and i'm not sure > how to go about it. It isn't an accredited private school so i'm not > sure what our chances are. > > If anyone can give me any information or point me in the right > direction I would greatly appreciate it. > > Thanks > Kathleen > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2006 Report Share Posted June 9, 2006 The school district would have to agree that they are unable to educate your son in any capacity and agree to an " outside " placement. If you were to go to due process, you would be responsibility for proving that this " outside " placement is most appropriate for your son. You would have to pay for a lawyer and for any witnesses needing to testifying on your son's behalf. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2006 Report Share Posted June 10, 2006 Hi Kathleen. You should contact a lawyer who specializes in special education. This will be a big big undertaking! It depends upon if you can prove the school cannot educate your ds. But the lawyer might also be able to get the school to put together an appropriate plan for him so that going to regular school is not so hard. I understand the anxiety portion - my own 17 yo has this. It's very hard. Roxanna Autism Happens _____ From: [mailto: ] On Behalf Of kat82260 Sent: Wednesday, June 07, 2006 1:25 PM Subject: ( ) Question HI, my son is 15 years old and has a diagnosis of Aspergers along with anxiety disorder. His Aspergers doesn't seem to affect his life too much but his anxiety is his major problem and I've never been able to get our school system to understand. We have finally decided to send him to private school although it is far from your typical school. It is called Sudbury Valley School. You are free to learn whatever you wish and to spend your days as you please. He spent a week there visiting and had to travel with my husband to and from work which meant that he had 12 hour days and never complained once. If he was going to public school which is 5 minutes up the street we would have spent an hour having him complain how terrible he felt. It was amazing how fast he adapted and how happy he is. Sorry for rambling...my question is that we want to attempt to try to get our school system to pay for the private school and i'm not sure how to go about it. It isn't an accredited private school so i'm not sure what our chances are. If anyone can give me any information or point me in the right direction I would greatly appreciate it. Thanks Kathleen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Oh thank you....it does me good to help so maybe I am selfish....(smiling). Everyone on here will tell you to keep moving....walk a little, rest a little. Mix it up. -Betz Betsy Jack itsbetsy@... [ ] Question Hi everybody, First of all i hope you all feel as painless as possible..I wanted to ask some things.My main problem with arthitis is in the lower spine in the sacrum and i can not find many PA patients with the same problem.I have been on methotrexate, sandimmun, anti inflammatory nad cortisone for 8 months without any significant benefit.The main question for me is that i don't really understand what's better for me,for example is it better to make a walk once in a while even when i am in pain or sit back in my chair and try to relax?Are there any specific exercises that might help improve the stiffness i feel.I have realised that there are many medicines that i intend to use,but most important for me is to find something helpful that has nothing to do with medicines during daily life.My pain is intense and almost the same all day long.I have problem with my nerves i get irritated very easily and i don't know what to do.Any advice would be grateful,thank you in advance. P.S:i would like to express my admiration to Betsy for what she does.I believe that helping and advising all the people that have this problem is absolutely amazing.It needs courage and kindness.Thank you very much keep up the good work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2006 Report Share Posted June 13, 2006 Hi, I have allot of lower back pain, and ice packs often help out, 15-20 till it is numb, and as often as you like, every 2 hours is usually the recommended time frame. Jeanette [ ] Question Hi everybody, First of all i hope you all feel as painless as possible..I wanted to ask some things.My main problem with arthitis is in the lower spine in the sacrum and i can not find many PA patients with the same problem.I have been on methotrexate, sandimmun, anti inflammatory nad cortisone for 8 months without any significant benefit.The main question for me is that i don't really understand what's better for me,for example is it better to make a walk once in a while even when i am in pain or sit back in my chair and try to relax?Are there any specific exercises that might help improve the stiffness i feel.I have realised that there are many medicines that i intend to use,but most important for me is to find something helpful that has nothing to do with medicines during daily life.My pain is intense and almost the same all day long.I have problem with my nerves i get irritated very easily and i don't know what to do.Any advice would be grateful,thank you in advance. P.S:i would like to express my admiration to Betsy for what she does.I believe that helping and advising all the people that have this problem is absolutely amazing.It needs courage and kindness.Thank you very much keep up the good work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 ..My main problem with arthitis is > in the lower > spine in the sacrum and i can not find many PA > patients with the > same problem Hi, this is one of my major pain areas. I also use ice, then heat. I've had several injections in the area from a pain management doctor, and physical therapy. I've had x-rays, MRIs and have been told there's nothing else they can do to help me. Tried chiropractic too. I still do daily stretches which help to ease the pain, but sometimes it just plain hurts like crazy. From my experience, it's better to try and keep moving, without doing work that hurts too much. When it does hurt, and I'm at home, I take a break and use ice or heat for awhile. I've always wondered how much intense pain we're expected to live with and not complain about...where do you draw the line and say that I just can't take it anymore? I can't remeber what it was like to not be in pain, somewhere in my body. What's really scary...my aunt who also has PA didn't complain about her pain, thinking it was all PA...and was diagnosed with bone cancer two weeks ago warm blessings, jane __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 In a message dated 6/13/2006 4:51:51 P.M. Pacific Daylight Time, alessandro132002@... writes: ...I wanted to ask some things.My main problem with arthitis is in the lower spine in the sacrum and i can not find many PA patients with the same problem Hi Alessandro, There are a few of us with the sacroiliac pain:-( It seems to me, and a few rheumies have confirmed, the spine pain/inflammation is pretty hard to treat. I am currently on Remicade and Sulfasalazine and Voltaren, and this combination is the first that has been able to take the pain away in my spine (lower back/SI joints as well as cervical spine). However, I did a lot for my spine before Remicade too, so I'll share my list of things that help: -heat (I use the Thermacare 8 hour heating pads, they are great, and I use my car seat warmer) -physical therapy...this is where I learned about the following exercises -pilates, which strengthens your core muscles but " lengthens " the spine and increases space between your vertebrae, keeping them lubricated which alleviates stiffness -aquatic exercises - in particular, aquajogging while holding spine very still/stable and other exercises in warm water I think I saw that you are from Greece? Another thing that helped me was a few weeks in an arthritis clinic in Germany...I went every day to " back school " and they taught things like sitting on an exercise ball instead of a chair to work so that your spine is constantly in motion and lubricated... Good luck, I know how uncomfortable it can be... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2006 Report Share Posted June 14, 2006 Oh Jane, that is awful about the bone cancer, Geezzz.... Jeanette Re: [ ] Question .My main problem with arthitis is > in the lower > spine in the sacrum and i can not find many PA > patients with the > same problem Hi, this is one of my major pain areas. I also use ice, then heat. I've had several injections in the area from a pain management doctor, and physical therapy. I've had x-rays, MRIs and have been told there's nothing else they can do to help me. Tried chiropractic too. I still do daily stretches which help to ease the pain, but sometimes it just plain hurts like crazy. From my experience, it's better to try and keep moving, without doing work that hurts too much. When it does hurt, and I'm at home, I take a break and use ice or heat for awhile. I've always wondered how much intense pain we're expected to live with and not complain about...where do you draw the line and say that I just can't take it anymore? I can't remeber what it was like to not be in pain, somewhere in my body. What's really scary...my aunt who also has PA didn't complain about her pain, thinking it was all PA...and was diagnosed with bone cancer two weeks ago warm blessings, jane __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Jeanette...I am taking it for clarity of mind and giving it to for the same reason. Honestly, not sure if it's working and I won't be buying anymore next trip to the store due to financial reasons. It's not making a noticable difference. I was taking Black Cohosh for night sweats and then stopped and the night sweats were back. I started it and stopped it twice with the same results so I think Black Cohosh works for me. Can't say the Glucosimine does though. Even the studies I have read about it are inconsistant with their findings. And when they show results, it's with Osteo rather than Rhematoid as Kathy said. Don't blow your life savings on it. -Betz Betsy Jack itsbetsy@... [ ] Question Hi all, Has anyone had any help from the glucosamine products in pain relief or inflammation reduction for PA. Thanks Jeanette [Editor's Note: The glucosamine products work well with osteorarthritis but studies have shown that they are not effective with the rheumatoid family. If you have osteo in addition to PA, you might experience some relief. One note: Be sure you are NOT allergic to shell fish - I am - and taking this product can be quite deadly if you have a shellfish allergy. I learned that the hard way. Kathy F.] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 20, 2006 Report Share Posted June 20, 2006 Thanks for your responses and information. Jeanette Re: [ ] Question Jeanette...I am taking it for clarity of mind and giving it to for the same reason. Honestly, not sure if it's working and I won't be buying anymore next trip to the store due to financial reasons. It's not making a noticable difference. I was taking Black Cohosh for night sweats and then stopped and the night sweats were back. I started it and stopped it twice with the same results so I think Black Cohosh works for me. Can't say the Glucosimine does though. Even the studies I have read about it are inconsistant with their findings. And when they show results, it's with Osteo rather than Rhematoid as Kathy said. Don't blow your life savings on it. -Betz Betsy Jack itsbetsy@... Quote Link to comment Share on other sites More sharing options...
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