question

[Guest guest]

Hi Cyndi,

I looked through my saved messages and Crystal had posted this site for

Crohn's

search?query=Crohn%27s & submit=Search

I hope it is what you are looking for.

My best

Aletha

[low dose naltrexone] question

> is there a separate Krohns-LDN list.

> cyndi

>

>

>

>

[Guest guest]

thanks. i also got in touch with anne brasher. she gave me a list of

DAN doctors but many of them integrative medicine doctors so i'm

hoping that some of them will prescribe fo rCrohns.

cyndi

On Aug 4, 2006, at 8:34 PM, Aletha Wittmann wrote:

> Hi Cyndi,

>

> I looked through my saved messages and Crystal had posted this site

> for

> Crohn's

>

> search?query=Crohn%27s & submit=Search

>

> I hope it is what you are looking for.

>

> My best

> Aletha

> [low dose naltrexone] question

>

>

>> is there a separate Krohns-LDN list.

>> cyndi

>>

>>

>>

>>

[Guest guest]

Hi

Since the interim results for the Penn State study for Crohn's was

released, I have passed the press release on to friends who are

Crohn's (and ulcerative colitis) sufferers.

http://www.eurekalert.org/pub_releases/2006-05/ps-psr052606.php

They have found that with this in hand, their family physicians are

generally very easily persuaded to let them try LDN.

Victor

>

> > Hi Cyndi,

> >

> > I looked through my saved messages and Crystal had posted this

site

> > for

> > Crohn's

> >

> > search?query=Crohn%27s & submit=Search

> >

> > I hope it is what you are looking for.

> >

> > My best

> > Aletha

> > [low dose naltrexone] question

> >

> >

> >> is there a separate Krohns-LDN list.

> >> cyndi

> >>

> >>

> >>

> >>

[Guest guest]

Regression accounts for <1% of DOCband cases. The older the child

the less likely it would be to happen.

The bump you are talking about comes up quite frequently on this

board. It is usually a small pocket of fluid or a swollen lymph

node. Either way, it will go away without any issues.

Natasha

>

> Does anyone personally know any cases of regression after band was

taken off?

>

> Also-my daughter- who has doc band for 7 wks has a bump on the

bottom of her head- took her to cranial and they said it is fluid

and it would disapear within wks once helmet is removed- is this

safe??

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

[Guest guest]

My daughter had the bump, meant to ask the dr about it at her 9

month checkup but it disappeared by then - she had been out of her

band for a week at that point.

Cris in Houston

Mom to - 9 months

DOC band graduate 7.25.06

>

> Does anyone personally know any cases of regression after band was

taken off?

>

> Also-my daughter- who has doc band for 7 wks has a bump on the

bottom of her head- took her to cranial and they said it is fluid

and it would disapear within wks once helmet is removed- is this

safe??

>

>

> ---------------------------------

> Talk is cheap. Use Messenger to make PC-to-Phone calls.

Great rates starting at 1¢/min.

>

[Guest guest]

Bill,

This wasn't my experience. I really didn't notice much right away

with Androgel. However, you describe how I feel with low T most

mornings!!!

Hang in,

Bill

>

> Has anyone noticed any immediate short term effects of Androgel

(5mg)?

> For example, maybe my mind is playing tricks on me, but about 30

min to

> 1 hour after application, I feel sorta drowsy, or over relaxed.

> However, over the course of the day, the effects wear off and then

my

> energy level goes way up and I feel better. I'm wondering if most

men

> apply it in the AM or at night before bed? I know after a shower

is

> best for absorption. I may try to apply right before bed (I

shower

> then as well) to compensate for the issue. Hope I'm not just

going out

> of my mind. Common sense tells me that supplementation is going

to

> have some effect as after all, it's a hormone.

>

> Thanks.

>

> Bill

>

[Guest guest]

I have taken 1000mg I.V. and 1250mg pills... It all depends on how

bad your ms is..Mine was bad so I was given the Maxium dose for

several days.Eventually your body gets use to it.. So I would think

you have to increase yours... Try L.D.N... for me the m.s.

medacations failed. Its LDN or nothing.. Take care

---

In low dose naltrexone , " and Iselborn "

<camjak@...> wrote:

>

>

>

> Hey group,

>

> I'm not doing well. Since last Thursday I have fallen 6 times.

This MS

> stuff gets old. I haven't broken any bones (yet-I feel my day

will come and

> I don't and it to). I can see my Dr. tomorrow and I am thinking

about

> getting some prednisone. Iit used to work like a charm for me but

it's not

> the same anymore. June '05 I was on it last , I was taking 160

mg a day..

> My question is about LDN and will it work? Any suggestion?

Comments?

> Thanks,

>

>

[Guest guest]

>

>

>

> Hey group,

>

> I'm not doing well. Since last Thursday I have fallen 6 times.

This MS

> stuff gets old. I haven't broken any bones (yet-I feel my day

will come and

> I don't and it to). I can see my Dr. tomorrow and I am thinking

about

> getting some prednisone. Iit used to work like a charm for me but

it's not

> the same anymore. June '05 I was on it last , I was taking 160

mg a day..

> My question is about LDN and will it work? Any suggestion?

Comments?

> Thanks,

>

>==========

I know the first question Dr. McCandless asks her autoimmune disease

patients(parents of Autistic patients with MS, CFS, Fibro, IBS,

Crohn's, etc) that continue to progress on LDN is...

What is your diet like? Have you eliminated wheat, gluten, dairy,

yeast, soy, sugar from your diet. It can take 6 months or more to

get gluten out of your system. LDN can activate underlying yeast,

viruses and food allergies. Remember that non-organic meats and

eggs contain steroids and antibiotics that can cause yeast

overgrowth and fuel an already underlying yeast.

[Guest guest]

>

>

>

> Hey group,

>

> I'm not doing well. Since last Thursday I have fallen 6 times.

This MS

> stuff gets old. I haven't broken any bones (yet-I feel my day

will come and

> I don't and it to). I can see my Dr. tomorrow and I am thinking

about

> getting some prednisone. Iit used to work like a charm for me but

it's not

> the same anymore. June '05 I was on it last , I was taking 160

mg a day..

> My question is about LDN and will it work? Any suggestion?

Comments?

> Thanks,

>

>==========

I know the first question Dr. McCandless asks her autoimmune disease

patients(parents of Autistic patients with MS, CFS, Fibro, IBS,

Crohn's, etc) that continue to progress on LDN is...

What is your diet like? Have you eliminated wheat, gluten, dairy,

yeast, soy, sugar from your diet. It can take 6 months or more to

get gluten out of your system. LDN can activate underlying yeast,

viruses and food allergies. Remember that non-organic meats and

eggs contain steroids and antibiotics that can cause yeast

overgrowth and fuel an already underlying yeast.

[Guest guest]

The interesting thing about LDN is that when you start getting the sleep disturbances, you should be nearing threshold steady state. That is to say that there is enough drug in your system to affect a response, probably not enough to ellict the total response you want.

Skip.

ps I am accused of obfustication, the answer is that you should have enough to elicit a response within a couple of day.

[Guest guest]

Hi Tina,

Everyone is different. My husband was a quick responder (the next day) and many take a few weeks. Some have taken up to 6 months before noticing a significant change. Most people seem to get the bladder frequency fairly quickly.

If you would like a copy of the welcome e-mail for LDN please let me know.

Thanks

Aletha

[low dose naltrexone] Question

Can anyone tell me how long it takes for LDN to get in your system and start working? I know Copaxone takes 6 months for it to really get into your system. I just had an MRI and was informed I have more lesions. I want to get on LDN right away but was curious how long it takes?.... Tina

[Guest guest]

http://www.larrygc.com/mystory takes you to my early days thread on my ezboard.

I was told the very first night I slept more peacefully than in a long long while. Noticed major changes Day 6, 9, 11...

But others take varying days... gotta try it and see. Most people notice something early on.

[low dose naltrexone] Question

Can anyone tell me how long it takes for LDN to get in your system and start working? I know Copaxone takes 6 months for it to really get into your system. I just had an MRI and was informed I have more lesions. I want to get on LDN right away but was curious how long it takes?.... Tina

[Guest guest]

Opps, I meant to say some property loose their bladder frequency very quickly with LDN.

Aletha

[low dose naltrexone] Question

Can anyone tell me how long it takes for LDN to get in your system and start working? I know Copaxone takes 6 months for it to really get into your system. I just had an MRI and was informed I have more lesions. I want to get on LDN right away but was curious how long it takes?.... Tina

[Guest guest]

-

Aletha,

Does your welcome email have LDN info? If so, would you please send

me one also? I am finishing up my second week on LDN.

thanks, nancy

-- In low dose naltrexone , " Aletha Wittmann "

<Aletha@...> wrote:

>

> Hi Tina,

>

> Everyone is different. My husband was a quick responder (the next

day) and many take a few weeks. Some have taken up to 6 months

before noticing a significant change. Most people seem to get the

bladder frequency fairly quickly.

>

> If you would like a copy of the welcome e-mail for LDN please let

me know.

>

> Thanks

> Aletha

> [low dose naltrexone] Question

>

>

> Can anyone tell me how long it takes for LDN to get in your

system and start working? I know Copaxone takes 6 months for it to

really get into your system. I just had an MRI and was informed I

have more lesions. I want to get on LDN right away but was curious

how long it takes?....

>

> Tina

>

[Guest guest]

Absolutely

It is on its way.

My best

Aletha

[low dose naltrexone] Question

>>

>>

>> Can anyone tell me how long it takes for LDN to get in your

> system and start working? I know Copaxone takes 6 months for it to

> really get into your system. I just had an MRI and was informed I

> have more lesions. I want to get on LDN right away but was curious

> how long it takes?....

>>

>> Tina

>>

>

>

>

>

>

>

>

>

>

[Guest guest]

>

>

> I read a post earlier today saying 50mg of Naltrexone was on

> medsmex.com but I didn't see it when I looked. Is it called

> something else? Can you get this without a prescription? Thanks

>

> Rhonda

>

Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago

from medmex.

[Guest guest]

their revia supply dried up some time ago, you'll have to look elsewhere.

[low dose naltrexone] Re: question

>> > I read a post earlier today saying 50mg of Naltrexone was on > medsmex.com but I didn't see it when I looked. Is it called > something else? Can you get this without a prescription? Thanks> > Rhonda>Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago from medmex.

[Guest guest]

I found a source for you.

See www.nogalesrx.com or call 1-866-334-8505.

They don't list it but will order boxes of 28 tablets (50mg).

I've always gone down there, but they do ship (I've never done that).

It is sold as Revia.

Nyles

> >

> >

> > I read a post earlier today saying 50mg of Naltrexone was on

> > medsmex.com but I didn't see it when I looked. Is it called

> > something else? Can you get this without a prescription? Thanks

> >

> > Rhonda

> >

> Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago

> from medmex.

>

[Guest guest]

express scripts.com carries 50mg where I do all my bussiness they fill 3 month supplies and shipping is free .

[low dose naltrexone] Re: question

I found a source for you.See www.nogalesrx.com or call 1-866-334-8505.They don't list it but will order boxes of 28 tablets (50mg).I've always gone down there, but they do ship (I've never done that).It is sold as Revia.Nyles> >> > > > I read a post earlier today saying 50mg of Naltrexone was on > > medsmex.com but I didn't see it when I looked. Is it called > > something else? Can you get this without a prescription? Thanks> > > > Rhonda> >> Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago > from medmex.>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date: 9/25/2006

[Guest guest]

Does takin g 50mg have the same benifits as low dose LDN

[low dose naltrexone] Re: question

I found a source for you.See www.nogalesrx.com or call 1-866-334-8505.They don't list it but will order boxes of 28 tablets (50mg).I've always gone down there, but they do ship (I've never done that).It is sold as Revia.Nyles> >> > > > I read a post earlier today saying 50mg of Naltrexone was on > > medsmex.com but I didn't see it when I looked. Is it called > > something else? Can you get this without a prescription? Thanks> > > > Rhonda> >> Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago > from medmex.>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date: 9/25/2006

[Guest guest]

The advantage of nogalesrx.com is that they do not require a

prescription and the cost is under $100 bucks for 28 tabs (so under 32

cents per dose based on a 4.5 mg daily dose).

Jerry is correct in ordering domestically on-line if you have

insurance and a prescription.

Now if people got organized and formed a " buyers club " you could get

the price down below 6 cents per dose on a large purchase, or perhaps

even subsidize those who couldn't afford the medication.

Nyles

> > >

> > >

> > > I read a post earlier today saying 50mg of Naltrexone was on

> > > medsmex.com but I didn't see it when I looked. Is it called

> > > something else? Can you get this without a prescription? Thanks

> > >

> > > Rhonda

> > >

> > Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago

> > from medmex.

> >

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date:

9/25/2006

>

[Guest guest]

Hi Jerry,

No taking 50 mg would not offer the same benefits as LDN.

Here is part of a previous posting I did earlier.

What what we see in LDN is that higher dosages do not offer better

efficacy, but less.

Why would that be?

This is pretty compelling evidence that at low dosages we are blocking

(acting as an antagonist to) the " mu " receptors preferentially over

the " delta " receptors, as naltrexone has greater affinity to " mu " , but

is certainly not " mu " specific. The lack of specificity is really seen

in the higher dosages where the benefits seem to diminish rapidly.

If you understand this, you can see why I'm so passionate about this

model of action. It fits the observed dose response in LDN patients

really well.

It's more than just academic knowledge. With a good model, we can

develop more efficient treatments and ask the correct research questions.

> > >

> > >

> > > I read a post earlier today saying 50mg of Naltrexone was on

> > > medsmex.com but I didn't see it when I looked. Is it called

> > > something else? Can you get this without a prescription? Thanks

> > >

> > > Rhonda

> > >

> > Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago

> > from medmex.

> >

>

>

>

>

>

>

>

------------------------------------------------------------------------------

>

>

> No virus found in this incoming message.

> Checked by AVG Free Edition.

> Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date:

9/25/2006

>

[Guest guest]

I can get a a 3 month supply of 50mg for 15.00 but who do we have to divide and cap them to 3.5 and 4.0 mg and administer it would have to be a pharmacy of course

[low dose naltrexone] Re: question

The advantage of nogalesrx.com is that they do not require aprescription and the cost is under $100 bucks for 28 tabs (so under 32cents per dose based on a 4.5 mg daily dose).Jerry is correct in ordering domestically on-line if you haveinsurance and a prescription.Now if people got organized and formed a "buyers club" you could getthe price down below 6 cents per dose on a large purchase, or perhapseven subsidize those who couldn't afford the medication.Nyles> > >> > > > > > I read a post earlier today saying 50mg of Naltrexone was on > > > medsmex.com but I didn't see it when I looked. Is it called > > > something else? Can you get this without a prescription? Thanks> > > > > > Rhonda> > >> > Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago > > from medmex.> >> > > > > > >----------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date:9/25/2006>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date: 9/25/2006

[Guest guest]

if you order 50 mg tablets, you have to make your own LDN from them.. either as powder or liquid

http://goodshape.net/HomemadeLDN.html

[low dose naltrexone] Re: question

I found a source for you.See www.nogalesrx.com or call 1-866-334-8505.They don't list it but will order boxes of 28 tablets (50mg).I've always gone down there, but they do ship (I've never done that).It is sold as Revia.Nyles

[Guest guest]

yes i read have the site and agree and took all the info to my MD who is very open to it and is reseaching it more over next 2 months.

but I would be all for getting 50mg doses if we could get them legally made to low does and have a central place for all persciptions to obtain it at a very low cost or even free ,,,

or perhaps a pation of several hundred to a thousnd commiting to buy from one sorce at a prtice set by us would make a difference .?

One place one price free shipping now wouldnt that be a Great Thing?

jerry simmons

[low dose naltrexone] Re: question

Hi Jerry,No taking 50 mg would not offer the same benefits as LDN.Here is part of a previous posting I did earlier.What what we see in LDN is that higher dosages do not offer betterefficacy, but less.Why would that be?This is pretty compelling evidence that at low dosages we are blocking(acting as an antagonist to) the "mu" receptors preferentially overthe "delta" receptors, as naltrexone has greater affinity to "mu", butis certainly not "mu" specific. The lack of specificity is really seenin the higher dosages where the benefits seem to diminish rapidly.If you understand this, you can see why I'm so passionate about thismodel of action. It fits the observed dose response in LDN patientsreally well.It's more than just academic knowledge. With a good model, we candevelop more efficient treatments and ask the correct research questions.> > >> > > > > > I read a post earlier today saying 50mg of Naltrexone was on > > > medsmex.com but I didn't see it when I looked. Is it called > > > something else? Can you get this without a prescription? Thanks> > > > > > Rhonda> > >> > Hi, It's called Revia( 50 mg)28 tabs. I got it about 8 months ago > > from medmex.> >> > > > > > >----------------------------------------------------------> > > No virus found in this incoming message.> Checked by AVG Free Edition.> Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date:9/25/2006>

No virus found in this incoming message.Checked by AVG Free Edition.Version: 7.1.407 / Virus Database: 268.12.9/456 - Release Date: 9/25/2006