question

[Guest guest]

Dawn, We dealt with the same thing with our friends and family...I even have family members that are doctors and nurses and they told me not to worry about it that it would round out on its own. I am glad I didn't listen, because I really feel in my heart that it wouldn't have gotten better. I think it all stems from the fact that there is very little information about plagio and its effects out there. Good luck, please let us know how it goes! Dawn Friedman <dmf2375@...> wrote: ,Thank you so much, I really needed to hear that. I just feel like everyone I know thinks that I am going overboard and they really don't understand this. I have been educating so many people on this. Now that the specialist say to get the band everyone is

starting to understand.I like the point you made. As a child my parents never put braces on my teeth and now at the age of 32 I am wearing them! I wish they would have done it when I was a child and then I wouldn't have gone so many years with hating my teeth.My husband also made a great point when he told me that three months would bring us to the start of summer and they would be done.I know in my heart this is the right thing to do, I just wish more of our friends and family understood it.>From: Shafer >Reply-Plagiocephaly >Plagiocephaly >Subject: Re: Question>Date: Fri, 23 Feb 2007 13:13:43 -0800 (PST)>>Dawn,> My son has mild plagio. Our doctor didn't give us measurements but he >said his severity was about a 3 out of 10. He said it was up to us whether >or not to do the

helmet. We decided to do it because we feared that he >would resent our decision if we didn't. When I was a small child, I had a >really bad underbite, and my parents had me in a headgear to fix my >underbite and it worked...on the contrary we had a friend, whose parents >tried to fix his underbite when he was much older and it didn't work and he >still has it today. In other words, so a flat head is maybe not that big >of a deal and kids can probably deal with it and grow up to lead productive >lives, but we felt that we were presented with an opportunity to help our >child and decided to do so and I am really glad we did. He has had his >helmet about 3 weeks and is doing great...it doesn't bother him a bit and >we are already seeing results...very rewarding.>Good luck!> > Louisville, KY> Mom to Wyatt, almost 7 months old> Helmet, 2/1/2007>Dawn Friedman

wrote:> We had our appointment today and it is official that and >Max have>Plagiocephaly. I am not surprised at all but I am a little sad now that it>is official. Our ped kept telling us not to worry about it that they will>round out on their own and I guess I was expecting to hear that today.>>Anyway, has a very mild case and Max's is worse. If it were just >I am not sure that we would band but since Max will be getting one, it seem>that we should do it for too.>>Has anyone had a child with a very mild case that decided to band? Because>they are fourth months old, she thinks they will only need to wear the >bands>for three months.>>Thanks, Dawn>> >From: "nswords" > >Reply-Plagiocephaly > >Plagiocephaly > >Subject:

Torticollis Versus Plagio> >Date: Fri, 23 Feb 2007 19:10:12 -0000> >> >I have an issue...if, say in the car seat, I position my plagio baby> >with something behind her right shoulder to keep her off her flat> >side, then her neck tilts to the left, which encourages her> >torticollos. If I support her chin on the left to counteract the> >torticollis, then the right side of her head flattens against the back> >of the seat. I feel like everyday I have choose which one to treat in> >the car seat, or bouncer, etc. Of course, I try to keep her out of> >these things as much as possible, but she's not my only child and if> >someone else needs help I sometimes have to put her down for a> >minute...and all these minutes add up, I know. Her torticollis is as> >important to tackle as her plagio....so what to do?>

>>>__________________________________________________________>Want a degree but can't afford to quit? Top school degrees online - in as>fast as 1 year>http://forms.nextag.com/goto.jsp?url=/serv/main/buyer/education.jsp?doSearch=n & tm=y & search=education_text_links_88_h288c & s=4079 & p=5116>>>>>>>--------------------------------->Cheap Talk? Check out Messenger's low PC-to-Phone call rates._________________________________________________________________Find a local pizza place, movie theater, and more….then map the best route! http://maps.live.com/?icid=hmtag1 & FORM=MGAC01

[Guest guest]

My son had very mild plagio (5-6mm at his worst) and we still

banded. He also had moderate to severe brachy (89-92% when we made

the decision) so that made it easier to decide. If you are on the

fence, I would say, 'go for it' - the helmet thing is a lot easier

than it seems at first, and if you are starting with a mild

situation, your time in the helmet should be pretty short, and you

could probably get away with some modified wear - for example, my

son graduated to overnight only wear after about a month in the band

(a good growth spurt included, so we got lucky) - though we still

have him wear it sometimes more than that because I want to get as

much correction as I can. I plan to have him wear it overnight

until he outgrows it - he is 7 months now, so I am hoping to get to

10 months or so. The way I see it is that having the band has not

only offered him some good correction, but it has helped me accept

his head in general - it will never be perfect, but at least I can

say I did what I could for him. I would have always second guessed

myself if we had not banded. It's such a personal decision - good

luck with everything!

> We had our appointment today and it is official that

and Max have

> Plagiocephaly. I am not surprised at all but I am a little sad now

that it

> is official. Our ped kept telling us not to worry about it that

they will

> round out on their own and I guess I was expecting to hear that

today.

>

> Anyway, has a very mild case and Max's is worse. If it were

just

> I am not sure that we would band but since Max will be getting

one, it seem

> that we should do it for too.

>

> Has anyone had a child with a very mild case that decided to band?

Because

> they are fourth months old, she thinks they will only need to wear

the bands

> for three months.

>

> Thanks, Dawn

>

> >From: " nswords " <nswords@...>

> >Reply-Plagiocephaly

> >Plagiocephaly

> >Subject: Torticollis Versus Plagio

> >Date: Fri, 23 Feb 2007 19:10:12 -0000

> >

> >I have an issue...if, say in the car seat, I position my plagio

baby

> >with something behind her right shoulder to keep her off her flat

> >side, then her neck tilts to the left, which encourages her

> >torticollos. If I support her chin on the left to counteract the

> >torticollis, then the right side of her head flattens against the

back

> >of the seat. I feel like everyday I have choose which one to

treat in

> >the car seat, or bouncer, etc. Of course, I try to keep her out of

> >these things as much as possible, but she's not my only child and

if

> >someone else needs help I sometimes have to put her down for a

> >minute...and all these minutes add up, I know. Her torticollis is

as

> >important to tackle as her plagio....so what to do?

> >

>

> __________________________________________________________

> Want a degree but can't afford to quit? Top school degrees online -

in as

> fast as 1 year

> http://forms.nextag.com/goto.jsp?

url=/serv/main/buyer/education.jsp?

doSearch=n & tm=y & search=education_text_links_88_h288c & s=4079 & p=5116

>

>

>

>

>

>

> ---------------------------------

> Cheap Talk? Check out Messenger's low PC-to-Phone call

rates.

>

[Guest guest]

--- beachbodytan2002 <beachbodytan2002@...>

wrote:

> Do you think it's appropriate for an AS child to let

> others know he has

> aspergers.

That is a good question. I've never thought about it.

I don't know if my son has told anyone except his best

friend. I know he's told him about it. But I don't

know if he's told anyone else.

I know he used to say he couldn't do things because he

had asperger's and I had a teacher relay an incident

where he said that and she thought he was using it as

an excuse to not do things.

However, the teacher had no business telling your son

not to tell someone about his having asperger's. That

is between him and you. I would take it as if the

teacher was telling him he had something " bad " . I know

that teacher's intention was probably to keep people

from making fun of him or using it against them if he

told, but still, that teacher had no right to tell him

not to tell anyone.

has accepted his having asperger's. He doesn't

quite understand it all and will ask questions (he's

almost 15), but he just accepts it. Now he will say,

when he can't do something, " Is it because of my

asperger's? " We've never told him not to say anything

about it. But I don't know if he's said anything to

anyone except that one person.

Melinda

[Guest guest]

Ds 19 doesn't go out of his way to tell people about his AS, but if he offends somebody accidently, or is clumsy, he might mention iit. We had a  Katrina  family (friends) living with us for a couple of months. DS got himself a drink at dinner time. I said, "Aren't you going to offer N a drink, too?" He immediately apologized and said, "Sometimes I don't think. It's the Asperger's. What would you like  to drink?" I was pleased with h;ow he handled it. Very matter of factly.LizOn Apr 24, 2007, at 1:00 PM, Hall Melinda wrote:--- beachbodytan2002 <beachbodytan2002 >wrote:> Do you think it's appropriate for an AS child to let> others know he has > aspergers. That is a good question. I've never thought about it.I don't know if my son has told anyone except his bestfriend. I know he's told him about it. But I don'tknow if he's told anyone else.I know he used to say he couldn't do things because hehad asperger's and I had a teacher relay an incidentwhere he said that and she thought he was using it asan excuse to not do things. However, the teacher had no business telling your sonnot to tell someone about his having asperger's. Thatis between him and you. I would take it as if theteacher was telling him he had something "bad". I knowthat teacher's intention was probably to keep peoplefrom making fun of him or using it against them if hetold, but still, that teacher had no right to tell himnot to tell anyone. has accepted his having asperger's. He doesn'tquite understand it all and will ask questions (he'salmost 15), but he just accepts it. Now he will say,when he can't do something, "Is it because of myasperger's?" We've never told him not to say anythingabout it. But I don't know if he's said anything toanyone except that one person.Melinda

[Guest guest]

It was NOT appropriate for the teacher to re direct him on that .. As far as I am concerned.

I have always told my son he should be proud of the fact . That it is nothing to be embarrassed or ashamed about.. Its just like saying I have blonde hair.

Maybe he was trying it on for size.. Like many children these days.. Who say I have ADHD .. Or .. I am allergic to peanuts.. It makes them feel special or different..

Or.. Makes them belong LOL in a kid kind of way.

My son is in grade 6.. But a self contained classroom

I think the teacher might have had the best of intentions.. But to me it smacks of the older days when people who were bi racial were encouraged to "PASS" as one race * usually white..and deny a very important part of themselves.

-- ( ) Question

Do you think it's appropriate for an AS child to let others know he has aspergers. My son told me while talking to another child, he told that child he has aspergers and a teacher called him aside and said, don't tell people that you have aspergers. (not his teacher, another teacher)He said he feels comfortable talking about it. I asked him how did the other child act after you told him? he said he was fine.If continued, will this cause problems for him when he gets older? in middle school.is this a good thing? him letting other know? or was that teacher right for him not to tell others???

[Guest guest]

Yes, I like the way he handles himself too. He also sounds OK with it (confident). but what I don't understand with my son is that it never bothered him before. He would talk about it and also explain what it is. But for some reason, he now seems embarrassed by it. this is all of a sudden. like a big change. another thing, he use to introduce his respite worker as "a respite worker" and explain what a respite worker is. Now, he will say she/he is a friend. He also told me not to mention anything about a respite worker, say friend. And he looked sad about it. I asked if any kids said anything to him that made him feel bad. He said no. But this sudden change with him is like a RED alert. He went from wanting people to know and explaining it to them. to its now a secrete. "secrete" a word that he never used before.

Liz Bohn <lbohn@...> wrote: Ds 19 doesn't go out of his way to tell people about his AS, but if he offends somebody accidently, or is clumsy, he might mention iit. We had a Katrina family (friends) living with us for a couple of months. DS got himself a drink at dinner time. I said, "Aren't you going to offer N a drink, too?" He immediately apologized and said, "Sometimes I don't think. It's the Asperger's. What would you like to drink?" I was pleased with h;ow he handled it. Very matter of

factly. Liz On Apr 24, 2007, at 1:00 PM, Hall Melinda wrote: --- beachbodytan2002 <beachbodytan2002 >wrote:> Do you think it's appropriate for an AS child to let> others know he has > aspergers. That is a good question. I've never thought about it.I don't know if my son has told anyone except his bestfriend. I know he's told him about it. But I don'tknow if he's told anyone else.I know he used to say he couldn't do things because hehad asperger's and I had a teacher relay an incidentwhere he said that and she thought he was using it asan excuse to not do things. However, the teacher had no business telling your sonnot to tell someone about his having asperger's. Thatis between him and you. I would take it as if theteacher was telling him he had something "bad". I knowthat teacher's intention was probably to keep peoplefrom making fun of him or using it against them if hetold, but still, that teacher had no right to tell himnot to tell

anyone. has accepted his having asperger's. He doesn'tquite understand it all and will ask questions (he'salmost 15), but he just accepts it. Now he will say,when he can't do something, "Is it because of myasperger's?" We've never told him not to say anythingabout it. But I don't know if he's said anything toanyone except that one person.Melinda

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

hello Melinda, when you wrote, sounds like the teacher was telling him he had something bad??? When we (my son and I) talked a little, he did say he was very confused with why the teacher told him not to tell anyone that he has aspergers. I asked him did she explain why she said not to tell anyone? He said no, but he always wondered why she said that. (said this was a while ago, and he's been thinking about it all this time). he said for now, I'll only tell my best friends. he looked sad and confused. we did talk a little more. But I can see that proud feeling he had is gone. He had confidence, wasn't ashamed, and willing to talk about it to anyone. to now he is concerned, and "its a secret". a sentence he has never used before.... And I bet this teacher has no idea (that what she said), did to my son. is clueless on

how it effected him. ughhhHall Melinda <mlndhall@...> wrote: --- beachbodytan2002 <beachbodytan2002 >wrote:> Do you think it's appropriate for an AS child to let> others know he has > aspergers. That is a good question. I've never thought about it.I don't know if my son has told anyone except his bestfriend. I know he's told him about it. But I don'tknow if he's told anyone

else.I know he used to say he couldn't do things because hehad asperger's and I had a teacher relay an incidentwhere he said that and she thought he was using it asan excuse to not do things. However, the teacher had no business telling your sonnot to tell someone about his having asperger's. Thatis between him and you. I would take it as if theteacher was telling him he had something "bad". I knowthat teacher's intention was probably to keep peoplefrom making fun of him or using it against them if hetold, but still, that teacher had no right to tell himnot to tell anyone. has accepted his having asperger's. He doesn'tquite understand it all and will ask questions (he'salmost 15), but he just accepts it. Now he will say,when he can't do something, "Is it because of myasperger's?" We've never told him not to say anythingabout it. But I don't know if he's said anything toanyone

except that one person.Melinda

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

stooopid teacher. These kids need someone building their confidence not acting like aspergers is BAD. that's like telling someone with diabetes, don't tell, it's a secret. Have you talked to the teacher? Shameful and pitiful..

Re: ( ) Question

hello Melinda,

when you wrote, sounds like the teacher was telling him he had something bad??? When we (my son and I) talked a little, he did say he was very confused with why the teacher told him not to tell anyone that he has aspergers. I asked him did she explain why she said not to tell anyone? He said no, but he always wondered why she said that. (said this was a while ago, and he's been thinking about it all this time). he said for now, I'll only tell my best friends. he looked sad and confused. we did talk a little more. But I can see that proud feeling he had is gone. He had confidence, wasn't ashamed, and willing to talk about it to anyone. to now he is concerned, and "its a secret". a sentence he has never used before.... And I bet this teacher has no idea (that what she said), did to my son. is clueless on how it effected him. ughhhHall Melinda <mlndhall > wrote:

--- beachbodytan2002 <beachbodytan2002 >wrote:> Do you think it's appropriate for an AS child to let> others know he has > aspergers. That is a good question. I've never thought about it.I don't know if my son has told anyone except his bestfriend. I know he's told him about it. But I don'tknow if he's told anyone else.I know he used to say he couldn't do things because hehad asperger's and I had a teacher relay an incidentwhere he said that and she thought he was using it asan excuse to not do things. However, the teacher had no business telling your sonnot to tell someone about his having asperger's. Thatis between him and you. I would take it as if theteacher was telling him he had something "bad". I knowthat teacher's intention was probably to keep peoplefrom making fun of him or using it against them if hetold, but still, that teacher had no right to tell himnot to tell anyone. has accepted his having asperger's. He doesn'tquite understand it all and will ask questions (he'salmost 15), but he just accepts it. Now he will say,when he can't do something, "Is it because of myasperger's?" We've never told him not to say anythingabout it. But I don't know if he's said anything toanyone except that one person.Melinda

Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

[Guest guest]

You know you can have a meeting with the teacher and have your son present to resolve this matter. I would. That way he can tell her that what she said made him feel ashamed and that way she can talk about why she said it that way and you add your feelings also. Keep that line of communication open. If not you will resent the teacher and your child goes on feeling this way. Wether the teacher knows this or not they are there to help the children and to that parents and teachers have to be on the same page. I am strong about this. I am always at the school talking to all the faculty and voluteering for everything so I can get that open lines of communication with all the faculty they know me by name already. I am a sore on their butt lol. But my kid is well taken care of because of it. I used to be a quite person and then I joined the military and since then I am loud and proud. Make a stand and tell the teacher in a nice way that we can do better and lets keep open

communication. I hope this helps. Ada TickleToni Barker <kbtoni@...> wrote: stooopid teacher. These kids need someone building their confidence not acting like aspergers is BAD. that's like telling someone with diabetes, don't tell, it's a secret. Have you talked to the teacher? Shameful and pitiful.. Re: ( ) Question hello Melinda, when you wrote, sounds like the teacher was telling him he had something bad??? When we (my son and I) talked a little, he did say he was very confused with why the teacher told him not to tell anyone that he has aspergers. I asked him did she explain why she said not to tell anyone? He said no, but he always wondered why

she said that. (said this was a while ago, and he's been thinking about it all this time). he said for now, I'll only tell my best friends. he looked sad and confused. we did talk a little more. But I can see that proud feeling he had is gone. He had confidence, wasn't ashamed, and willing to talk about it to anyone. to now he is concerned, and "its a secret". a sentence he has never used before.... And I bet this teacher has no idea (that what she said), did to my son. is clueless on how it effected him. ughhhHall Melinda <mlndhall > wrote: --- beachbodytan2002 <beachbodytan2002 >wrote:> Do you think it's appropriate for an AS child

to let> others know he has > aspergers. That is a good question. I've never thought about it.I don't know if my son has told anyone except his bestfriend. I know he's told him about it. But I don'tknow if he's told anyone else.I know he used to say he couldn't do things because hehad asperger's and I had a teacher relay an incidentwhere he said that and she thought he was using it asan excuse to not do things. However, the teacher had no business telling your sonnot to tell someone about his having asperger's. Thatis between him and you. I would take it as if theteacher was telling him he had something "bad". I knowthat teacher's intention was probably to keep peoplefrom making fun of him or using it against them if hetold, but still, that teacher had no right to tell himnot to tell anyone. has accepted his having asperger's. He doesn'tquite understand it all and

will ask questions (he'salmost 15), but he just accepts it. Now he will say,when he can't do something, "Is it because of myasperger's?" We've never told him not to say anythingabout it. But I don't know if he's said anything toanyone except that one person.Melinda Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Thank youAda Akers <adamakers_1@...> wrote: You know you can have a meeting with the teacher and have your son present to resolve this matter. I would. That way he can tell her that what she said made him feel ashamed and that way she can talk about why she said it that way and you add your feelings also. Keep that line of communication open. If not you will resent the teacher and your child goes on feeling this way. Wether the teacher knows this or not they are there to help the children and to that parents and

teachers have to be on the same page. I am strong about this. I am always at the school talking to all the faculty and voluteering for everything so I can get that open lines of communication with all the faculty they know me by name already. I am a sore on their butt lol. But my kid is well taken care of because of it. I used to be a quite person and then I joined the military and since then I am loud and proud. Make a stand and tell the teacher in a nice way that we can do better and lets keep open communication. I hope this helps. Ada TickleToni Barker <kbtoniwindstream (DOT) net> wrote: stooopid teacher. These kids need someone building their confidence not acting like aspergers is BAD. that's like telling someone with diabetes, don't tell,

it's a secret. Have you talked to the teacher? Shameful and pitiful.. Re: ( ) Question hello Melinda, when you wrote, sounds like the teacher was telling him he had something bad??? When we (my son and I) talked a little, he did say he was

very confused with why the teacher told him not to tell anyone that he has aspergers. I asked him did she explain why she said not to tell anyone? He said no, but he always wondered why she said that. (said this was a while ago, and he's been thinking about it all this time). he said for now, I'll only tell my best friends. he looked sad and confused. we did talk a little more. But I can see that proud feeling he had is gone. He had confidence, wasn't ashamed, and willing to talk about it to anyone. to now he is concerned, and "its a secret". a sentence he has never used before.... And I bet this teacher has no idea (that what she said), did to my son. is clueless on how it effected him. ughhhHall Melinda <mlndhall > wrote: --- beachbodytan2002 <beachbodytan2002 >wrote:> Do you think it's appropriate for an AS child to let> others know he has > aspergers. That is a good question. I've never thought about it.I don't know if my son has told anyone except his bestfriend. I know he's told him about it. But I don'tknow if he's told anyone else.I know he used to say he couldn't do things because hehad asperger's and I had a teacher relay an incidentwhere he said that and she thought he was using it asan excuse to not do things. However, the teacher had no business telling your sonnot to tell someone about his having asperger's. Thatis between him and you. I would take it as if theteacher was telling him he had something "bad". I knowthat teacher's intention was probably to keep peoplefrom making fun of him or

using it against them if hetold, but still, that teacher had no right to tell himnot to tell anyone. has accepted his having asperger's. He doesn'tquite understand it all and will ask questions (he'salmost 15), but he just accepts it. Now he will say,when he can't do something, "Is it because of myasperger's?" We've never told him not to say anythingabout it. But I don't know if he's said anything toanyone except that one person.Melinda Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos. Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

That makes me sooo angry!!! That so called teacher just taught your son to be ashamed of having aspergers. The teacher needs a strong talking to.

( ) Question

Do you think it's appropriate for an AS child to let others know he has

aspergers. My son told me while talking to another child, he told that

child he has aspergers and a teacher called him aside and said, don't

tell people that you have aspergers. (not his teacher, another teacher)

He said he feels comfortable talking about it. I asked him how did the

other child act after you told him? he said he was fine.

If continued, will this cause problems for him when he gets older? in

middle school.

is this a good thing? him letting other know? or was that teacher

right for him not to tell others???

Check Out the new free AIM® Mail -- 2 GB of storage and industry-leading spam and email virus protection.

[Guest guest]

thanks, he is feeling better again. we talked lots about this. He said he will still tell his close friends.twinsmom40219@... wrote: That makes me sooo angry!!! That so called teacher just taught your son to be ashamed of having aspergers. The teacher needs a strong talking to. ( ) Question Do you think it's appropriate for an AS child to let others know he has aspergers. My son told me while talking to another child, he told that child he has aspergers and a teacher called him aside and said, don't tell people that you have aspergers. (not his teacher, another teacher)He said he feels comfortable talking about it. I asked him how did the other child act after you told him? he said he was fine.If continued, will this cause problems for him when he gets older? in middle school.is this a good thing? him letting other know? or was that teacher right for him not

to tell others??? Check Out the new free AIM® Mail -- 2 GB of storage and industry-leading spam and email virus protection.

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

I think I would talk to the teachers and let them know not to do that to him anymore. If he feels comfortable sharing information with another person, then he should do so! It's his choice. And frankly, knowledge is power, IMO. The more his classmates know about AS, the less likely they will be to tease him because they will understand (or be on the road to understanding.)

RoxannaAutism Happens

( ) Question

Do you think it's appropriate for an AS child to let others know he has aspergers. My son told me while talking to another child, he told that child he has aspergers and a teacher called him aside and said, don't tell people that you have aspergers. (not his teacher, another teacher)He said he feels comfortable talking about it. I asked him how did the other child act after you told him? he said he was fine.If continued, will this cause problems for him when he gets older? in middle school.is this a good thing? him letting other know? or was that teacher right for him not to tell others???

[Guest guest]

He may be being influenced by the teacher(s) and told it is a bad thing to tell people.

RoxannaAutism Happens

Re: ( ) Question

Yes, I like the way he handles himself too. He also sounds OK with it (confident).

but what I don't understand with my son is that it never bothered him before. He would talk about it and also explain what it is. But for some reason, he now seems embarrassed by it. this is all of a sudden. like a big change. another thing, he use to introduce his respite worker as "a respite worker" and explain what a respite worker is. Now, he will say she/he is a friend. He also told me not to mention anything about a respite worker, say friend. And he looked sad about it. I asked if any kids said anything to him that made him feel bad. He said no. But this sudden change with him is like a RED alert. He went from wanting people to know and explaining it to them. to its now a secrete. "secrete" a word that he never used before. Liz Bohn <lbohn@...> wrote:

Ds 19 doesn't go out of his way to tell people about his AS, but if he offends somebody accidently, or is clumsy, he might mention iit. We had a Katrina family (friends) living with us for a couple of months. DS got himself a drink at dinner time. I said, "Aren't you going to offer N a drink, too?" He immediately apologized and said, "Sometimes I don't think. It's the Asperger's. What would you like to drink?" I was pleased with h;ow he handled it. Very matter of factly.

Liz

On Apr 24, 2007, at 1:00 PM, Hall Melinda wrote:

--- beachbodytan2002 <beachbodytan2002 >wrote:> Do you think it's appropriate for an AS child to let> others know he has > aspergers. That is a good question. I've never thought about it.I don't know if my son has told anyone except his bestfriend. I know he's told him about it. But I don'tknow if he's told anyone else.I know he used to say he couldn't do things because hehad asperger's and I had a teacher relay an incidentwhere he said that and she thought he was using it asan excuse to not do things. However, the teacher had no business telling your sonnot to tell someone about his having asperger's. Thatis between him and you. I would take it as if theteacher was telling him he had something "bad". I knowthat teacher's intention was probably to keep peoplefrom making fun of him or using it against them if hetold, but still, that teacher had no right to tell himnot to tell anyone. has accepted his having asperger's. He doesn'tquite understand it all and will ask questions (he'salmost 15), but he just accepts it. Now he will say,when he can't do something, "Is it because of myasperger's?" We've never told him not to say anythingabout it. But I don't know if he's said anything toanyone except that one person.Melinda

Ahhh...imagining that irresistible "new car" smell?Check out new cars at Autos.

[Guest guest]

I pulled my son off all his medication during the schools testing phase. Its definitely an issue.. That skews the results. To me the main thing is they cannot second guess a physicians diagnoses.

-- ( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago. For a short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September of 2006. One of the leading ASD docs in the southeast made the dx. She said he is a text book case. Fortunately/unfortunately he "holds it together" for the vast majority of the school day and leaves the tantrums/meltdowns and more severe of his quirks for when he gets home with me (dad lives 10+ hours away and doesnt see him much). Its fortunate because he is pretty functional, but unfortunate because the school see just another kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) They prefer him on meds. I and his peds doc have removed him from all meds except melatonin (so nice to have him sleep all night without tossing and turning and waking up grumpy).

So the question is this: The school says well his dr says he has AS, but we dont see any of the symptoms (testing all done while on major meds) so hes not eligible under the Autism category, and yes he meets all criteria for Gifted except that hes got straight A's so its not negatively affecting him. His docs all say because they have made the dx he is more than eligible. I have disagreed and stated as much and pointed out numerous problems with their logic (especially since his 1st grade teachers assessment literally was the textbook definition of AS.) I have asked for an IEE or for them to reconsider based on all available info (to include all his docs input and testing info.) Are they right? Can a child with the dx not be elig? Are the docs right that since they made the dx he is eligible? What else can anyone suggest for me to do at this point? I know school funding is very low here (TN is 48th lowest in funding in the US and our county is 138th lowest of 140 in the state) but as we all know our kids need major help early to hopefully be more independent later on. I'm not asking for much at this point, just OT, social skills, a sensory diet, and an aid throughout the day (especially during unstructured time). Help please?

Andi

DS 6.5 years AS (1st grade) melatonin 3mg

DS 4.5 years no dx at present

[Guest guest]

Thank you. I wish I had taken him off of the meds, however, he was at the point of crying daily because he was getting into trouble all the time (for AS isues, not because he was purposely trying to be difficult, example, talking at inappropriate times, and not sitting in his seat). I have since removed the meds and told him hitting is not acceptable ( we have already had incidents with this), but otherwise he was to do his best and mom would be happy. I dont care at this point if he comes home with "N"s all week long as long as he is trying his best. (scale is S is a good behavior day, S- one infraction, N more than one infraction, U go to the principals office) He comes home with 2-3 N's a week now.

( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago. For a short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September of 2006. One of the leading ASD docs in the southeast made the dx. She said he is a text book case. Fortunately/unfortunately he "holds it together" for the vast majority of the school day and leaves the tantrums/meltdowns and more severe of his quirks for when he gets home with me (dad lives 10+ hours away and doesnt see him much). Its fortunate because he is pretty functional, but unfortunate because the school see just another kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) They prefer him on meds. I and his peds doc have removed him from all meds except melatonin (so nice to have him sleep all night without tossing and turning and waking up grumpy).

So the question is this: The school says well his dr says he has AS, but we dont see any of the symptoms (testing all done while on major meds) so hes not eligible under the Autism category, and yes he meets all criteria for Gifted except that hes got straight A's so its not negatively affecting him. His docs all say because they have made the dx he is more than eligible. I have disagreed and stated as much and pointed out numerous problems with their logic (especially since his 1st grade teachers assessment literally was the textbook definition of AS.) I have asked for an IEE or for them to reconsider based on all available info (to include all his docs input and testing info.) Are they right? Can a child with the dx not be elig? Are the docs right that since they made the dx he is eligible? What else can anyone suggest for me to do at this point? I know school funding is very low here (TN is 48th lowest in funding in the US and our county is 138th lowest of 140 in the state) but as we all know our kids need major help early to hopefully be more independent later on. I'm not asking for much at this point, just OT, social skills, a sensory diet, and an aid throughout the day (especially during unstructured time). Help please?

Andi

DS 6.5 years AS (1st grade) melatonin 3mg

DS 4.5 years no dx at present

[Guest guest]

Dear Andi,

I had this same battle with the school district over

my child's eligibility (originally she was labelled

ADHD, when she got an autism diagnosis the school

district did not want to give her that eligibility).

There is a loophole in the federal law that lets them

put you through this mess. We had to get an advocate

and throw a fit and threaten a lawsuit. It is

maddening to have a competent doctor (or in our case,

a team of competent doctors) give the diagnosis, and

then all these people in the school district who are

way less qualified throw in their two cents. In our

case we were even denied being present when they made

their ruling. High functioning kids, in my opinion,

have the hardest time about everything. You may have

to get an advocate or even a lawyer. Your child is

being denied services that their diagnosis gives them

a right to. As a parent I get so tired of fighting

but as I have said, I am even a special ed teacher who

knows the law and it has never helped me at all

(except I know what to call them on). Do you have an

autism organization or anywhere else you can turn for

an advocate? Many attorneys specialize in IDEA law

and they are good at forcing the issue.

Unfortunately, it appears to me that school districts

use the loophole in the law to screw kids out of

services as much as they possibly can. I am so sorry

to see yet another family go through this.

Kaye

--- ASC <aschristensen@...> wrote:

> I had an IEP eligibility meeting with my sons school

> 2 weeks ago. For a short back story, my ds (age 6.5

> years, 1st grade) was dxed with AS in September of

> 2006. One of the leading ASD docs in the southeast

> made the dx. She said he is a text book case.

> Fortunately/unfortunately he " holds it together " for

> the vast majority of the school day and leaves the

> tantrums/meltdowns and more severe of his quirks for

> when he gets home with me (dad lives 10+ hours away

> and doesnt see him much). Its fortunate because he

> is pretty functional, but unfortunate because the

> school see just another kid with ADHD (ruled out by

> the ASD doc, has symptoms, but only due to the AS.)

> They prefer him on meds. I and his peds doc have

> removed him from all meds except melatonin (so nice

> to have him sleep all night without tossing and

> turning and waking up grumpy).

>

> So the question is this: The school says well his

> dr says he has AS, but we dont see any of the

> symptoms (testing all done while on major meds) so

> hes not eligible under the Autism category, and yes

> he meets all criteria for Gifted except that hes got

> straight A's so its not negatively affecting him.

> His docs all say because they have made the dx he is

> more than eligible. I have disagreed and stated as

> much and pointed out numerous problems with their

> logic (especially since his 1st grade teachers

> assessment literally was the textbook definition of

> AS.) I have asked for an IEE or for them to

> reconsider based on all available info (to include

> all his docs input and testing info.) Are they

> right? Can a child with the dx not be elig? Are

> the docs right that since they made the dx he is

> eligible? What else can anyone suggest for me to do

> at this point? I know school funding is very low

> here (TN is 48th lowest in funding in the US and our

> county is 138th lowest of 140 in the state) but as

> we all know our kids need major help early to

> hopefully be more independent later on. I'm not

> asking for much at this point, just OT, social

> skills, a sensory diet, and an aid throughout the

> day (especially during unstructured time). Help

> please?

>

> Andi

> DS 6.5 years AS (1st grade) melatonin 3mg

> DS 4.5 years no dx at present

________________________________________________________________________________\

____Be a better Heartthrob. Get better relationship answers from someone who

knows. Answers - Check it out.

http://answers./dir/?link=list & sid=396545433

[Guest guest]

Dear Andi,

Unfortunately, meds or no meds is not really the

issue. Even if a child has the diagnosis, the school

district gets to rule on whether or not autism affects

educational performance. Going without meds makes

them act up more but the school may then label your

child " emotionally disturbed " or " primarily a behavior

problem " and then they try to dump your child into

those programs (which are a nightmare, in my opinion

no child with autism belongs there!)

If your child is on meds I would advise you not to

jerk them around about that. It can be very dangerous

and it is definitely hard on them and no fun to be

getting in trouble at school, and it may make your

problem even worse if the school then decides they are

" emotionally disturbed " .

I think parents of autistic children in this position

really need an advocate or an attorney. I can't say

that enough. Be really careful about taking meds

away.

Kaye

--- Andi <aschristensen@...> wrote:

> Thank you. I wish I had taken him off of the meds,

> however, he was at the point of crying daily because

> he was getting into trouble all the time (for AS

> isues, not because he was purposely trying to be

> difficult, example, talking at inappropriate times,

> and not sitting in his seat). I have since removed

> the meds and told him hitting is not acceptable ( we

> have already had incidents with this), but otherwise

> he was to do his best and mom would be happy. I

> dont care at this point if he comes home with " N " s

> all week long as long as he is trying his best.

> (scale is S is a good behavior day, S- one

> infraction, N more than one infraction, U go to the

> principals office) He comes home with 2-3 N's a

> week now.

> ( ) question

>

>

> I had an IEP eligibility meeting with my

> sons school 2 weeks ago. For a short back story, my

> ds (age 6.5 years, 1st grade) was dxed with AS in

> September of 2006. One of the leading ASD docs in

> the southeast made the dx. She said he is a text

> book case. Fortunately/unfortunately he " holds it

> together " for the vast majority of the school day

> and leaves the tantrums/meltdowns and more severe of

> his quirks for when he gets home with me (dad lives

> 10+ hours away and doesnt see him much). Its

> fortunate because he is pretty functional, but

> unfortunate because the school see just another kid

> with ADHD (ruled out by the ASD doc, has symptoms,

> but only due to the AS.) They prefer him on meds.

> I and his peds doc have removed him from all meds

> except melatonin (so nice to have him sleep all

> night without tossing and turning and waking up

> grumpy).

>

> So the question is this: The school says

> well his dr says he has AS, but we dont see any of

> the symptoms (testing all done while on major meds)

> so hes not eligible under the Autism category, and

> yes he meets all criteria for Gifted except that hes

> got straight A's so its not negatively affecting

> him. His docs all say because they have made the dx

> he is more than eligible. I have disagreed and

> stated as much and pointed out numerous problems

> with their logic (especially since his 1st grade

> teachers assessment literally was the textbook

> definition of AS.) I have asked for an IEE or for

> them to reconsider based on all available info (to

> include all his docs input and testing info.) Are

> they right? Can a child with the dx not be elig?

> Are the docs right that since they made the dx he is

> eligible? What else can anyone suggest for me to do

> at this point? I know school funding is very low

> here (TN is 48th lowest in funding in the US and our

> county is 138th lowest of 140 in the state) but as

> we all know our kids need major help early to

> hopefully be more independent later on. I'm not

> asking for much at this point, just OT, social

> skills, a sensory diet, and an aid throughout the

> day (especially during unstructured time). Help

> please?

>

> Andi

> DS 6.5 years AS (1st grade) melatonin 3mg

> DS 4.5 years no dx at present

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

________________________________________________________________________________\

____Building a website is a piece of cake. Small Business gives you all

the tools to get online.

http://smallbusiness./webhosting

[Guest guest]

The school is right. A child can have a dx but if they do not show educational need, the school does not have to provide an IEP.

If your child is getting all A's and otherwise functioning fine, and they have the data to support that, then they can say he doesn't need an IEP. You have the option to challenge that, of course. But you need to provide solid data supporting the need - what does he need and why. Just saying he has a dx of something is not enough. I don't know why the doc's told you their dx was enough to get services. Maybe they play lawyers on their days off?

RoxannaAutism Happens

( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago. For a short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September of 2006. One of the leading ASD docs in the southeast made the dx. She said he is a text book case. Fortunately/unfortunately he "holds it together" for the vast majority of the school day and leaves the tantrums/meltdowns and more severe of his quirks for when he gets home with me (dad lives 10+ hours away and doesnt see him much). Its fortunate because he is pretty functional, but unfortunate because the school see just another kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) They prefer him on meds. I and his peds doc have removed him from all meds except melatonin (so nice to have him sleep all night without tossing and turning and waking up grumpy).

So the question is this: The school says well his dr says he has AS, but we dont see any of the symptoms (testing all done while on major meds) so hes not eligible under the Autism category, and yes he meets all criteria for Gifted except that hes got straight A's so its not negatively affecting him. His docs all say because they have made the dx he is more than eligible. I have disagreed and stated as much and pointed out numerous problems with their logic (especially since his 1st grade teachers assessment literally was the textbook definition of AS.) I have asked for an IEE or for them to reconsider based on all available info (to include all his docs input and testing info.) Are they right? Can a child with the dx not be elig? Are the docs right that since they made the dx he is eligible? What else can anyone suggest for me to do at this point? I know school funding is very low here (TN is 48th lowest in funding in the US and our county is 138th lowest of 140 in the state) but as we all know our kids need major help early to hopefully be more independent later on. I'm not asking for much at this point, just OT, social skills, a sensory diet, and an aid throughout the day (especially during unstructured time). Help please?

Andi

DS 6.5 years AS (1st grade) melatonin 3mg

DS 4.5 years no dx at present

[Guest guest]

Why would you do that to him? If he can take a medication and behave just fine in class, why would you take him off so that he is failing constantly throughout the week? This makes no sense at all. Please explain!

RoxannaAutism Happens

( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago. For a short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September of 2006. One of the leading ASD docs in the southeast made the dx. She said he is a text book case. Fortunately/unfortunately he "holds it together" for the vast majority of the school day and leaves the tantrums/meltdowns and more severe of his quirks for when he gets home with me (dad lives 10+ hours away and doesnt see him much). Its fortunate because he is pretty functional, but unfortunate because the school see just another kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) They prefer him on meds. I and his peds doc have removed him from all meds except melatonin (so nice to have him sleep all night without tossing and turning and waking up grumpy).

So the question is this: The school says well his dr says he has AS, but we dont see any of the symptoms (testing all done while on major meds) so hes not eligible under the Autism category, and yes he meets all criteria for Gifted except that hes got straight A's so its not negatively affecting him. His docs all say because they have made the dx he is more than eligible. I have disagreed and stated as much and pointed out numerous problems with their logic (especially since his 1st grade teachers assessment literally was the textbook definition of AS.) I have asked for an IEE or for them to reconsider based on all available info (to include all his docs input and testing info.) Are they right? Can a child with the dx not be elig? Are the docs right that since they made the dx he is eligible? What else can anyone suggest for me to do at this point? I know school funding is very low here (TN is 48th lowest in funding in the US and our county is 138th lowest of 140 in the state) but as we all know our kids need major help early to hopefully be more independent later on. I'm not asking for much at this point, just OT, social skills, a sensory diet, and an aid throughout the day (especially during unstructured time). Help please?

Andi

DS 6.5 years AS (1st grade) melatonin 3mg

DS 4.5 years no dx at present

[Guest guest]

I did put my son back on his medication .. After the testing. I have decided it works best for him not for the teachers. He feels more settled and "grounded" when he is taking his medication daily . I don't take him off for weekends either.. I find that is MORE disruptive to him and takes a couple of days to get back in sync.

The poor behaviour can also be a domino effect. Teachers start to expect it.. So do fellow students and your child can be getting more N's Just because they give him less wiggle room

I feel for you both and it seems that those of us with High functioning children get really lost in the crowd.. And get labeled as willfully disobedient.. And it is truly the autism thing!

-- Re: ( ) question

Thank you. I wish I had taken him off of the meds, however, he was at the point of crying daily because he was getting into trouble all the time (for AS isues, not because he was purposely trying to be difficult, example, talking at inappropriate times, and not sitting in his seat). I have since removed the meds and told him hitting is not acceptable ( we have already had incidents with this), but otherwise he was to do his best and mom would be happy. I dont care at this point if he comes home with "N"s all week long as long as he is trying his best. (scale is S is a good behavior day, S- one infraction, N more than one infraction, U go to the principals office) He comes home with 2-3 N's a week now.

( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago. For a short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September of 2006. One of the leading ASD docs in the southeast made the dx. She said he is a text book case. Fortunately/unfortunately he "holds it together" for the vast majority of the school day and leaves the tantrums/meltdowns and more severe of his quirks for when he gets home with me (dad lives 10+ hours away and doesnt see him much). Its fortunate because he is pretty functional, but unfortunate because the school see just another kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) They prefer him on meds. I and his peds doc have removed him from all meds except melatonin (so nice to have him sleep all night without tossing and turning and waking up grumpy).

So the question is this: The school says well his dr says he has AS, but we dont see any of the symptoms (testing all done while on major meds) so hes not eligible under the Autism category, and yes he meets all criteria for Gifted except that hes got straight A's so its not negatively affecting him. His docs all say because they have made the dx he is more than eligible. I have disagreed and stated as much and pointed out numerous problems with their logic (especially since his 1st grade teachers assessment literally was the textbook definition of AS.) I have asked for an IEE or for them to reconsider based on all available info (to include all his docs input and testing info.) Are they right? Can a child with the dx not be elig? Are the docs right that since they made the dx he is eligible? What else can anyone suggest for me to do at this point? I know school funding is very low here (TN is 48th lowest in funding in the US and our county is 138th lowest of 140 in the state) but as we all know our kids need major help early to hopefully be more independent later on. I'm not asking for much at this point, just OT, social skills, a sensory diet, and an aid throughout the day (especially during unstructured time). Help please?

Andi

DS 6.5 years AS (1st grade) melatonin 3mg

DS 4.5 years no dx at present

[Guest guest]

OMG Roxanna that is horrible! In Canada I don't believe that is the case. It is horrible that you guys have to proove that your child's social dysfunction is indeed a factor in the learning process. My gawd how ignorant of the whole spectrum they are!

Here in Canada the label gets the school some major funding.. However it is up to the school to decide where that funding goes. It may not be to your child specifically . So.. When I pulled my son from school and demanded appropriate services.. It meant the check went into a slush fund.. NOT the school any more. I made them use it for my son. He was in the Special Ed class in no time.

-- Re: ( ) question

The school is right. A child can have a dx but if they do not show educational need, the school does not have to provide an IEP.

If your child is getting all A's and otherwise functioning fine, and they have the data to support that, then they can say he doesn't need an IEP. You have the option to challenge that, of course. But you need to provide solid data supporting the need - what does he need and why. Just saying he has a dx of something is not enough. I don't know why the doc's told you their dx was enough to get services. Maybe they play lawyers on their days off?

RoxannaAutism Happens

( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago. For a short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September of 2006. One of the leading ASD docs in the southeast made the dx. She said he is a text book case. Fortunately/unfortunately he "holds it together" for the vast majority of the school day and leaves the tantrums/meltdowns and more severe of his quirks for when he gets home with me (dad lives 10+ hours away and doesnt see him much). Its fortunate because he is pretty functional, but unfortunate because the school see just another kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) They prefer him on meds. I and his peds doc have removed him from all meds except melatonin (so nice to have him sleep all night without tossing and turning and waking up grumpy).

So the question is this: The school says well his dr says he has AS, but we dont see any of the symptoms (testing all done while on major meds) so hes not eligible under the Autism category, and yes he meets all criteria for Gifted except that hes got straight A's so its not negatively affecting him. His docs all say because they have made the dx he is more than eligible. I have disagreed and stated as much and pointed out numerous problems with their logic (especially since his 1st grade teachers assessment literally was the textbook definition of AS.) I have asked for an IEE or for them to reconsider based on all available info (to include all his docs input and testing info.) Are they right? Can a child with the dx not be elig? Are the docs right that since they made the dx he is eligible? What else can anyone suggest for me to do at this point? I know school funding is very low here (TN is 48th lowest in funding in the US and our county is 138th lowest of 140 in the state) but as we all know our kids need major help early to hopefully be more independent later on. I'm not asking for much at this point, just OT, social skills, a sensory diet, and an aid throughout the day (especially during unstructured time). Help please?

Andi

DS 6.5 years AS (1st grade) melatonin 3mg

DS 4.5 years no dx at present

[Guest guest]

From: Roxanna <madideas@...>

Date: 2007/05/21 Mon AM 07:54:15 CDT

Subject: Re: ( ) question

Yes, here in MA also the child has to demonstrate a disability, but also has to

NOT be making effective progress and then also needs specially designed

instruction that cannot be provided by a regular education teacher in order to

receive an IEP. Regular education teachers are required to make " moderate "

modifications as needed up to a certain point.

The school is right.  A child can have a dx but if they do not show

educational need, the school does not have to provide an IEP.  If your child

is getting all A's and otherwise functioning fine, and they have the data to

support that, then they can say he doesn't need an IEP.  You have the option

to challenge that, of course.  But you need to provide solid data supporting

the need - what does he need and why.  Just saying he has a dx of something

is not enough.  I don't know why the doc's told you their dx was enough to

get services.  Maybe they play lawyers on their days off? Roxanna

Autism Happens ( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago.  For a

short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in

September of 2006.  One of the leading ASD docs in the southeast made the

dx.  She said he is a text book case.  Fortunately/unfortunately he

" holds it together " for the vast majority of the school day and leaves the

tantrums/meltdowns and more severe of his quirks for when he gets home with me

(dad lives 10+ hours away and doesnt see him much).  Its fortunate because

he is pretty functional, but unfortunate because the school see just another

kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the

AS.)  They prefer him on meds.  I and his peds doc have removed him from

all meds except melatonin (so nice to have him sleep all night without tossing

and turning and waking up grumpy).    So the question is this: 

The school says well his dr says he has AS, but we dont see any of the

symptoms (testing all done while on major meds) so hes not eligible under

the Autism category, and yes he meets all criteria for Gifted except that hes

got straight A's so its not negatively affecting him.  His docs all say

because they have made the dx he is more than eligible.  I have disagreed

and stated as much and pointed out numerous problems with their logic

(especially since his 1st grade teachers assessment literally was the textbook

definition of AS.)  I have asked for an IEE or for them to reconsider based

on all available info (to include all his docs input and testing info.) 

Are they right?  Can a child with the dx not be elig?  Are the docs

right that since they made the dx he is eligible?  What else can anyone

suggest for me to do at this point?  I know school funding is very low here

(TN is 48th lowest in funding in the US and our county is 138th lowest of

140 in the state)  but as we all know our kids need major help early to

hopefully be more independent later on.  I'm not asking for much at this

point, just OT, social skills, a sensory diet, and an aid throughout the day

(especially during unstructured time).  Help please?   Andi DS 6.5

years AS (1st grade) melatonin 3mg DS 4.5 years no dx at present

" I must have walked ten million miles

Must have walked ten million miles

Wore some shoes that weren't my style

Fell into the rank and file

So just say I was here a while

A fool in search of your sweet smile

Ten million miles "

~Patty ~

[Guest guest]

From: ASC <aschristensen@...>

Date: 2007/05/20 Sun PM 10:22:04 CDT

Subject: ( ) question

Personally, I think you should be thrilled that he holds it together so well in

school and I certainly wouldn't want him in a special ed setting with that kind

of success. If he has had an OT eval then he would be eligible for services I

would think. Unfortunately there aren't very many good social skills curriculums

in the public schools and many parents have to look for that elsewhere or

provide opportunities yourself. I wish that my daughter would save her meltdowns

for home-she doesn't, so now she is in a substantially separate classroom with

only 6 other kids and she is very smart....breaks my heart.

I had an IEP eligibility meeting with my sons school 2 weeks ago.  For a

short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September

of 2006.  One of the leading ASD docs in the southeast made the dx.  She

said he is a text book case.  Fortunately/unfortunately he " holds it

together " for the vast majority of the school day and leaves the

tantrums/meltdowns and more severe of his quirks for when he gets home with me

(dad lives 10+ hours away and doesnt see him much).  Its fortunate because he

is pretty functional, but unfortunate because the school see just another kid

with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) 

They prefer him on meds.  I and his peds doc have removed him from all meds

except melatonin (so nice to have him sleep all night without tossing and

turning and waking up grumpy).   So the question is this:  The school

says well his dr says he has AS, but we dont see any of the symptoms (testing

all done while on major meds) so hes not eligible under the Autism category,

and yes he meets all criteria for Gifted except that hes got straight A's so its

not negatively affecting him.  His docs all say because they have made the dx

he is more than eligible.  I have disagreed and stated as much and pointed

out numerous problems with their logic (especially since his 1st grade teachers

assessment literally was the textbook definition of AS.)  I have asked for an

IEE or for them to reconsider based on all available info (to include all his

docs input and testing info.)  Are they right?  Can a child with the dx

not be elig?  Are the docs right that since they made the dx he is

eligible?  What else can anyone suggest for me to do at this point?  I

know school funding is very low here (TN is 48th lowest in funding in the US and

our county is 138th lowest of 140 in the state)  but as we all know our

kids need major help early to hopefully be more independent later on.  I'm

not asking for much at this point, just OT, social skills, a sensory diet, and

an aid throughout the day (especially during unstructured time).  Help

please? AndiDS 6.5 years AS (1st grade) melatonin 3mgDS 4.5 years no dx at

present

" I must have walked ten million miles

Must have walked ten million miles

Wore some shoes that weren't my style

Fell into the rank and file

So just say I was here a while

A fool in search of your sweet smile

Ten million miles "

~Patty ~

[Guest guest]

To explain the meds issue. He was on a very low dose of Adderol XR (doc says least chance of aggression with this one, as we have major aggression issues without meds). When he would be coming off the meds at night, he would become extrememly violent to not only me, but his 4 year old brother, and to himself. I cannot and will not medicate him in such a way as to make him a danger to anyone including himself. His behavior was a bit better in that he could focus a bit better, however, he was still in trouble and we were going to have to up the dose. He lost weight (which unfortunately he doesn't have to lose). His doc pulled him from the meds completely as she could not put him through this anymore or cause him to become more violent just for a few hours of behavior during the day and a nightmare of a life when the meds wore off. I agree with his doc completely and have looked at other options, but right now, he is fine without the meds. I have dealt and been fine with him for almost 7 years. To be honest, I didnt want him on them in the first place due to all the side effects of the different meds and needing to take others just to counteract the side effects of another med (by the way he was also on clonidine to help him sleep since he was so agressive and violent at night and he could not get quiet and go to sleep due to the adderol). Please know that i have his best interests at heart and am tryng to make his life more stable NOT more of a rollercoaster. I am a single mom doing the best that i can for my family with little to no help from their dad.

( ) question

I had an IEP eligibility meeting with my sons school 2 weeks ago. For a short back story, my ds (age 6.5 years, 1st grade) was dxed with AS in September of 2006. One of the leading ASD docs in the southeast made the dx. She said he is a text book case. Fortunately/unfortunately he "holds it together" for the vast majority of the school day and leaves the tantrums/meltdowns and more severe of his quirks for when he gets home with me (dad lives 10+ hours away and doesnt see him much). Its fortunate because he is pretty functional, but unfortunate because the school see just another kid with ADHD (ruled out by the ASD doc, has symptoms, but only due to the AS.) They prefer him on meds. I and his peds doc have removed him from all meds except melatonin (so nice to have him sleep all night without tossing and turning and waking up grumpy).

So the question is this: The school says well his dr says he has AS, but we dont see any of the symptoms (testing all done while on major meds) so hes not eligible under the Autism category, and yes he meets all criteria for Gifted except that hes got straight A's so its not negatively affecting him. His docs all say because they have made the dx he is more than eligible. I have disagreed and stated as much and pointed out numerous problems with their logic (especially since his 1st grade teachers assessment literally was the textbook definition of AS.) I have asked for an IEE or for them to reconsider based on all available info (to include all his docs input and testing info.) Are they right? Can a child with the dx not be elig? Are the docs right that since they made the dx he is eligible? What else can anyone suggest for me to do at this point? I know school funding is very low here (TN is 48th lowest in funding in the US and our county is 138th lowest of 140 in the state) but as we all know our kids need major help early to hopefully be more independent later on. I'm not asking for much at this point, just OT, social skills, a sensory diet, and an aid throughout the day (especially during unstructured time). Help please?

Andi

DS 6.5 years AS (1st grade) melatonin 3mg

DS 4.5 years no dx at present