Guest guest Posted August 9, 2007 Report Share Posted August 9, 2007 Hi Barbara I'm pretty new to this group myself, joining it after having cancer (uterine??cervical) found in June 25th. I had a rad hyst. on 7/7/07, cancer removed. Being unwilling to submit myself to further medical treatments (i.e. radiation to my entire abdomin). I joined this group to see what other alternative methods of prevention I might be able to use. From reading your post I feel like I missed something, did you have a cancer previously, and if so what kind of cancer. I'm really sorry to hear your family is not handling this well, when they should be surrounding you with love and prayers. We need each other to get through the hard times, sharing our pain & joys with one another. There is a fear of you no longer being there with them, and I think that is what prevents them from staying close to you. I hope this makes sense to you. Just know there are many people here for when you need that extra bit of support. ^._.^Oci^^lady in So. Nevada^._.^Romans 10:13 It seems that the family has pushed away > from me, my husband and children don't mention anything about my health. They don't call or visit like they > used to. Maybe this is their way of dealing with the situation, I'm not > sure. > Barbara Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2007 Report Share Posted September 8, 2007 > > See p. 9. Anyone have cord blood tested for these? I am contemplating it > later on down the road if we need it and are not destitute. I have no > idea of cost. > > https://www.autismeval.com/danwebcast/webcast_washdc/powerpoint/DC_06_Us man.pdf > Liz, I tried to do that with my kids. The thing was the blood center that I contacted in town had a doctor who did it and he was not available while I was in labor. Meanwhile my gyno didn't know how to do the proceedure, and wouldn't do it with out the other doctor. Just putting in my two cents. Jeanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Your friend can order the Doctor's Data Hair Elements test through Direct Lab Services. If (s)he mentions this groups they'll give her a discount. Make sure she knows about the counting rules. S S QUESTION Posted by: " Corinne Vela " corinnevela@... motherofbrent Sat Oct 20, 2007 12:41 am (PST) Does anyone have an address for a hair test for heavy metals that can be done without a prescription??? I am inquiring for a friend, and have seem to have mis placed all my information, thanks so much.. Corinne _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 DIRECT LABORATORY SERVICES, INC. Mailing Address: P.O. Box 601 Mandeville, LA 70470-0601. Street Address: 300 Mariners Plaza Suite 320 Mandeville, LA 70448 .... www.directlabs.com/contact.php _______________________________________________ Join Excite! - http://www.excite.com The most personalized portal on the Web! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2007 Report Share Posted October 28, 2007 Tina in NY -- the easy answer is - YES, it could be a new infection, particularly if she was outside or in areas she could have been exposed - the timing is right. But it could also be that the first bout was undertreated (you didn't indicate how long she was treated), or, it could be that there are co-infections involved. Hip pain sounds to me like Babesia; also if she's had multiple infections, you could be just beginning to get at the load - sometimes it takes a while. Our whole family has been infected - symptoms started in summer/fall 2005, we weren't diagnosed until 2006 fall... and we've been on abx since then (about a year) -- we have had to treat lyme, babesia and bartonella, and while we are 80-90% better, we are still battling symptoms from the coinfections and trying to get our immune systems to ramp back up and take over. It is not that easy- I am sure that Dr. can work with you to use abx that your insurance will cover -- most important thing from my perspective is to make sure you're treating it long enough. It sounds like you may have caught it earlier, rather than later, and it may be a matter of coinfections, but who knows. Hang in there, and read as much as you can. See the different lyme info websites -- ILADS, _www.ldapa.org_ (http://www.ldapa.org) , lymenet, etc... Canada lyme is good. good luck - in PA Also - sounds like you should get to that NY support group- there are a lot in NY... I would say go! ************************************** See what's new at http://www.aol.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2007 Report Share Posted October 30, 2007 Hi Tina, I'm just curious about what test at Igenex indicates that there is active Lyme again- the IFA, the western blot? Did she get tested for co-infections? Thanks [ ] Question My daughter has had lyme in the past. She went into remission for a year and in May we took her to DR again because she had a constant low grade temp and her test from Igenex is showing she has active lyme again! She was on zithro and omnicef from May to July stop in August and started back on in September. Now she is really sick and her knees and hip hurt. My question could this episode be a result form a new tick bite? We have found ticks on our two dogs. On going? And also, what antibiotics would Dr switch her to. I am concerned because of our insurance. Tina in NY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 > > I have a question. How many of you have been cured of cancer by > using natural things? I am not going to cut,burn, or poison myself. > I need to know what therapies work and where to get it done. Also, > are these therapies covered by insurance. I have heard of a clinic > in Athens,Oh run by Dr. Knouse. Please, if anyone can answer > my questions. I am needing help badly. Thanks. > Again Im mentioning that there is a man in Monte Negro, who is making some liquid which helped many cancer sick people in this area ( Former Yougoslav republics ). His name is Jovo, tel. 0038286235196, and its alowed to call him till 13,00 h. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 here is a web site that will answer your question. http://blossomnursery.com/pawpaw_TREE_ & _FRUIT.html basicemina wrote: Can anybody tell me what is Paw Paw tree? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2007 Report Share Posted November 7, 2007 Paw-paw is a native north american shrub or tree, of which some feel the fruit has medicinal properties. Oldsters may remember " .. around the paw-paw patch " . It can grow into a tree. See http://en.wikipedia.org/wiki/Pawpaw -Dave basicemina wrote: > Can anybody tell me what is Paw Paw tree? > Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 I got relief from swelling almost immediately (not all but a significant reduction in 24 hours) from Enbrel. Pain relief came much more gradually. So gradually that I didn't notice it until I suddenly realized that I could get up out of a chair without pain and that it was much easier walking. I've been on it for just a little over 3 months and began to really notice a dramatic difference at the end of the second month, though - as I said - the changes came on gradually. I'm now back working out on the treadmill, elliptical, etc. Really feel pretty darned good. I'm not on either of the other two drugs you're taking but I've always heard that prednisone works pretty quickly - possibly within as much as a few days. If you don't notice a difference within a week or so, you might want to check with the doctor. Joanna Hoelscher 630-833-7361 [ ] QUESTION I have been on Enbrel shots for 2 weeks now and also on 20mg of methotrexate and 10mg a day of prednisone. HOW LONG does it take for the Enbrel to kick? My ankles are horrible and I have a stand up job. I can only do about 4 hours at the most right now and am in horrible pain the entire time.I wear ankle supports but things aren't improving. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 Hi Clare, I think that might be in relation to taking 50mg because when it was originally tested it was at 300mg and they noticed some elevated signs in the testing. I don't think you should worry about it at 3 to 4.5mg. Also, keep in mind that it was being used for people with drug and alcohol problems which typically have liver problems anyways. My best Aletha [low dose naltrexone] question Hi Group I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this? Clare Cork, Ireland. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 I usually do through my annual physical. ldn/ms [low dose naltrexone] question > >Hi Group > I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this? > Clare Cork, Ireland. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 Many thanks for that Aletha. Clare. [low dose naltrexone] question Hi Group I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this? Clare Cork, Ireland. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.27/1121 - Release Date: 09/11/2007 19:29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007  Thank you. Clare. [low dose naltrexone] question>>Hi Group> I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this?> Clare Cork, Ireland. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.15.27/1121 - Release Date: 09/11/2007 19:29 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2007 Report Share Posted November 10, 2007 yeah, you should have a full blood workup with all the panels. I begged my doc to add T3, T4, T8 panels too (I think THEY call it the HIV panel). The whole thing, lots of vials. I try to get one a year and compare them. I haven't had one OOB reading on any bloodwork since 2002 except 2 readings that were really way way out there. Retesting showed the same result as all the other Good ones. One of them was my cholesterol... before LDN I couldn't get it below 230. Since, I've been 186-188, except one test showed 126. I bragged about it, but I Knew it was wrong. The next test showed 188. But don't thank everyone who answers your post, in this group, we'll all assume you're thankful and don't need to see 8 "thanks" posts. Thanks :) [low dose naltrexone] question Hi Group I have been using ldn now for 10 weeks.I feel well and great improvement in my fatigue.Recently I met a lady whos e on it 5 years, she actually told me about it, but I forgot to ask her, I read somewhere that you should get your liver tested after 6 months on ldn.Any truth in this? Clare Cork, Ireland. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2007 Report Share Posted November 23, 2007 In a message dated 11/23/07 5:53:45 PM Eastern Standard Time, rhudy@... writes: > The science behind it is irrefutable. > What is the science? ************************************** Check out AOL's list of 2007's hottest products. (http://money.aol.com/special/hot-products-2007?NCID=aoltop00030000000001) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 24, 2007 Report Share Posted November 24, 2007 Greetings, No, I am not even close to grossed out, what could be more natural? I do wonder though if it is not our modern child rearing methods that have removed this natural prevention from our culture and therefore raised the incidents of prostrate cancer. Have you even seen statistics for a comparison of bachelors to married men, from say 100 yearsor more ago on whom had prostrate cancer and who didn't? I doubt such statistics exists, but they could be very illuminating. Bright Blessings, Kim Ellen wrote: > I recently posted that raw human milk has had a very positive effect on > my immunoglobulins and has caused a man's prostate cancer to go away. > Does no one have any questions about this for me? Are you all grossed > out by the idea? The science behind it is irrefutable. > Ellen > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 Go to the PROMPT Institute website there is a place you can put in your zip code and they will send you a list of providers in your area. > > Hi! > > My son was diagnosed with verbal apraxia in October. He > received speech and ot services through EI from February 2007 through > December 31. On January 2, he started at a local special needs > preschool where he'll receive speech three times a week and ot twice a > week. My husband and I would like to find a speech therapist who > specializes in prompt therapy. We would like for matthew to see this > person outside of the school setting so it would be funded by us. Any > ideas on how to find a therpist who specializes in prompt therapy? > Also, any thoughts for or against bringing him to a therpaist outside > of the school setting? > > Thank you in advance and any responses! > Jenn > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 I actually got my school district to send a SLP to PROMPT training. I pretty much let them know they had to " get with the times " and have someone who knew it. It was not easy tho- I had to get an expert opinion that she had apraxia and then we even had a Marilyn Agin eval and with the slp (very well known in our state for apraxia)eval backed up by Agin's- they finally gave in and have been supportive. I think they just sent another SLP to PROMPT training. Kathy ________________________________________________________________________________\ ____ Looking for last minute shopping deals? Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 6, 2008 Report Share Posted January 6, 2008 Gee Kathy, isn't it tough enough to have three kids, one with a lot of issues and then on top of it to have to move mountains to get warranted therapy? You are amazing! > > I actually got my school district to send a SLP to > PROMPT training. I pretty much let them know they had > to " get with the times " and have someone who knew it. > It was not easy tho- I had to get an expert opinion > that she had apraxia and then we even had a Marilyn > Agin eval and with the slp (very well known in our > state for apraxia)eval backed up by Agin's- they > finally gave in and have been supportive. I think they > just sent another SLP to PROMPT training. > Kathy > > > ______________________________________________________________________ ______________ > Looking for last minute shopping deals? > Find them fast with Search. http://tools.search./newsearch/category.php?category=shopping > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi , This takes time for some. Some people on this site that reported that they have new things helped as far down the line as 6 to 9 months. Other things that seem to help along with LDN are diet, lack of stress, checking to make sure you don't have Candida and taking an assortment of supplements. Remember that LDN helps the immune system and if you also help the immune system with other items then you have a winning combination. Not everyone gets out of the wheel chair or gets full mobility back. The big thing here is to keep from progressing. It is rare to hear of anyone actually getting worse (after the initial period of adjustment). I will send you some further posts. My very best Aletha [low dose naltrexone] Question Hello I have ms and started ldn awhile back i seen some minor results and then nothing so i gave up/ Im ready to try again. How long does it taketo see results in mobility ? any testimonals would be great. I also have chrones diease and am hoping it will help everything Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 Hi , It can sometimes take weeks, months, or even a year or more for LDN to achieve its maximum therapeutic potential. It took time for your health problems to develop, and it will take time to overcome them. Also, sometimes the most that can be accomplished is to halt the progression of your condition. There is more to treating MS and Crohn's than just taking LDN. In regard to MS, visit http://tinyurl.com/grpm9 In regard to Crohn's, a good book to read is " The New Eating Right For A Bad Gut. " It is available from Amazon.com through this link: http://tinyurl.com/2y92c3 With best wishes, Dudley Delany dudley_delany [low dose naltrexone] Question Hello I have ms and started ldn awhile back i seen some minor results and then nothing so i gave up/ Im ready to try again. How long does it take to see results in mobility ? any testimonals would be great. I also have chrones diease and am hoping it will help everything Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2008 Report Share Posted January 7, 2008 , LDN does not give everyone noticable results, just like the CRAB drugs do not. I have been on LDN for over three years and my results showed on my MRIs. NO DISEASE PROGRESSION!. That is good enough for me. You might want to read up on CAP at www.cpnhelp.org. > > Hello > > I have ms and started ldn awhile back i seen some minor results and > then nothing so i gave up/ Im ready to try again. How long does it take > to see results in mobility ? any testimonals would be great. I also > have chrones diease and am hoping it will help everything > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 > > Hello > > I have ms and started ldn awhile back i seen some minor results and > then nothing so i gave up/ Im ready to try again. How long does it take > to see results in mobility ? any testimonals would be great. I also > have chrones diease and am hoping it will help everything > > > The only results that are supposed to occur is termination of disease progression. Some people get some symptom relief but not everyone so even if you see " nothing happening " you should try to just keep taking it every night anyway. My husband who has MS has taken it for nearly three years with no disease progression but he still has some disability from the original attack. Good luck! Bev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2008 Report Share Posted January 8, 2008 I hope this does not discourage anybody who is having a hard time seeing a difference in taking LDN but I had my first dose (3 mg) last night at 10 pm and didn't expect any differences because I don't consider that I have many problems but I startled from sleep at 4 am with feeling in my hand. I immediately noticed there was NO numbness in my right hand that has been numb since Jan/Feb 2005. It seemed so hard to believe that I laid there feeling my hand for about 20-30 minutes to be certain I wasn't crazy. There is now slight numbness this morning but it is markedly less than before last night's first dose. I also noticed the lack of urgency that I always have when I wake up during the night. I also noticed sensations in my right forearm that I didn't believe had any issues. I of course am anxious to see that these are only the first signs of a long pattern of proof but I'm very impressed so far. Thanks to all of you and your testimonials and inquiries that have helped me take this path. Dave On 1/7/08, brian.little <brian.little@...> wrote: ,LDN does not give everyone noticable results, just like the CRAB drugs do not. I have been on LDN for over three years and my results showed on my MRIs. NO DISEASE PROGRESSION!. That is good enough for me. You might want to read up on CAP at www.cpnhelp.org. >> Hello > > I have ms and started ldn awhile back i seen some minor results and > then nothing so i gave up/ Im ready to try again. How long does it take> to see results in mobility ? any testimonals would be great. I also > have chrones diease and am hoping it will help everything > > > Quote Link to comment Share on other sites More sharing options...
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